GOUT - A practical guide to treatments, services and lifestyle choices

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GOUT - A practical guide to treatments, services and lifestyle choices
TAKING CONTROL OF YOUR

GOUT

A practical guide to treatments,
services and lifestyle choices
GOUT - A practical guide to treatments, services and lifestyle choices
How can this
booklet help you?
This booklet is designed for people
who have gout.

It will help you understand your         The information inside is based
condition so that you can better         on the latest research and
manage your symptoms and                 recommendations, and has been
continue to lead an active and           reviewed by Australian experts in
healthy life. This booklet offers        the field of arthritis to make sure it is
information and practical advice to      current and relevant to your needs.
help you:
• understand what gout is and what       So go ahead —
   it means for you                      take control of your gout!
• understand how medicines can
   help treat gout flares and prevent
   future flares
• work with your healthcare team to
                                         © Copyright Arthritis Australia 2014.
   manage the disease in the short
                                         Reviewed October 2019.
   and long term
• make healthy choices for your          Supported by: educational grant from:
   general health and wellbeing          Menarini Australia Pty Ltd
                                         ABN 116 935 758
• find support and additional
                                         Level 8, 67 Albert Avenue,
   information to cope with the impact
                                         Chatswood NSW 2067
   of gout.

2   Taking control of your Gout
GOUT - A practical guide to treatments, services and lifestyle choices
CONTENTS
UNDERSTANDING GOUT                                                              4
TREATING GOUT                                                                   10
DIET AND LIFESTYLE                                                              16
WHO CAN HELP?                                                                   21
WORKING WITH YOUR GP                                                         22
SEEING A RHEUMATOLOGIST                                                      23
OTHER HEALTH PROFESSIONALS                                                   24
SEEKING SUPPORT                                                              26
GLOSSARY OF TERMS                                                            28
USEFUL RESOURCES                                                             29

MEDICAL AND CONSUMER                  Prof Susanna Proudman,
CONSULTANTS                           Rheumatologist and Medical
                                      Director, Arthritis Australia
Wendy Favorito,
Arthritis Australia Consumer          Assoc Prof Philip Robinson
Director and Board Member             Rheumatologist

Assoc Prof Neil McGill,               Assoc Prof Peter Youssef,
Rheumatologist                        Rheumatologist and Chair of
                                      Arthritis Australia Scientific Advisory
Assoc Prof Julian McNeil              Committee
Rheumatologist and Chair of
Australian Rheumatology Association
Therapeutics Committee

                                                    Taking control of your Gout 3
GOUT - A practical guide to treatments, services and lifestyle choices
Understanding gout

                                           MYTH Gout was thought of as the
                                           ‘disease of kings’, the result of overeating
What is gout?                              and drinking too much alcohol. In fact,
Gout is a painful form of arthritis        gout can affect anyone regardless of
caused by crystals that form in and        what you eat or drink.
around the joints. The crystals result
from high levels of urate in the body.    If urate levels remain high, small,
In gout, the body does not flush out      needle-like urate crystals start
the crystals fast enough.                 forming in and around the joints (See
                                          figure 1 on page 5). These crystals
    What is urate?                        form slowly, over months or even
    Urate is found in all people, in      years, usually without any symptoms.
    small amounts in our blood. Our       A gout flare occurs when the body’s
    bodies make urate every day by        immune system flares the crystals.
    breaking down natural substances      The crystals still remain in the joint(s)
    called purines. Purines are found     after the gout flare settles.
    in our bodies’ cells, as well as
    some of the foods we eat.
                                          What are the symptoms
Our kidneys usually remove any            of gout?
excess urate from our blood into our      Generally, the first symptom of
urine. However, people with gout          gout is severe pain from a gout
have higher-than-normal amounts of        flare. Urate levels can be high for
urate in their bodies. This can be a      months or even years, without
result of:                                any symptoms, before a gout flare
• our bodies producing too much           occurs. A flare of gout usually
  urate and/or                            comes on very quickly, over just a
• the kidneys being unable to get         few hours, and often overnight. The
  rid of it quickly enough (this is the   affected joint(s) becomes inflamed,
  main reason for high urate levels in    causing intense pain, redness,
  more than nine out of ten people        heat and swelling. Often the joint
  with gout).                             is extremely sore to touch – even

