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Post-Polio Health International’s POST-POLIO DIRECTORY 2020 ©
Post-Polio Directory 2020©
1 Introduction
2 International Health Professionals and Support Organizations
11 United States Health Professionals and Support Organizations
27 Other Useful Contacts
Post-Polio Directory 2020© is for information purposes only.
A listing does not imply endorsement by Post-Polio Health International.
©Copyright 2020 by Post-Polio Health International (PHI). All rights reserved.
No part of this publication may be reproduced or transmitted in any form
without permission in writing from the copyright holder.
Additions and corrections may be sent to info@post-polio.org
Printed copies are $15 each at http://shop.post-polio.org.
4207 Lindell Blvd., #110, Saint Louis, MO 63108-2930 USA
314-534-0475, 314-534-5070 fax
info@post-polio.org, www.post-polio.org, www.polioplace.org
UPDATED 1-20-20Introduction: PHI, then Gazette International Networking Institute, published its
first Post-Polio Directory in 1985 to assist survivors of polio who were experiencing
the late effects of polio to find health professionals. At the 1983 Conference, the
organization was charged with encouraging the formation of local support groups
and the current Post-Polio Directory includes those groups, too.
How it is organized: There are three sections.
1) International Health Professionals and Support Organizations,
which are organized alphabetically by country with health professionals
listed first in alphabetical order by city, followed by support groups listed by
alphabetical order by city.
2) United States Health Professionals and Support Organizations,
which are organized alphabetically by state with health professionals listed
first in alphabetical order by city, followed by support groups listed in
alphabetical order by city.
3) International and US Other Useful Contacts listed by topical areas.
How to use it: Post-Polio Health International’s comprehensive websites
(www.post-polio.org, www.polioplace.org, www.ventusers.org) contain years
of information about the late effects of polio and are continually updated. The
Post-Polio Directory is a good place to start to find local resources. Support groups
also may be able to suggest names of local health professionals.
Another option is to contact a physiatrist – physician specializing in physical
medicine and rehabilitation, or a rehabilitation center. A few rehabilitation centers
stated that while they don’t have a post-polio clinic, they are confident that their
staff of rehabilitation professionals has sufficient knowledge and experience with
treating neuromuscular diseases (or disabling neuromusculoskeletal conditions)
to be able to successfully treat polio survivors.
Articles of interest:
• Polio Doctors, Post-Polio Clinics,
• Options When a Post-Polio Clinic is not an Option (pages 36-39)
• Support Groups , Post-Polio Support Group Resources
How to join PHI: Post-Polio Health International is a Membership organization.
To support its activities, join PHI at http://shop.post-polio.org or by printing
out a Membership form. Post-Polio Directory is free with Contributor and
Sustainer Memberships.
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 1International Health Professionals and Support Organizations
*Post-Polio Clinic
AUSTRALIA–Health Professionals Polio Polio Victoria Inc.
Ross House, 247-251 Flinders Lane
*Mt Wilga Private Hospital Melbourne, Victoria 3000
66 Rosamond St +61 431 702 137, postpoliovictoria@gmail.com
Hornsby, New South Wales 2077 www.postpoliovictoria.org.au
+61 2 9847 5000, +61 2 9477 1253 fax
www.polionsw.org.au/late-effects-of-polio-assessment-clinic Mornington Peninsula Post-Polio Support Group
Frances Henke
Stephen de Graaff, MB, BS, FRACM, FAFRM Mornington, Victoria
Director of Pain Services fhenke@bigpond.net.au
Epworth Rehabilitation
888 Toorak Rd Polio NSW Inc
Camberwell, Victoria 3124 Gillian Thomas
+61 3 9809 2444, +61 3 9889 6756 fax PO Box 2799
North Parramatta, NSW 1750
*Polio Services Victoria, Melbourne +61 2 9890 0946
Russel Anbiah, Physiotherapist office@polionsw.org.au, www.polionsw.org.au
St. Vincent’s Hospital Melbourne
PO Box 2900, Bolte Wing, Nicholson St Post-Polio Network of Western Australia
Fitzroy, Victoria 3065 Tessa Jupp, RN
+61 3 9288 3900, +61 3 9288 3808 fax PO Box 257
psv@svhm.org.au, www.psv.svhm.org.au Subiaco, Western Australia (Floreat area)
+61 8 9383 9050, +61 8 9383 9075 fax
*Late Effects of Disability and Orthotic Clinic poliowa@upnaway.com.au
Dr. Mei Ang, Rehab Specialist www.upnaway.com.au/~poliowa
Fiona Stanley Rehab Hospital
Murdoch, Western Australia Post Polio Networks (Qld)
+61 8 6152 7420 Spinal Injuries Association
109 Logan Road
*Post-Polio Network of Western Australia Clinic Woolloongabba Queensland 4102
Dr. John Watson, MBBS, FANZCA PO Box 5651
Tessa Jupp, RN West End, Queensland 4101
PO Box 257, Subiaco, 6904, Western Australia (Floreat) +61 7 3391 2044
+61 8 9383 9050 enquiries@spinal.com.au, www.spinal.com.au
poliowa@upnaway.com.au
www.upnaway.com.au/~poliowa
AUSTRIA–Support Group
AUSTRALIA–Support Groups Selbsthilfe Polio – Post-Polio Syndrome
www.polio-selbsthilfe.at
Polio Network Victoria
Independence Australia – Community Solutions
208 Wellington St
BANGLADESH–Health Professional
Collingwood, Victoria 3066 Dr. Raju Dhakal
+61 3 1300 704 456, +61 3 1300 704 451 fax Chairman at Dept. of Physical Medicine and Rehab.
polio@independenceaustralia.com Bangabandhu Sheikh Mujib Medical University
info@independenceaustralia.com Room No.130, Block-C
www.independenceaustralia.com/polio Shahbag, Dhaka-1000
15 groups yo_duniya@hotmail.com
Polio Australia Incorporated
PO Box 500, Kew East, Victoria 3102 BELGIUM–Support Groups
Ste 119C, Level 1, 89 High Street European Polio Union
Kew, Victoria 3101 Walvisstraat 32
+61 3 9016 7678, mary-ann@polioaustralia.org.au B 2018, Antwerp
office@polioaustralia.org/au, www.polioaustralia.org.au europeanpolio@eircom.net, www.europeanpolio.eu
2 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlPostPolio België Elizabeth Dean, DipPT, BA, MS, PhD
Johan Bijttebier Department of Physical Therapy
Nachtegaalstraat 47 University of British Columbia
2060 Antwerpen 212 Friedman Building, 2177 Wesbrook Mall
+32 3 288 7794, +32 3 226 2315 fax Vancouver, BC V6T 1Z3
johan.bijttebier@telenet.be, www.postpolio.be 604-822-7398, elizabeth.dean@ubc.ca
Association belge des Paralyses – ABP asbl
Chaussée de Gand 1434 CANADA–Support Groups
B-1082 Brussels (Alphabetical order by province)
+32 2 421 69 62, www.abpasbl.be Southern Alberta Post-Polio Support Society
403-813-9583, calgary@sappss.com
BRAZIL–Health Professionals www.polioalberta.ca
