SDS National Voice 2020 Common Ground - Making space for better conversations - #SDSNV20 - Self Directed ...
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SDS
National Voice 2020
Common Ground
talk
share
Making
space
for better
conversations
care
#SDSNV20
Welcome to SDS National
Voice 2020: Common We are now over a year into SiRD
Ground 2021 and it has been brilliant to
see these organisations flourish;
Welcome to SDS National Voice we are delighted that many of the
2020: Common Ground, our third new organisations and projects
SDS National Voice event! Today is formed as a result of this have
all about bringing people together become SDSS members. Late last
with a common interest in improving year we reached the 50-member
the implementation of Self-directed milestone and continue to grow with
Support (SDS) in Scotland, and in 53 members to date. A range of
turn ensuring that Disabled People SDSS members will be showcasing
have genuine choice and control their ground-breaking work today,
when it comes to social care. highlighting how they have worked
with others to effect change in their
We are now 9 months into the areas.
Scottish Government Reform
of Adult Social Care Support SDSS recognise that there is still
Programme, and we are eager change needed to ensure that
to see progress when it comes choice and control are central
to the implementation of SDS to social care delivery. We hope
as part of that work. Today you that today is an opportunity for
will have an opportunity to hear further learning and development
about early findings from the My in order to make room for better
Support, My Choice research which conversations around social care.
we carried out with our partners
The SDS Scotland team.
at The Health and Social Care
Alliance Scotland (the ALLIANCE),
with funding from the Scottish
Government. We also look forward
to hearing from Social Work
Scotland today who are hosting a
project focussed on SDS, which will
involve developing a framework
for social work professionals with
an overarching aim of producing
greater consistency in experience
for people.
As expected, a strong theme
from The My Support, My Choice
research is that access to
independent support is central to a
positive social care journey. SDSS
are proud of our members who
continue to work hard to provide
this for thousands across Scotland.
Programme
What steps 9:30
10:00
Registration & refreshments
Welcome and introduction
will you take to - Jess Wade, SDSS Manager and
Florence Garabedian, SDSS Chair
build common 10:15 Exclusive Performance from The
Purple Poncho Players
ground, and - Glasgow Disability Alliance
create the 10:30 Individual Awards. Not too good to
be true!
change you - Andrena Coburn, the Life
Changes Trust
want to see? 10:45 Morning break
11:00 Common Ground: a case study launch
#SDSNV20 - Ron Fraser’s story
11:15 The Health and Sport Committee’s
Inquiry into Social Care
- Susan Brown and David Cullum,
Scottish Parliament
11:30 My Support, My Choice: early
themes
- Dr Dianne Theakstone, Dr
Hannah Tweed with Chris Baird,
#MySupportMyChoice19
12:00 A National Framework for SDS
- Ailsa McAllister, Social Work
Scotland
12:30 Lunch break with National Voice
Marketplace
13:30 Workshop session 1
14:30 Afternoon break
14:45 Workshop session 2
15:45 Q&A Panel session
Submit your questions on Twitter
using #SDSNVQT
16:30 Event Close
Speakers
Florence Garabedian, Purple Poncho Players,
SDSS Chair and CEO Glasgow Disability
at Lothian Centre for Alliance (GDA)
Inclusive Living
GDA’s Purple Poncho
Florence has been the Players use music,
Chief Executive of the comedy and drama to
Lothian Centre for Inclusive depict their own real life
Living (LCiL) since 2008. Florence’s experiences on stage, for audiences
experience is rooted in community of policy makers, service managers,
development and user-led and government officials. The
organisations working with minority Purple Poncho Players will today
groups at local, national and be highlighting real life experiences
international levels. Through LCiL of SDS, and the importance of a
and SDSS she is actively involved in human rights-based approach.
the Independent Living Movement
http://gda.scot/
and she currently chairs the SDSS
@GDA__online
board of trustees.
Andrena Coburn,
Jess Wade,
Evidence and Influencing
SDSS, Manager
Co-ordinator, Dementia
Jess has worked in the Programme. The Life
Scottish voluntary sector Changes Trust.
since 2004, when she
As Evidence and
graduated from the
Influencing Co-
University of Edinburgh.
ordinator for the Life Changes
She is currently manager at Self
Trust’s dementia programme,
Directed Support Scotland (SDSS),
Andrena supports projects with
working with local disabled people’s
self and external evaluation and
Self-directed Support organisations
is responsible for commissioning
throughout the country. She has
external evaluations of the Trust’s
previously worked in a range of roles
projects and programmes.
