POST-POLIO DIRECTORY 2021 - Post-Polio Health International's - Post-polio.org
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Post-Polio Directory 2021©
1 Introduction
2 International Health Professionals and Support Organizations
11 United States Health Professionals and Support Organizations
27 Other Useful Contacts
Post-Polio Directory 2021© is for information purposes only.
A listing does not imply endorsement by Post-Polio Health International.
©Copyright 2020 by Post-Polio Health International (PHI). All rights reserved.
No part of this publication may be reproduced or transmitted in any form
without permission in writing from the copyright holder.
Additions and corrections may be sent to info@post-polio.org
Printed copies are $15 each at http://shop.post-polio.org.
50 Crestwood Executive Center #440, St. Louis, MO 63126 USA
314-534-0475, 314-534-5070 fax
info@post-polio.org, www.post-polio.org, www.polioplace.org
UPDATED 4-24-21Introduction: PHI, then Gazette International Networking Institute, published its
first Post-Polio Directory in 1985 to assist survivors of polio who were experiencing
the late effects of polio to find health professionals. At the 1983 Conference, the
organization was charged with encouraging the formation of local support groups
and the current Post-Polio Directory includes those groups, too.
How it is organized: There are three sections.
1) International Health Professionals and Support Organizations,
which are organized alphabetically by country with health professionals
listed first in alphabetical order by city, followed by support groups listed by
alphabetical order by city.
2) United States Health Professionals and Support Organizations,
which are organized alphabetically by state with health professionals listed
first in alphabetical order by city, followed by support groups listed in
alphabetical order by city.
3) International and US Other Useful Contacts listed by topical areas.
How to use it: Post-Polio Health International’s comprehensive websites
(www.post-polio.org, www.polioplace.org, www.ventusers.org) contain years
of information about the late effects of polio and are continually updated. The
Post-Polio Directory is a good place to start to find local resources. Support groups
also may be able to suggest names of local health professionals.
Another option is to contact a physiatrist – physician specializing in physical
medicine and rehabilitation, or a rehabilitation center. A few rehabilitation centers
stated that while they don’t have a post-polio clinic, they are confident that their
staff of rehabilitation professionals has sufficient knowledge and experience with
treating neuromuscular diseases (or disabling neuromusculoskeletal conditions)
to be able to successfully treat polio survivors.
Articles of interest:
• Polio Doctors, Post-Polio Clinics,
• Options When a Post-Polio Clinic is not an Option (pages 36-39)
• Support Groups , Post-Polio Support Group Resources
How to join PHI: Post-Polio Health International is a Membership organization.
To support its activities, join PHI at http://shop.post-polio.org or by printing
out a Membership form. Post-Polio Directory is free with Contributor and
Sustainer Memberships.
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 1International Health Professionals and Support Organizations
*Post-Polio Clinic
AUSTRALIA–Health Professionals Polio Polio Victoria Inc.
Ross House, 247-251 Flinders Lane
*Mt Wilga Private Hospital Melbourne, Victoria 3000
66 Rosamond St +61 431 702 137, postpoliovictoria@gmail.com
Hornsby, New South Wales 2077 www.postpoliovictoria.org.au
+61 2 9847 5000, +61 2 9477 1253 fax
www.polionsw.org.au/late-effects-of-polio-assessment-clinic Mornington Peninsula Post-Polio Support Group
Frances Henke
Stephen de Graaff, MB, BS, FRACM, FAFRM Mornington, Victoria
Director of Pain Services, Epworth Rehabilitation fhenke@bigpond.net.au
888 Toorak Rd
Camberwell, Victoria 3124 Polio NSW Inc
+61 3 9809 2444, +61 3 9889 6756 fax Gillian Thomas
PO Box 2799
*Polio Services Victoria, Melbourne North Parramatta, NSW 1750
Russel Anbiah, Physiotherapist +61 2 9890 0946
St. Vincent’s Hospital Melbourne office@polionsw.org.au, www.polionsw.org.au
PO Box 2900, Bolte Wing, Nicholson St
Fitzroy, Victoria 3065 Polio NSW, Port Macquarie Post-Polio Support Group
+61 3 9288 3900, +61 3 9288 3808 fax Gail Hassall
psv@svhm.org.au, www.psv.svhm.org.au Port Macquarie, NSW
+61 2 6581 4759, portppsg@live.com.au
*Late Effects of Disability and Orthotic Clinic
Dr. Mei Ang, Rehab Specialist Post-Polio Network of Western Australia
Fiona Stanley Rehab Hospital Tessa Jupp, RN
Murdoch, Western Australia PO Box 257
+61 8 6152 7420 Subiaco, Western Australia (Floreat area)
+61 8 9383 9050, +61 8 9383 9075 fax
*Post-Polio Network of Western Australia Clinic poliowa@upnaway.com.au
Dr. John Watson, MBBS, FANZCA www.upnaway.com.au/~poliowa
Tessa Jupp, RN
PO Box 257, Subiaco, 6904, Western Australia (Floreat) Post Polio Networks (Qld)
+61 8 9383 9050, poliowa@upnaway.com.au Spinal Injuries Association
www.upnaway.com.au/~poliowa 109 Logan Road
Woolloongabba Queensland 4102
AUSTRALIA–Support Groups PO Box 5651
West End, Queensland 4101
Polio Network Victoria +61 7 3391 2044
Independence Australia – Community Solutions enquiries@spinal.com.au, www.spinal.com.au
208 Wellington St
Collingwood, Victoria 3066 AUSTRIA–Support Group
+61 3 1300 704 456, +61 3 1300 704 451 fax
polio@independenceaustralia.com Selbsthilfe Polio – Post-Polio Syndrome
info@independenceaustralia.com www.polio-selbsthilfe.at
www.independenceaustralia.com/polio
15 groups BANGLADESH–Health Professional
Polio Australia Incorporated Dr. Raju Dhakal
PO Box 500, Kew East, Victoria 3102 Chairman at Dept. of Physical Medicine and Rehab.
Ste 119C, Level 1, 89 High Street Bangabandhu Sheikh Mujib Medical University
Kew, Victoria 3101 Room No.130, Block-C
+61 3 9016 7678, mary-ann@polioaustralia.org.au Shahbag, Dhaka-1000
office@polioaustralia.org/au, www.polioaustralia.org.au yo_duniya@hotmail.com
2 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlBELGIUM–Support Groups *Montreal Neurological Institute & Hospital
Daria A. Trojan, MD, Director, PM&R
European Polio Union Diane Diorio, MD, Neurology
Walvisstraat 32 3801 University St
B 2018, Antwerp Montreal, QC H3A 2B4
europeanpolio@eircom.net, www.europeanpolio.eu 514-398-8911, 514-398-2745 fax
PostPolio België Diorio: 514-398-5034, 514-398-3972 fax
Johan Bijttebier Elizabeth Dean, DipPT, BA, MS, PhD
Nachtegaalstraat 47 Department of Physical Therapy
2060 Antwerpen University of British Columbia
+32 3 288 7794, +32 3 226 2315 fax 212 Friedman Building, 2177 Wesbrook Mall
johan.bijttebier@telenet.be, www.postpolio.be Vancouver, BC V6T 1Z3
Association belge des Paralyses – ABP asbl 604-822-7398, elizabeth.dean@ubc.ca
Chaussée de Gand 1434
B-1082 Brussels CANADA–Support Groups
+32 2 421 69 62, www.abpasbl.be (Alphabetical order by province)
Southern Alberta Post-Polio Support Society
BRAZIL–Health Professionals 403-813-9583, calgary@sappss.com
Daniel Ramos Rodrigues Figueirado, MD www.polioalberta.ca
Hospital de Apoio de Brasilia Southern Alberta Post-Polio Support
AENW 3 Lote A Setor Noroeste, Brasilia - DF Society-Lethbridge
70684-831, Brazil 403-329-9453, lethbridge@sappss.com
+55 65 99352-5005 www.sappss.com
www.saude.df.gov.br
Wildrose Polio Support Society
Sergio Silva de Mello, Anesthesiology Glyn Smith
Rua Rio de Janeiro n 1881 780-428-8842, 780-475-7968 fax
1301, Belo Horizonte wpss@polioalberta.ca
ssmello2000@gmail.com, sergiomello@sarah.br www.polioalberta.ca/wildrose/wpss.htm
*Federal University of Sao Paulo’s Medical School Post-Polio Network (Manitoba) Inc
Dr. Acary Oliveira, Chief, Neurology Dept SMD Self-Help Clearinghouse
Tatiana Mesquita e Silva, Physiotherapist 204-825 Sherbrook St
Abrahão Quadros, Physiotherapist Winnipeg, Manitoba R3A 1M5