Sergio Silva de Mello, Anesthesiology Southern Alberta Post-Polio Support
Rua Rio de Janeiro n 1881 Society-Lethbridge
1301, Belo Horizonte 403-329-9453, lethbridge@sappss.com
ssmello2000@gmail.com, sergiomello@sarah.br www.sappss.com
*Federal University of Sao Paulo’s Medical School Wildrose Polio Support Society
Dr. Acary Oliveira, Chief, Neurology Dept Glyn Smith
Tatiana Mesquita e Silva, Physiotherapist 780-428-8842, 780-475-7968 fax
Abrahão Quadros, Physiotherapist wpss@polioalberta.ca
Rua Estado de Israel, 899 - VL. Clementino www.polioalberta.ca/wildrose/wpss.htm
Sao Paulo, SP
Post-Polio Network (Manitoba) Inc
+11 5571-3324, +11 5083-1051
SMD Self-Help Clearinghouse
tatimsilva@gmail.com, www.institutogiorgionicoli.org.br
204-825 Sherbrook St
Winnipeg, Manitoba R3A 1M5
BRAZIL–Support Groups 204-975-3037, 204-975-3027 fax
Associação Luso Afro-Brasileira de Poliomielite postpolionetwork@shaw.ca, www.postpolionetwork.ca
e Síndrome Pós-poliomielite Polio New Brunswick
Stepaway Polio Peter Hefferman
Rua Pau Ferro n.400 506-635-8932, peterhef@nbnet.nb.ca
Jardim
Polio Northern New Brunswick
A Associação G-14 de Apoio aos Pacientes Claudia LeBlanc
de Poliomielite e Síndrome Pós-Pólio 506-548-1919, sunrayfifty@yahoo.com
Sao Paulo
www.pospolio.org.br Polio Nova Scotia
Faye Joudrey
CANADA–Health Professionals c/o Abilities Foundation of Nova Scotia
3670 Kempt Rd
K. Ming Chan, MD, FRCPC, Professor Halifax, Nova Scotia B3K 4X8
Division of Physical Medicine & Rehabilitation 902-453-6000, admin@abilitiesfoundation.ns.ca
Centre for Neuroscience www.abilitiesfoundation.ns.ca
5-005 Katz Group Centre
University of Alberta Ontario - Post-Polio Canada
Edmonton, AB T6G 2E1 A Division of March of Dimes Canada
780-492-1614, ming.chan@ualberta.ca Jennifer Cote
888-480-5903, jcote@marchofdimes.ca
*Montreal Neurological Institute & Hospital www.poliocanada.ca
Daria A. Trojan, MD, Director, PM&R
Diane Diorio, MD, Neurology Grey Bruce Huron
3801 University St Sharon and George Rahn
Montreal, QC H3A 2B4 519-364-3224, postie@wightman.ca
514-398-8911, 514-398-2745 fax
Diorio: 514-398-5034, 514-398-3972 fax
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 3Niagara Chapter CHINA–Health Professionals
Ron Speer
289 -891-8283 Fang Han, MD
ronspeer@cogeco.ca, ddumele@cogeco.ca Sleep Center, The People’s Hospital
Peking University
North Bay Chapter No. 11 South Road Xizhimen
Sharyn Emond Xicheng District, Beijing 100044
800-263-3463 ext 7731 + 86 10-88324206, hanfang@hotmail.com
polio-northbay@marchofdimes.ca
C.M. Chu, MD, MSc, FRCP, FCCP
Peterborough Chapter United Christian Hospital
Sarah Baslas Dept of Medicine & Geriatrics
800-263-3463 ext 7738 Division of Respiratory Care
sbaslas@marchofdimes.ca 130 Hip Wo Street, Kwun Tong
Kowloon, Hong Kong SAR
Thunder Bay Chapter
+852 3513 4822, +852 3513 5548 fax
Sandy Rutherford
drcmchu@gmail.com
rutherfordsm@hotmail.com
Jianan Li, MD
Windsor & Area Chapter
Director, Department of Rehabilitation Medicine
Gayle & Bruce Tait
First Affiliated Hospital of Nanjing
519-252-8248, tattybogle@sympatico.ca
Medical University
Hamilton-Brant Chapter 300 Guangzhou Rd
Northumberland Chapter Nanjing 210029
Sudbury Chapter lijianan@njmu.edu.cn
Toronto Peel & York Chapter
Keith Rashid CUBA–Support Group
800-263-3463 ext 7213, krashid@marchofdimes.ca
Dr. Pedro Luis Gonzalez, Director
Polio Prince Edward Islands ACUFIN
Stephen Pate Calle 8#10 Entre 17 y m.torres
902-566-4518, stephen_pate@hotmail.com Reparto Libertad, Holguin
Association Polio Quebec
Gilles Besner CZECH REPUBLIC–Support Group
514-489-1143, 514-489-7678 fax
Asociace Polio Polio Association of the Czech Republic
877-765-4672 tollfree outside Montreal
Ludvika Bradová
association@polioquebec.org, www.polioquebec.org
Kosmonautů 2288, 44001 Louny
Polio Regina Inc. (Saskatchewan) +420 222962074, lubra@volny.cz, www.polio.cz
Carole Tiefenbach
twif_ecarole@hotmail.com DEMOCRATIC REPUBLIC OF THE CONGO–
http://nonprofits.accesscomm.ca/polio Support Group
Saskatchewan Awareness of Post-Polio l´Association Congolaise “Debout et Fier” (ACDF)
Ron Johnson StandProud
306-477-7002, 306-373-2665 info@standproud.org, acaojh.drc@gmail.com
sapp1@sk.sympatico.ca, www.geocities.com/sapponline www.standproud.org
CHILE–Health Professionals DENMARK–Health Professionals
Clínica Los Coihues *Special Hospitalet
Av Laguna Sur 6561,Estación Central Fjeldhammervej 8
Santiago 2610 Rodøvre
+56 2 24657900 +45 36 73 90 60
kontakt@specialhospitalet.dk, www.specialhospitalet.dk
4 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlMerete Bertelsen, PT Service de Médecine Physique et de Réadaptation
Lise Kay, MD GH Lariboisière-F. Widal
Special Hospitalet 200 Rue du Fbg St Denis
Fjeldhammervej 8 75010 Paris
2610 Rodøvre +33 1 40 05 42 05, +33 1 40 05 48 51 fax
+45 36 73 90 44 alain.yelnik@irb.aphp.fr
mbe@specialhospitalet.dk, lka@specialhospitalet.dk
GERMANY–Health Professionals
DENMARK–Support Group
The following 5 clinics have been certified by
Polio Foreningen Bundesverband Polio:
Fjeldhammervej 8
*Rehaklinik Raupennest, Altenberg
2610 Rodøvre
Dr. med. Friedemann Steinfeldt
+45 36 73 90 60, kontakt@polio.dk, www.polio.dk
Rehefelder Str. 18
01773 Altenberg
FINLAND–Support Group
*Rheuma-Klinik
Suomen Polioliitto Ry (Finnish Polio Association) Bad Bramstedt Neurologische Abteilung
1 A Kumpulantie 6th floor Prof Dr. med. Wolfgang-Ludwig Gross
00520 Helsinki Ärztlicher Direktor Fachkrankenhaus
(09) 686 0990, www.polioliitto.com Dr. med Andreas-Christoph Arlt
Ärztlicher Direktor Rehabilitation
FRANCE–Health Professionals Oskar-Alexander-Str. 26
24576 Bad Bramstedt
Dr. Vincent Tiffreau
Service de Médecine Physique et de Réadaptation MCU-PH *Neurologisches Rehabilitationszentrum Quellenhof
Centre de Référence des Maladies Neuromusculaires Bad Wildbad
du CHRU de Lille Hôpital Swynghedauw Chefarzt PD
CHRU de Lille Dr. Peter Flachendecker
59037 Lille Cedex Kuranlagenallee 2
+33 3 20 44 58 31, +33 3 20 44 58 32 fax 75323 Bad Wildbad
Dr. Isabelle Laffont *Klinik Hoher Meißner
Département de MPR CHU Lapeyronie Bad Sooden-Allendorf Neurologische Abteilung
371, avenue du Doyen Gaston Giraud Dr. med. C. Schröter – Leiter
34295 Montpellier Cedex 5 Neurologischer Abteilung
+33 4 67 33 87 17, +33 4 67 33 86 71 Hardtstrasse 36
i-laffont@chu-montpellier.fr 37242 Bad, Sooden-Allendorf
Dr. Raul Morales *Klinik Miriquidi
Département de Neurologie Thermalbad Wiesenbad, Gesamte Klinik
CHU de Montpellier CHÄ Frau Dr. med. Frohberg
Hôpital Gui de Chauliac Freiberger Straße 33
80 Bd Augustin Fliche 09488 Thermalbad Wiesenbad
34395 Montpellier Cedex 5
+33 4 67 33 77 36, r-juntasmorales@chumontpellier.fr Dr. Friedemann Steinfeldt
Polio – Spezialambulanz Dresden
