Let's Connect - Cancer Society NZ

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Let's Connect - Cancer Society NZ
Let’s                     Connect...
              ... with the Cancer Society and its services
                                                                                                    3rd Quarter 2018
Our mission: Improving community well-being by reducing
the incidence and impact of cancer.

This year I will celebrate 2 significant milestones-
I’m turning 40 and I will be 5 years cancer free!
In January 2013, I developed a UTI          was left of my urinary system.
(urinary tract infection). I had been
                                            I woke up breathing just 3 breathes
getting them on and off for about a
                                            a minute with a bowel that refused
year and I felt that the multiple courses
                                            to work and felt like I was truly going
of antibiotics my GP had been putting
                                            to die. I spent a month and a half in
me on weren’t working. I sought the
                                            hospital and with my ovaries gone I
advice of a specialist, who prescribed a
                                            was thrown into instant menopause-
3-month course of stronger antibiotics,
                                            the combination of hot flushes, tears        the way we look externally, certainly
in a hope to destroy any residual bugs.
                                            and learning how to pee again was a          doesn’t define us.
This was done after I had a bladder
                                            nightmare.
scan, which came back clear of anything                                                  Cancer in so many ways has been a
suspicious.                                 A month later, my neobladder still           blessing...It has motivated me to take
                                            wasn’t working. I was readmitted into        care of my body, and never take it for
About 2 months into that course I
                                            hospital several times requiring blood       granted. My sister and I started our
noticed a tiny blood clot in my urine.
                                            transfusions and antibiotics. I endured 6    business, ‘Show Pony’ and I have a blog-
I was sent directly to hospital and
                                            months of complete incontinence and          carriewarrie.wordpress.com through
cutting a very long and emotional story
                                            rocked adult nappies for that time.          which I hope to be able to reach out to
short- our lives were flipped and I was
                                                                                         anyone else having to face a change in
diagnosed with aggressive, muscle           Finally, feeling like I was at rock bottom
                                                                                         the body they walk round in.
invasive bladder cancer.                    I went back to see one of my amazing
                                            specialists. My body has developed           I see cancer now as my guru, it reminds
Bladder cancer is known as being
                                            a ‘vesico/vaginal’ fistula (in layman’s      me daily how fragile our wee worlds are
the cancer of overweight, smoking,
                                            terms- my amazing body had created a         and how precious our time here is.
60years+ males and at 34 years old and
                                            tunnel from my stomach cavity to the
healthy- I just didn’t fit the bill. My                                                  Right from the get go, The Cancer
                                            outside world to drain the urine that
cancer (or Mr. Stinky cancer as he is not                                                Society were there to support us. They
                                            would otherwise have pooled inside me
so fondly known as round here) just                                                      checked in with us weekly to see if we
                                            and made me septic!)
didn’t seem to get that memo.                                                            needed anything- information, food,
                                            So, back to the operating theatre for        transport, help of any kind, nothing was
Two tumours were found growing
                                            me… It was discovered, to the horror         ever a problem. Their generosity made
into the muscle wall of my bladder.
                                            of my surgeons that my naughty               our journey so much more bearable.
They were aggressive, so an aggressive
                                            neobladder had magically ‘disappeared’.
approach was necessary. I underwent                                                      Being diagnosed with cancer is a very
                                            Bladder transplants aren’t yet viable and
3 months of chemotherapy to try                                                          isolating, horrific thing and dealing with
                                            so I woke up in recovery to a permanent
to stabilize the cancer and to attack                                                    the wonderful people at the Cancer
                                            medical device (‘urostomy’) adhered to
any microscopic cells that may have                                                      Society helped us to make sense of that
                                            the outside of my stomach.
metastasized.                                                                            crazy scary time of our lives.
                                            The thought of this outcome, at the
After the chemo with my hair falling                                                     The statistics are real - 60 people every
                                            beginning of it all was my biggest
out in clumps, school drop offs and                                                      day in New Zealand will be diagnosed
                                            nightmare but it turns out that death
midnight searches on the internet                                                        with cancer and none of us are immune.