in the sector, including fundraising,
volunteering and campaigning and The Individual Awards programme
is a Trustee of a local family support was funded in Argyll & Bute
charity and a housing association. and Edinburgh in 2014-15 and
She was appointed to the board Aberdeen, Angus and Lochaber
of the Scottish Charity Regulator from April to September 2018. It
(OSCR) in 2016. She has a Masters aimed to provide a small amount of
in Public Administration from the financial empowerment to people
University of York and is a long time living with dementia and unpaid
human rights activist. carers, to help improve their well-
being and quality of life. A report
was published in 2015 and a further
evaluation report of Phase 2 will be Susan Brown,
published in June 2020. It is hoped Assistant Clerk, Health
that the evidence will help inform and Sport Committee
thinking about the use of small Scottish Parliament
direct payments to better support
Susan joined the
people with dementia and unpaid
Committee in 2019,
carers.
from her previous role
https://www.lifechangestrust.org.uk/ as Policy & Public Affairs Manager
@LifeChangesTrst at Marie Curie. She brings health
and social care policy experience
from several public and third
sector roles in Scotland. She is a
former member of the Scottish
Parliament’s Lobbying Act Working
Group, the Scottish Council for
Voluntary Organisations (SCVO)
David Cullum, Policy Committee and the Board of
Clerk, Health and Sport Evaluation Support Scotland.
Committee Scottish Susan has a PgD in Public Health
Parliament (2014), MSc in Rural Development
David was recruited by (2004), and a BA in Social
Scottish Parliament to Anthropology (2002)
establish and lead the https://www.parliament.scot/
Non-Executive Bills Unit in 2000. parliamentarybusiness/
He oversaw the introduction of 19 CurrentCommittees/health-
members’ bills and 7 committee committee.aspx
bills. He established the Private @SP_HealthSport
Bill and Hybrid Bill Units within
Parliament and was responsible
for parliamentary scrutiny and
amendment of all Committee and
Private Bills until 2010. He is a former
Editor of the Official Report and now
clerk to Health and Sport Committee.
Previously David was with the
Scottish Court Service for 20 years
including clerk in the High Court of
Judiciary and Court of Session.
https://www.parliament.
scot/parliamentarybusiness/
CurrentCommittees/health-
committee.aspx
@SP_HealthSport
Speakers
Dr Hannah Tweed, Support Scotland as Service User
Senior Policy Officer, Experience Research Officer along
Health and Social Care with guide dog Merlin in June 2018.
Alliance Scotland
Hannah is Senior Policy
Chris Baird,
Officer for the Health
Peer Researcher, My
and Social Care Alliance
Support, My Choice
Scotland. She works across the
Project Team.
health and social care landscape,
focusing particularly on social Chris is a Disability activist
care and Self-directed Support. and campaigner from
She obtained her PhD from the East Renfrewshire, he has
University of Glasgow in 2015, been a peer researcher for 3 years
where she co-founded the Disability and is involved in the My Support,
Studies Network and the Medical My Choice project. Chris is also an
Humanities Network Glasgow. enthusiastic amateur dramatist.
https://www.alliance-scotland.org.uk/
@ALLIANCEScot
My o r t
s u p py
m
Dr Dianne Theakstone,
SDSS Service User choice
Experience Research
Officer
Dianne recently completed
a Doctorate in Applied
Social Science at the
University of Stirling where her
comparative research examined
disabled peoples’ access to
Independent Living in Scotland
and Norway. This also highlighted
the important role that user led
Centres for Independent Living
play in developing the ethos of
independent living. In 2017 Dianne
was the researcher responsible
for the Scotland and Wales field
work in connection with the Equality
and Human Rights Commission
inquiry in to the housing experiences
of disabled people across Great
Britain. Dianne joined Self Directed
Ailsa McAllister,
SDS Project Manager,
Social Work Scotland.
Ailsa has worked in
the public sector since
1989. Her roles have Your postcard
been mainly analytical
and strategic, working for Tayside In your delegate bag you will find an
Police, Dundee Community Health exclusive artwork on a postcard. This
Partnership (NHS), Social Work was produced by artist Struan Haswell
and latterly, Dundee Health and with the support of one of our members,
Gaada. We commissioned the design
Social Care Partnership, since of this postcard as we wanted to give
integration in 2016. Now working delegates something creative to keep
on secondment to Social Work and remind them of the day.
Scotland, Ailsa manages the SDS
The postcard asks:
Team, who, for the next 14 months
will be focussed on developing a ‘What steps will you take to build
National Framework for SDS. common ground, and create the change
you want to see?’