Pr. Francois Boyer Goetheallee 28
Pole MPR CHU de REIMS Dresden, Saxony 01309
Hôpital Sébastopol +49 0357 3767979, +49 3505 6305777 fax
48, rue de Sebastopol friedemann.steinfeldt@raupennest.de
51100 Reims
+33 3 26 78 85 97, +33 3 26 78 44 80 fax Chefarzt Neurologie & Geriatrie
fboyer@chu-reims.fr Dr. W. Rink
Reha-Zentrum Passauer Wolf
Bgm.-Hartl.-Platz 1
FRANCE–Support Groups 94086 Bad Griesbach – Therme
Groupe de Liaison et d’Information Post-Polio (GLIP) +49 0853 2274511, rink@rz-pw.de
34, rue des Coutures
51100 Reims
+33 3 51 00 13 58, contact@polio-france.org
www.post-france.org
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 5Katholisches Klinikum Koblenz Dr Satendra Singh, MD, FSS
Polio Schwerpunkt Ambulanz Assistant Professor of Physiology
Dr. med. Axel Ruetz Member, Medical Education Unit
Kardinal-Krementz-Straße 1-5 University College of Medical Sciences & GTB Hospital
56073 Koblenz Delhi 110095
+49 261-496-6526, +49 261-496-6528 Member, Medical Humanities Group
a.ruetz@kk-koblenz.de, www.kk-koblenz.de Founder, Infinite Ability; Coordinator, Enabling Unit, EOC
Creator, The Enablist
GERMANY–Support Groups dr.satendra@gmail.com
Eika Aachen e.V. Dr. Ujagar Singh
post@polio-forum.de, www.polio-forum.de Polio Care Society Civil Hospital
G.S. Memorial Hospital
Polio Initiative Europa e.V. Bathinda Road
Deutsch – Europaische, Arbeitsgemeinschaft Rampura Phul 151103
Bad Stebener Str. 8
95138 Bad Steben-Thierbach IRELAND–Health Professionals
+49 9288 363, +49 9288 925 500 fax
www.polio-initiative-europa.de Deirdre Murray, PhD
Beaumont Hospital
Polio Selbsthilfe e.V. Department of Physiotherapy
Auf den Hüchten 15 PO Box 1297
33647 Bielefeld Beaumont Rd, Dublin 9
+49 5 21 / 40 35 35, +49 5 21 / 1 36 29 93 fax deirdremurray@beaumont.ie
bundesverband@polio-selbsthilfe.net
www.polio-selbsthilfe.net Orla Hardiman, MD, Professor
Beaumont Hospital
Polio Echo PO Box 1297
Weberweg 4 Beaumont Road, Dublin 9
D-78126 Königsfeld (01) 809 2174
www.polio-echo.eu
Bundesverband Polio e.V. IRELAND–Support Group
Freiberger Strasse 33
Thermalbad Wiesenbad, Sachsen 09488 Polio Survivors Ireland
+49 3733 504 1187, +49 3733 504 1188 fax Susan Dowling
bundesverband@polio.sh, www.polio.sh Unit 319, Capel Building
Organisation consists of 10 federal state organisations, Mary’s Abbey, Dublin 7
73 regional groups and 42 contact addresses. +353 1 889-8920, info@ppsg.ie, www.polio.ie
GHANA–Health Professionals ISRAEL–Health Professionals
Raphael Amuzu Dzameshie *Hadassah Medical Organization
Orthopedic Training Centre Isabella Schwartz, MD
PO Box 306 Rehabilitation Clinic – Post-Polio
Nsawam Mount Scopus Hospital
+233 34 2122031 POB 24035, Jerusalem
Nsawam15@yahoo.com, www.otcghana.info +972 2 584-4111, +972 2 582-3515 fax
www.hadassah.org.il
HUNGARY–Support Group *Tel-Hashomer Chaim Sheba Medical Center
Yeheskell Shemesh, MD
Hungarian Polio Foundation Neurological Rehabilitation, Post-Polio Clinic
www.polio.hu Ramat Gan
+972 3 530-3725, +972 3 535-2888 fax
INDIA–Health Professionals neure@sheba.health.gov.il, www.sheba.co.il
Megha Sheth Shoshana Goldberg Mayer, OTR
Lecturer in Physical Therapy Milbat – The Israel Center for Technology & Accessibility
SBB College of Physical Therapy, VS General Hospital Tel-Hashomer
Ahmedabad Ramat Gan 52621
+972 3 530-3739, +972 3 535-7812 fax
6 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlISRAEL–Support Group The Polio Association Japan
Mariko Koyama
The Polio Handicap Association in Israel 1-6-5-602 Minowa
Jacob Surany Taito-ku, Tokyo 110-0011
PO Box 8186 +81 3 3872 7359 (tel & fax)
Ramat Gan 52181 koyama@mrg.biglobe.ne.jp, www5b.biglobe.ne.jp/polio
+972 35755660, +972 507754415 cell
+972 35757770 fax, j-t-s@bezeqint.net
KOREA (Republic of)–Health Professional
ITALY–Health Professionals Jae-Young Lim
Seoul National University Bundang Hospital
Laura Bertolasi, MD Department of Rehabilitation Medicine
Ospedale Di Malcesine, Neurophysiology 82 Gumi-ro 173 beon-gil
Via Val di Sogno Bundang-gu, Seongnam 463-707
Malcesine +82 31-787-7732, +82 31-787-4056 fax
+39 045 8124462, laura.bertolasi@ospedaleuniverona.it drlim1@snu.ac.kr
Antonio Toniolo, MD Wan-Ho Kim
Professor of Medical Microbiology National Rehabilitation Center
University of Insubria 58, Samgaksan-ro, Gangbuk-gu
Department of Clinical and Biological Sciences Seoul 01022
Viale Borri, 57 +82 2901 1700, nrc1986@nrc.go.kr
21100 Varese
+39 0332 278.309, +39 0332 260.517 fax
antonio.toniolo@uninsubria.it
KOREA (Republic of)–Support Group
Korea Polio Association
ITALY–Support Groups Jeongnip Center for Rehabilitation
16-3 Guei-2dong
Associazione Nazionale Polio e Sindrome Postpolio Gwangjin-gu, Seoul
Louise Read, Deputy President +82 2-446-1237, +82 2-454-2144
via della Lungara 3 ykrpt@hanmail.net, changnip@or.kr, www.jeongnip.or.kr
00165 Roma
+39 065895895 (tel & fax), +39 3395773796 cell
polio@edizionisocrates.com, www.postpolio.it
MEXICO–Health Professionals
*Clínica de Atención Integral en Síndrome Post Polio
Self-help/ Support Group Associazione Nazionale Polio
Instituto Nacional de Rehabilitación
e Sindrome Post-polio
Calzada México-Xochimilco, No. 289
Aurelio Sugliani
Col. Arenal de Guadalupe, México, D.F., C.P. 14389
Via Einstein 4
www.cnr.gob.mx
20059 Vimercate Milano
+39 6 851380 cell, +39 3397484492 fax Dra. Alejandra Castillo Millán
hermes@postpolio.it, www.postpolio.it Jefa de Consulta Externa
+59 99 10 00, ext. 11 125, y 11 126
Associazione Interregionale Disabili Motori
Ospedale – Via Gardesana Dra. Teresa de Jesús
57 – 37018 Malcesine Baños Mendoza
+39 045 6584293 Coordinadora Médica de la Clínica
+59 99 10 00, ext. 13 115
JAMAICA–Health Professional
Sir John Golding Rehabilitation Centre
MEXICO–Support Groups
6 Golding Avenue Post-Polio Litaff AC Association
Kingston 7, Jamaica E. Liliana Marasco Garrido
http://sirjohngoldingrehabilitationcentre.com Iztaccihuatl 53-303, Col. Hipodromo Condesa
CP06100 Mexico City
JAPAN–Support Groups +52 55-55-74-29-26 (tel & fax)
litaffac@prodigy.net.mx, www.postpoliolitaff.org
Japanese Network of Polio Survivors
Masakuni Mukoyama, MD
3 Kuromoncho
Higashiku, Nagoya 461-0035
+81 52-932-1854 (tel & fax), mukoyama@sc.starcat.ne.jp
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 7Organización Mexicana Para el Conocimiento de los Ingebjorg Irgens, MD
Efectos Tardiós de la Polio, AC (OMCETPAC) Sunnaas Rehabilitation Hospital
Sergio Augusto Vistrain Diaz Bjørnemyrveien 11
Lago Ontario No. 3-G 1450 Nesodden
Col. Tacuba, Mexico City, DF +47 66 96 90 00
+52 55-55-27-63-89 (tel & fax)
Elisabeth Farbu, MD
savistrain@postpoliomexico.org, www.postpoliomexico.org
Department of Neurology
Stavanger University Hospital
NETHERLANDS–Health Professionals N-4068 Stavanger
*University of Amsterdam elfa@sus.no