                                            definitely beats that hands down!
for any new options out there, I had a                                                   Please, please, please, give generously
massive ‘radical cystectomy surgery’        I am grateful every day for my bag.          on Daffodil Day.
and ‘radical hysterectomy’ to remove        Don’t get me wrong- I HATE it but the
by entire diseased bladder, my ovaries,     alternative was never an option for me.
uterus, cervix, the top of my vagina,       We have three young, impressionable
parts of my bowel and lymph nodes to        children, so I WILL rock a bikini despite
my heart. A small part of my bowel was      the new body I have been left with and
then turned into a new urinary reservoir    hopefully that will instil in them the
(called a neobladder), which the
amazing surgeons re-plumbed to what
                                            value of a healthy body confidence- that     FRIDAY 31 AUGUST
Let's Connect - Cancer Society NZ
INTERNATIONAL RECOGNITION
                                                During the year, the Cancer Society         in New Zealand, and contributes
                                                was delighted to learn that Helen           internationally as the Vice Chair
                                                Morrin, Curator of the Cancer Society       of a Science Policy Committee
                                                Tissue Bank, had received international     focused on emerging global policies
                                                recognition with the ISBER Special          and regulations that affect tissue
                                                Services Award 2018.                                         banking and human
   Cancer Society                               The Cancer Society
                                                                                                             specimen research.
   Selwyn Centre                                Tissue Bank at
                                                Christchurch Hospital is
                                                                                                             This committee
                                                                                                             is part of the
The Division’s Strategic Plan clearly           our very own initiative
                                                                                                             International Society
acknowledges the need to expand                                                                              for the Biological
                                                for supporting cancer
our regional presence so that we                                                                             and Environmental
                                                research and has been
are visible, reliable and located in                                                                         Repositories (ISBER)
                                                the leading cancer
the community where we are most                                                                              with members from
needed. The Selwyn District has                 bank in New Zealand.
                                                                                                             43 countries. ISBER
been identified as a key growth area            More than 11,000
                                                                                                             recently presented
requiring a Cancer Society presence             patients have donated
                                                                                                             Helen with its Special
and, after a comprehensive search               their samples since
                                                                                                             Service Award for
of the district, our new centre has             it opened (1996) and
                                                                                                             members who
opened in Rolleston.                            over 9,700 samples of
                                                                                                             have demonstrated
                                                blood and tissue have
The new centre will complement the              been used in numerous studies. Studies
                                                                                            exceptional leadership to further the
work already undertaken by Cancer               can range from skin, kidney, prostate,
                                                                                            mission and goals of the society and
Society volunteers throughout the                                                           significant, long-standing contributions
                                                gynaecological and breast cancers to
area.                                                                                       to the society.
                                                rare pancreatic tumours. They range
The Selwyn Centre is on the corner              from looking at what bacteria and           Helen considers this recognition to be
of Tennyson and Kidman Streets,                 other microbes are present in bowel         a joint award with the Canterbury West
Rolleston. The centre is open Monday            cancers, to sample collection for the first Coast Division of the Cancer Society,
to Friday between 9am and 4pm and               clinical trial to assess whether high dose due to their ongoing financial support,
visitors are welcome anytime.                   vitamin C administered to patients with which has allowed her to participate in
Cancer Society Selwyn Centre                    bowel cancer produces changes in the        this international society and serve on
6B Kidman Street                                tumour tissue.                              their committees.
Rolleston 7614                                  Helen Morrin has curated the Cancer
Ph 03 925 9708                                  Society Tissue Bank for more than
selwyn.centre@cancercwc.org.nz                  18 years and shares her experience
                                                and knowledge with other banks

