The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE

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The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
Volume 29       Print Post Approved
                             Number 3        PP 100008088
                             December 2020   ISSN 1329-959X

IN THIS ISSUE:

The Magic Bag PAGE 31
What’s in your cupboard PAGE 34
Enjoy some sunshine! PAGE 16
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
New year, new garments

                                                                                                                                                                                                                                6
                                                                                                                                                                             Your allowance is
                                                                                                                                        From 1st January 2021,
                                                                                                                                        your support garment
                                                                                                                                                                             6 support pants or
                                                                                                                                                                             3 belts or a combination
                                                                                                                                                                                                                                6           OR
                                                                                                                                                                                                                                                       33
                                                                                                                                        allowance starts afresh.             per calendar year
                                                                                                                                                                             (1 support belt = 2 support pants)
                                                                                                                                                                                                                            SUPPORT PANTS               BELTS

 Up to 50% of ostomates                                                                                                                       RATING 3.
 may develop a                                                                                                       Did you know?           MODERATE
                                                                                                                    A hole in Support
 parastomal hernia!1                                                                                                 Garments is not
                                                                                                                                                   After surgery
                                                                                                                                                                                         Men’s Support Pants                        Diamond Plus Boxers

                                                                                                                    recommended by          Wear during light exercise

 Don’t lose the battle                                                                                                 clinicians2,3            Prevent or support
                                                                                                                                                  a small bulge

 of the bulge!
                                                                                                                                                                                                                    2x                                      2x
                                                                                                                                                                                                                  colours                                 colours

 Reduce your risk of
 developing a hernia                                                                                                                                                                      Diamond Plus Briefs                         Diamond Plus
 by wearing a support                                                                                                                                                                                                               Support Waistband

 garment and following
 the practical advice                                                                                                                       RATING 4.
 provided in the Omnigon                                                                                                                  INTERMEDIATE
 Support Garments Guide.                                                                                                                     Wear during daily activities
                                                                                                                                           (housework, shopping, golfing)

                                                                                                                                         Support a more developed hernia

                                                                                                                                                                                             Support Briefs                               IsoFlex
                                                                                                                                                                                                for Her                                 Support Belt
                                                                          Your Guide
                                                                    t & management

        Contact
                                                  prevention, suppor
                                Parastomal hernia

      us today to
      grab a FREE                                                                                                                              RATING 5.
         copy!                                                                                                                                   FIRM
                                                  s
                                   Lorraine Andrew                           Therapy
                                                     Post Grad Cert Stomal
                                   RGON, ADN, BN,

                                                                                       Care Solutions

                                                                                                  6/5/20 10:52 am
                                                                                                                                                                                                                                                            2x
                                                  Garment Guide AU
                                                                     V2.indd 1
                                                                                                                                                                                                                                                          colours
                                8951OMN Support

                                                                                                                                         Wear during active work or sports

                                                                                                                                         Support a more developed hernia
  References: ¹Colorectal Disease ª 2018 The Association of Coloproctology of Great Britain and Ireland. 20 (Suppl. 2),
  5–19. ²Thompson JM. A summary on parastomal hernias, February 2009. ³Thompson MJ. Parastomal hernia: incidence,
                                                                                                                                                                                              Total Control                               KoolKnit
  prevention and treatment strategies, British Journal of Nursing, 2008 (STOMA CARE SUPPLEMENT); 17 (2), 16-20                                                                                Support Belt                              Support Belt

                                                                                                                                                                                            AU 1800 819 274 info@omnigon.com.au
                                                                                                                    Care Solutions                                                         NZ 0800 440 027 www.omnigon.com.au
2 |   Ostomy Australia December 2020                                                                                                                                                                                              Ostomy Australia December 2020    | 3
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
President’s                                     lockdowns, COVID safe plans and
                                                social distancing has forced
                                                                                            there may be financial penalties on the
                                                                                            association through the rejection of
message                                         associations to change the way they
                                                interact with their members. All
                                                                                            the claim.