Prof. Frans Nollet, MD, PhD
Prof. Marianne de Visser, MD, PhD NORWAY–Support Group
Academic Medical Centre A01-425
Norwegian Polio Association (LFPS)
Meibergdreef 9
LFPS, Postboks 9217
1105 AZ Amsterdam
Grǿnland, 0134, Oslo
Nollet : +31 20 566 4049, +31 20 566 9154 fax
hamar@uten.net, www.polionorway.no
f.nollet@amc.uva.nl
de Visser : +31 20 566 3445, +31 20 697 1438 fax
m.devisser@amc.uva.nl PAKISTAN–Health Professional
Mahboob ur Rehman, Chairman
NETHERLANDS–Support Group Mahboob School of Physiotherapy
Gandhara University, Habib Physiotherapy Complex
Postpolio Support Group of the Dutch Association
Sector B2, Phase-5
for Neuromuscular Diseases (VSN)
Hayatabad, Peshawar
Lt. Gen. van Heutzlaan 6, 3743 JN Baarn
+92-91-5819128, +92-334-9071388 fax
+31 35 5480480, +31 30 5480499 fax
info@hpcpk.org, www.hpcpk.org
vsn@vsn.nl, www.vsn.nl
NEW ZEALAND–Support Groups PHILIPPINES–Support Group
Productive Differently-Abled Association (PDAAS)
Polio NZ Inc
Marcelo P. Mongkil, Ptr/Chaplain/President
PO Box 260
Brgy. Cablalan, Glan, Sarangani Province 9517
Mosgiel 9053
+63 90 68 26 39 78, marcelomongkil@yahoo.com
0800 4 POLIO, info@polio.org.nz, www.polio.org.nz
20 branches nationwide
POLAND–Health Professionals
Auckland Post-Polio Support Group
Doreen Chandler, QSO *Mossakowski Medical Research Center Polish
36 Eastern Beach Rd Academy of Sciences
Bucklands Beach, 2012 Ewa Matyja, MD, PhD
+64 9 534-6151, +64 9 537-3104 fax Dept of Neuropathology
auckpostpolio@clear.net.nz 5 Pawinskiego
02-106 Warsaw
+48 22 668 5520, +48 22 668 5532
NIGERIA–Support Group
Milena Laure-Kamionowska, MD
Wheelchairs for Nigeria
milenak@cmdok.pan.pl, www.cmdik.pan.pl
Ayuba Gufwan
#17 JCMI Drive, Kattan Rikos
by Jos North LGC Housing Layout POLAND–Support Group
off Liberty Dam Road
Polski Stowarzyszenie Polio
Jos, Plateau State
http://postpolio.lublin.pl
+234 8035 985123, ayubagufwan@yahoo.com
http://wheelchairsfornigeria.org
SCOTLAND–Support Group
NORWAY–Health Professionals Scottish Post-Polio Network
8 Orchard Grove
Prof. Nils Erik Gilhus
Leven KY8 5XB
Neurology, University of Bergen
0131 447 3486, chairperson@spnn.org.uk, www.sppn.org.uk
N-5021 Bergen
Post-Polio Syndrome/Late Effects of Polio
nils.gilhus@helse-bergen.no
8 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlSIERRA LEONE–Support Group Jesús Sancho, MD
Respiratory Care Unit, Respiratory Medicine Dept
Polio Challenge Association Hospital Clínico Universitario
Sylvanus Bandu Avd. Blasco Ibañez 17
113 Fourah Bay Road 46010 Valencia
Freetown 077-593742 +34 96 3862600, +34 96 3862657 fax
immaculaterkoroma@yahoo.com cchinesta@eresmas.com
SLOVAKIA–Support Group SPAIN–Support Groups
Asociacia polio v SR Associats de Polio I Postpolio de Catalunya (APPCAT)
Stefan Grajcar Juli Sellés Linares, President
stefan.grajcar@gmail.com, http://polio-sk.webnode.sk Carrer Virgili, 18
08030 Barcelona
SLOVENIA–Support Group appcat@appcat.org, www.appcat.org
Paras, Društvo Paralitikov Slovenije Asociación Gaditana de Personas con Síndrome
Cesta 24. junija 23 Post-Polio (AGASI)
1231 Ljubljana Plaza Sunday Bohorquez, 12
(01) 563-34-68, (01) 561-27-10 fax 11130 Chiclana de la Frontera
info@drustvo-paralitikov.si, www.drustvo-paralitikov.si 669562491 mobile
agasi@agasi.org.es, www.agasi.org.es
SOUTH AFRICA–Support Groups Euskadiko Polio Elkartea
Astrid Gorvett Eibar
gorvett@vodamail.co.za euskadikopolioelkartea@gmail.com
Resource only http://polioeuskadi.blogspot.com.es
Post-Polio Network RSA Associatión Afectados de Polio y Sindrome Postpolio
Cottage #1, Cheshire Home Chatsworth Lola Corrales, Presidenta
10 Equality Street, Croftdene, Chatsworth C/Luis de Hoyos Sainz 18
4092 KwaZulu-Natal 28030 Madrid
+27 79 964 1847 cell, +27 86 668 3288 fax +34 686 000 171, informacion@postpolioinfor.org
www.postpolioinfor.org
SPAIN–Health Professionals Poliocyl, es la associacion des los afectados de
polio y syndrome de postpolio
Institut Guttmann
de castilla y León
Neurorehabilitation Hospital
poliocyl@gmail.com, http://poliocyl.blogspot.com
Cami de Can Ruti, s/n
08916 Badolona Association of Post-Polio Syndrome of the
+34 93 497 77 00, +34 93 497 77 04 fax Valencian Community
admissions@guttmann.com Valencia
aipcv@gmail.com
Dr. Josep Gámez
Servicio de Neurologia, Hospital Gral
Universitari Vall d’Hebron, Passeig de la Vall d’Hebron SWEDEN–Health Professionals
119-135, 08035 Barcelona *Sahlgrenska University Hospital
Dra. Dolores Mancilla Alcantara Katharina Stibrant Sunnerhagen, MD, PhD
UGC Rehabilitación y Medicina Física del HU Puerto Real Rehabilitation Medicine
Ctra. N-IV Km. 665 SE-41345 Gôteborg
11510 Puerto Real (Cádiz) +46 31 3422803, +46 31 415433 fax
956 00 55 12 / 956 00 55 04 *Skåne University Hospital
Ana Aguila Jan Lexell, MD, PhD, Professor, Medical Director
Universidad Rey Juan Carlos Dept of Rehabilitation Medicine
Madrid SE-205 02 Malmö
ana.aguila@urjc.es +46 040 33 10 00, +46 413 55 67 09 fax
jan.lexell@med.lu.se, www.skaneuniversityhospital.se
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 9*Karolinska Institutet *Ege University
Prof. Kristian Borg, MD, PhD Arzu Yagiz On, MD
Dept of Rehabilitation Medicine Medical Faculty, Physical Medicine & Rehabilitation
Danderyd University Hospital, Bldg 39 Kampüsü 35040
S-182 88 Stockholm Danderyd Bornova – Izmir
+46 8 6555255, kristian.borg@ki.se arzu.on@ege.edu.tr
Prof. Arne Sandberg
Department of Neurophysiology TURKEY–Support Group
University Hospital Polio Derneği
S-75185 Uppsala Megapol Tower, Adalet Mahallesi, Anadolu
arne.sandberg@akademiska.se Caddesi 41/9-1, Bayrakli - Izmir
info@poliodernegi.org, www.poliodernegi.org
SWEDEN–Support Group
Riksforbundet for Trafik-, Olycksfails – UNITED KINGDOM–Health Professionals
och Polioskadade (RT) *Lane-Fox Respiratory Saint Thomas’ Hospital
Vintergatan 2, 172 69 Sundbyberg PPS Rehabilitation Programme
08-629 27 80, 08-28 15 60 fax Guys & St Thomas’ Foundation Trust
info@prp.se, www.rtp.se Lambeth Palace Rd
London, England SE1 7EH
SWITZERLAND–Health Professionals +44 207 188 3447, +44 207 188 3449 fax
Maja Strasser, MD Carrie-Ann Wood
Neurologische Praxis Deputy Clinical Lead Physiotherapist for Rehabilitation
Hauptgasse 5 Guys & St Thomas’ Foundation Trust
Solothurn CH-4500 St Thomas’ Hospital
+41 32 623 61 11, +41 32 623 61 12 fax Westminster Bridge Road
maja.strasser@hin.ch London SE1 7EH
www.neuropraxis-solothurn.ch/maja-strasser.php +44 020 7188 7188
Carrie-Ann.Wood@gstt.nhs.uk
SWITZERLAND–Support Group Dr. Nicholas Hart, Consultant Physician
Schweizerische Interessengemeinschaft für das Lane Fox Unit
Post-Polio Syndrom (SIPS) St Thomas’ Hospital
Communaute d’intérêt Suisse pour le syndrom post-polio (CISP) Westminster Bridge Road