Tranz Alpine Scooter Safari
Not for the faint hearted, The Scooter         of 250 scooters take part with this years’
Safari is an endurance ride, coast to coast,   ride raising a staggering $330,000. In the 6
Christchurch to Hokitika, a journey of over    biennial rides since it’s inception, the Scooter
250kms to raise funds for the New Zealand      Safari has raised over $1.1 Million for the
Cancer Society’s Canterbury/West Coast         Cancer Society. These funds help to to ensure
Division.                                      that the Cancer Society’s free services are
                                               available and accessible in our community.
Created in 2009, the event has snowballed
in popularity and has fast become a bucket     The success of the Scooter Safari is due to
list event for young and old. A capped total   the commitment and superb organisational           are dotted and the t’s crossed to ensure that
                                               skills of Jayne and Mike Rattray, who we can’t     the riders and participants have received all
                                               thank enough. They make sure that all the i’s      the information and instructions in the lead-
                                                                                                  up to the event, are motivated to fundraise
                                                                                                  and have an enjoyable and memorable
                                                                                                  experience on the day.
                                                                                                  Our special thanks are extended to the
                                                                                                  everyone who is involved with the event
                                                                                                  including the riders and all their supporters,
                                                                                                  the sponsors and volunteers. This event could
                                                                                                  not have happened without your support.
                                                                                                  If you are keen to know more about the
                                                                                                  Scooter Safari, please visit
                                                                                                  www.scootersafari.co.nz

                                                                                                  Photo credit: Lloyd Greenfield, Katipo Media
Let's Connect - Cancer Society NZ
Harcourts Cancer Society Ball
                                          The 29th annual Cancer Society ball            people come for the right reasons.
 Bags produced                            was held on a cold wintery night in
                                                                                         Our special thanks goes to

   with love
                                          June. The fundraising on the evening
                                                                                         Harcourts, and all of our sponsors
                                          from the silent auction, the live
                                                                                         whose support ensures the event
Children from ten Selwyn schools          auction and golden ticket collectively
                                                                                         can take place, the businesses and
have been busy decorating bags            raised $167,000.00.
                                                                                         people who generously donate
for the Oncology Department               Chief Executive, Elizabeth                     auction items, the people who
at Christchurch Hospital. The             Chesterman, says the ball offers               purchase tickets and generously
bags are used by patients to store        a wonderful and glamorous                      bid in the auction. This wonderful
their belongings whilst having            opportunity for our caring community           support ensures the event is
treatment and we know that                to come together and contribute for            successful and continues to be a
they will simply love the bright          the greater good of people in need.            special occasion on Canterbury’s
designs that the children have            It’s lovely to be at an event where            social calendar.
created. At times treatment can
be very hard but we hope that the
bags and the children’s messages                                                                            HEAD AND N
will bring a smile to all those in
the Oncology Department.               HEAD AND NECK                                                          C ANCERS
                                                                                                            KNOW THE SI
                                                                                                                       ECK

                                                                                                                             GNS:
                                                                                                               • A lump in yo
                                       World Head and Neck Cancer Day                these groups                              ur neck
                                                                                                              • A change in
                                       takes place every year on the 27th            that support             • A growth in
                                                                                                                              your voice