4     Taking control of your Gout
GOUT - A practical guide to treatments, services and lifestyle choices
Understanding gout

just the light pressure of the bed        What causes gout?
sheets can be excruciating. It can be
                                          Gout occurs in people with higher-
extremely painful to walk or move
                                          than-normal levels of urate in their
the joint. Without treatment, a gout
                                          body. Some people with gout may
flare usually lasts about one week.
                                          produce too much urate.
Gout commonly affects the big toe,
                                          Most of the time it’s caused by the
although other joints can be affected,
                                          kidneys being unable to get rid of
including the ankles, knees, hands,
                                          excess urate. Some of the known risk
wrists and elbows.
                                          factors for having high urate levels
Urate crystals can also collect           include:
outside of the joints. They form small,
                                          • Genetic factors: High urate levels
solid, white, painless lumps under
                                            can run in families and is one of the
the skin called tophi (See figures 2
                                            most common causes of gout
and 3 on page 6 and 7). The most
common places for tophi to form
are on the tops of the toes, back of
the heels, ears, backs of the fingers
and hands, backs of the knees and
around the elbows.

                 Bone

           Capsule                                      FIGURE 1
          (ligament)
                                                      Cross-section
          Synovium                                     of joint with
                                                      urate crystals
           Cartilage
         Urate crystals
                                                       Cross-section of a
                                                      joint showing urate
                                                       crystals deposited
                                                         in the cartilage

                                                      Taking control of your Gout 5
GOUT - A practical guide to treatments, services and lifestyle choices
Understanding gout

• Being overweight or obese                                              • Drinking too much alcohol may
• Having high cholesterol, high                                            increase urate production and
  blood pressure, Type 2 diabetes or                                       reduce how much is passed out in
  glucose intolerance                                                      urine. Gout flares seem to be more
                                                                           common in beer and spirits drinkers
• Having kidney disease
                                                                           than in people who drink wine.
• Taking certain medications, such                                         Beer and spirits are now thought
  as diuretics (‘water tablets’), can                                      to increase the risk of incidence of
  affect the kidneys’ ability to get rid                                   gout, whilst wine does not.
  of urate.
                                                                         • Consuming large amounts of
                                                                           fructose, a type of sugar, can
You can have high urate levels                                             increase urate levels in the blood.
without having gout flares. However,                                       It is found in high levels in soft
several factors seem to increase the                                       drinks sweetened with corn syrup
risk of gout flares including:                                             processed foods and fruit juices.

                                                                                                    FIGURE 2
                                                                                                 Gout affecting
                                                                                                  the big toe

                                                                                                       Gout most
                                                                                                   commonly affects
                                                                                                    the big toe. The
                                                                                                  joint becomes red,
                                                                                                    hot, swollen and
                                                                                                   extremely painful.

    Photography used with kind permission of Elsevier. © Elsevier 2011. Taken from Rheumatology, fifth edition.
    Edited by Marc C Hochberg, Alan J Silman, Josef S Smolen, Michael E Weinblatt and Michael H Weisman. Graphics used with
    kind permission of Versus Arthritis UK.

6   Taking control of your Gout
GOUT - A practical guide to treatments, services and lifestyle choices
Understanding gout

• Consuming large amounts of                                              Who is affected by gout?
  fructose, a type of sugar, can
  increase urate levels in the blood.                                     Anyone can get gout. However, gout
  It is found in high levels in soft                                      in women before menopause is rare
  drinks sweetened with corn syrup                                        and your doctor may wish to further
  processed foods and fruit juices.                                       investigate other causes for your
                                                                          symptoms.
• Dehydration (not drinking
  enough water)                                                           Can gout cause long-
• Fever (high temperature)                                                term problems?
• ‘Crash diets’ or fasting                                                Once a gout flare settles, your joints
• Having an operation                                                     may feel normal again. However,
• Injury or trauma to the joint.                                          the urate crystals still remain in your
                                                                          joint(s).

                                                                                                      FIGURE 3
                                                                                                 Tophi caused by
                                                                                                 urate collecting
                                                                                                  under the skin

                                                                                                    Urate may collect
                                                                                                      under the skin,
                                                                                                       forming small
                                                                                                      white pimples
                                                                                                    (tophi), but these
                                                                                                       aren’t usually
                                                                                                          painful

Photography used with kind permission of Elsevier. © Elsevier 2011. Taken from Rheumatology, fifth edition. Edited by Marc C Hochberg, Alan J Silman, Josef
S Smolen, Michael E Weinblatt and Michael H Weisman.
Graphics used with kind permission of Versus Arthritis UK.