Comunità Svizzera d’interessi per il sindrome post-polio (CSIP) London SE1 7EH
Schweiz. Vereinigung der Gelähmten Referral: +44 020 7188 6115
Sihlhaldenstr. 1 A Enquires regarding post-polio syndrome:
8136 Gattikon +44 020 7188 6115
+41 26 323 94 33, +41 26 323 27 00 (fax)
www.polio.ch, www.aspr-svg.ch UNITED KINGDOM–Support Groups
Polio Survivors Network
THAILAND–Support Group PO Box 954, Lincoln
Foundation to Encourage Disabled Persons Lincolnshire, England LN5 5ER
80 Moo 7, Tambon Samranrat +44 1522 888601, +44 870 1600840 fax
Amphur Doi Sakhet, Chiang Mai 50220 info@poliosurvivorsnetwork.org.uk
085-708-8711 www.poliosurvivorsnetwork.org.uk
assist@loxinfo.co.th, www.assistdisabled.org British Polio Fellowship
Citibase
TURKEY–Health Professionals 44 Clarendon Road
Watford, Hertfordshire WD17 1JJ
*Sisli Etfal Hospital
+44 800 0431935, , +44 20 8842 0555 fax
Jülide Öncü, MD
info@britishpolio.org.uk, www.britishpolio.org.uk
Physical Medicine & Rehabilitation
34377 ŞİŞLİ
Istanbul
+90 212 373 50 00, +90 212 224 07 72
10 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlUnited States Health Professionals and Support Organizations
*Post-Polio Clinic
ALABAMA–Health Professionals ARKANSAS–Health Professional
Jack D. Denver, MD Kevin Collins, MD
1500 Southlake Park Ste 150 Rehabilitation Medicine Consultants of Arkansas, PA
Hoover, AL 35244 Springhill Medical Plaza
205-874-9663, 205-874-9667 fax 3401 Springhill Dr Ste 460
North Little Rock, AR 72117
Larry W. Epperson, MD 501-945-1888, 501-945-4102 fax
Neurology Consultants of Montgomery
1722 Pine St Ste 700
Montgomery, AL 36106 ARKANSAS–Support Group
334-834-1300, 334-834-8347 fax Central Arkansas Polio Survivors (CAPS)
Betty S. Schmidt
ALABAMA–Support Groups Quitman
501-589-3555, retmt2000@hotmail.com
Birmingham Post-Polio Support Group http://centralarkansaspoliosurvivors.com
James Jarrell Resource and newsletter only
205-980-0050, jpjarrell@bellsouth.net
Tennessee Valley Post-Polio Support Group CALIFORNIA–Health Professionals
Janie C. Carter
Huntsville Dynamic Bracing Solutions
256-859-2177, rjcarter1@knology.net Marmaduke D.R. Loke, CPO
www.geocities.com/tvppsg 6092 Innovation Way
Carlsbad, CA 92009
Mobile Area Post-Polio Support Group 760-814-8475, 760-814-8497 fax
Charles Gollott Poliobracing@aol.com
251-689-5268 http://DynamicBracingSolutions.net
rcgollott@bellsouth.net
Progressive Medical
Helen A. Kent, BS, RRT
ARIZONA–Health Professional 2720 Loker Ave W Ste P
Colin Bamford, MD Carlsbad, CA 92010-6606
University Physicians (Neurology/Sleep) 800-491-2292, 760-448-4448, 760-448-4449 fax
2800 E Ajo Way Ste 102 hkent@progressivemed.org
Tucson, AZ 85713 www.progressivemed.org
520-626-7664, 520-694-8888 Royal Orthopedic Company
Craig R. Johnson
ARIZONA–Support Group 5102 Canterbury Dr, PO Box 2441
Cypress, CA 90630
Polio Epic Inc.
714-821-8410, 714-209-7708 fax
PO Box 17556
Tucson, AZ 85731-7556 Christine Phan, MD
Joanne Yager 520-296-1471, Artist3jy6@hotmail.com Chief of Physical Medicine Rehabilitation
Frank Frisina 520-360-9365, shinybear@msn.com Kaiser Permanente, Department of Physical Medicine
Micki Minner 520-307-0174, Mickiminner@msn.com Imperial/Orchard Medical Office
contact@polioepic.org 9353 E Imperial Hwy
www.polioepic.org Downey, CA 90242
562-657-2418, christine.m.phan@kp.org
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 11*Rancho Los Amigos National Rehabilitation Center M. Peggy Portwood, MD
Post-Polio Service Physical Medicine, Rehabilitation, Electrodiagnosis
7601 E Imperial Highway 2288 Auburn Blvd Ste 101
Downey, CA 90242 Sacramento, CA 95821
877-726-2461, 562-385-7111, 562-401-6247 fax 916-640-8161, 916-640-8151 fax
Morris Baumgarten, MD *Carol B. Vandenakker-Albanese, MD
Orthopedic Surgeon University of California-Davis Medical Center
931 Buena Vista St #505 Physical Medicine & Rehabilitation
Duarte, CA 91010 3301 C St Ste 1500
626-357-9931, 626-359-0739 fax Sacramento, CA 95816
916-734-7463, 916-734-6493 fax
Geoffrey L. Sheean, MBBS, MD
cvalbanese@ucdavis.edu
Clinical Professor, Neurosciences
ALS Center & Neuromuscular Division Jeremy Wren, DO
University of California San Diego Mercy Medical Group
9500 Gilman Dr # MC0662 Physical Medicine & Rehabilitation
La Jolla, CA 92093 3000 Q St, Fourth floor
gsheean@ucsd.edu Sacramento, CA 95816
916-733-3373, dignityhealth.org
Andrei N. Dokukin, MD
Physical Medicine & Rehabilitation Andrew Skalsky, MD
Lakewood Regional Medical Center Chief of Rehabilitation Medicine
3650 E South St #101 Rady Children’s Hospital & Health Center (adults)
Lakewood, CA 90712 3020 Children’s Way MC 5096
562-633-1765 San Diego, CA 92123
858-966-8974, 858-966-6721 fax
Barry Ludwig, MD
Neurology & Rehab Medical Group Rhoda Olkin, PhD
100 UCLA Medical Plz, Ste 425 California School of Professional Psychology
Los Angeles, CA 90024 Alliant International University San Francisco
310-794-1500 1 Beach St Ste 100
San Francisco, CA 94133-1221
Susan L. Perlman, MD
415-955-2129, rolkin@alliant.edu, rolkin@astound.net
Clinical Professor, Neurology
Director, Ataxia Center & HD Center of Excellence Lorne Label, MD
300 UCLA Medical Plaza Ste B200 2100 Lynn Rd Ste 230
Los Angeles, CA 90095-8346 Thousand Oaks, CA 91360
310-794-1195, 310-794-7491 fax 805-497-4500, 805-495-1717 fax
sperlman@mednet.ucla.edu drlabel@cns-neurology.com
Eric Alexander, MD
Martinez Medical Offices CALIFORNIA–Support Groups
Physical Medicine & Rehabilitation High Desert Post-Polio Support Group
Hacienda Bldg, 200 Muir Rd Julie Hueftle
Martinez, CA 94553 Apple Valley
925-313-4740 760-686-5813, j_hueftle@yahoo.com
*Casa Colina Centers for Rehabilitation Sierra Hills Post-Polio Syndrome Group
Richard Shubin, MD, Neurology Auburn
Kathy SanMartino, PT, NCS, ATP, CLT Barbara Childress: babc2003@pacbell.net
255 E Bonita Ave, PO Box 6001 Carolyne Reed: megaphone47@sbcglobal.net
Pomona, CA 91769-6001
909-596-7733, 909-392-9152 fax, 909-450-0391 fax Mary Correia
ksanmartino@casacolina.org Bakersfield
661-836-9220, treec2@att.net
Howard Orthopedics, Inc Resource only
3065 Richmond Parkway #112
Richmond, CA 94806 Sacramento Region Polio Survivors Group
510-222-1282, 510-222-1284 fax Loretta Haynes
www.howardorthopedics.com 916-844-7676, lkhaynes2@att.net
www.sacramentopoliosurvivors.com
12 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlSan Francisco Bay Area Polio Survivors (SFBAPS) Post-Polio Group/California North Coast
PO Box 5104 Janet Johnson
Concord, 94524-0104 PO Box 9397
510-223-4772, 650-368-8185, Santa Rosa, CA 95405-1397
415-440-5657, 925-926-0110, 925-837-3728 707-524-7865, ppsgsonoma@yahoo.com
Stella R. Cade: poliogirl45@aol.com
Phyllis Hartke: phartke@aol.com COLORADO–Health Professionals
SFBAPS@aol.com, www.SFBAPS.org
Deeann Vink, PT