Rua Estado de Israel, 899 - VL. Clementino 204-975-3037, 204-975-3027 fax
Sao Paulo, SP postpolionetwork@shaw.ca, www.postpolionetwork.ca
+11 5571-3324, +11 5083-1051
tatimsilva@gmail.com, www.institutogiorgionicoli.org.br Polio New Brunswick
Peter Hefferman
BRAZIL–Support Groups 506-635-8932, peterhef@nbnet.nb.ca
Associação Luso Afro-Brasileira de Poliomielite Polio Northern New Brunswick
e Síndrome Pós-poliomielite Claudia LeBlanc
Stepaway Polio 506-548-1919, sunrayfifty@yahoo.com
Rua Pau Ferro n.400 Polio Nova Scotia
Jardim Faye Joudrey
A Associação G-14 de Apoio aos Pacientes c/o Abilities Foundation of Nova Scotia
de Poliomielite e Síndrome Pós-Pólio 3670 Kempt Rd
Sao Paulo Halifax, Nova Scotia B3K 4X8
www.pospolio.org.br 902-453-6000, admin@abilitiesfoundation.ns.ca
www.abilitiesfoundation.ns.ca
CANADA–Health Professionals Ontario - Post-Polio Canada
A Division of March of Dimes Canada
K. Ming Chan, MD, FRCPC, Professor Jennifer Cote
Division of Physical Medicine & Rehabilitation 888-480-5903, jcote@marchofdimes.ca
Centre for Neuroscience www.poliocanada.ca
5-005 Katz Group Centre, University of Alberta
Edmonton, AB T6G 2E1
780-492-1614, ming.chan@ualberta.ca
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 3Grey Bruce Huron CHINA–Health Professionals
Sharon and George Rahn
519-364-3224, postie@wightman.ca Fang Han, MD
Sleep Center, The People’s Hospital, Peking University
Niagara Chapter No. 11 South Road Xizhimen
Ron Speer Xicheng District, Beijing 100044
289 -891-8283 + 86 10-88324206, hanfang@hotmail.com
ronspeer@cogeco.ca, ddumele@cogeco.ca
C.M. Chu, MD, MSc, FRCP, FCCP
North Bay Chapter United Christian Hospital
Sharyn Emond Dept of Medicine & Geriatrics, Division of Respiratory Care
800-263-3463 ext 7731 130 Hip Wo Street, Kwun Tong
polio-northbay@marchofdimes.ca Kowloon, Hong Kong SAR
+852 3513 4822, +852 3513 5548 fax
Peterborough Chapter
drcmchu@gmail.com
Sarah Baslas
800-263-3463 ext 7738, sbaslas@marchofdimes.ca Jianan Li, MD
Director, Department of Rehabilitation Medicine
Thunder Bay Chapter
First Affiliated Hospital of Nanjing
Sandy Rutherford
Medical University
rutherfordsm@hotmail.com
300 Guangzhou Rd
Windsor & Area Chapter Nanjing 210029
Gayle & Bruce Tait lijianan@njmu.edu.cn
519-252-8248, tattybogle@sympatico.ca
Hamilton-Brant Chapter CUBA–Support Group
Northumberland Chapter Dr. Pedro Luis Gonzalez, Director
Sudbury Chapter ACUFIN
Toronto Peel & York Chapter Calle 8#10 Entre 17 y m.torres
Keith Rashid Reparto Libertad, Holguin
800-263-3463 ext 7213, krashid@marchofdimes.ca
Polio Prince Edward Islands CZECH REPUBLIC–Support Group
Stephen Pate
Asociace Polio Polio Association of the Czech Republic
902-566-4518, stephen_pate@hotmail.com
Ludvika Bradová
Association Polio Quebec Kosmonautů 2288, 44001 Louny
Gilles Besner +420 222962074, lubra@volny.cz, www.polio.cz
514-489-1143, 514-489-7678 fax
877-765-4672 tollfree outside Montreal DEMOCRATIC REPUBLIC OF THE CONGO–
association@polioquebec.org, www.polioquebec.org Support Group
Polio Regina Inc. (Saskatchewan) l´Association Congolaise “Debout et Fier” (ACDF)
Carole Tiefenbach StandProud
twif_ecarole@hotmail.com info@standproud.org, acaojh.drc@gmail.com
http://nonprofits.accesscomm.ca/polio www.standproud.org
Saskatchewan Awareness of Post-Polio
Ron Johnson DENMARK–Health Professionals
306-477-7002, 306-373-2665 *Special Hospitalet
sapp1@sk.sympatico.ca, www.geocities.com/sapponline Fjeldhammervej 8
2610 Rodøvre
CHILE–Health Professionals +45 36 73 90 60
kontakt@specialhospitalet.dk, www.specialhospitalet.dk
Clínica Los Coihues
Av Laguna Sur 6561,Estación Central Merete Bertelsen, PT
Santiago Lise Kay, MD
+56 2 24657900 Special Hospitalet
Fjeldhammervej 8
2610 Rodøvre
+45 36 73 90 44
mbe@specialhospitalet.dk, lka@specialhospitalet.dk
4 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlDENMARK–Support Group GERMANY–Health Professionals
Polio Foreningen The following 5 clinics have been certified by
Fjeldhammervej 8 Bundesverband Polio:
2610 Rodøvre
*Rehaklinik Raupennest, Altenberg
+45 36 73 90 60, kontakt@polio.dk, www.polio.dk
Dr. med. Friedemann Steinfeldt
Rehefelder Str. 18
FINLAND–Support Group 01773 Altenberg
Suomen Polioliitto Ry (Finnish Polio Association) *Rheuma-Klinik
1 A Kumpulantie 6th floor Bad Bramstedt Neurologische Abteilung
00520 Helsinki Prof Dr. med. Wolfgang-Ludwig Gross
(09) 686 0990, www.polioliitto.com Ärztlicher Direktor Fachkrankenhaus
Dr. med Andreas-Christoph Arlt
FRANCE–Health Professionals Ärztlicher Direktor Rehabilitation
Oskar-Alexander-Str. 26
Dr. Vincent Tiffreau
24576 Bad Bramstedt
Service de Médecine Physique et de Réadaptation MCU-PH
Centre de Référence des Maladies Neuromusculaires *Neurologisches Rehabilitationszentrum Quellenhof
du CHRU de Lille Hôpital Swynghedauw Bad Wildbad
CHRU de Lille Chefarzt PD
59037 Lille Cedex Dr. Peter Flachendecker
+33 3 20 44 58 31, +33 3 20 44 58 32 fax Kuranlagenallee 2
75323 Bad Wildbad
Dr. Isabelle Laffont
Département de MPR CHU Lapeyronie *Klinik Hoher Meißner
371, avenue du Doyen Gaston Giraud Bad Sooden-Allendorf Neurologische Abteilung
34295 Montpellier Cedex 5 Dr. med. C. Schröter – Leiter
+33 4 67 33 87 17, +33 4 67 33 86 71 Neurologischer Abteilung
i-laffont@chu-montpellier.fr Hardtstrasse 36
37242 Bad, Sooden-Allendorf
Dr. Raul Morales
Département de Neurologie *Klinik Miriquidi
CHU de Montpellier, Hôpital Gui de Chauliac Thermalbad Wiesenbad, Gesamte Klinik
80 Bd Augustin Fliche CHÄ Frau Dr. med. Frohberg
34395 Montpellier Cedex 5 Freiberger Straße 33
+33 4 67 33 77 36, r-juntasmorales@chumontpellier.fr 09488 Thermalbad Wiesenbad
Pr. Francois Boyer Dr. Friedemann Steinfeldt
Pole MPR CHU de REIMS Polio – Spezialambulanz Dresden
Hôpital Sébastopol Goetheallee 28
48, rue de Sebastopol Dresden, Saxony 01309
51100 Reims +49 0357 3767979, +49 3505 6305777 fax
+33 3 26 78 85 97, +33 3 26 78 44 80 fax friedemann.steinfeldt@raupennest.de
fboyer@chu-reims.fr
Chefarzt Neurologie & Geriatrie
Dr. W. Rink
FRANCE–Support Groups Reha-Zentrum Passauer Wolf
Groupe de Liaison et d’Information Post-Polio (GLIP) Bgm.-Hartl.-Platz 1
34, rue des Coutures 94086 Bad Griesbach – Therme
51100 Reims +49 0853 2274511, rink@rz-pw.de
+33 3 51 00 13 58, contact@polio-france.org Katholisches Klinikum Koblenz
www.post-france.org Polio Schwerpunkt Ambulanz
Service de Médecine Physique et de Réadaptation Dr. med. Axel Ruetz
GH Lariboisière-F. Widal Kardinal-Krementz-Straße 1-5
200 Rue du Fbg St Denis 56073 Koblenz
75010 Paris +49 261-496-6526, +49 261-496-6528
+33 1 40 05 42 05, +33 1 40 05 48 51 fax a.ruetz@kk-koblenz.de, www.kk-koblenz.de
alain.yelnik@irb.aphp.fr
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 5GERMANY–Support Groups Dr. Ujagar Singh
Polio Care Society Civil Hospital
Eika Aachen e.V. G.S. Memorial Hospital
post@polio-forum.de, www.polio-forum.de Bathinda Road
Polio Initiative Europa e.V. Rampura Phul 151103
Deutsch – Europaische, Arbeitsgemeinschaft
Bad Stebener Str. 8 IRELAND–Health Professionals
95138 Bad Steben-Thierbach
Deirdre Murray, PhD
+49 9288 363, +49 9288 925 500 fax
Beaumont Hospital, Dept of Physiotherapy
www.polio-initiative-europa.de
PO Box 1297
Polio Selbsthilfe e.V. Beaumont Rd, Dublin 9
Auf den Hüchten 15 deirdremurray@beaumont.ie
33647 Bielefeld
Orla Hardiman, MD, Professor
+49 5 21 / 40 35 35, +49 5 21 / 1 36 29 93 fax
Beaumont Hospital
bundesverband@polio-selbsthilfe.net
PO Box 1297
www.polio-selbsthilfe.net
Beaumont Road, Dublin 9
Polio Echo (01) 809 2174
Weberweg 4
D-78126 Königsfeld IRELAND–Support Group
www.polio-echo.eu
Polio Survivors Ireland
Bundesverband Polio e.V. Susan Dowling
Freiberger Strasse 33 Unit 319, Capel Building
Thermalbad Wiesenbad, Sachsen 09488 Mary’s Abbey, Dublin 7
+49 3733 504 1187, +49 3733 504 1188 fax +353 1 889-8920, info@ppsg.ie, www.polio.ie
bundesverband@polio.sh, www.polio.sh
Organisation consists of 10 federal state organisations,
ISRAEL–Health Professionals
73 regional groups and 42 contact addresses.
