Respite care restores energy for patients and their families - Harbour Hospice
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March 2019
Respite care restores energy for
patients and their families
Dave Bindon lives his life tethered to an oxygen support from Harbour Hospice, and what he has
tank. Diagnosed about 19 years ago with chronic valued the most is his visits to the inpatient unit
obstructive pulmonary disease (COPD), Dave’s at Hibiscus House – offering him much needed
condition has gradually worsened and he has respite. On each stay, the Hospice’s team of nurses,
been on fulltime oxygen for several years. doctors, patient and family support team members
and volunteers welcome Dave for a change of scene,
He considers himself lucky that his health is providing an opportunity to re-evaluate and review
reasonably stable and his symptoms well managed; all aspects of his condition and adjust his medication
he has little energy but is not in constant pain. But if needed, and giving Anna, his main caregiver, a
what he finds frustrating, and often boring, is to be welcome break.
confined to a 15-metre radius - the length of his
oxygen tube. Dave wishes for more independence. “I would love to
be able to go out and do the shopping, or go to the
At home in Manly, Dave can walk around his garden library,” he says. “My biggest gripe is not being able
but to go any further, he relies on his wife Anna to lift to get out much, and my biggest concern is Anna’s
a mobile oxygen tank into the car and drive to their state of health.”
desired destination – as long as they are home within
the three to four hours allowed by the mobile oxygen Thanks to your ongoing generosity and continued
supply. With Anna becoming increasingly frail and no support, we can offer patients like Dave much
longer a confident driver, these outings are now rare. needed respite care. These important breaks enable
Dave’s condition means he has needed ongoing Dave’s wife Anna to reenergise and be able to p>3
You are part of this caring Hibiscus Coast community. Volunteer, donor, bequestor, staff member, brave story-teller. Thank you.Hibiscus House Jan Nichols
Inpatient Unit
July 2017 to June 2018
Caring for your growing
Last year at Harbour community at home
and in Hospice
Hospice’s inpatient unit on
the Hibiscus Coast, there
were 239 total admissions
for symptom management, 2018 was a monumental year which saw the creation of
respite or terminal care. Harbour Hospice Trust to serve the communities of North
Shore, Hibiscus Coast and Warkworth Wellsford.
85 of these admissions were
for respite care. 52 patients The merger of Hibiscus services with North Shore and
received respite care over Warkworth Wellsford has been an enormous undertaking and
602 bed nights. I want to thank you for your continued support as we have
refined roles within the new organisation, introduced new
services and moved shops. All while continuing our everyday
mission of providing skilled and compassionate care to more and
more people in our local communities.
Over the last six months, referrals to Harbour Hospice
have increased by close to 9%. This means, with your
continued support, we are on track to care for more
than 1200 people this year.
Among these are people with illnesses other than cancer. In this
Respite
edition of Your Hospice Matters we introduce you to Dave who
Symptom Management is living with chronic obstructive pulmonary disease (COPD).
Terminal Care Very clearly people like Dave can receive enormous benefit from
the wraparound services our Hospice offers.
We are quick to acknowledge that most end of life caregiving
is provided by family members in their own homes. Dave’s
story is an example of the how short stays in the inpatient unit
can help patients relax and restore their energy, while giving
family caregivers time to rest, take a holiday break, or catch up
on other life demands. Across the Hibiscus and North Shore
Hospice Inpatient Units we usually care for three booked respite
602
patients a week from anywhere in our three communities.
That you for your commitment to supporting the work of the
R E S PI T E B E D nurses and doctors who warmly welcome patients into our
NIGHTS inpatient unit for some therapeutic care and social connection.
With best wishes
239 Jan Nichols
R E S PI T E A D M I S S I O N S Chief Executive
Your Hospice Matters Harbour Hospice 2Trusts’ generosity
“It’s good keeps lights on
to feel so
welcomed and
cared for.” Special thanks to the Charitable Trusts that play a
vital role in helping meet the challenging funding
Continued from page 1 shortfall we face every year. Two trusts that have
supported us for decades are Pub Charity Limited
continue the caring when he returns home. She can and The Ted and Mollie Carr Endowment Trust
feel reassured that Dave is receiving expert and and Estate of Ernest Hyam Davis. Their continuing
compassionate care from the Hospice team. generosity has aided the comfort of thousands of
patients and their families over the years.