                                                associations are run by a small group
                                                of staff or volunteers or a combination
                                                                                                    It has been
                                                of the two and for any of these people
                                                to be incapacitated due to COVID                 appreciated that
                                                could have dire consequences for the
                                                continued supply of ostomy products
                                                                                                  most members
                                                to members. It has been appreciated               have accepted
                                                that most members have accepted
                                                these changes in the knowledge that               these changes
                                                they have been implemented for the
                                                benefit of staff, volunteers and all
                                                members of the association.                    These changes have also required
                                                   Moving into the new year your            associations to make changes to their
                                                association will be wanting to confirm      membership, ordering and claims
                                                your personal details, which will now       management software. For many
                                                include your Medicare or DVA card           associations this will bring them onto
                                                and date of birth, are up to date.          ACSA’s Stoma Appliance
                                                Since the inception of the Stoma            Management System (SAMS). Three
                                                Appliance Scheme the SAS                    associations are already on SAMS
                                                entitlement number you were issued          and for the last 12 months ACSA had
                                                with when registered to the scheme          been working on a gradual migration
By David Munro
                                                was all the association required to         of the remaining associations onto the
                                                identify the SAS recipient when             software. This migration has now

T     his certainly has not been a
      normal year and will go down as
one to remember, although not for the
                                                making a claim. Government has
                                                imposed changes to the information
                                                                                            changed to a sprint with the
                                                                                            Government expecting all associations
right reasons. The COVID-19                     associations must provide to support        to provide their claims in the new
pandemic has had a profound effect              each claim for payment which has            format beginning in the new year.
on the way we live, work and play and           now been expanded to include the            Whilst an associations existing
it is likely that life will not return to       SAS participants Medicare Card or           software does many of the same
what it once was for some time. It              DVA Entitlement Card, their name and        functions of SAMS, moving to this
has been no different for your stoma            date of birth. If this information is not
association. The introduction of                provided as part of the claim record,                                Continued page 6

         No-sting      Alcohol-free         Long lasting

4 |   Ostomy Australia December 2020                                                                                                    Ostomy Australia December 2020   | 5
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
Continued from page 4                      that the decision was made to cancel       general meeting. The last two years        Editor: Rebecca Herbener