*Hadassah Medical Organization
GHANA–Health Professionals Isabella Schwartz, MD
Rehabilitation Clinic – Post-Polio
Raphael Amuzu Dzameshie Mount Scopus Hospital
Orthopedic Training Centre POB 24035, Jerusalem
PO Box 306 +972 2 584-4111, +972 2 582-3515 fax
Nsawam www.hadassah.org.il
+233 34 2122031
Nsawam15@yahoo.com, www.otcghana.info *Tel-Hashomer Chaim Sheba Medical Center
Yeheskell Shemesh, MD
Neurological Rehabilitation, Post-Polio Clinic
HUNGARY–Support Group
Ramat Gan
Hungarian Polio Foundation +972 3 530-3725, +972 3 535-2888 fax
www.polio.hu neure@sheba.health.gov.il, www.sheba.co.il
Shoshana Goldberg Mayer, OTR
INDIA–Health Professionals Milbat – The Israel Center for Technology & Accessibility
Megha Sheth Tel-Hashomer
Lecturer in Physical Therapy Ramat Gan 52621
SBB College of Physical Therapy, VS General Hospital +972 3 530-3739, +972 3 535-7812 fax
Ahmedabad
ISRAEL–Support Group
Dr Satendra Singh, MD, FSS
Assistant Professor of Physiology The Polio Handicap Association in Israel
Member, Medical Education Unit Jacob Surany
University College of Medical Sciences & GTB Hospital PO Box 8186
Delhi 110095 Ramat Gan 52181
Member, Medical Humanities Group +972 35755660, +972 507754415 cell
Founder, Infinite Ability; Coordinator, Enabling Unit, EOC +972 35757770 fax, j-t-s@bezeqint.net
Creator, The Enablist
dr.satendra@gmail.com
6 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlITALY–Health Professionals KOREA (Republic of)–Health Professional
Laura Bertolasi, MD Jae-Young Lim
Ospedale Di Malcesine, Neurophysiology Seoul National University Bundang Hospital
Via Val di Sogno Department of Rehabilitation Medicine
Malcesine 82 Gumi-ro 173 beon-gil
+39 045 8124462, laura.bertolasi@ospedaleuniverona.it Bundang-gu, Seongnam 463-707
+82 31-787-7732, +82 31-787-4056 fax
Antonio Toniolo, MD drlim1@snu.ac.kr
Professor of Medical Microbiology, University of Insubria
Department of Clinical and Biological Sciences Wan-Ho Kim
Viale Borri, 57 National Rehabilitation Center
21100 Varese 58, Samgaksan-ro, Gangbuk-gu
+39 0332 278.309, +39 0332 260.517 fax Seoul 01022
antonio.toniolo@uninsubria.it +82 2901 1700, nrc1986@nrc.go.kr
ITALY–Support Groups KOREA (Republic of)–Support Group
Associazione Nazionale Polio e Sindrome Postpolio Korea Polio Association
Louise Read, Deputy President Jeongnip Center for Rehabilitation
via della Lungara 3 16-3 Guei-2dong
00165 Roma Gwangjin-gu, Seoul
+39 065895895 (tel & fax), +39 3395773796 cell +82 2-446-1237, +82 2-454-2144
polio@edizionisocrates.com, www.postpolio.it ykrpt@hanmail.net, changnip@or.kr, www.jeongnip.or.kr
Self-help/ Support Group Associazione Nazionale Polio
e Sindrome Post-polio MEXICO–Health Professionals
Aurelio Sugliani *Clínica de Atención Integral en Síndrome Post Polio
Via Einstein 4 Instituto Nacional de Rehabilitación
20059 Vimercate Milano Calzada México-Xochimilco, No. 289
+39 6 851380 cell, +39 3397484492 fax Col. Arenal de Guadalupe, México, D.F., C.P. 14389
hermes@postpolio.it, www.postpolio.it www.cnr.gob.mx
Associazione Interregionale Disabili Motori Dra. Alejandra Castillo Millán
Ospedale – Via Gardesana Jefa de Consulta Externa
57 – 37018 Malcesine +59 99 10 00, ext. 11 125, y 11 126
+39 045 6584293
Dra. Teresa de Jesús
Baños Mendoza
JAMAICA–Health Professional
Coordinadora Médica de la Clínica
Sir John Golding Rehabilitation Centre +59 99 10 00, ext. 13 115
6 Golding Avenue
Kingston 7, Jamaica MEXICO–Support Groups
http://sirjohngoldingrehabilitationcentre.com
Post-Polio Litaff AC Association
E. Liliana Marasco Garrido
JAPAN–Support Groups
Iztaccihuatl 53-303, Col. Hipodromo Condesa
Japanese Network of Polio Survivors CP06100 Mexico City
Masakuni Mukoyama, MD +52 55-55-74-29-26 (tel & fax)
3 Kuromoncho litaffac@prodigy.net.mx, www.postpoliolitaff.org
Higashiku, Nagoya 461-0035
Organización Mexicana Para el Conocimiento de los
+81 52-932-1854 (tel & fax), mukoyama@sc.starcat.ne.jp
Efectos Tardiós de la Polio, AC (OMCETPAC)
The Polio Association Japan Sergio Augusto Vistrain Diaz
Mariko Koyama Lago Ontario No. 3-G
1-6-5-602 Minowa Col. Tacuba, Mexico City, DF
Taito-ku, Tokyo 110-0011 +52 55-55-27-63-89 (tel & fax)
+81 3 3872 7359 (tel & fax) savistrain@postpoliomexico.org, www.postpoliomexico.org
koyama@mrg.biglobe.ne.jp, www5b.biglobe.ne.jp/polio
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 7NEPAL–Health Professionals Ingebjorg Irgens, MD
Sunnaas Rehabilitation Hospital
Raju Dhakal, MBBS, MD Bjørnemyrveien 11
Physical Medicine & Rehabilitation 1450 Nesodden
Bluebird International Clinic +47 66 96 90 00
Bluebird Mall, Tripura Marg
Kathmandu 44600, Nepal Elisabeth Farbu, MD
+977 1-4228896 Dept of Neurology
Stavanger University Hospital
NETHERLANDS–Health Professionals N-4068 Stavanger
elfa@sus.no
*University of Amsterdam
Prof. Frans Nollet, MD, PhD NORWAY–Support Group
Prof. Marianne de Visser, MD, PhD
Academic Medical Centre A01-425 Norwegian Polio Association (LFPS)
Meibergdreef 9 LFPS, Postboks 9217
1105 AZ Amsterdam Grǿnland, 0134, Oslo
Nollet : +31 20 566 4049, +31 20 566 9154 fax hamar@uten.net, www.polionorway.no
f.nollet@amc.uva.nl
de Visser : +31 20 566 3445, +31 20 697 1438 fax PAKISTAN–Health Professional
m.devisser@amc.uva.nl
Mahboob ur Rehman, Chairman
Mahboob School of Physiotherapy
NETHERLANDS–Support Group Gandhara University, Habib Physiotherapy Complex
Postpolio Support Group of the Dutch Association Sector B2, Phase-5
for Neuromuscular Diseases (VSN) Hayatabad, Peshawar
Lt. Gen. van Heutzlaan 6, 3743 JN Baarn +92-91-5819128, +92-334-9071388 fax
+31 35 5480480, +31 30 5480499 fax info@hpcpk.org, www.hpcpk.org
vsn@vsn.nl, www.vsn.nl
PHILIPPINES–Support Group
NEW ZEALAND–Support Groups Productive Differently-Abled Association (PDAAS)
Polio NZ Inc Marcelo P. Mongkil, Ptr/Chaplain/President
PO Box 260 Brgy. Cablalan, Glan, Sarangani Province 9517
Mosgiel 9053 +63 90 68 26 39 78, marcelomongkil@yahoo.com
0800 4 POLIO, info@polio.org.nz, www.polio.org.nz
20 branches nationwide POLAND–Health Professionals
Auckland Post-Polio Support Group *Mossakowski Medical Research Center Polish
Doreen Chandler, QSO Academy of Sciences
36 Eastern Beach Rd Ewa Matyja, MD, PhD
Bucklands Beach, 2012 Dept of Neuropathology
+64 9 534-6151, +64 9 537-3104 fax 5 Pawinskiego
auckpostpolio@clear.net.nz 02-106 Warsaw
+48 22 668 5520, +48 22 668 5532