                                                                                                   Taking control of your Gout 7
GOUT - A practical guide to treatments, services and lifestyle choices
Understanding gout

Another flare may not happen for         How will my doctor
months or even years. The first few      diagnose gout?
flares of gout may not cause any
permanent damage to the joint(s).        Many people with gout do not
However if gout is not managed well      receive the right treatment because
and urate levels remain higher-than-     they have not been diagnosed
normal:                                  properly in the first place.
• The time between flares may get
     shorter, the flares may become      The only way to diagnose gout with
     more severe and more joints         certainty is by your doctor looking
     may be affected                     at samples of your joint fluid under
• Tophi (solid lumps of urate            a microscope. A needle is used to
     crystals) can form, especially on   draw a small amount of fluid from
     the toes, ears, fingers, hands,     one of your affected joints. This
     forearms, knees, and elbows         fluid is then examined under a
     (Refer figures 2 and 3 on pages     microscope to see whether urate
     6 and 7)                            crystals are present. If the crystals
                                         are present, your doctor can confirm
• Permanent damage can occur
                                         that you have gout. If there are no
     to the cartilage and bone due to
                                         crystals in your joint fluid, your doctor
     the formation of tophi inside the
                                         will consider other causes for your
     joint. This can lead to constant
                                         symptoms, such as an infection in
     joint pain and inflammation,
                                         the joint.
     similar to osteoarthritis
• Increased risk of kidney stones
     and other health conditions.        A blood test can measure the
                                         amount of urate in your blood. If
                                         urate levels are higher than normal,
      The good news is, that             this can help support a diagnosis
      although gout is very painful,     of gout. However blood tests can
      it is extremely treatable for      sometimes show normal urate
      most people. Early diagnosis       levels, even during a flare. Blood
      and the right treatment are        tests are most useful for working
      crucial in preventing long-term    out if your symptoms are due to
      complications from gout.           other conditions, or to monitor your
                                         urate levels once you have started
                                         treatment for gout.

8   Taking control of your Gout
GOUT - A practical guide to treatments, services and lifestyle choices
Understanding gout

Your doctor may suggest an
x-ray, however, x-rays are often
normal in the early stages of
                                     Top tip: Be
gout so are not very useful in       certain it’s gout
diagnosing gout. They may show
signs of joint damage if your gout
has not been well managed.

                                          Taking control of your Gout 9
GOUT - A practical guide to treatments, services and lifestyle choices
Treating gout

There are two main parts to              • Corticosteroid injections or
treating gout:                             tablets: This type of medicine is
                                           also very effective in reducing
1. Treatment of the gout flare             gout pain and inflammation.
                                           Corticosteroids can be given
2. Treatment to lower urate levels
                                           as a tablet or as an injection
   and prevent future gout flares.
                                           (needle) into a joint or muscle.
                                           Corticosteroids are usually given
                                           only for a few days as a treatment
Treating a gout flare                      for gout and so do not normally
There are several medicines that           cause any of the serious side
can help reduce the pain and               effects that can occur with long-
Inflammation of a gout flare:              term use of these medicines

• Non-Steroidal Anti-Inflammatory        • Colchicine: This medicine helps
  Drugs (NSAIDs): These medicines          to reduce pain and swelling
  reduce pain and inflammation in          during gout flares, particularly if
  the joints. Some NSAIDs can be           NSAIDs cannot be used for safety
  bought over-the-counter while            reasons. Side effects, such as
  others are only available with a         nausea, vomiting or diarrhoea,
  prescription. Like all medicines,        are common so your doctor will
  NSAIDs can cause side effects so it      usually recommend low dosages
  is important to get advice from your     of this medicine. This typically
  doctor before taking them. Your          involves 1mg (milligram) initially,
  doctor will recommend the lowest         0.5mg one hour later and then no
  dose for the shortest period of time     further colchicine for 24 hours.
  to reduce your risk of developing        Seek advice from your doctor if you
  side effects                             experience any side effects, as he/
                                           she may alter the dose or prescribe
                                           a different medicine.