Ailsa and the SDS team are We invite you to fill this in and pass it to
currently identifying the key us at the end of the day. We will send it
ingredients that systems, culture back to you in 6 weeks to remind you of
and practice need to have for SDS your learning from SDS National Voice
to become the norm. Using an 2020.
Active Implementation approach, About Gaada and the artist
a more personalised approach to
Gaada is a visual arts workshop based
Health and Social Care Services in Burra Isle, Shetland. They develop
should emerge for all people across meaningful and critical art activities,
Scotland. workshops, exhibitions, events,
publishing and research. Being a member
https://socialworkscotland.org/ of SDSS means that they are now in a
@socworkscot better position to reach the disabled
community of Shetland, and better
customise workshops to meet additional
support requirements. Struan worked
with Gaada to produce this artwork,
which he feels captures the concept of
common ground and working together
for change.
Who knew a platypus would become the
SDSS mascot?
Workshop Session 1 (13.30-14.30)
1 3
Using a Participation Request The ILF Scotland Transition
to improve local SDS practice. Fund; Learning from our first
Scottish Borders SDS Forum 2 years
Independent Living Fund
This workshop will share the Scotland
experience and process of
submitting a Participation Request An overview of the first 2 years
in relation to the proposed of operation of the ILF Scotland
introduction of pre-payment Transition Fund, a look back at how
cards in the Scottish Borders for the fund has evolved over those 2
SDS Option 1 and how making a years and a guide to how we can
Participation Request may lead to help you to help the young people
improved outcomes.. you work with to
#trysomethingnew.
https://ilf.scot/
2
What is Addiction Anyway? @ILFScotland
Scottish Recovery Consortium
People with problematic
substance use remain one
of the most stigmatised and
marginalised groups in society.
As a result, we are often unable
to access the support available
to other groups. Is this because
we, as a society, misunderstand
addiction? This workshop will look
at this question and consider how
finding common ground in our
knowledge and awareness could
improve access to the support
people need.
https://
scottishrecoveryconsortium.org
https://www.facebook.com/
ScottishRecoveryConsortium/
4 6
Linking the links in The future delivery of
communities social care
Roseann Logan, The Health Scottish Parliament
and Social Care Alliance
The Scottish Parliament’s
Scotland (the ALLIANCE)
Health and Sport
The Links Worker Programme Committee is holding an inquiry
supports and enables people into social care. This workshop
to make the best of their lives will seek to explore perspectives
by linking in with community of people & professionals on
assets. What matters to you their experiences of social care
matters to me and that’s where and the implementation of Self-
a conversation starts. Join us as directed Support in Scotland.
we delve more into the world of The Committee is keen to
primary care and explore how we hear the real-life insights and
can all make a difference. issues encountered through
Self-directed Support, to
https://www.alliance-scotland.org.
help understand barriers and
uk/in-the-community/national-
underlying issues that need
link-programme/
to be addressed to make sure
@LWPmakeslinks social care works for people in
the future. The workshop will
be focusing on what future
components are essential to make
Self-directed Support work and
improve people’s experiences and
outcomes.
https://www.parliament.
5 Quiet...
scot/parliamentarybusiness/
CurrentCommittees/health-
committee.aspx
@SP_HealthSport
Conference Room 5 is a designated
quiet room available during
workshop sessions
Workshop Session 1 (13.30-14.30), continued...
7
Empowering Conversations. What methods re. the provision of
Lothian Centre for Inclusive information, good communication,
Living positive conversations and
actions, and challenge where
Come along for a taster
appropriate, encourage a more
of one of LCiL’s most
collaborative approach?
popular workshops that they
host for disabled people, people http://www.gcil.org.uk/
with long term conditions and @GCIL_Support
parent carers. Empowering
Conversations is a workshop
designed give people using health
and social care, education and
other supports the best chance of
getting what they need, through
understanding and building their
confidence around effective
communication, preparing for
assessments and learning how
to challenge decisions that affect
them. In this taster session you will
hear from an LCiL Champion and
have a chance to participate in
workshop activities.
http://www.lothiancil.org.uk/
@LothianCIL
8
Good Conversations with
Local Authority staff.