NIGERIA–Support Group Milena Laure-Kamionowska, MD
Wheelchairs for Nigeria milenak@cmdok.pan.pl, www.cmdik.pan.pl
Ayuba Gufwan
#17 JCMI Drive, Kattan Rikos POLAND–Support Group
by Jos North LGC Housing Layout off Liberty Dam Road
Jos, Plateau State Polski Stowarzyszenie Polio
+234 8035 985123, ayubagufwan@yahoo.com http://postpolio.lublin.pl
http://wheelchairsfornigeria.org
SCOTLAND–Support Group
NORWAY–Health Professionals Scottish Post-Polio Network
Prof. Nils Erik Gilhus 8 Orchard Grove
Neurology, University of Bergen Leven KY8 5XB
N-5021 Bergen 0131 447 3486, chairperson@spnn.org.uk, www.sppn.org.uk
nils.gilhus@helse-bergen.no Post-Polio Syndrome/Late Effects of Polio
8 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlSIERRA LEONE–Support Group Jesús Sancho, MD
Respiratory Care Unit, Respiratory Medicine Dept
Polio Challenge Association Hospital Clínico Universitario
Sylvanus Bandu Avd. Blasco Ibañez 17
113 Fourah Bay Road 46010 Valencia
Freetown 077-593742 +34 96 3862600, +34 96 3862657 fax
immaculaterkoroma@yahoo.com cchinesta@eresmas.com
SLOVAKIA–Support Group SPAIN–Support Groups
Asociacia polio v SR Associats de Polio I Postpolio de Catalunya (APPCAT)
Stefan Grajcar Juli Sellés Linares, President
stefan.grajcar@gmail.com, http://polio-sk.webnode.sk Carrer Virgili, 18
08030 Barcelona
SLOVENIA–Support Group appcat@appcat.org, www.appcat.org
Paras, Društvo Paralitikov Slovenije Asociación Gaditana de Personas con Síndrome
Cesta 24. junija 23 Post-Polio (AGASI)
1231 Ljubljana Plaza Sunday Bohorquez, 12
(01) 563-34-68, (01) 561-27-10 fax 11130 Chiclana de la Frontera
info@drustvo-paralitikov.si, www.drustvo-paralitikov.si 669562491 mobile
agasi@agasi.org.es, www.agasi.org.es
SOUTH AFRICA–Support Groups Euskadiko Polio Elkartea
Astrid Gorvett Eibar
gorvett@vodamail.co.za euskadikopolioelkartea@gmail.com
Resource only http://polioeuskadi.blogspot.com.es
Post-Polio Network RSA Associatión Afectados de Polio y Sindrome Postpolio
Cottage #1, Cheshire Home Chatsworth Lola Corrales, Presidenta
10 Equality Street, Croftdene, Chatsworth C/Luis de Hoyos Sainz 18
4092 KwaZulu-Natal 28030 Madrid
+27 79 964 1847 cell, +27 86 668 3288 fax +34 686 000 171, informacion@postpolioinfor.org
www.postpolioinfor.org
SPAIN–Health Professionals Poliocyl, es la associacion des los afectados de
polio y syndrome de postpolio
Institut Guttmann
de castilla y León
Neurorehabilitation Hospital
poliocyl@gmail.com, http://poliocyl.blogspot.com
Cami de Can Ruti, s/n
08916 Badolona Association of Post-Polio Syndrome of the
+34 93 497 77 00, +34 93 497 77 04 fax Valencian Community
admissions@guttmann.com Valencia
aipcv@gmail.com
Dr. Josep Gámez
Clara Campoamor 10, 8-4
08902 L’Hospitalet de Llobregat SWEDEN–Health Professionals
Barcelona *Sahlgrenska University Hospital
Dra. Dolores Mancilla Alcantara Katharina Stibrant Sunnerhagen, MD, PhD
UGC Rehabilitación y Medicina Física del HU Puerto Real Rehabilitation Medicine
Ctra. N-IV Km. 665 SE-41345 Gôteborg
11510 Puerto Real (Cádiz) +46 31 3422803, +46 31 415433 fax
956 00 55 12 / 956 00 55 04 *Skåne University Hospital
Ana Aguila Jan Lexell, MD, PhD, Professor, Medical Director
Universidad Rey Juan Carlos Dept of Rehabilitation Medicine
Madrid SE-205 02 Malmö
ana.aguila@urjc.es +46 040 33 10 00, +46 413 55 67 09 fax
jan.lexell@med.lu.se, www.skaneuniversityhospital.se
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 9*Karolinska Institutet *Ege University
Prof. Kristian Borg, MD, PhD Arzu Yagiz On, MD
Dept of Rehabilitation Medicine Medical Faculty, Physical Medicine & Rehabilitation
Danderyd University Hospital, Bldg 39 Kampüsü 35040
S-182 88 Stockholm Danderyd Bornova – Izmir
+46 8 6555255, kristian.borg@ki.se arzu.on@ege.edu.tr
Prof. Arne Sandberg
Dept of Neurophysiology, University Hospital TURKEY–Support Group
S-75185 Uppsala Polio Derneği
arne.sandberg@akademiska.se Megapol Tower, Adalet Mahallesi, Anadolu
Caddesi 41/9-1, Bayrakli - Izmir
SWEDEN–Support Group info@poliodernegi.org, www.poliodernegi.org
Riksforbundet for Trafik-, Olycksfails –
och Polioskadade (RT) UNITED KINGDOM–Health Professionals
Vintergatan 2, 172 69 Sundbyberg *Lane-Fox Respiratory Saint Thomas’ Hospital
08-629 27 80, 08-28 15 60 fax PPS Rehabilitation Programme
info@prp.se, www.rtp.se Guys & St Thomas’ Foundation Trust
Lambeth Palace Rd
SWITZERLAND–Health Professionals London, England SE1 7EH
+44 207 188 3447, +44 207 188 3449 fax
Maja Strasser, MD
Neurologische Praxis Carrie-Ann Wood
Hauptgasse 5 Deputy Clinical Lead Physiotherapist for Rehabilitation
Solothurn CH-4500 Guys & St Thomas’ Foundation Trust
+41 32 623 61 11, +41 32 623 61 12 fax St Thomas’ Hospital
maja.strasser@hin.ch Westminster Bridge Road
www.neuropraxis-solothurn.ch/maja-strasser.php London SE1 7EH
+44 020 7188 7188
SWITZERLAND–Support Group Carrie-Ann.Wood@gstt.nhs.uk
Schweizerische Interessengemeinschaft für das Dr. Nicholas Hart, Consultant Physician
Post-Polio Syndrom (SIPS) Lane Fox Unit
Communaute d’intérêt Suisse pour le syndrom post-polio (CISP) St Thomas’ Hospital
Comunità Svizzera d’interessi per il sindrome post-polio (CSIP) Westminster Bridge Road
Schweiz. Vereinigung der Gelähmten London SE1 7EH
Sihlhaldenstr. 1 A Referral: +44 020 7188 6115
8136 Gattikon Enquires regarding post-polio syndrome:
+41 26 323 94 33, +41 26 323 27 00 (fax) +44 020 7188 6115
www.polio.ch, www.aspr-svg.ch
UNITED KINGDOM–Support Groups
THAILAND–Support Group Polio Survivors Network
Foundation to Encourage Disabled Persons PO Box 954, Lincoln
80 Moo 7, Tambon Samranrat Lincolnshire, England LN5 5ER
Amphur Doi Sakhet, Chiang Mai 50220 +44 1522 888601, +44 870 1600840 fax
085-708-8711 info@poliosurvivorsnetwork.org.uk
assist@loxinfo.co.th, www.assistdisabled.org www.poliosurvivorsnetwork.org.uk
British Polio Fellowship
TURKEY–Health Professionals Citibase
44 Clarendon Road
*Sisli Etfal Hospital
Watford, Hertfordshire WD17 1JJ
Jülide Öncü, MD
+44 800 0431935, , +44 20 8842 0555 fax
Physical Medicine & Rehabilitation
info@britishpolio.org.uk, www.britishpolio.org.uk
34377 ŞİŞLİ
Istanbul
+90 212 373 50 00, +90 212 224 07 72
10 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlUnited States Health Professionals and Support Organizations
*Post-Polio Clinic
ALABAMA–Health Professionals ARKANSAS–Health Professional
Jack D. Denver, MD Kevin Collins, MD