10   Taking control of your Gout
Treating gout

Treating a gout flare as soon as you       bed cradle to keep the bed sheets
first notice signs of an flare can help    off your foot when sleeping.
reduce the length and severity of the
flare. Work with your doctor to find
the right treatment for you and have       Treatments to lower urate
a supply readily available so you can      levels and prevent flares
start treatment as early as possible if
                                           There are several medicines that
an flare occurs.
                                           lower urate levels in the blood to
Applying ice or cold packs to the          prevent future gout flares. Your
painful joint for ten to fifteen minutes   doctor may suggest taking these
at a time, may also help reduce pain.
                                           medicines if you are having frequent
During a gout flare, you may need
                                           gout flares, your blood tests show
to protect the affected joint. For
                                           high levels of urate, or you develop
example, if your big toe is affected
                                           tophi, kidney stones or signs of
you may need to limit the amount of
                                           permanent joint damage.
walking and standing you do, avoid
certain types of shoes, and create a

                                                       Taking control of your Gout 11
Treating gout

These medicines need to be taken            When first taking these medicines,
every day, even if you are not having       your doctor will monitor your urate
a gout flares. They can be very             levels to work out the right dose for
effective in lowering your urate level      you. It may take several months of
and controlling gout, if: You continue      gradually increasing the dose to find
taking the medicine.                        the right amount. Taking sudden, high
Your doctor may recommend you take          doses of these medicines can actually
the medicine forever                        cause a gout flare. Your doctor will
                                            try bringing your urate levels down
• You do not miss doses
                                            slowly, by starting with a low dose
• You take the full, correct dose.          of these medicines and gradually
Each of these types of medicines            increasing the dose, as this method is
work in slightly different ways and         much less likely to trigger an flare and
can produce varying side effects.           can reduce the risk of side effects.
Examples of these medicines include:        Your doctor may also suggest taking
                                            other medicines, such as a very low
                                            dose of colchicine, to protect against
• Allopurinol, which decreases the
                                            a gout flare during the first few
  body’s production of urate
                                            months of starting these medicines.
• Febuxostat, which also decreases          Continue taking these medicines even
  the production of urate                   during a gout flare.
• Probenicid, which increases the
  kidneys’ ability to remove urate into
  the urine
• Other medicines may also be
                                             Top tip: Ask your
  available through specialist doctors       doctor about
  if your urate levels are not controlled    medicines to lower
  with the medicines above.
                                             your urate levels
                                             for long- term gout
                                             management

12   Taking control of your Gout
Treating gout

  Know your target urate level
  The goal of treatments for gout is to lower urate levels to a level that
  prevents gout flares and other long-term problems. Your urate levels
  can be checked with a blood test. For most people with gout, the target
  urate level (serum urate) level you are aiming to achieve is

   Less than 0.36 millimoles per litre (
14   Taking control of your Gout
Treating gout

Call the National Arthritis Infoline     You may feel concerned that your
on T: 1800 011 041 for copies or visit   doctor or other members of your
www.rheumatology.org.au or               healthcare team will disapprove
www.arthritisaustralia.com.au            of complementary therapies.
                                         However, it is very important to keep
                                         your healthcare team informed,
Can natural or alternative               even if they do not approve. Your
therapies help?                          healthcare team, particularly your
                                         doctor and pharmacist, can’t give
There are many promises made for         you the best professional advice
non-medical ‘cures’ or treatments        without knowing all the treatments
to ease gout – but there’s very little   you are using. This includes vitamin
proof that any of these work and         supplements, herbal medicines and
further research is needed. For          other therapies.
example, there is very little evidence
that supplements such as celery
seed or garlic are helpful in reducing   See Arthritis Australia’s
the symptoms of gout.                    Complementary therapies
                                         information sheet for more about the
                                         safe use of these types of treatments
Because herbal, homeopathic,             at www.arthritisaustralia.com.au
ayurvedic or Chinese medicines may
affect the treatments prescribed
by your doctor, please talk to your
GP and specialist about other
treatments you are thinking about
using.

                                                   Taking control of your Gout 15
Diet and lifestyle

                                   There are many myths and claims
                                   about diets and other lifestyle
                                   changes to prevent gout. Research
                                   has shown certain factors are more
                                   common in people with gout. For
                                   example, people with gout may tend
                                   to eat similar types of foods or drinks.
                                   However it hasn’t been proven that
                                   any of these factors actually cause
                                   someone to develop gout. Although
                                   there is little scientific proof about
                                   the usefulness of many of these
                                   lifestyle changes to prevent gout,
                                   there can be definite benefits for
                                   your general health and wellbeing.