Polio Support Group of the San Gabriel Valley Advanced Spine Physical Therapy
& West Inland Empire Drake Professional Park
Marci Ellison: 626-484-3116 343 W Drake Rd Ste 102
Mary Ellen Stan: stan742631@aol.com Fort Collins, CO 80526
Polio Survivors Association 970-204-9635, 970-204-9730 fax
Richard L. Daggett www.advanced-spine.com
Downey Julie Trail, DPT
562-862-4508, 562-252-8128 fax A Personalized Physical Therapist
Email contact preferred 6021 S Syracuse Way Ste 105
info@polioassociation.org, richard@polioassociation.org Greenwood, CO 80111
www.polioassociation.org 720-448-6820, 720-446-3523 fax
Rancho Los Amigos Post-Polio Support Group julie@apersonalizedpt.com, www.apersonalizedpt.com
Diane Ekonen *Marny K. Eulberg, MD
Downey Mountain & Plains Post Polio Clinic
562-861-8128, ranchoppsg@hotmail.com 9461 W 37th Pl
Post-Polio Support Group of Orange County Wheat Ridge, CO 80033
M. Priscilla Hiers 303-829-1538, 303-940-9800 fax
Fountain Valley MarnyEulberg@centura.org
714-968-1675, prisofoc@aol.com, www.ppsupportoc.org
COLORADO–Support Groups
Polio Survivors Plus
Sue Lau / Carol Shahandeh Colorado Post-Polio Council
PO Box 5513 Sue Brandon
Orange, CA 92863-5513 Sue.brandon@q.com
714-393-5706, 714-639-7497 Nancy Hanson, Easter Seals Liaison
PolioSurvivorsPlus@gmail.com 303-233-1666 ext. 237, nhanson@eastersealscolorado.org
East Ventura County Post-Polio Support Group Aurora
Sharon L. Ertel Myrna Schmidt
Oxnard 608-790-5755, myrnaschmidt1@yahoo.com
805-485-9664, sharertel@verizon.net
Colorado Springs
Riverside Area Polio Survivors Hal Goldberg
Bryan & Judy Mahoney 303-212-0017, halgoldberg@halgoldberg.net
Riverside
Grand Junction/Delta
951-788-9310, ppsriverside@aol.com, askjudy@mail.com
Melanie McClanahan
San Diego Polio Survivors 303-638-3302, melcoloradogirl@gmail.com
Rick E. Kneeshaw, MA
Lakewood/Golden
San Diego
Annette Beck
619-884-1220
303-427-1789, annette.beck242@outlook.com
Gladys Svensrud: 858-271-9288
polio@mindspring.com, http://polio.home.mindspring.com Northern Colorado (Fort Collins) Support Group
Peter Way
Marin County Post-Polio Support Group
970-223-7479, NOCOPolio@gmail.com
Francine Falk-Allen
San Rafael North Metro Area
FrancineAllen@comcast.net Jill Eelkema
612-865-4528, jille@westerncarepartners.com
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 13Pueblo Tamar S. Ference, MD
Mary Agnes Leonard Assistant Professor, Department of Rehabilitation Medicine
719-544-4789, maryagnesleonard@gmail.com 1120 NW 14 St, 952, PO Box 0169060 (C-206)
Miami, FL 33136
South Metro Area 305-243-4588, 305-243-6605 appts, 305-243-4650 fax
Hal Goldberg tference@med.miami.edu
303-212-0017, halgoldberg@halgoldberg.net
*Post-Polio Treatment, Education & Research Center
CONNECTICUT–Health Professional Khema Sharma, MD
University of Miami Miller School of Medicine
Luci Juvan, MD Dept of Neurology
Gaylord Specialty Healthcare 1120 NW 14 St, 1317
50 Gaylord Farm Rd Miami, FL 33136
Wallingford, CT 06492 305-243-7400, 305-243-1249 fax
203-284-2800, www.gaylord.org ksharma@med.miami.edu
Andrew Sherman, MD
CONNECTICUT–Support Group University of Miami School of Medicine
The Polio Outreach of Connecticut PO Box 016960
Linda Wheeler Donahue, President Miami, FL 33101
Southbury, CT 305-243-6605, 305-243-3520 fax
203-264-1075, LinOnnLine@aol.com asherman@med.miami.edu
Irma Heilbron, Secretary and 1475 NW 12th Ave, Miami, FL 33136
203-376-2233, idheilbron@yahoo.com 305-243-6605
http://poliooutreachct.com
*Post-Polio Evaluation Team of North Central Florida
Amy E. Clunn, MD
DISTRICT OF COLUMBIA–Health Professional Southeastern Rehabilitation Medicine
John Aseff, MD 3305 SW 34th Cir Ste 101
NRH Regional Rehabilitation Ocala, FL 34474
102 Irving St NW Ste 3418 352-732-3110, 352-373-4321 appts
Washington, DC 20010 866-346-8677 toll-free
202-877-1657 Mitchell J. Freed, MD
2501 N Orange Ave Ste 505
FLORIDA–Health Professionals Orlando, FL 32804-4674
407-898-2924, 407-894-5387 fax
Michelle Guevin, PT, MHSc, MTC
Palma Sola Medical Associates Cynthia Henley, PT
2227 59th St W 7655 SW 142 St
Bradenton, FL 34209 Palmetto Bay, FL 33158
941-795-5922, 941-761-1682 fax 305-733-8809, cynthiahenley@bellsouth.net
MGuevinDPT@aol.com
Rodolfo Eichberg, MD
Peter Schreiber, MD Rehabilitation & Electrodiagnostics
Physical Medicine & Rehabilitation 2914 N Boulevard
632 Del Prado Blvd N Ste 101 Tampa, FL 33062
Cape Coral, FL 33909 813-228-7696, 813-228-0677 fax
239-772-5577
*Halifax Medical Center/Neuroscience Center FLORIDA–Support Groups
Carolyn Geis, MD Boca Area Post-Polio Group
Physical Medicine & Rehabilitation Maureen A. Sinkule: 561-488-4473, bappg@aol.com
303 N Clyde Morris Blvd Carolyn DeMasi: 352-245-8129, ccdemasi23@hotmail.com
Daytona Beach, FL 32114 www.postpolio.wordpress.com
386-425-5911, carolyn.geis@halifax.org
Meg Magnan
Aldo Alvarez, MS, LPO, CPO Carrabelle
Ortho Pro Associates 260-701-2960, megmagnan@gmail.com
9150 SW 87 Ave #B100 Resource only
Miami, FL 33176
305-598-9688, www.orthoproassociates.com
14 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlPost-Polio Alliance of South Florida GEORGIA–Support Groups
Pat Richmond
Miami Atlanta Post-Polio Association (APPA)
305-255-5851, ppsofsouthfl@aol.com Carol Crumby
PO Box 245
Post-Polio Support Group of Brevard County Cumming, GA 30028
JoAnn McDonald 404-350-7631, appaemail@gmail.com
Melbourne www.atlantapostpolio.com
321-622-8040
Coastal Empire Polio Survivors Assn Inc
North Central Florida Post-Polio Support Group Cheryl Brackin
Carolyn P. Raville Savannah
Ocala 912-927-8332, cherylbrackinslp@hotmail.com
352-489-1731, 352-465-3825 fax www.coastalempirepoliosurvivors.org
carolyn@postpoliosupport.com
www.postpoliosupport.com IDAHO–Health Professionals
Pensacola Post-Polio Support Group Robert H. Friedman, MD
Clara Norsworthy, 850-944-5834 Idaho Physical Medicine & Rehabilitation
Leigh Dethlefs, gldsld05@gmail.com 600 N Robbins Rd Ste 300
Pensacola Boise, ID 83702
Southern Hillsborough County Post-Polio Support Group 208-489-4016
Pam Vogelsang
Sun City Center ILLINOIS–Health Professionals
813-294-8186, flgrammypam@yahoo.com
Kristi L. Kirschner, MD
Power Over Polio Support Group University of Illinois College of Medicine
Barbara Meyers Dept of Neurology & Rehabilitation
The Villages Chicago, IL
352-753-2263, meyers2@comcast.net kkirschn@uic.edu
Resource only, does not see patients
GEORGIA–Health Professionals Raymond P. Roos, MD
Dale C. Strasser, MD Director, Motor Neuron Disease Clinic
Emory University School of Medicine University of Chicago Medical Center
Center for Rehabilitation Medicine 5841 S Maryland Ave Ste MC 2030
1441 Clifton Rd NE Ste 118 Chicago, IL 60637
Atlanta, GA 30322 773-702-6390, 773-702-5546 appts
404-712-3837, 404-778-5770 appts 773-702-9076 fax, MDA 773-702-9089