1500 Southlake Park Ste 150 Rehabilitation Medicine Consultants of Arkansas, PA
Hoover, AL 35244 Springhill Medical Plaza
205-874-9663, 205-874-9667 fax 3401 Springhill Dr Ste 460
North Little Rock, AR 72117
Larry W. Epperson, MD 501-945-1888, 501-945-4102 fax
Neurology Consultants of Montgomery
1722 Pine St Ste 700
Montgomery, AL 36106 ARKANSAS–Support Group
334-834-1300, 334-834-8347 fax Central Arkansas Polio Survivors (CAPS)
Betty S. Schmidt
ALABAMA–Support Groups Quitman
501-589-3555, retmt2000@hotmail.com
Birmingham Post-Polio Support Group http://centralarkansaspoliosurvivors.com
James Jarrell Resource and newsletter only
205-980-0050, jpjarrell@bellsouth.net
Tennessee Valley Post-Polio Support Group CALIFORNIA–Health Professionals
Janie C. Carter
Huntsville Dynamic Bracing Solutions
256-859-2177, rjcarter1@knology.net Marmaduke D.R. Loke, CPO
www.geocities.com/tvppsg 6092 Innovation Way
Carlsbad, CA 92009
Mobile Area Post-Polio Support Group 760-814-8475, 760-814-8497 fax
Charles Gollott Poliobracing@aol.com
251-689-5268 http://DynamicBracingSolutions.net
rcgollott@bellsouth.net
Progressive Medical
Helen A. Kent, BS, RRT
ARIZONA–Health Professional 2720 Loker Ave W Ste P
Colin Bamford, MD Carlsbad, CA 92010-6606
University Physicians (Neurology/Sleep) 800-491-2292, 760-448-4448, 760-448-4449 fax
2800 E Ajo Way Ste 102 hkent@progressivemed.org
Tucson, AZ 85713 www.progressivemed.org
520-626-7664, 520-694-8888 Royal Orthopedic Company
Craig R. Johnson
ARIZONA–Support Group 5102 Canterbury Dr, PO Box 2441
Cypress, CA 90630
Polio Epic Inc.
714-821-8410, 714-209-7708 fax
PO Box 17556
Tucson, AZ 85731-7556 Christine Phan, MD
Joanne Yager 520-296-1471, Artist3jy6@hotmail.com Chief of Physical Medicine Rehabilitation
Frank Frisina 520-360-9365, shinybear@msn.com Kaiser Permanente, Department of Physical Medicine
Micki Minner 520-307-0174, Mickiminner@msn.com Imperial/Orchard Medical Office
contact@polioepic.org 9353 E Imperial Hwy
www.polioepic.org Downey, CA 90242
562-657-2418, christine.m.phan@kp.org
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 11*Rancho Los Amigos National Rehabilitation Center M. Peggy Portwood, MD
Post-Polio Service Physical Medicine, Rehabilitation, Electrodiagnosis
7601 E Imperial Highway 2288 Auburn Blvd Ste 101
Downey, CA 90242 Sacramento, CA 95821
877-726-2461, 562-385-7111, 562-401-6247 fax 916-640-8161, 916-640-8151 fax
Morris Baumgarten, MD *Carol B. Vandenakker-Albanese, MD
Orthopedic Surgeon University of California-Davis Medical Center
931 Buena Vista St #505 Physical Medicine & Rehabilitation
Duarte, CA 91010 3301 C St Ste 1500
626-357-9931, 626-359-0739 fax Sacramento, CA 95816
916-734-7463, 916-734-6493 fax
Geoffrey L. Sheean, MBBS, MD
cvalbanese@ucdavis.edu
Clinical Professor, Neurosciences
ALS Center & Neuromuscular Division Jeremy Wren, DO
University of California San Diego Mercy Medical Group
9500 Gilman Dr # MC0662 Physical Medicine & Rehabilitation
La Jolla, CA 92093 3000 Q St, Fourth floor
gsheean@ucsd.edu Sacramento, CA 95816
916-733-3373, dignityhealth.org
Andrei N. Dokukin, MD
Physical Medicine & Rehabilitation Andrew Skalsky, MD
Lakewood Regional Medical Center Chief of Rehabilitation Medicine
3650 E South St #101 Rady Children’s Hospital & Health Center (adults)
Lakewood, CA 90712 3020 Children’s Way MC 5096
562-633-1765 San Diego, CA 92123
858-966-8974, 858-966-6721 fax
Barry Ludwig, MD
Neurology & Rehab Medical Group Rhoda Olkin, PhD
100 UCLA Medical Plz, Ste 425 California School of Professional Psychology
Los Angeles, CA 90024 Alliant International University San Francisco
310-794-1500 1 Beach St Ste 100
San Francisco, CA 94133-1221
Susan L. Perlman, MD
415-955-2129, rolkin@alliant.edu, rolkin@astound.net
Clinical Professor, Neurology
Director, Ataxia Center & HD Center of Excellence Lorne Label, MD
300 UCLA Medical Plaza Ste B200 2100 Lynn Rd Ste 230
Los Angeles, CA 90095-8346 Thousand Oaks, CA 91360
310-794-1195, 310-794-7491 fax 805-497-4500, 805-495-1717 fax
sperlman@mednet.ucla.edu drlabel@cns-neurology.com
Eric Alexander, MD
Martinez Medical Offices CALIFORNIA–Support Groups
Physical Medicine & Rehabilitation High Desert Post-Polio Support Group
Hacienda Bldg, 200 Muir Rd Julie Hueftle
Martinez, CA 94553 Apple Valley
925-313-4740 760-686-5813, j_hueftle@yahoo.com
*Casa Colina Centers for Rehabilitation Sierra Hills Post-Polio Syndrome Group
Richard Shubin, MD, Neurology Auburn
Kathy SanMartino, PT, NCS, ATP, CLT Barbara Childress: babc2003@pacbell.net
255 E Bonita Ave, PO Box 6001 Carolyne Reed: megaphone47@sbcglobal.net
Pomona, CA 91769-6001
909-596-7733, 909-392-9152 fax, 909-450-0391 fax Mary Correia
ksanmartino@casacolina.org Bakersfield
661-836-9220, treec2@att.net
Howard Orthopedics, Inc Resource only
3065 Richmond Parkway #112
Richmond, CA 94806 Sacramento Region Polio Survivors Group
510-222-1282, 510-222-1284 fax Loretta Haynes
www.howardorthopedics.com 916-844-7676, lkhaynes2@att.net
www.sacramentopoliosurvivors.com
12 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlSan Francisco Bay Area Polio Survivors (SFBAPS) Post-Polio Group/California North Coast
PO Box 5104 Janet Johnson
Concord, 94524-0104 PO Box 9397
510-223-4772, 650-368-8185, Santa Rosa, CA 95405-1397
415-440-5657, 925-926-0110, 925-837-3728 707-524-7865, ppsgsonoma@yahoo.com
Stella R. Cade: poliogirl45@aol.com
Phyllis Hartke: phartke@aol.com COLORADO–Health Professionals
SFBAPS@aol.com, www.SFBAPS.org
Deeann Vink, PT
Polio Support Group of the San Gabriel Valley Advanced Spine Physical Therapy
& West Inland Empire Drake Professional Park
Marci Ellison: 626-484-3116 343 W Drake Rd Ste 102
Mary Ellen Stan: stan742631@aol.com Fort Collins, CO 80526
Polio Survivors Association 970-204-9635, 970-204-9730 fax
Richard L. Daggett www.advanced-spine.com
Downey Julie Trail, DPT
562-862-4508, 562-252-8128 fax A Personalized Physical Therapist
Email contact preferred 6021 S Syracuse Way Ste 105
info@polioassociation.org, richard@polioassociation.org Greenwood, CO 80111
www.polioassociation.org 720-448-6820, 720-446-3523 fax
Rancho Los Amigos Post-Polio Support Group julie@apersonalizedpt.com, www.apersonalizedpt.com
Diane Ekonen *Marny K. Eulberg, MD
Downey Mountain & Plains Post Polio Clinic
562-861-8128, ranchoppsg@hotmail.com 9461 W 37th Pl
Post-Polio Support Group of Orange County Wheat Ridge, CO 80033