“It’s very restful and I certainly feel better while I’m
there,” Dave says. “When I’m at Hospice I always feel In the last financial year:
that I’m in good hands. I have a room to myself and I Pub Charity Limited helped fund essential
can get my trusty trundler out and walk all the way operating costs with a grant of $250,000.
around the deck, within the limits of the tubing.” Estate of Ernest Hyam Davis & Ted and Mollie
Carr Endowment Trust gave $30,000 to pay the
As Dave’s mobility and energy have reduced, his lease on the Whangaparaoa Hospice Shop, so more
social circle has shrunk. Dave appreciates the shop income could go directly towards patient care.
friendship of the doctors, nurses and volunteers The Kelliher Charitable Trust supported our Family
at Hospice providing him with improved quality of Support services.
life and enhanced wellbeing. “It’s good to feel so North Shore Presbyterian Hospital Trust helped
welcomed and cared for,” Dave says. provide spiritual care for patients and families.
Constellation Communities Trust supported
With your help, our nurses, doctors, the patient and strong leadership for our nursing team.
family support team and volunteers can continue Pelorus Trust paid for syringe drivers that help our
to offer patients like Dave respite care. A stay in patients manage pain.
the inpatient unit not only gives the medical team Zelda Roberts Charitable Trust supported our
a chance to re-evaluate a patient’s condition and counselling services.
make any adjustments to their medication that may Dragon Community Trust contributed to the costs
be needed, it also gives patients and families a of running our patient day groups.
chance to reset and restore physical, emotional and BlueSky Community Trust helped us feed our
social energy levels. patients tasty and nourishing meals.
You bought new beds!
Last November our patient Joanne Ratima shared her story and asked
you to help us buy six new beds and mattresses for the Hibiscus Coast
inpatient unit, as the beds there no longer provide the comfort we
aspire to.
Your big-hearted response amounted to a donation total of $13,903.
Thanks to you we can now replace two of the old beds and mattresses
and give patients like Joanne – and Dave, who shares his story in this
newsletter – the most fundamental gift of comfort. Joanne was amazed
and excited that her story inspired so much generosity. She is delighted
to be part of such a thoughtful community, and to know that her story Thank you
will bring comfort to others. Thank you for caring and for helping us give for your
people like Joanne and Dave the comfort and relief of a soft, cosy bed. big-hearted
response!
Your Hospice Matters Harbour Hospice 3Carols by the Sea /
Kathy Manson and the Ukulele players
raised almost $800 for Hospice
with Carols by the Sea in December.
They extended an invitation to the
community to celebrate Christmas in
a very Kiwi fashion – outdoors at the
beach, singing Christmas carols to the
strumming of ukuleles!
Harbour Hospice CEO Jan Nichols and the
Thank you to Kathy and her band Farmers team. Funds raised in Hibiscus
of musicians, and to everyone who Coast and North Shore will be used for
supported this wonderful event. hospice services in the community in
Greek Extravaganza / which they were given.
A celebration of Greek culture, food, Trees of Remembrance /
music and dance raised over $13,300
for Harbour Hospice’s Hibiscus Coast Christmas is a time for giving,
service in November, proving that and you gave with open hearts to
bigger is sometimes better. support our gift-wrapping and Trees
of Remembrance at local malls,
For the second year running, the supermarkets and the Silverdale
Rotary Satellite Club of Orewa- Farmers store in December.
Millwater hosted the Greek
Extravaganza, but moved it to bigger With your generosity, we raised
venue – the Orewa Events Centre $18,000 towards care for Harbour
– and almost doubled the amount Hospice patients in the Hibiscus
raised in 2017. Coast community.