Glasgow Centre for Inclusive
Living
Local Authority care managers
and Independent Support
Organisations have very different
roles and responsibilities but
in the end of the day we are
all trying to achieve the same
outcome - individuals and families
who are in control of their support
arrangements.Workshop Session 2 (14.45-15.45)
1
Learning from complaints
Scottish Public Services
Ombudsman (SPSO)
Two years on from
significant changes to the social
https://www.carrgomm.org/
work complaints system, this
community-contacts
session will provide an overview of
@CG_CarrGomm
SPSO’s experience of social work
complaints and some tips on how
to navigate the system.
https://www.spso.org.uk/
@SPSO_Ombudsman
3
Building bridges not walls
- ‘Working Together for
Change’
In Control Scotland
In this workshop, we will share
our experience of delivering a
2
The North Coast 500 new training and development
route map to successful programme about people being
implementation of SDS. in control and directing their own
Rural experiences of choice support called ‘Working Together
and control. for Change’. It is an eight day
Support Choices and Community programme where family carers,
Contacts (Carr Gomm) disabled people, and people who
The rural road travelled: but work in and manage services,
what happens when we get to learn, share and plan together. The
a smaller road or a farm/estate aim is to explore practical ways
track? This workshop will focus that people can work together as
on how Community Contacts equal participants to make positive
(Carr Gomm, Highland & Argyll change happen.
& Bute) and Support Choices
We will share some of the learning
(Highland Perthshire) have
and experiences so far and give
been delivering independent
information, support and advice in you a chance to try some of the
rural and remote areas. Offering exercises we use.
real case histories, we will discuss https://in-controlscotland.org
the realities of how SDS operates @InControlScot
and the implications it has for
those we support accessing and
receiving SDS packages.
https://www.supportchoices.co.uk/
@SupportChoicesWorkshop Session 2 (14.45-15.45), continued...
4
Outcomes for All working and within that roles and
Scottish Personal Assistants responsibilities. We will look at the
Employers Network (SPAEN) issues of conflict resolution and
transparency. We will focus on
Demonstration of a web
three areas; Under 5s, 5-14 and
based tool that enables people to
transitions to adult services. This
prepare for social work assessment,
is an opportunity for learning
agree personal outcomes with their
and sharing practice across
social worker and manage their
authorities and working towards the
social care package without the
transformation of Health and Social
rocket science.
Care within Scotland.
https://www.spaen.co.uk
https://sdsforumer.org
@SpaenTweets
@sdsforumer
5 Quiet...
7
Conference Room 5 is a designated
Experiences of Social Care:
quiet room available during
working with seldom heard
workshop sessions
groups
Dianne Theakstone (SDSS),
Hannah Tweed (The Health
6
Partnership Working-East
and Social Care Alliance Scotland),
Renfrewshire
and Mary Njoki (Stirling University)
SDS Forum East
Renfrewshire and East This workshop will centre on
Renfrewshire Council prioritising the experiences of
East Renfrewshire Children and seldom heard groups in policy and
Families community team in research. We’ll draw on learning
conjunction with the Self-directed from ‘My Support My Choice:
Support Forum will share our User Experiences of Self-directed
approach in best model of practice, Support in Scotland’ and Mary
to achieve better outcomes for Njoki’s PhD research into the
families who are accessing SDS. experiences of black and minority
We will be discussing real cases on ethnic people with dementia.
accessing Self-directed Support Participants will discuss key case
to demonstrate partnership studies, the stakeholders involved inpeople’s experiences of social care, 2019 Review and in this workshop
the implications and opportunities, we will compare the six Local
and possible solutions. We’ll Authority results and hear feedback
conclude with project reflections on opinion as to whether SDS might
on what research and policy can improve in the West Dunbartonshire
do to practice accessibility and area following the involvement of
intersectionality. the Care Inspectorate.
https://www.sdsscotland.org.uk https://sdsideas.co.uk/
@SDSScot @SDSideasproject
https://www.alliance-scotland.org.uk
@ALLIANCEScot
8
Impact of The Care
Inspectorate Scotland 2019
Thematic Review on SDS
West Dunbartonshire
SDS Ideas
‘SDS Ideas’ is an Independent
Support Organisation formed
in January 2019 to ‘Increase
Discussion and Encourage Access
to Self-directed Support in West
Dunbartonshire.’ Following on from
the Care Inspectorate Thematic
Review of SDS we have been
surveying local people, partners
and HSCP staff to try and establish
the impact. West Dunbartonshire
had had an early surge in rolling out
SDS in the early 2014 -2015 years,
however it did not fair well in thePanel
Mary Njoki, GDA from its fledgling vision of
Stirling University. strengthening voices and tackling
social isolation, to the multi-award-
Mary Njoki is a third year
winning community of 5000+
PhD student at Stirling
disabled people and groups it is
University. Previously
today.