M. Priscilla Hiers 303-829-1538, 303-940-9800 fax
Fountain Valley MarnyEulberg@centura.org
714-968-1675, prisofoc@aol.com, www.ppsupportoc.org
COLORADO–Support Groups
Polio Survivors Plus
Sue Lau / Carol Shahandeh Colorado Post-Polio Council
PO Box 5513 Sue Brandon
Orange, CA 92863-5513 Sue.brandon@q.com
714-393-5706, 714-639-7497 Nancy Hanson, Easter Seals Liaison
PolioSurvivorsPlus@gmail.com 303-233-1666 ext. 237, nhanson@eastersealscolorado.org
East Ventura County Post-Polio Support Group Aurora
Sharon L. Ertel Myrna Schmidt
Oxnard 608-790-5755, myrnaschmidt1@yahoo.com
805-485-9664, sharertel@verizon.net
Colorado Springs
Riverside Area Polio Survivors Hal Goldberg
Bryan & Judy Mahoney 303-212-0017, halgoldberg@halgoldberg.net
Riverside
Grand Junction/Delta
951-788-9310, ppsriverside@aol.com, askjudy@mail.com
Melanie McClanahan
San Diego Polio Survivors 303-638-3302, melcoloradogirl@gmail.com
Rick E. Kneeshaw, MA
Lakewood/Golden
San Diego
Annette Beck
619-884-1220
303-427-1789, annette.beck242@outlook.com
Gladys Svensrud: 858-271-9288
polio@mindspring.com, http://polio.home.mindspring.com Northern Colorado (Fort Collins) Support Group
Peter Way
Marin County Post-Polio Support Group
970-223-7479, NOCOPolio@gmail.com
Francine Falk-Allen
San Rafael North Metro Area
FrancineAllen@comcast.net Jill Eelkema
612-865-4528, jille@westerncarepartners.com
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 13Pueblo Aldo Alvarez, MS, LPO, CPO
Mary Agnes Leonard Ortho Pro Associates
719-544-4789, maryagnesleonard@gmail.com 9150 SW 87 Ave #B100
Miami, FL 33176
South Metro Area 305-598-9688, www.orthoproassociates.com
Hal Goldberg
303-212-0017, halgoldberg@halgoldberg.net Tamar S. Ference, MD
Assistant Professor, Department of Rehabilitation Medicine
CONNECTICUT–Health Professional 1120 NW 14 St, 952, PO Box 0169060 (C-206)
Miami, FL 33136
Luci Juvan, MD 305-243-4588, 305-243-6605 appts, 305-243-4650 fax
Gaylord Specialty Healthcare tference@med.miami.edu
50 Gaylord Farm Rd
Wallingford, CT 06492 *Post-Polio Treatment, Education & Research Center
203-284-2800, www.gaylord.org Khema Sharma, MD
University of Miami Miller School of Medicine
Dept of Neurology
CONNECTICUT–Support Group 1120 NW 14 St, 1317
The Polio Outreach of Connecticut Miami, FL 33136
Linda Wheeler Donahue, President 305-243-7400, 305-243-1249 fax
Southbury, CT ksharma@med.miami.edu
203-264-1075, LinOnnLine@aol.com
Andrew Sherman, MD
Irma Heilbron, Secretary
University of Miami School of Medicine
203-376-2233, idheilbron@yahoo.com
PO Box 016960
http://poliooutreachct.com
Miami, FL 33101
305-243-6605, 305-243-3520 fax
DISTRICT OF COLUMBIA–Health Professional asherman@med.miami.edu
John Aseff, MD and 1475 NW 12th Ave, Miami, FL 33136
NRH Regional Rehabilitation 305-243-6605
102 Irving St NW Ste 3418 *Post-Polio Evaluation Team of North Central Florida
Washington, DC 20010 Amy E. Clunn, MD
202-877-1657 Southeastern Rehabilitation Medicine
Michael Wroten, MD 3305 SW 34th Cir Ste 101
Physical Medicine & Rehabilitation Ocala, FL 34474
102 Irving St NW 352-732-3110, 352-373-4321 appts
Washington, DC 20015 866-346-8677 toll-free
443-366-2682 Mitchell J. Freed, MD
2501 N Orange Ave Ste 505
FLORIDA–Health Professionals Orlando, FL 32804-4674
407-898-2924, 407-894-5387 fax
Michelle Guevin, PT, MHSc, MTC
Palma Sola Medical Associates Cynthia Henley, PT
2227 59th St W 7655 SW 142 St
Bradenton, FL 34209 Palmetto Bay, FL 33158
941-795-5922, 941-761-1682 fax 305-733-8809, cynthiahenley@bellsouth.net
MGuevinDPT@aol.com
Rodolfo Eichberg, MD
Peter Schreiber, MD Rehabilitation & Electrodiagnostics
Physical Medicine & Rehabilitation 2914 N Boulevard
632 Del Prado Blvd N Ste 101 Tampa, FL 33062
Cape Coral, FL 33909 813-228-7696, 813-228-0677 fax
239-772-5577
*Halifax Medical Center/Neuroscience Center FLORIDA–Support Groups
Carolyn Geis, MD Boca Area Post-Polio Group
Physical Medicine & Rehabilitation Maureen A. Sinkule: 561-488-4473, bappg@aol.com
303 N Clyde Morris Blvd Carolyn DeMasi: 352-245-8129, ccdemasi23@hotmail.com
Daytona Beach, FL 32114 www.postpolio.wordpress.com
386-425-5911, carolyn.geis@halifax.org
14 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlMeg Magnan GEORGIA–Support Groups
Carrabelle
260-701-2960, megmagnan@gmail.com Atlanta Post-Polio Association (APPA)
Resource only Wayne Nichols, President
3111 Springlake Dr
Post-Polio Alliance of South Florida Buford, GA 30519-3972
Barbara Gratzke 770-530-9629, appaemail@gmail.com
Miami www.atlantapostpolio.com
305-987-5328, ppsofsouthfl@aol.com
Coastal Empire Polio Survivors Assn Inc
Post-Polio Support Group of Brevard County Cheryl Brackin
JoAnn McDonald Savannah
Melbourne 912-927-8332, cherylbrackinslp@hotmail.com
321-622-8040 www.coastalempirepoliosurvivors.org
North Central Florida Post-Polio Support Group
Carolyn P. Raville IDAHO–Health Professionals
Ocala Robert H. Friedman, MD
352-489-1731, 352-465-3825 fax Idaho Physical Medicine & Rehabilitation
carolyn@postpoliosupport.com 600 N Robbins Rd Ste 300
www.postpoliosupport.com Boise, ID 83702
Pensacola Post-Polio Support Group 208-489-4016
Clara Norsworthy, 850-944-5834
Leigh Dethlefs, gldsld05@gmail.com ILLINOIS–Health Professionals
Pensacola
Colin Franz, MD
Southern Hillsborough County Post-Polio Support Group Physical Medicine & Rehabilitation
Pam Vogelsang Shirley Ryan Ability Lab
Sun City Center 355 E Erie St, 15-N Outpatient
813-294-8186, flgrammypam@yahoo.com Chicago, IL 60611
312-238-1657, cfranz@sralab.org
Power Over Polio Support Group
Barbara Meyers Kristi L. Kirschner, MD
The Villages University of Illinois College of Medicine
352-753-2263, meyers2@comcast.net Dept of Neurology & Rehabilitation
Chicago, IL
GEORGIA–Health Professionals kkirschn@uic.edu
Resource only, does not see patients
Dale C. Strasser, MD
Emory University School of Medicine Raymond P. Roos, MD
Center for Rehabilitation Medicine Director, Motor Neuron Disease Clinic
1441 Clifton Rd NE Ste 118 University of Chicago Medical Center
Atlanta, GA 30322 5841 S Maryland Ave Ste MC 2030
404-712-3837, 404-778-5770 appts Chicago, IL 60637
404-712-5668 fax, dstrass@emory.edu 773-702-6390, 773-702-5546 appts
www.rehabmed.emory.edu 773-702-9076 fax, MDA 773-702-9089
rroos@neurology.bsd.uchicago.edu
Ken Collier, CO, BOCO, LO
Augusta Orthotics & Prosthetics, Inc. Scheck and Siress
2068 Wrightsboro Rd Prosthetics, Orthotics, Pedorthics