We are enormously grateful to Theo Farmers Silverdale assistant store
Simeonidis and the Rotary Satellite manager Amber Cleverley and her
Club of Orewa-Millwater for their amazing team inspired customers
commitment to making this such a to give $11,662, either as donations
successful event, and to Hibiscus and or by purchases of the Hospice
Bays Local Board and the following All that Jazz / Christmas Bauble. The full $10 of the
sponsors for their generous support: bauble purchase price went directly
The Orewa Lions Club would never to the store’s local hospice, ensuring
Platinum Plus Sponsor - New World blow their own trumpet, but they funds stayed in your community.
Whangaparaoa; Gold Sponsors know how to organise a great jazz
- Gulf Rise Metlife Care Village, night. At Trees of Remembrance in other
InspHire, Silverdale Print and Design; sites around the Hibiscus Coast
Community Sponsors – Driveline, The Lions’ annual Jazz and Swing community, shoppers donated almost
Raewyn and Karlene of Barfoot Concert, held at Centrestage Theatre $7,000.
and Thompson Millwater, Kuzina in October, raised $4,015 for Hospice
Mediterranean Café and Bar Orewa, services in the Hibiscus Coast We are deeply grateful to the 84
UProtectNZ Insurance Services community. Hospice volunteers who gave their
Millwater, Heathcote Legal, Auckland valuable time, and to Silverdale Mall
Garden Services, Total Security Many thanks to our generous sponsor manager Lorraine Gatiss, Coast
Group, Stealth Group, Sunrise Forrest Funeral Services and the Plaza manager Kylee Meek and office
Electrical, Byrne Homes, ASB Bank Orewa Lions for their commitment administrator Sue Peltz, Orewa New
Orewa, Bruce Cameron of Lifetime to delivering fantastic musical World owner Catherine Versalko-
Financial Group, JP and Associates entertainment and supporting West, and Whangaparaoa New
Chartered Accountants. Hospice care in our local community. World owner Penny Ashton.
Your Hospice Matters Harbour Hospice 4Hibiscus House your Hospice hub
When Hibiscus House was built more than 10 years Harbour Hospice’s community teams will need to
ago, it was intended that the downstairs would grow to keep pace with population growth and
eventually house office space for staff not working demand on palliative care services.
directly with patients and families.
The project is expected to be finished later this month
Storage space in the basement is now being and includes new landscaping, 29 additional carparks
converted to an open-plan office for Harbour and a second vehicle exit. In the next phase, the
Hospice’s finance, administration, education, HR and inpatient unit will also be upgraded with new carpet,
communications teams. curtains and chairs.
Hibiscus House will be the hub for our three We are grateful to the companies who are supporting
communities of Hibiscus Coast, North Shore and the redevelopment: HiwayGroup, Firth Concrete,
Warkworth Wellsford. Amstar Construction, Hutchinson Consulting
Engineers, Gideon Contractors Limited, Western ITM,
This will improve collaboration and support among Hynds Pipe Systems, Fulton Hogan, Atlas Concrete,
staff, and free up offices on the upper level for Opie Contractors, B&A Urban & Environmental,
nursing and family support staff. We know that Coastline Markers, and C&R Surveyors Ltd.
Farewell Merv Crocker
Extraordinary legacy of a humble and generous man
Late last year we bid a sad farewell to Merv genuinely kind, personable and great fun,” Jan says.
Crocker, a humble and generous man who played
an enormous role in advancing hospice care in the As chairman of the Hospice Hibiscus Coast
Hibiscus, Auckland and national communities. Charitable Trust from 1996 to 2004, Merv led
the hospice service into a more specialised and
Merv’s legacy to our local hospice service included sustainable era. He proposed a new financial
chairing the board that opened the first Hospice and operational structure and implemented new
Shop on the Hibiscus Coast, driving the fundraising, fundraising streams (including shops at Orewa,
planning and construction of Hibiscus House Whangaparaoa and Silverdale).
and, shortly before he passed away last October,
establishing a Nurses Education Scholarship to Merv chaired the capital campaign for Hibiscus
honour his beloved wife, Ngaire. House and ensured the plans included room for
the service to grow. That foresight is paying
Harbour Hospice CEO Jan Nichols says dividends now, as the building is transformed to
she first met Merv when he was provide more room for patients and families.
a member of the Hospices
of Auckland Executive Last year Merv added one more gift to his
organising an event to extraordinary legacy, establishing the Merv and
benefit Hospices in the Ngaire Crocker Scholarship Fund to further the
region. training of Hibiscus Hospice nursing staff.