                                                                                                                                                                                                          IN THIS ISSUE
                                                                                                                                                                                                                              Presidents message, by David Munro                                                                                          4
new software will require associations     the conference in May because of the       as president of ACSA have been a           Foundation Editor: Barbara Callcott                                                          Update on the Department of Health’s review
to change some of their processes          uncertainty of what the situation          challenging time for me and the rest of                                                                                                 of the Stoma Appliance Scheme, by David Munro                                                                               6
                                                                                                                                 Correspondence/Contributions to:
and procedures. This may have a            would be in October. Time has              the executive. The Government is
                                                                                                                                 Email:      journal@australianstoma.com.au                                                   Your Say, Letters to the editor                                                                                             8
minor impact on the processing of          proven this to be the right decision.      showing more interest in the operation
                                                                                                                                 Post to: The editor, Ostomy Australia                                                        Congratulations Gerry Barry – 50 years as QSA President,
orders as staff and volunteers             By the time you are reading this we        of the scheme and the associations                     PO Box 267 Gosnells WA 6990                                                      by Kylie McGrory                                                                                                          11
become comfortable with the new            will have recently held our annual         than ever before and this has placed       These contact details apply only to matters
                                                                                                                                                                                                                              ANZ ConvaTec Scholarships for Stomal Therapy Nurses announced                                                             14
software so please be mindful of this      general meeting as a video                 considerable pressure on the ACSA          directly associated with Ostomy Australia. Email
                                           conference. This I am sure will be a       Executive. I would like to thank the       or Word documents are preferred, please include                                              Nutrition for ostomates - Vitamin D – an excuse for ostomates
when placing your order.                                                                                                                                                                                                      to enjoy some sunshine!, by Margaret Allan                                                                                16
                                           new experience for all delegates.          members of the Executive and the           pictures if possible.
   Usually the pages of this issue of                                                                                                                                                                                         ‘OH SH*T!!! I HAVE CANCER’, by Sabrina Rojas                                                                              20
                                              The 2021 stoma associations             committees of the 21 Stoma                 Published by:
the journal would include reports from
                                           conference is to be held in beautiful      Associations for the support you have      Australian Council of Stoma Associations Inc.                                                What clothing should I wear with a stoma? by Nandani, STN QLD                                                             23
another successful ACSA Conference
                                           Brisbane and we are hoping that            given me during this time.                 Website: www.australianstoma.com.au                                                          Celebrating 60 Years with a Stoma, by Geoff Rhodes                                                                        24
however due to COVID and the                                                                                                     Email: feedback@australianstoma.com.au
restrictions placed on travel between      association delegates will once again         Lastly, I would like to wish everyone                                                                                                My new life, The Gutless Wonder                                                                                           26
states association delegates were          be able to meet and discuss the            a very healthy and peaceful Christmas      Patron:
                                                                                                                                                                                                                              Kylie’s desk, Assisting your Association with new reporting
                                           matters impacting them and their           season. May 2021 be so much better         His Excellency General the Honourable David
unable to enjoy the delights of Hobart                                                                                                                                                                                        requirements, by Kylie McGrory                                                                                            27
                                           members.                                   than this year.                            Hurley AC DSC (Retd) Governor-General of the
this year. The Tasmanian Ostomy                                                                                                  Commonwealth of Australia                                                                    Hollywood’s First Ostomy, by R. S. Elvey, United Ostomy
Association always put on a superb           This is my last president’s message                                                                                                                                              Associations of America                                                                                                   28
                                                                                                                                 Executive Members:
event and it was with some trepidation     as I am stepping down at the annual                                                                                                                                                Phobias                                                                                                                   29
                                                                                                                                 David Munro – President
                                                                                                                                 PO Box 370, Chermside South, QLD 4032                                                        The Magic Bag, by Luke Escombe                                                                                            31
                                                                                                                                 Email: acsapres@australianstoma.com.au                                                       Rosanne meets Fred by Rosanne McKenna                                                                                     33
                                                                                                                                 Allen Nash – Vice-president                                                                  Stomal Therapy Nurse - What’s in your cupboard?
Update on the Department of Health’s                                                                                             5/7-29 Bridge Rd, Stanmore NSW 2048
                                                                                                                                 Email: acsavp@australianstoma.com.au
                                                                                                                                                                                                                              by Monica Stankiewicz                                                                                                     34
                                                                                                                                                                                                                              Our last soirée by Barbara Pitt                                                                                           36
review of the Stoma Appliance Scheme                                                                                             Robert Barsing — Treasurer
                                                                                                                                 PO Box 1254, Harvey Bay, QLD 4655
                                                                                                                                                                                                                              National Directory of Ostomy Associations                                                                                 38

By David Munro                                                                                                                   Email: acsatreas@australianstoma.com.au                                                      National Directory of Ostomy Support Groups                                                                               39
                                                                                                                                 Rosemary Quick — Secretary                                                                   Directory of Stoma Appliance Scheme Product Suppliers                                                                     40