Augusta, GA 30904 2551 N Clark St # 200
706-733-8878, 866-365-2674, 706-733-4434 fax Chicago, IL 60614
ken@augustaoandp.com, www.augustaoandp.com 773-472-3663
(Also in Bannockburn, Evanston, Hickory Hills,
Carolyn Podolski, OTR/L, MA Naperville, Oakbrook Terrace, Oak Park,
Southland Health and Rehabilitation Rush University Medical Ctr, Schaumburg, UIC)
151 Wisdom Rd www.scheckandsiress.com
Peachtree City, GA 30269
770-631-9000 ext 127, bizbama@aol.com
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 15James Sliwa, DO IOWA–Health Professionals
Physical Medicine & Rehabilitation
Shirley Ryan Ability Lab Donna J. Bahls, MD
355 E Erie St, 15-N Outpatient Physical Medicine
Chicago, IL 60611 Capital Orthopedics & Sports Medicine
312-238-1000 12499 University Ave, Ste 210
Clive, IA 50325
515-440-2676
ILLINOIS–Support Groups
Polio Survivors & Friends of East Central Illinois IOWA–Support Group
Annamaria T. Barber, RN
Charleston Tri-State Post-Polio Support Group
217-345-1549 after 4 pm Joan D. Bellmann
annieb_777@hotmail.com Dubuque
563-588-1692, 563-588-9833 fax, rjpub@mchsi.com
Polio Survivors of Springfield Area
Ann R. Hughes KANSAS–Health Professionals
Riverton
217-741-2531, kapsh@juno.com John Fan, MD
Hutchinson Clinic
Mary Ann Buckingham 2101 N Waldron
Worth Hutchinson, KS 67502
708-448-7237 620-669-2231
Resource only
Tad Wrench, MPT
INDIANA–Health Professionals Preferred Physical Therapy LLC
315 W Washington
Deborah Goodwine, MS Sterling, KS 67579
Certified Nutritionist 620-204-6116
3686 E Fall Creek Pkwy N Dr and 2803 N Lorraine
Indianapolis, IN 46205 Hutchinson, KS 67502
317-329-9833, tazandsophie@gmail.com 620-662-3111, twrench@attclinincs.com
Rehabilitation Associates of Indiana Atul T. Patel, MD
6330 E 75th St Ste 110 Kansas City Bone & Joint Clinic, Inc
Indianapolis, IN 46250 Corporate Medical Plaza Bldg
317-588-7130, 317-588-7133 fax 10701 Nall Ave Ste 200
Overland Park, KS 66211
Scheck and Siress
913-381-5225, 913-901-0186 fax
Prosthetics, Orthotics, Pedorthics
6629 W Lincoln Hwy (Rt 30)
Schereville, IN 46325 KANSAS–Support Groups
219-864-9501 Central Kansas Polio Survivors Support Association
Jean Graber
INDIANA–Support Groups Pretty Prairie
620-459-6355, jmgraber3@gmail.com
Michiana Polio Network
www.ckpolio.org
Darlene Lidy
Goshen, IN 46526 Topeka Post-Polio Support Group
574-522-2368, darlenelidy@wheelchairhelp.org Linda Lessman
Topeka
Roxann O’Brien
785-272-5138
Zanesville
260-638-4766, roxob@aol.com Wichita Post-Polio Support Group
Carole Utermark
Wichita
316-651-5685, utrmrk@gmail.com
16 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlKENTUCKY–Health Professional Lauro S. Halstead, MD, MPH
4405 East-West Hwy Ste 504
William P. Williamson, II, MD Bethesda, MD 20814
Rehabilitation Associates, PSC contact@laurohalsteadmd.com, www.laurohalsteadmd.com
220 Abraham Flexner Way, Ste 300
Louisville, KY 40202-1887 Barbara C. Sonies, PhD, CCC-SLP, BRS-S
502-899-3623, 502-584-3480 fax Dept of Hearing & Speech Sciences
wwilliamson@rehabmds.net University of Maryland
0100 LeFrak Hall
LOUISIANA–Health Professional College Park, MD 20742
301-405-5237, bsonies@umd.edu
Stephen Kishner, MD
LSU School of Medicine Reginald Nettles, PhD, CGP
1450 Poydras St Licensed Psychologist and Professional Life Coach
New Orleans, LA 70112 6217 Ironwood Way
504-412-1100 Columbia, MD 21045-4466
410-290-7999, 443-583-2353 fax, r.nettlesphd@gmail.com
LOUISIANA–Support Group Amit Bhargava, MD, MS (Orthopedics), RMSK
Physical Medicine & Rehabilitation
Easter Seals LA Polio Support Network Medical Director
Janet Pepperman Advanced Interventional Pain & Sports Medicine Center
Prairieville 20 Crossroads Dr Ste 210
504-450-0480, janpepperman@netzero.com Owings Mills, MD 21117
410-581-2969, 410-581-5775 fax, www.bPain.com
MAINE–Health Professionals
Richard Parker, PhD MARYLAND–Support Groups
72 Front St The Polio Society
Bath, ME 04530 Reginald Nettles, PhD
207-443-6180 Columbia
Dorothy L. Woods Smith, PHD, RN, AHN-BC 410-290-7999, poliosociety@yahoo.com
Houses of Healing Polio Support Group of Central Maryland
25 Wakely Ct Jean E. Williams
Portland, ME 04103 Columbia
207-797-8088, dwsmith@maine.edu 410-312-0606, jewilli@comcast.net
www.housesofhealing.com Fay Baker: 301-596-4156, mbakerf@comcast.net
MAINE–Support Groups MASSACHUSETTS–Health Professionals
Portland Region Post-Polio Support Group Nicholas S. Hill, MD
Jane P. Lindquist Chief, Pulmonary, Critical Care & Sleep Medicine
Falmouth Tufts Medical Center
janeplindquist@icloud.com 800 Washington St Ste. 257
207-576-3868 Boston, MA 02111
Post-Polio Support Group of Maine 617-636-4288, 617-636-5953 fax
Ann B. Crocker NHill@tuftsmedicalcenter.org
West Gardiner *International Rehabilitation Center for Polio (IRCP)
207-724-3784, abcrocker@roadrunner.com at Spaulding-Framingham
www.ppsgm.org Darren Rosenberg, DO, Medical Director
Spaulding-Framingham
MARYLAND–Health Professionals 570 Worcester Rd
Framingham, MA 01702
Noah Lechtzin, MD, MHS, FCCP
508-532-4259
Pulmonary & Critical Care Medicine
www.spauldingrehab.org/services/outpatient/post-polio.aspx
Johns Hopkins University
1830 E Monument St 5th Floor
Baltimore, MD 21205
410-502-7044, 410-502-7048 fax, nlechtz@jhmi.edu
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 17Stephanie T. Machell, PsyD MICHIGAN–Support Groups
Rehabilitation Psychology
40 Speen St Michigan Polio Network
Framingham, MA 01701 Tim Brown, Vice Chairman and Treasurer
617-776-4001, drstm@mindspring.com Grosse Point Woods
313-886-6081
Albert Loerinc, MD info@michiganpolionetwork.com
Pulmonary Medicine www.michiganpolionetwork.com
New Bedford Rehabilitation Hospital
4499 Acushnet Ave Southeast Michigan Post-Polio Support Group
New Bedford, MA 02745 Bonnie E. Levitan
508-995-6900, 508-998-9365 fax Grosse Pointe
aloerinc@newbedfordrehab.com 313-885-7855, pigger_38@yahoo.com
Post-Polio Connection
MASSACHUSETTS–Support Groups Sunny Roller, MA
Liina Paasuke, MA
Amherst Post-Polio Support Group
Ann Arbor
Philippe G. Galaski
734-971-1715, liina610@sbcglobal.net
413-727-8639
phgalaski@gmail.com Mid-Michigan Post-Polio Support Group
Ethel Jean Iutzi
North Shore Area Post-Polio Support Group
Harrison
Barbara Mintz
989-539-3781, hnjutzi12@ejourney.com
Newburyport
978-465-1059, harry.m.mintz@gsk.com Lansing Area Post-Polio Support Group
Margaret Nielsen