   Garden Tour
                                                                                                                              your mouth
                                       of July. The Cancer Society alongside         our journey             • Difficulty sw
                                                                                                                              allowing
                                       the Head and Neck Service at the              through Cancer          • A sore that
                                                                                                                             do
                                                                                                                on your lip, ea es not heal
                                       CDHB, have been working together to           Treatment and                             r or face
Cancer Society volunteers in the       promote awareness of the early signs          recovery.”
                                                                                                           If any of these
                                                                                                                           signs pe
                                                                                                                   3 or more weekrsist for
Selwyn District are busy organising    of head and neck cancer. As part of the                  Dave             Please see yo
                                                                                                                                    s.
                                                                                                                               ur G.
a fundraising garden tour in                                                                                         immediately. P
                                       awareness campaign the Cancer Society
conjunction with the Lincoln Rotary                                                  I want to thank        Call the Canc
                                       Amberley volunteers have painstakingly                              Helpline on 08er Society
Club. Ten gardens will be open to                                                    you for another                      00 226 237
                                       sewn hundreds of head and neck
visit in Broadfields and Prebbleton                                                  wonderful
                                       cancer ribbons.
on Sunday 21 October. Refreshments                                                   meeting, we are incredibly lucky
will also be available for purchase    Pene Clifford, coordinator of the Cancer      to have the Cancer Society organising
during the day.                        Society Christchurch head and neck            and promoting our Head and Neck
                                       cancer support group says people find         wellness group, as well as the support from
Tickets are $25.00 per person and      great benefit in the group.                   Christchurch Hospital ENT department.
are available for purchase from                                                      Many patients in New Zealand are isolated
the Cancer Society Selwyn Centre       “Julie and I would like to express our
                                                                                     and on their own with some centres
in Rolleston, the Cancer Society       gratitude for the head and neck cancer
                                                                                     having no or limited meetings. Other Head
Centre in Christchurch, or Harcourts   group meetings that the Cancer Society
                                                                                     and Neck groups are in awe of the topics
Four Seasons Reality Ltd. Hornby,      run. We have found them extremely
                                                                                     and speakers organised for us. I think
                                       helpful on my journey in recovering from
Rolleston and Lincoln                                                                it’s important for me to pass on the high
                                       tonsil cancer. The Cooking class run each
For further information please email                                                 regard Christchurch is held within with our
                                       year has been especially helpful, as I have
selwyn.centre@cancercwc.org.nz                                                       Head and Neck cancer community.
                                       swallowing issues due to my Radiation
or phone 03 925 9708                                                                                                        Cosette
                                       Treatment. All the different subjects and
                                       people that have been involved in these       If you would like more information
Sunday 21 October 2018
                                       meetings have been inspirational and          about this group, please contact the
Time: 10 – 4pm
                                       really informative making my recovery all     Cancer Society Christchurch Centre or
Tickets $25.00
                                       that better. We feel very fortunate to have   email groups@cancercwc.org.nz
Let's Connect - Cancer Society NZ
With special                                 We were saddened to hear this week of the passing of a
                                                      longstanding and respected Cancer Society Greymouth
                                                      volunteer, Joy McGirr. Up until her death at the age of
           thanks to ...                              96, Joy was an active Cancer Society volunteer giving
                                                      more than 30 years’ service to the Cancer Society
     • Z’s Good in Hood promotion with                supporting local patients and families with a cancer
       donations from Z Geraldine - $1480.00;         diagnosis.
       Z Curletts Rd Christchurch - $1360.00
       and Z Tinwald - $1100.00                       West Coast Centre Manager, Jenny Kenning says,
     • Cust School for their mufti day                One of the activities Joy never missed was Daffodil Day.
       donation of $251.70                            Most recently she has been in charge of the Birch when we
     • The people who have recently shaved            bunched the corporate flowers at the Centre – she kept a very close
       their hair, raising donations for the          eye on how much Birch went into each bunch!! We’ll miss her this year.
       Cancer Society; Nigel Doake $848.45;
       Brody Pinnell $267.75, Fran Cowie
       $424.51 and Meg Jones $1500.00
     • The Christchurch Home Brewers
                                                                                          GOLFING SUCCESS
       Association for their donation of                                                  The Cancer Society Malvern Group were delighted to
       $405.00 which was raised at their                                                  be the recipients of the fundraising from the Annual
       JaseComp event                                                                     Malvern Lions Golf Tournament. Elaine Guy, Chairperson
     • The Drury Theatre Organ Charitable                                                 Cancer Society Malvern Group was delighted to receive
       Trust for their fundraising donation of                                            a cheque for $19,000.00 which she said will go a long
       $1000.00 raised from 2 concerts earlier                                            way in supporting people in their growing community.
       this year
                                                                                       Cancer Society volunteers had the task of providing
     • The team at Statistics New Zealand
                                                                                       morning and afternoon tea for the 160 players and
       for their donation of $516.90                  Elaine Guy, Cancer Society       supporters, along with sourcing 120 prizes for the raffles.
     •   Krystie Woodyear-Smith who organised         Malvern Group and Tony Mitchell, Elaine acknowledged the hard work and efforts of all the
         a “Turn May Grey” event, raising $220.00     President Malvern Lions
                                                                                       volunteers and the incredible success of the event.
     • The team at Code Blue who raised
       $1500.00 at their recent national
       conference
     • The volunteers at Mike Pero’s                                           Heartfelt thanks
       Motorcycle Gallery for their fundraising       We recently received a special thank             Sandy has recently returned to Scotland
       of $1000.00 which was raised at a bbq at       you all the way from Scotland!                   and has sent back his special thanks and
       the gallery along with a donation from                                                          immense gratitude for all the Cancer
       the Mike Pero Foundation                       Sandy a lovely Scotsman recently spent
                                                                                                       Society did for him when he was in New
     • The Student Event Team at ARA who              a prolonged period in the Oncology
                                                                                                       Zealand. He especially wanted to say
       raised donations of $630.00 from a             Ward at Christchurch Hospital unable
                                                                                                       thank you to the special volunteers who
       bake sale in memory of a student               to return home to Scotland. Social
                                                                                                       came into his life, and added that he was
     • The Christchurch Greyhound Racing              workers at Christchurch Hospital
                                                                                                       so touched that one of the volunteers
       Club who auctioned a Crusaders Rugby           contacted the Cancer Society to ask if a
                                                                                                       went to the airport to wave him off when
       Jersey, the proceeds of $650.00 were           volunteer could pop in and visit Sandy
                                                                                                       he left for Scotland.
       donated to the Cancer Society                  and if possible take him out for a drive.
     •