                                   Purine-rich diet
                                   Several studies have shown diet may
                                   be a contributor to the onset of gout,
                                   especially purine-rich foods.
                                   Some of the purine-rich foods
                                   commonly linked to gout flares
                                   include:
                                   • meat – particularly red meat and
                                     offal, such as liver, kidneys and
                                     heart
                                   • seafood – particularly shellfish,
                                     scallops, mussels, herring,
                                     mackerel, sardines and anchovies
                                   • foods containing yeast – such as
                                     Vegemite™ and beer.

16   Taking control of your Gout
Diet and lifestyle

These foods are often reported          For example, a number of vegetables
to trigger gout flares as purines       (asparagus, mushrooms, cauliflower
are broken down into urate by our       and spinach) are rich in purines but
bodies. However, there is very little   do not appear to trigger gout flares.
good quality, scientific evidence to    Dairy foods (which can contain
show that eating these particular       purines) actually appear to lower our
foods will cause gout. Additionally,    risk of gout.
there is little proof that avoiding
these foods can reduce gout flares.
                                        Completely cutting purine-rich foods
In fact, research shows that not all
                                        from your diet may cause you to
foods rich in purine are linked to
                                        miss out on important nutrients and
gout.
                                        vitamins.

                                                  Taking control of your Gout 17
Diet and lifestyle

For most people with gout, a healthy       provide general health benefits and
balanced diet is the best way to           should not be completely avoided
manage gout, alongside medicines           without advice from your doctor or
to reduce urate levels.                    dietitian.
If you notice certain foods trigger
flares of gout, try eating less of those
particular foods. Most people taking
medicines to reduce urate levels
find they can still eat purine-rich
foods without flares of gout by being
careful with the amount they eat.

Fructose
Fructose is a sugar that is found
naturally in fruits and vegetables.
High fructose corn syrup - a mixture
of glucose and fructose - is often
used as a sweetener in food
products such as bread, cereal
and soft drinks. An American study
found that men who drank five to
six servings of fructose-sweetened
soft drinks per week were more
likely to have gout. However, there
is no research showing that fructose
actually causes gout or that other
fructose-rich foods can be linked
to gout. Eating less foods artificially
sweetened with high fructose corn
syrup will be beneficial for your
overall health. Fruit and vegetables

18   Taking control of your Gout
Diet and lifestyle

Weight loss                               Alcohol
An obese person is four times more        Drinking large amounts of alcohol
likely to develop gout than someone       may increase your risk of a gout
with a healthy body weight. If you are    flare. Alcohol reduces the ability of
overweight, gradual weight loss can       the kidneys to remove urate from the
help lower urate levels and reduce        blood. Some types of alcohol, such
the risk of gout flares. However,         as beer, are rich in purines, which
it is important to avoid fasting or       can also lead to increased urate
‘crash’ dieting, where you go without     levels. However, many people with
adequate food for long periods and        gout can avoid gout flares without
lose weight rapidly.                      completely cutting out alcohol. Try
                                          reducing the amount of alcohol
                                          you drink and avoid binge drinking
This type of dieting can actually
                                          (drinking a lot of alcohol at one
increase uratelevels and trigger
                                          time). Gout flares are more common
a gout flare. A combination of
                                          in beer and spirits drinkers than in
balanced healthy eating and
                                          people who drink wine.
regular physical activity is the best
way to lose weight. The Australian        However there is no scientific proof
Government provides advice about          that only these types of alcoholic
the amount and kinds of foods             drinks lead to gout flares.
that we need to eat for health            Talk to your doctor for advice
and wellbeing including                   about your alcohol intake or see
Australian Dietary Guidelines at          www.health.gov.au (Health Topic:
www.eatforhealth.gov.au. For help         Alcohol) for Australian Government
with weight loss, you can ask your        Guidelines on recommended alcohol
GP to refer you to an Accredited          intake.
Practicing Dietitian or find one
directly via the Dietitians Association
of Australia - call 1800 812 942 or
visit www.daa.asn.au

                                                    Taking control of your Gout 19
Diet and lifestyle

Other healthy lifestyle choices
• Drink enough water: Dehydration
                                         Top tip: A healthy
  (not drinking enough water)            diet and lifestyle
  may be a risk factor for gout          can help you
  although this is not well proven
  in research. Drinking 1 – 1.5 litres
                                         manage your gout
  of fluids a day is recommended
  for general health benefits. If you
  are taking diuretics (also known
  as ‘water pills’ or tablets which
  help the body get rid of water) or
  have heart or kidney problems,
  follow your doctor’s advice about
  how much water you should be
  drinking.
• Vitamin C: Vitamin C appears
  to reduce the risk of developing
  gout although it does not seem
  to reduce urate levels in people
  already with gout. Make sure you
  eat a healthy balanced diet with
  lots of fresh fruit and vegetables.
• Stay active and try to be physically
  active for at least 30 minutes a
  day, most days of the week.
• Quit smoking. For more
  information and advice on quitting
  smoking, contact the Quitline on
  13 78 48, or visit the Department of
  Health www.health.gov.au
  (Health Topics: Smoking