“Not only was he Registered nurse Gwendalyn Castano was the first
a hardworking to receive the annual scholarship. For two weeks she
and committed worked alongside staff at HammondCare, a leading
organiser, provider of dementia and palliative care services in
we soon Australia. Gwen returned with a deeper understanding
discovered of the needs of patients with dementia and new
that Merv was knowledge to share with her colleagues.
Your Hospice Matters Harbour Hospice 5Hospice Awareness Week May 2019
You can help us to help others by lending a hand
to raise valuable funds and awareness for Harbour
Hospice.
Suzanne McFadden has been a regular Hospice
Cuppa host and her gatherings have involved many
of the women in her Whenuapai neighbourhood.
About 60 attended Suzanne’s Whenuapai High Tea for
Hospice; aged from 8 to 80, the guests included three
sets of grandmother, mother and daughter. A raffle
and a fun quiz about women, beautiful food and great
company, and a fantastic fundraising total of $1370 for friends, family or colleagues
Hospice definitely add up to a successful Cuppa! together to enjoy a ‘comforting
cuppa’. We have a fantastic FREE pack
Here are a few ways you can show your support this we can send you to help with your fundraising.
Awareness Week: - ‘Add a Dollar‘ at the checkout when shopping at
- Spare a couple of hours to ‘shake a bucket’ for your your favourite local supermarket.
local Hospice. We are aiming to have more collectors
than ever before, so please keep an eye out for them To register your support or to receive your
and give generously. free Hospice Cuppa pack contact Natalie Taylor
- Host a Hospice Cuppa. A great excuse to bring on 09 421 9180 today.
Golf tournament good for business
and good for charity
Golfers who fancy their chances at hitting a hole Organiser Mike Grunsell was motivated to fundraise
in one have 25,000 reasons to sign up for the third for Hospice after both his parents, his big brother
Hibiscus Golf Tournament on Friday March 29. and three friends received hospice care. Mike will be
on the course all day driving the drinks cart, checking
A prize package of $25,000 worth of travel there are plenty of sausages on the ninth-hole
organised by You Travel is on offer for the first lucky barbecue, and making sure everyone is smiling.
(or incredibly accurate) golfer who sinks a ball from
the tee in the Ambrose style tournament at the “It’s a social day and good for business; whether
Helensville Golf Club. you’re a big corporate or small business, you’re
talking, having fun and building relationships,” Mike
says. “Golf is serious, but this is a fun day.”
Fellow golfer Peter Jones and Hospice Fundraising
Coordinator Natalie Taylor are helping Mike organise
the tournament, with support from the golf club and
the Hospice Women’s Committee. Cabra Holdings,
ECC Lighting and Design, Hopper Developments and
Huapai Country Club are kindly sponsoring the event.
29 th Register your team today so you don’t miss out.
www.harbourhospice.org.nz and look for
MARCH
Events; Hibiscus Coast
Your Hospice Matters Harbour Hospice 6Open Doors for fun
and friendship
The incredible support that you give to Hospice is
helping us meet the needs of patients through our
popular patient day programme, Open Doors.
With the aim of providing holistic care for patients,
Open Doors runs from 10.30am to 12.30pm every
Wednesday in the lounge of Hibiscus House at John
Dee Crescent, Red Beach. At every second Open Doors session,
volunteers offer patients gentle pampering
Run by Day Group Coordinator Pauline Louette and with hand and foot massage.
her team of committed volunteers, the sessions offer
fun activities and presentations by vibrant speakers even though it costs her a huge effort, as she suffers
– along with the Hospice hallmarks of tea, coffee and from shortness of breath. She no longer drives and
delicious food. often gets a ride with a volunteer or with Val, another
regular who has become a friend.