404-712-5668 fax, dstrass@emory.edu rroos@neurology.bsd.uchicago.edu
www.rehabmed.emory.edu Scheck and Siress
Ken Collier, CO, BOCO, LO Prosthetics, Orthotics, Pedorthics
Augusta Orthotics & Prosthetics, Inc. 2551 N Clark St # 200
2068 Wrightsboro Rd Chicago, IL 60614
Augusta, GA 30904 773-472-3663
706-733-8878, 866-365-2674, 706-733-4434 fax (Also in Bannockburn, Evanston, Hickory Hills,
ken@augustaoandp.com, www.augustaoandp.com Naperville, Oakbrook Terrace, Oak Park,
Rush University Medical Ctr, Schaumburg, UIC)
Carolyn Podolski, OTR/L, MA www.scheckandsiress.com
Southland Health and Rehabilitation
151 Wisdom Rd
Peachtree City, GA 30269
770-631-9000 ext 127, bizbama@aol.com
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 15ILLINOIS–Support Groups IOWA–Support Group
Polio Survivors & Friends of East Central Illinois Tri-State Post-Polio Support Group
Annamaria T. Barber, RN Joan D. Bellmann
Charleston Dubuque
217-345-1549 after 4 pm 563-588-1692, 563-588-9833 fax, rjpub@mchsi.com
annieb_777@hotmail.com
Polio Survivors of Springfield Area KANSAS–Health Professionals
Ann R. Hughes John Fan, MD
Riverton Hutchinson Clinic
217-629-8881, kapsh@juno.com 2101 N Waldron
Mary Ann Buckingham Hutchinson, KS 67502
Worth 620-669-2231
708-448-7237 Tad Wrench, MPT
Resource only Preferred Physical Therapy LLC
315 W Washington
INDIANA–Health Professionals Sterling, KS 67579
620-204-6116
Deborah Goodwine, MS and 2803 N Lorraine
Certified Nutritionist
Hutchinson, KS 67502
3686 E Fall Creek Pkwy N Dr 620-662-3111, twrench@attclinincs.com
Indianapolis, IN 46205
317-329-9833, tazandsophie@gmail.com Atul T. Patel, MD
Kansas City Bone & Joint Clinic, Inc
Rehabilitation Associates of Indiana Corporate Medical Plaza Bldg
6330 E 75th St Ste 110 10701 Nall Ave Ste 200
Indianapolis, IN 46250 Overland Park, KS 66211
317-588-7130, 317-588-7133 fax 913-381-5225, 913-901-0186 fax
Scheck and Siress
Prosthetics, Orthotics, Pedorthics KANSAS–Support Groups
6629 W Lincoln Hwy (Rt 30)
Schereville, IN 46325 Central Kansas Polio Survivors Support Association
219-864-9501 Jean Graber
Pretty Prairie
620-459-6355, jmgraber3@gmail.com
INDIANA–Support Groups www.ckpolio.org
Michiana Polio Network Topeka Post-Polio Support Group
Darlene Lidy William D. Kvicala
Goshen, IN 46526 Topeka
574-522-2368, darlenelidy@wheelchairhelp.org 785-272-5138
Roxann O’Brien Wichita Post-Polio Support Group
Zanesville Carole Utermark
260-638-4766, roxob@aol.com Wichita
316-651-5685, utrmrk@gmail.com
IOWA–Health Professionals
Donna J. Bahls, MD KENTUCKY–Health Professional
Physical Medicine William P. Williamson, II, MD
Capital Orthopedics & Sports Medicine Rehabilitation Associates, PSC
12499 University Ave, Ste 210 220 Abraham Flexner Way, Ste 300
Clive, IA 50325 Louisville, KY 40202-1887
515-440-2676 502-899-3623, 502-584-3480 fax
wwilliamson@rehabmds.net
16 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlLOUISIANA–Health Professional Reginald Nettles, PhD, CGP
Licensed Psychologist and Professional Life Coach
Stephen Kishner, MD 6217 Ironwood Way
LSU School of Medicine Columbia, MD 21045-4466
1450 Poydras St 410-290-7999, 443-583-2353 fax, r.nettlesphd@gmail.com
New Orleans, LA 70112
504-412-1100 Amit Bhargava, MD, MS (Orthopedics), RMSK
Physical Medicine & Rehabilitation
LOUISIANA–Support Group Medical Director
Advanced Interventional Pain & Sports Medicine Center
Easter Seals LA Polio Support Network 20 Crossroads Dr Ste 210
Janet Pepperman Owings Mills, MD 21117
Prairieville 410-581-2969, 410-581-5775 fax, www.bPain.com
504-450-0480, janpepperman@netzero.com
MARYLAND–Support Groups
MAINE–Health Professionals
The Polio Society
Richard Parker, PhD Reginald Nettles, PhD
72 Front St Columbia
Bath, ME 04530 410-290-7999, poliosociety@yahoo.com
207-443-6180
Polio Support Group of Central Maryland
Dorothy L. Woods Smith, PHD, RN, AHN-BC Jean E. Williams
Houses of Healing Columbia
25 Wakely Ct 410-312-0606, jewilli@comcast.net
Portland, ME 04103 Fay Baker: 301-596-4156, mbakerf@comcast.net
207-797-8088, dwsmith@maine.edu
www.housesofhealing.com MASSACHUSETTS–Health Professionals
MAINE–Support Groups Nicholas S. Hill, MD
Chief, Pulmonary, Critical Care & Sleep Medicine
Portland Region Post-Polio Support Group Tufts Medical Center
Jane P. Lindquist 800 Washington St Ste. 257
Falmouth Boston, MA 02111
janeplindquist@icloud.com 617-636-4288, 617-636-5953 fax
207-576-3868 NHill@tuftsmedicalcenter.org
Post-Polio Support Group of Maine *International Rehabilitation Center for Polio (IRCP)
Ann B. Crocker at Spaulding-Framingham
West Gardiner Darren Rosenberg, DO, Medical Director
207-724-3784, abcrocker@roadrunner.com Spaulding-Framingham
www.ppsgm.org 570 Worcester Rd
Framingham, MA 01702
MARYLAND–Health Professionals 508-532-4259
www.spauldingrehab.org/services/outpatient/post-polio.aspx
Noah Lechtzin, MD, MHS, FCCP
Pulmonary & Critical Care Medicine Stephanie T. Machell, PsyD
Johns Hopkins University Rehabilitation Psychology
1830 E Monument St 5th Floor 40 Speen St
Baltimore, MD 21205 Framingham, MA 01701
410-502-7044, 410-502-7048 fax, nlechtz@jhmi.edu 617-776-4001, drstm@mindspring.com
Lauro S. Halstead, MD, MPH Albert Loerinc, MD
4405 East-West Hwy Ste 504 Pulmonary Medicine
Bethesda, MD 20814 New Bedford Rehabilitation Hospital
contact@laurohalsteadmd.com, www.laurohalsteadmd.com 4499 Acushnet Ave
New Bedford, MA 02745
Barbara C. Sonies, PhD, CCC-SLP, BRS-S 508-995-6900, 508-998-9365 fax
Dept of Hearing & Speech Sciences aloerinc@newbedfordrehab.com
University of Maryland
0100 LeFrak Hall
College Park, MD 20742
301-405-5237, bsonies@umd.edu
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 17MASSACHUSETTS–Support Groups Mid-Michigan Post-Polio Support Group
Ethel Jean Iutzi
Amherst Post-Polio Support Group Harrison
Philippe G. Galaski 989-539-3781, hnjutzi12@ejourney.com
413-727-8639
phgalaski@gmail.com Lansing Area Post-Polio Support Group
Margaret Nielsen
North Shore Area Post-Polio Support Group 517-336-5921, nielsenwilliams@yahoo.com
Barbara Mintz
Newburyport
978-465-1059, harry.m.mintz@gsk.com
MINNESOTA–Health Professionals
Jennine Speier, MS, MD
MICHIGAN–Health Professionals Physical Medicine & Rehabilitation
Sister Kenny Rehabilitation Associates
*Ann T. Laidlaw, MD 800 E 28th St
University of Michigan Health Systems Minneapolis, MN 55407
Physical Medicine & Rehabilitation 612-863-4495, 612-863-8942 fax
325 E Eisenhower Ste 100 www.sisterkennyinstitute.com
Ann Arbor, MI 48103
734-936-7175, 734-615-6713 fax, alaidlaw@umich.edu Mark Christopherson, MD
Physical Medicine & Rehabilitation
Michael Andary, MD, MS Mayo Clinic
1200 E Michigan Ste 520 200 First Street SW
Lansing, MI 48912 Rochester, MN 55905