20   Taking control of your Gout
Who can help?
The good news is that gout can be        Understand how your treatments
effectively managed - and a team         will help and how to get the most
approach is the best way to combat       out of them. Your healthcare team
it. This involves you and your           can address your concerns and
healthcare professionals together        provide practical advice. Contact
with support from family, friends and    your State/Territory Arthritis Office
community organisations.                 on 1800 011 041. They can provide
                                         information and introduce you to
                                         support groups, exercise programs
How can you help?
                                         and other arthritis management
Remember, you are the most               services. See Arthritis Australia’s
important member of your                 range of information sheets at
healthcare team. By understanding        www.arthritisaustralia.com.au
your condition and how to stay on
top of it, you can carry on living a
normal life.
Work closely with your healthcare
team to develop a management
plan for your gout. This will include
medicines to treat a gout flare and
possibly medicines to lower urate
levels. This will help you be actively
involved in your care and decision-
making about treatments. With the
right treatment, gout doesn’t have to
get in the way of working, travelling,
relationships, hobbies and leisure
activities.

                                                    Taking control of your Gout 21
Working with
your GP

How can my GP help?                      When should I see my GP?
Your GP is an important partner in       • You should visit your GP when you
managing your gout. They can also          have your first gout flare. Your GP
help you to access other specialists,      can prescribe the right medicines
health professionals and services.         to treat the initial gout attack and
Your GP will most likely make the          advise about medicines that lower
initial diagnosis of gout and may          urate levels to prevent future flares.
refer you to a rheumatologist            • Your GP should also regularly
(arthritis specialist) if required.        monitor your urate levels to make
Once your gout is fully assessed,          sure they are staying below the
your GP or specialist may prepare          target levels described on page 13.
a care plan to manage the services         This may take several visits when
and treatments you require. They           you are first taking medicines to
will prescribe medicines and other         lower your urate levels and then
lifestyle changes to improve your          may require a blood test every six
symptoms and will also see you             months.
regularly to monitor your urate levels   • Visit your GP immediately if
and check your treatment is still          you notice your gout flares are
keeping your levels to the target          becoming more severe, more
level.                                     frequent or affecting more joints.
Your GP may employ a practice
nurse to coordinate your care and
access to services.

How do I find a GP?                        Top tip: Work with
If you don’t have a regular GP, find
one who can support you. Speak to
                                           your doctor to develop
your local practice or medical centre.     a management
                                           plan for your gout

22   Taking control of your Gout
Seeing a
rheumatologist

How can a rheumatologist help?          How do I find a rheumatologist?
Rheumatologists are doctors who         • Your GP may recommend a
specialise in problems of the joints      rheumatologist
such as gout. Your GP may refer you     • You will need a referral from your
to a rheumatologist if:                   GP to see a rheumatologist
• it is unclear whether you have gout     - they will then stay in touch to
  or if your symptoms are caused by       coordinate your care
  another condition                     • You can also contact the
• your gout flares are not prevented      Australian Rheumatology
  with medicines to lower your            Association on (02) 9252 2356 or
  urate levels or are becoming more       visit www.rheumatology.org.au to
  severe                                  find a rheumatologist (but you will
• you require an injection into your      still need a referral from your GP).
  joint
                                         When should I see my
• you and your GP wish to seek
                                         rheumatologist?
  advice about newer treatments.
                                        • Your rheumatologist may initially
• While your GP may have
                                          want to see you every few weeks
  prescribed some medicines to
                                          to work out how well your urate
  treat and prevent gout flares,
                                          levels are responding to treatment
  the rheumatologist might also
  recommend other medications to        • Once the treatment is working
  control your symptoms.                  well to control your gout, you
                                          may only need to return to the
                                          rheumatologist if your gout flares or
                                          other symptoms start to worsen.