A schedule of varied topics have included armchair
travel to India, Africa and Canada; song, dance ‘’We have such a laugh at times and that’s one of the
and music-making; breathing and relaxation; floral reasons I go,’’ Letty says. ‘’I like to be among people
arrangement and crafts. Every second session is who laugh and enjoy life.’’
a social gathering with pampering by dedicated
volunteers who offer gentle hand and foot massage. Pauline says she is extremely grateful to the
community for supporting this extension of hospice
Pauline believes patients come mainly for the services through their donations of time, goods and
fellowship and to talk about concerns and issues funding. “This group wouldn’t be possible without
with people in a similar situation. They do not have to the incredible help of the Hibiscus Coast community.”
explain themselves, and can express thoughts they
may feel reluctant to share with other people. For Open Doors is one of several programmes
some, it is the only outing in their week. supporting patients, caregivers and bereaved
family members at Hibiscus House. Visit
Hospice patient Letty Morris enjoys the company harbourhospice.org.nz and go to How we can help
at Open Doors so much that she continues to come you – Programmes.
Tax deduction rewards your generosity
Nobody understands the importance of time more by ensuring Hospice can continue providing
than someone who is nearing the end of life. Time compassionate care; and it will benefit you by taking
is also important if you are considering a donation advantage of available tax credits.
to Harbour Hospice, as the end of the financial
year is approaching and time is running out on tax As the need for palliative care increases in your
deductible donations. community, we will help more and more people by
providing respite care in the safe and welcoming
As an individual you can claim a 33.33% tax credit environment of a Hospice Inpatient Unit – but we
for all donations over $5 you make to an approved need your help to make this possible.
donee such as Harbour Hospice*. A tax credit
reduces the amount of tax you have to pay. Your * Please contact your tax advisor or accountant for
donation today will benefit people in your community more information.
Your Hospice Matters Harbour Hospice 7Please donate today so we can
continue welcoming people like
Dave to the inpatient unit so they,
and their families, can relax and
restore their energy.
You are part of the Harbour Hospice community that
makes it possible for Dave to enjoy regular ‘retreats’
in the Hibiscus House Inpatient Unit, where he can
be reassessed and connect with other people while Please help us
his wife Anna restores the energy needed for her give patients
caregiving role.
precious time to
When someone is ill and can no longer take part relax and revive.
in their usual social activities, they can soon feel
isolated and lonely. A change of scene, and the
opportunity to meet old friends and make new ones,
may be as restorative as any medicine. allows precious time to review treatment and to restore
energy levels for both patients and family members.
The Hibiscus Coast area is growing rapidly and we
need your support to care for the growing number Thank you for supporting Harbour Hospice and
of patients - more than we have seen before. Most enabling us to care for people in your community of
are cared for at home and many, like Dave, have Hibiscus Coast.
complex needs that are aided by a stay in the care
of the inpatient unit multidisciplinary team.
Please make a donation today, to ensure our nurses,
doctors and patient and family support team can Jan Nichols
continue to offer patients like Dave respite care – which Chief Executive
P.S. Last year Hospice Hibiscus Coast was renamed, and is now called Harbour Hospice. However the same Hospice
services still provide care and relief as before. Your gift today will directly benefit patients in your local community.
Please consider a gift today, of whatever you Please accept my donation of:
can afford, to ensure our nurses and doctors $
can continue welcoming patients like Dave.
Post this form to:
Harbour Hospice Hibiscus House, PO Box 66, Whangaparaoa 0943
HC NEW0319
Name: I wish to make my payment by:
Cheque (enclosed) Credit card (see below)
Address:
Charities Services #CC22413
Card no:
Cardholder’s name:
Card expiry date:
Phone: Signature:
Email:
Other ways to donate:
Phone: Hibiscus House (09) 421 9180
Please send me information about: Online: Safely and securely at www.harbourhospice.org.nz
Joining our Friends of Hospice Club through monthly giving Gifts $5 and over are tax deductible.
Including Hospice in my Will
Your Hospice Matters Harbour Hospice 8You can also read