MICHIGAN–Health Professionals 517-336-5921, nielsenwilliams@yahoo.com
*Ann T. Laidlaw, MD
MINNESOTA–Health Professionals
University of Michigan Health Systems
Physical Medicine & Rehabilitation Jennine Speier, MS, MD
325 E Eisenhower Ste 100 Physical Medicine & Rehabilitation
Ann Arbor, MI 48103 Sister Kenny Rehabilitation Associates
734-936-7175, 734-615-6713 fax, alaidlaw@umich.edu 800 E 28th St
Minneapolis, MN 55407
Michael Andary, MD, MS
612-863-4495, 612-863-8942 fax
1200 E Michigan Ste 520
www.sisterkennyinstitute.com
Lansing, MI 48912
517-364-5260 Mark Christopherson, MD
Physical Medicine & Rehabilitation
Steven R. Hinderer, MD
Mayo Clinic
Michigan Abilities Center
200 First Street SW
Physical Medicine & Rehabilitation
Rochester, MN 55905
34020 7 Mile Rd Ste 102
507-284-0966; 507-255-1625 fax
Livonia, MI 48152
734-622-9500, pmrinfo@michiganabilitiescenter.org * Gillette Children’s Specialty Healthcare
Jill Gettings, MD
Frederick M. Maynard, MD
435 Phalen Blvd
427 E Michigan St
Saint Paul, MN 55130-5302
Marquette, MI 49855
651-636-9443, 651-628-4484 fax
906-228-8217, fmmaynardmd@charter.net
jgettings@gillettechildrens.com
*Center for PM&R, PC www.Gillettechildrens.org
Daniel M. Ryan, MD
13850 E 12 Mile Rd Ste 2B MINNESOTA–Support Group
Warren, MI 48088-3730
586-778-4505, 586-552-4878 fax Twin Ports Post-Polio Network
Leo F. Plewa
Hermantown
218-729-9635, lfplewa@yahoo.com
18 Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.htmlMISSOURI–Health Professionals MONTANA–Support Group
Jennifer L.K. Clark, MD, PC Polio Survivors of Montana
Physical Medicine & Rehabilitation Ann Tuss
Columbia Orthopaedic Group 406-750-0352, psom@poliosurvivorsofmt.org
1 South Keene St www. poliosurvivorsofmt.org
Columbia, MO 65201 Resource only
573-443-2402, 573-876-8647 fax
j.clark@columbiaorthogroup.com NEBRASKA–Health Professionals
Karl J. Haake, MD Jacob Keough, CO
The Center for Pain Management OrthoMedics
100 St. Mary’s Plaza 13217 F St
Jefferson City, MO 65101 Omaha, NE 68137
573-636-3483 402-614-7321
Melvin Karges, MD omaha@orthomedics.us, www.orthomedics.us
Physical Medicine & Rehabilitation Victoria McHugh, DPT
702 E 34th St Ste 100 Key Physical Therapy
Joplin, MO 64804 7686 Walnut St
417-782-1700, 417-782-1747 fax Omaha, NE 68124
Keith Smith, CO 402-578-3146, 402-916-1739 fax
Orthotic & Prosthetic Lab, Inc MyKeyPT@hotmail.com
West County Patient Care Center
777 S New Ballas Ste 116 W NEBRASKA–Support Group
Saint Louis, MO 63141
Nebraska Polio Survivors Association
314-567-7775, 314-567-3792 fax
Elaine Allen
Keithorth@sbcglobal.net
PO Box 6076
*Center for Advanced Medicine Neuroscience Center Omaha, NE 68106-0076
Martin B. Wice, MD 402-932-5426
Kate Marlow, MD npsa.org@hotmail.com, www.ne-polio.org
4921 Parkview Place Ste 6C
Saint Louis, MO 63110 NEVADA–Support Group
314-362-4503
South Nevada Association of Polio Survivors (SNAPS)
Sylvia Soden
MISSOURI–Support Groups Las Vegas
Maryann “Miki” Gudermuth 702-331-9813, sodenssnaps@gmail.com
1314 Brookshire Rd http://snapsnv.org
Cape Girardeau, MO 63701
573-275-0754, mikiag@charter.net NEW HAMPSHIRE–Health Professionals
Resource only
* Granite Physiatry, PLLC
Greater Kansas City Post-Polio Support Group Stuart J. Glassman, MD, FAAPMR
Judith Wilson 60 Commercial St Ste 303
816-741-1620, jkw1620@sbcglobal.net Concord, NH 03301
www.postpokc.org 603-223-8145, 603-223-8146 fax
www.granitephysiatry.com
Greater St. Louis Post-Polio Support Group
314-534-0475, info@post-polio.org Martha Torrey, PT
Foothills PT
Mid-Missouri Post-Polio Support Group
28 Commercial St
Alvin G. Cook, Sr.
Concord, NH 03301
Sedalia
603-225-5132, mstxcski@gmail.com
660-829-0902, Coachman64@aol.com
Post-Polio Directory 2021© www.post-polio.org/net/poldirhm.html 19NEW JERSEY–Health Professionals Thelma Van Liew
908-753-6514, thelmavanliew@hotmail.com
Jerald Zimmerman, MD Resource only
370 Grand Ave Ste 102
Englewood, NJ 07631 Monmouth Post-Polio Support Group
201-567-3370 (press 6), egsjrz@aol.com Thomas Wilczewski
732-229-9343
Richard L. Bruno, HD, PhD
Clinical Psychophysiology Morris County Polio Network
International Centre for Post-Polio Education & Research 973-769-0075, drvince@njpolio.org
Hackensack
Ocean County Polio Support Group
201-342-6777, postpolioinfo@aol.com
Mary Jane Vecchione
www.postpolioinfo.com
Toms River, NJ
Resource only
732-341-6805, mjv1212v@comcast.net
Melanie-Ann Llanes, PTA Facebook.com/OCPPSG
Marguerita Murray, MS, OTR/L
Southwest Jersey
Hackensack Meridican Health
Anna Nasuti
Mountainside Medical Center
856-740-1106, amn46@comcast.net
1 Bay Ave
Montclair, NJ 07042
NEW MEXICO–Health Professional
John R. Bach, MD
Department of Physical Medicine & Rehabilitation Kimberly Encapera, MD
Behavioral Health Sciences Building Rehabilitation Hospital of Southern New Mexico
182 S Orange Ave 4441 E Lohman Ave
Newark, NJ 07103 Las Cruces, NM 88011
973-972-2850, 973-972-5725 fax 575-521-6440, 575-521-6551 fax
bachjr@njms.rutgers.edu, www.doctorbach.com,
www.breatheNVS.com, www.breatheBB.com NEW MEXICO–Support Group
Arthur J. Sakowitz, MD New Mexico Post-Polio Support and Education Group
Pulmonary Medicine Assoc PA Susan S. Turner, LCSW
1 W Ridgewood Ave Ste 206 12836 Lomas Blvd NE Ste B
Paramus, NJ 07652-2361 Albuquerque, NM 87112
201-493-0366, 201-493-0379 fax 505-275-0203, turnerlisw@aol.com
Bacharach Institute for Rehabilitation
61 Jimmie Leeds Rd NEW YORK–Health Professionals
Pomona, NJ 08240 TMR Orthotic Prosthetic Service
609-748-2081 Ethel Mieles
Robert Martinez
NEW JERSEY–Support Groups 2418 Ditmars Blvd
Astoria, NY 11105
Polio Network of New Jersey (PNNJ)
718-726-8477
Lottie Esteban, President
110 Chestnut Ridge Rd, #330 Jonathan Breux, CO, CPED
Montvale, NJ 07645 Hanger Clinic
201-391-0758, info@pnnj.org, www.pnnj.org 310 Pennsylvania Ave
Elmira, NY 14904
Atlantic County
607-734-7215, 607-734-7750 fax, jbreux@hotmail.com
Marge or Steve Disbrow
609-909-1518, Kittystamp@comcast.net Scott Irwin, PT
Pegasus Physical Therapy, PC
Bergen County Polio Support Group
114 Parkway Dr S
Heather Broad
Hauppauge, NY 11788
201-845-6317, hbroad@netzero.net
631-543-1614, 631-543-1615, Pegasus@catzli.com
Essex-Union
Judith Glaser, DO
Edwina Jackson
410 Lakeville Rd Ste 303
973-673-0380, nubianqueen8@aol.com
New Hyde Park, NY 11042
516-327-9777, www.drjudithglaser.com
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