                                                   Taking control of your Gout 23
Other health
professionals

Your GP or rheumatologist may also      inserts or advice on footwear to
refer you to other therapists for       reduce pain in your toes and/or feet.
further advice.                         See the section on Seeking support
                                        on page 26 for information on health
How can other health                    professionals who can help you to
professionals help?                     cope with the emotions you may be
A dietitian can give you tailored       feeling.
advice about weight loss, if you are    A pharmacist can give you
overweight, and provide advice          information about your medicines,
about a healthy, balanced diet to       side effects and interactions, as
improve your general wellbeing.         well as helping you to manage your
A physiotherapist (physio) can          medicines (eg. checking dosage,
show you exercises to do at home        managing repeats).
to strengthen and stretch the
muscles in your joints and improve      How do I find a health
your function. They will also show      professional?
you pain relief techniques to use       • Your GP or rheumatologist can
at home, including the use of heat        provide a referral, or you can
packs and walking sticks, to keep         contact a private therapist directly
your joints as flexible and pain-free     (see Useful resources on page 29).
as possible.
                                        • If your GP refers you to a health
An exercise physiologist can give         professional as part of a care
you advice about exercise, including      plan, you may be able to have
how to get started safely and the         five sessions per year funded by
best type of exercise for your health     Medicare. Ask your GP for more
and ability. If you need to lose          information.
weight, they can also design an
                                        • Most health professionals are
exercise program to work alongside
                                          available in the public health
a healthy diet.
                                          system (such as at a community
A podiatrist can help take care of        health centre or public hospital).
your feet, perhaps by providing shoe      There is often a waiting list and you

24   Taking control of your Gout
Other health professionals

 will usually need a referral from     When should I see a
 your GP. Their services are usually   health professional?
 free or low cost.
                                       • You may be referred to one or
                                         more therapists soon after your
                                         diagnosis of gout by your GP or
                                         rheumatologist.
                                       • Ask your GP or rheumatologist
                                         about seeing a health professional
                                         if you notice your physical
                                         condition or abilities change.

                                                 Taking control of your Gout 25
Seeking support

Why me?                                   coping, or may prescribe medicines
                                          if you are especially worried or
It’s perfectly normal to wonder why       depressed. They may also refer you
you have developed gout and to            to a counsellor or psychologist, who
feel angry, worried, frightened or        can talk to you about your worries,
confused about it. By taking control      feelings and moods, then suggest
of your gout and working with your        practical ways to work through them.
healthcare team, you can approach         If you want to contact a psychologist
the disease with a positive attitude.     directly, call the Australian
However, sometimes the condition          Psychological Society on 1800 333
can get you down, especially if           497 or visit www.psychology.org.au
repeated gout flares are affecting        beyondblue provides information
your everyday life. It may also feel as   and advice about depression,
though people around you, even            anxiety, available treatments
close friends or family, don’t            and where to get help. Visit
understand what you’re going              www.beyondblue.org.au
through.                                  or call 1300 22 4636.
Who can help?
                                          Lifeline provides a 24hr confidential
There are many people who can
                                          telephone crisis support service
help you deal with the emotional
                                          for anyone across Australia
side of gout. Your first step is to try
                                          experiencing a personal crisis.
to talk honestly with your partner,
                                          Call 13 11 14.
parents or children about how you
feel. Give them a chance to talk too –    What about information
they might have worries or feel that
they don’t know enough about your
                                          from websites?
disease and how it is affecting you.      The web can be a useful source of
Visit your GP if you are worried that     information and support. However,
unwanted feelings are too strong or       not everyone who puts information
have been there for a long time. Your     on the web is a qualified health
GP may be able to suggest ways of         practitioner.

26   Taking control of your Gout
Seeking support

Some organisations make unrealistic     The Australian Government’s
promises in order to sell their         Healthdirect www.healthdirect.gov.au
products. Treatment options and         is an excellent starting point for
practices from overseas may also not    web searches, as every site that
be relevant or approved in Australia.   Healthdirect links to has been
Always check information from the       checked for quality and accuracy
web with a trusted member of your       of information.
healthcare team.