517-364-5260 507-284-0966; 507-255-1625 fax
Steven R. Hinderer, MD * Gillette Children’s Specialty Healthcare
Michigan Abilities Center Jill Gettings, MD
Physical Medicine & Rehabilitation 435 Phalen Blvd
34020 7 Mile Rd Ste 102 Saint Paul, MN 55130-5302
Livonia, MI 48152 651-636-9443, 651-628-4484 fax
734-622-9500, pmrinfo@michiganabilitiescenter.org jgettings@gillettechildrens.com
Frederick M. Maynard, MD www.Gillettechildrens.org
427 E Michigan St
Marquette, MI 49855 MINNESOTA–Support Group
906-228-8217, fmmaynardmd@charter.net
Twin Ports Post-Polio Network
*Center for PM&R, PC Leo F. Plewa
Daniel M. Ryan, MD Hermantown
13850 E 12 Mile Rd Ste 2B 218-729-9635, lfplewa@yahoo.com
Warren, MI 48088-3730
586-778-4505, 586-552-4878 fax MISSOURI–Health Professionals
Jennifer L.K. Clark, MD, PC
MICHIGAN–Support Groups
Physical Medicine & Rehabilitation
Michigan Polio Network Columbia Orthopaedic Group
Tim Brown, Vice Chairman and Treasurer 1 South Keene St
Grosse Point Woods Columbia, MO 65201
313-886-6081 573-443-2402, 573-876-8647 fax
info@michiganpolionetwork.com j.clark@columbiaorthogroup.com
www.michiganpolionetwork.com
Karl J. Haake, MD
Southeast Michigan Post-Polio Support Group The Center for Pain Management
Bonnie E. Levitan 100 St. Mary’s Plaza
Grosse Pointe Jefferson City, MO 65101
313-885-7855, pigger_38@yahoo.com 573-636-3483
Post-Polio Connection Melvin Karges, MD
Sunny Roller, MA Physical Medicine & Rehabilitation
Liina Paasuke, MA 702 E 34th St Ste 100
Ann Arbor Joplin, MO 64804
734-971-1715, liina610@sbcglobal.net 417-782-1700, 417-782-1747 fax
18 Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.htmlKeith Smith, CO NEBRASKA–Support Group
Orthotic & Prosthetic Lab, Inc
West County Patient Care Center Nebraska Polio Survivors Association
777 S New Ballas Ste 116 W Elaine Allen
Saint Louis, MO 63141 PO Box 6076
314-567-7775, 314-567-3792 fax Omaha, NE 68106-0076
Keithorth@sbcglobal.net 402-932-5426
npsa.org@hotmail.com, www.ne-polio.org
*Center for Advanced Medicine Neuroscience Center
Martin B. Wice, MD NEVADA–Support Group
Kate Marlow, MD
4921 Parkview Place Ste 6C South Nevada Association of Polio Survivors (SNAPS)
Saint Louis, MO 63110 Sylvia Soden
314-362-4503 Las Vegas
702-331-9813, sodenssnaps@gmail.com
MISSOURI–Support Groups http://snapsnv.org
Maryann “Miki” Gudermuth NEW HAMPSHIRE–Health Professionals
1314 Brookshire Rd
Cape Girardeau, MO 63701 * Granite Physiatry, PLLC
573-275-0754, mikiag@charter.net Stuart J. Glassman, MD, FAAPMR
Resource only 60 Commercial St Ste 303
Concord, NH 03301
Greater Kansas City Post-Polio Support Group 603-223-8145, 603-223-8146 fax
Judith Wilson www.granitephysiatry.com
816-741-1620, jkw1620@sbcglobal.net
www.postpokc.org Martha Torrey, PT
Foothills PT
Greater St. Louis Post-Polio Support Group 28 Commercial St
314-534-0475, info@post-polio.org Concord, NH 03301
Mid-Missouri Post-Polio Support Group 603-225-5132, mstxcski@gmail.com
Alvin G. Cook, Sr.
Sedalia NEW JERSEY–Health Professionals
660-829-0902, Coachman64@aol.com
Jerald Zimmerman, MD
370 Grand Ave Ste 102
MONTANA–Support Group Englewood, NJ 07631
Polio Survivors of Montana 201-567-3370 (press 6), egsjrz@aol.com
Ann Tuss Richard L. Bruno, HD, PhD
406-750-0352, psom@poliosurvivorsofmt.org Clinical Psychophysiology
www. poliosurvivorsofmt.org International Centre for Post-Polio Education
and Research
NEBRASKA–Health Professionals Hackensack
201-342-6777, postpolioinfo@aol.com
Jacob Keough, CO
www.postpolioinfo.com
OrthoMedics
Resource only
13217 F St
Omaha, NE 68137 Melanie-Ann Llanes, PTA
402-614-7321 Marguerita Murray, MS, OTR/L
omaha@orthomedics.us, www.orthomedics.us Hackensack Meridican Health
Mountainside Medical Center
Victoria McHugh, DPT
1 Bay Ave
Key Physical Therapy
Montclair, NJ 07042
7686 Walnut St
Omaha, NE 68124
402-578-3146, 402-916-1739 fax
MyKeyPT@hotmail.com
Post-Polio Directory 2020© www.post-polio.org/net/poldirhm.html 19John R. Bach, MD NEW MEXICO–Health Professional
Department of Physical Medicine & Rehabilitation
Behavioral Health Sciences Building Kimberly Encapera, MD
182 S Orange Ave Rehabilitation Hospital of Southern New Mexico
Newark, NJ 07103 4441 E Lohman Ave
973-972-2850, 973-972-5725 fax Las Cruces, NM 88011
bachjr@njms.rutgers.edu, www.doctorbach.com, 575-521-6440, 575-521-6551 fax
www.breatheNVS.com, www.breatheBB.com
NEW MEXICO–Support Group
Arthur J. Sakowitz, MD
Pulmonary Medicine Assoc PA New Mexico Post-Polio Support and Education Group
1 W Ridgewood Ave Ste 206 Susan S. Turner, LCSW
Paramus, NJ 07652-2361 12836 Lomas Blvd NE Ste B
201-493-0366, 201-493-0379 fax Albuquerque, NM 87112
505-275-0203, turnerlisw@aol.com
Bacharach Institute for Rehabilitation
61 Jimmie Leeds Rd
Pomona, NJ 08240 NEW YORK–Health Professionals
609-748-2081 TMR Orthotic Prosthetic Service
Ethel Mieles
NEW JERSEY–Support Groups Robert Martinez
2418 Ditmars Blvd
Polio Network of New Jersey (PNNJ) Astoria, NY 11105
Lottie Esteban, President 718-726-8477
110 Chestnut Ridge Rd, #330
Montvale, NJ 07645 Jonathan Breux, CO, CPED
201-391-0758, info@pnnj.org, www.pnnj.org Hanger Clinic
310 Pennsylvania Ave
Atlantic County Elmira, NY 14904
Marge or Steve Disbrow 607-734-7215, 607-734-7750 fax, jbreux@hotmail.com
609-909-1518, Kittystamp@comcast.net
Scott Irwin, PT
Bergen County Polio Support Group Pegasus Physical Therapy, PC
Heather Broad 114 Parkway Dr S
201-845-6317, hbroad@netzero.net Hauppauge, NY 11788
Essex-Union 631-543-1614, 631-543-1615, Pegasus@catzli.com
Edwina Jackson Judith Glaser, DO
973-673-0380, nubianqueen8@aol.com 410 Lakeville Rd Ste 303
Thelma Van Liew New Hyde Park, NY 11042
908-753-6514, thelmavanliew@hotmail.com 516-327-9777, www.drjudithglaser.com
Resource only Jeffrey M. Cohen, MD
Monmouth Post-Polio Support Group Jung H. Ahn, MD
Thomas Wilczewski Rusk Rehabilitation Institute
732-229-9343 New York University
240 E 38th St
Morris County Polio Network New York, NY 10016
973-769-0075, drvince@njpolio.org 212-263-6037 (Cohen), 212-263-6122 (Ahn)
Ocean County Polio Support Group Norma M.T. Braun, MD, FACP, FCCP
Mary Jane Vecchione Ombudswoman, Clinical Professor of Medicine
Toms River, NJ Icahn School of Medicine, Mt. Sinai Health System (MSHS)
732-341-6805, mjv1212v@comcast.net Senior Attending, Department of Medicine
Facebook.com/OCPPSG Pulmonary/Critical Care/Sleep Division MSSL-MSW
Southwest Jersey Chair-Archives Committee
Anna Nasuti Medical Board – Mt. Sinai-St. Luke’s – Mt. Sinai
856-740-1106, amn46@comcast.net (Roosevelt) West
1111 Amsterdam Avenue, Chapel 3; Room 323
New York, NY 10025-1737
212-636-1369, 212-523-4410 (clinic), 212-523-4313 fax
914-772-7930 (cell), norma.braun@mountsinai.org
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