Mary was a social
worker working in a With personal lived experience
Funding Independence Team that around disability as well as the
specialised in offering advice in cumulative impact of multiple
Direct Payments (DP). Mary’s PhD discrimination, Tressa acts as
project explores the experiences of strategic collaborator with Glasgow
black and minority ethnic people City and Scottish Governments
with dementia in receipt of direct across a range of areas including
payments. The project aims to social care, social security and
explore if Direct Payments are an participative democracy. She is
effective and culturally sensitive currently a member of the First
response to meeting the specific Minister’s National Advisory Council
challenges currently faced by for Women and Girls and sits on the
BME people with dementia. It is Expert Ministerial Advisory Group
intended that the research findings for Scotland’s new Social Security
will contribute to informing policy System.
makers and practice in planning,
delivery and evaluation of DP to
BME people. It is also aimed that Claire Cairns,
by giving the participants a space Coalition of Carers
to express their voice it will provide
valuable insights into how they Claire Cairns has been
experience, receive and perceive the Network Coordinator
personalised support and also of the Coalition of Carers
contribute to new knowledge in this in Scotland (COCIS)
underexplored area. This research since 2005. COCIS is
uses qualitative research methods a coalition of carers and local
with a narrative approach to collect carer organisations which was
and analyse data. established in 1995 to facilitate
carer engagement in local and
national policy formation and
service development. COCIS’s
Tressa Burke,
strapline is ‘From Recognition to
Chief Executive, Glasgow
Rights’ and the organisation has a
Disability Alliance.
proven track record of bringing the
Disability Activist and ‘carers voice’ to national planning
Equalities Campaigner and policy initiatives.
Tressa Burke, one of GDA’s
Before joining COCIS Claire
founder members, has
managed Greater Pollok Carers
been CEO since 2006, steeringCentre, providing practical and and empowering individuals to
emotional support to unpaid improve their health, learning and
carers. She also established a employability
young carers service offering
peer support groups, educational
support and mentoring to young Toria Fraser
people looking after family Scottish Government,
members with support needs. Adult Social Care Team
www.carersnet.org Toria works for the Adult
Social Care Reform
Team. Her role is to work
Etienne d’Aboville in the workstreams of
Chief Executive, Glasgow Consistency and Commissioning
Centre for Inclusive Living and Procurement. In particular she
lead on the Support in the Right
An active member of
Direction programme and the Self-
the Disabled People’s
directed Support Implementation
Independent Living
Plan 2019-21.
Movement since 1985,
Etienne was closely involved in
campaigning for disabled people’s
right to manage their own support
through direct payments. After
spells developing innovative
services and promoting co-
production in various Disabled
People’s Organisations, Etienne
is currently Chief Executive of
Glasgow Centre for Inclusive Living,
a DPO that has been providing a
range of support, training, housing
and employment services since
1996. Etienne has sat on numerous
advisory and consultation bodies
on independent living and
SDS including the Programme
Board which helped establish
ILF Scotland. He is currently a
member of the ILF Scotland
Board, the Scottish Government’s
Disability and Carers’ Benefits
Expert Advisory Group and is
also a director of Community
Renewal, which works to transform
communities by engaging withSupporting organisations:
Glasgow Centre for Inclusive Living www.gcil.org.uk
Glasgow Disability Alliance gda.scot
Health and Social Care Alliance www.alliance-scotland.org.uk
Scotland (the ALLIANCE)
Inclusion Scotland inclusionscotland.org
Personal Assistants Network www.panetworkscotland.org.uk
Scotland (WEA)
Scottish Personal Assistant www.spaen.co.uk
Employers Network (SPAEN)
Self-Directed Support Network sdsnet.org.uk
South Lanarkshire
The LOVE Group l-o-v-e.org.uk
Trust Housing Association www.trustha.org.uk
Your Options Understood (Y.O.U) www.youroptionsunderstood.co.uk
Your Self Directed Support Scotland hosts:
Manager Jess Wade
jess@sdsscotland.org.uk
Membership Development Mark Han Johnston
Executive mark@sdsscotland.org.uk
Operations Manager Jeremy Adderley
jeremy@sdsscotland.org.uk
Communications Anna Carr
and Events Officer anna@sdsscotland.org.uk
Service User Experience Dianne Theakstone
Research Officer dianne@sdsscotland.org.uk
@SDSScot
@SDSScotland
www.sdsscotland.org.uk
0131 475 2623
SDSS is funded by the Scottish Government.
Company registered in Scotland SC371469. Scottish Charity No SC039587.
Norton Park, 57 Albion Road, Edinburgh EH7 5QY
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