                                                  Taking control of your Gout 27
Glossary of terms

Arthritis are-thry-tiss                     Rheumatologist roo-ma-tol-o-jist
A name for over 100 different conditions    A doctor who is a specialist in treating
that affect the joints.                     problems of the joints such as gout.
Corticosteroid core-tick-o-ster- oyd        Tophi toe-fi
A type of medicine that is very effective   Hard lumps of urate crystals that form
in reducing inflammation in the joints.     beneath the skin on the ears, fingers,
                                            hands, forearms, knees, and elbows.
Dietitian die-et-ish-un
A health professional who can help you      Uric acid you-rick a-sid
with a healthy diet and weight loss.        A normal waste product found in the
                                            blood. It is made as our bodies break
Inflammation in-fla-may-shun                down substances called purines.
The body’s response to damage or
infection. Inflammation can cause pain,     Urate you-rayt
swelling, warmth, redness and difficulty    Urate is another name for Uric Acid.
moving the joint.                           A normal waste product found in the
                                            blood. It is made as our bodies break
NSAIDs en-sayds                             down substances called purines.
A group of medicines known as non-
steroidal anti-inflammatory drugs. These
can reduce inflammation and pain.
Purines pyu-reens
Natural substances found in the body’s
cells and many different foods.

28   Taking control of your Gout
Useful resources

Australian resources                     To find a dietitian, contact the
                                         Dietitians Association of Australia
For access to quality online             www.daa.asn.au
information about gout,                  Ph: 1800 812 942
start at Healthdirect
www.healthdirect.gov.au                  To find a psychologist, contact the
                                         Australian Psychological Society
For advice on healthy eating and         www.psychology.org.au
appropriate exercise, visit the          Ph: 1800 333 497
Department of Health
www.health.gov.au
                                         International resources
To find a specialist, contact the
                                         The patient area on the website
Australian Rheumatology Association
                                         of the American College of
www.rheumatology.org.au
                                         Rheumatology contains many
Ph: (02) 9252 2356
                                         useful resources https://www.
To find a physiotherapist, contact the   rheumatology.org/I-Am-A/Patient-
Australian Physiotherapy Association     Caregiver
https://.choose.physio
                                         The Gout and Uric Acid Education
To find a podiatrist, contact the        Society (US) has information for both
Australian Podiatry Association          medical professionals and people
https://www.podiatry.org.au              with gout at www.gouteducation.org
Ph: (03) 9416 3111
                                         Versus Arthritis (UK) also provides
                                         high quality information for people
To find an exercise physiologist,        with gout www.versus.org
contact Exercise and Sports Science
Australia www.essa.org.au
Ph: (07) 3171 3335                       Please keep in mind that some
                                         issues and treatments from overseas
                                         may not be relevant in Australia.

                                                   Taking control of your Gout 29
Notes

30   Taking control of your Gout
My contact details
My name:
Telephone:
My GP:
Name:
Telephone:
My specialist:
Name:
Telephone:
My support team:

Name:
Telephone:
Name:
Telephone:

My medicines
 Name              Dosage   Instructions

                            Taking control of your Gout 31
ARTHRITIS AUSTRALIA
Arthritis Australia is a not-for-profit
organisation that provides support
and information for all Australians
affected by arthritis.
Contact your State/Territory Arthritis
Office to find out about the range of
awareness and education programs,
support services and resources
available.

 i
ARTHRITIS ACT                             ARTHRITIS TASMANIA
Building 18, 170 Haydon Drive             19A Main Road, Moonah TAS 7009
Bruce ACT 2617                            PO Box 780 Moonah TAS 7009
PO Box 908 Belconnen ACT 2616
                                          ARTHRITIS WESTERN AUSTRALIA
ARTHRITIS NEW SOUTH WALES                 17 Lemnos Street
Suite 1, 15/32 Delhi Road                 Shenton Park WA 6008
North Ryde NSW 2113                       PO Box 34 Wembley WA 6913
Locked Bag 2216 North Ryde NSW 1670

ARTHRITIS NORTHERN TERRITORY
Shop 18, Rapid Creek Business Village
48 Trower Road, Millner NT 0810
PO Box 452 Nightcliff NT 0814

ARTHRITIS QUEENSLAND                      ARTHRITIS AUSTRALIA
WOTSO Chermside, Level 2 Westfield
                                          Level 2, 255 Broadway
Chermside, Chermside QLD 4032
PO Box 2121 Lutwyche QLD 4030             Glebe NSW 2037
                                          PO Box 550 Broadway NSW 2007
ARTHRITIS SOUTH AUSTRALIA 111A            Phone: 02 9518 4441
Welland Avenue                            Email: info@arthritisaustralia.com.au
Welland SA 5007
                                          ISBN: 978-0-9805024-0-4

Arthritis Infoline: 1800 011 041 www.arthritisaustralia.com.au
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