     A Recycled Success                                    DIARY DATES
     An extremely successful Recycled
                                                           11 August              Quiz Night – Greymouth phone 03 768 9557
     Runway event was held in the
     Christchurch Centre in June, raising                  31 August              Daffodil Day www.daffodilday.org.nz
     $6100.00. The centre was transformed                  14 September           Art Auction – Regent Theatre, Greymouth 03 768 9557
     into a pop-up shop where pre-loved                    21 October             Ellesmere Garden Tour for further information
     treasures were available for purchase.                                       phone 03 925 9708
     Our thanks to our special models,                     24 November            Jump for Cancer
     everyone who donated items and the                    9 March 2019           Relay For Life Timaru
     enthusiastic shoppers! Plans are now                  16 March 2019          Relay For Life Selwyn
     underway for a 2019 event.
                                                           16 March 2019          Relay For Life Greymouth

    Cancer Information Service Freephone 0800 CANCER 0800 226 237                                               www.cancernz.org.nz
Cancer Society Centre         South Canterbury Centre      West Coast Centre               Mid Canterbury Centre          Selwyn Centre
97 Fitzgerald Avenue          32 Memorial Avenue           98 High Street                  122 Kermode Street             6B Kidman Street
PO Box 13450                  PO Box 682                   PO Box 81                       PO Box 296                     PO Box 25
Christchurch 8141             Timaru 7940                  Greymouth 7840                  Ashburton 7740                 Rolleston 7643
T: 03 379 5835                T: 03 688 0124               T: 03 768 9557                  T: 03 307 7691                 T: 03 925 9708
F: 03 377 2804                F: 03 684 6314               F: 03 768 9587                  E: midcanty@cancercwc.org.nz   E: selwyn.centre@cancercwc.org.nz
E: contact@cancercwc.org.nz   E: timaru@cancercwc.org.nz   E:westcoast@cancercwc.org.nz
                                                                                                                      Charities Commission: CC 10981
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