I
                                                                                                                                 PO Box 2427, Salisbury Downs, SA 5108
    n July the Australian Department of    assistance over the phone during and       products and support they need and         Email: acsasec@australianstoma.com.au                                                        Index to Advertisers:
    Health released an outcomes            after office hours. There was also an      that many found the Stoma Appliance
                                                                                                                                 Printing and Graphic design by:                                                              Ainscorp                                                                                                            10, 30
    summary document for the               acknowledgement of the good work           Scheme Schedule long and difficult to
                                                                                                                                 Graphic Print Group
consultation process they undertook in     undertaken by volunteers within our        navigate. Considering there is now                                                                                                      Coloplast                                                                                                     17, 29, 35
                                                                                                                                 Graphic House, 10–14 Kingston Avenue,
late 2019. There were over 2000            stoma associations. Pleasingly it was      some 3,830 products listed in the          Richmond, SA 5033
                                                                                                                                                                                                                              ConvaTec                                                                                                                  15
submissions received to the                also expressed by many respondents         Schedule this is not surprising.           Phone: (08) 8443 8011                                                                        Dansac                                                                                                              22, 37
consultation with 92% of respondents       that they consider it important that          Most respondents were generally                                                                                                      Hollister                                                                                                             5, 19
                                                                                                                                 On the cover: The Magic Bag, by Luke
identifying as ostomates. Responses        associations are run by those with, or     satisfied with access to the scheme        Escombe. Read his story on page 31.                                                          Medline                                                                                                                     4
were received from across Australia,       with an understanding of, lived            and products they receive with many
with just over 70% of respondents                                                                                                Advertising enquiries to: The Editor                                                         Omnigon                                                                                               2, 3, 12, 21, 26
                                           experience of having a stoma and how       noting that if the Scheme was not
coming from New South Wales and                                                                                                  Advertising & copy deadlines:                                                                Sutherland Medical                                                                                                        25
                                           this gave them the added security of       available, they would not be able to
Western Australia. Of the ostomates                                                   afford the costs of the products. Not
                                                                                                                                 Issue            Deadline                                                                    3M                                                                                                                          9
                                           personal privacy given the sensitive
who responded just over half identified                                                                                          April            1st February
                                           nature of stoma issues for individuals.    surprisingly the impact of out of pocket                                                                                                The ACSA Journal Ostomy Australia was established in 1992 through the inaugural
                                                                                                                                 August           1st June
as living in a capital city. Considering                                              costs, like annual membership fees                                                                                                      sponsorship of ConvaTec Australia. The journal is published three times per year and is
                                              The consultation also highlighted the                                              December 1st October                                                                         available free to every member of an Australian Ostomy Association.
the difficulties associations had in                                                  and postal charges, were of concern.
telling ostomates about the                role STN’s have and that access to
                                           STNs and further product education            The Department is committed to
consultation this is an excellent
                                           would assist in managing waste and         working with ACSA and other Scheme         Editorial: Contributions are welcome but authors must include their names and addresses. Full names             Publication of an advertisement in Ostomy Australia does not constitute an endorsement of any
response.                                                                                                                        may be published unless you request otherwise. Contributions should be sent as Word or PDF documents.           products mentioned therein by the journal, ACSA, any stoma association, or any government department
                                           overuse of products. Many ostomates        stakeholders to ensure the viability of    Contributions may be edited in accordance with standard editorial practice. By submitting an article,           connected with the Stoma Appliance Scheme.
   It was gratifying that most                                                        the scheme into the future. •              including photographs or writing a letter to us, you are taken to have consented to its publication in
                                                                                                                                                                                                                                                 Readers are strongly advised to obtain appropriate professional advice before using any products advertised.
                                           reported that they had not seen an                                                    both online and physical forms unless otherwise requested. We preserve past records of all previous
respondents provided positive                                                                                                    journals, including any reader-submitted copy (which may include the use of digital or cloud-based              Privacy: The Australian Council of Stoma Associations Inc. has no control over the use of personal
feedback in relation to their stoma        STN since their surgery or that they                                                  storage securely hosted in Australia or overseas) in accordance with our Privacy Policy which may be            particulars that ostomates provide to companies in response to advertisements contained in Ostomy
                                                                                                                                 viewed at http://www.australianstoma.com.au                                                                     Australia. Unless the advertiser states otherwise, a company may use your name and address to contact
association and the additional support     had concerns their GP was not fully                                                                                                                                                                   you about its products or services.
                                                                                                                                 While due care is taken to ensure the accuracy of published material, the Australian Council of Stoma
services offered including monthly         aware of how to care for ostomates.                                                   Associations (ACSA) accepts no responsibility for any information contained in contributions and specifically   If readers do not wish to be contacted further, they are advised to tell the company this. Most companies
                                                                                                                                 disclaims liability for contributors’ claims or opinions. Readers are strongly advised to seek appropriate      have said they will comply with such requests. This advice should be taken into account when responding
meetings with other ostomates, Stomal        Most respondents agree that the                                                     advice before acting on any medical, pharmaceutical or health-related information in this publication.          to company promotions.
Therapy Nurse (STN) clinics and            Stoma Appliance Scheme provides the                                                   An electronic copy of this journal is available at www.australianstoma.com.au                                   Complaints: Consumers who are concerned about the way in which stoma appliances are advertised
                                                                                                                                 Advertising: Advertisements are published in the form submitted by advertisers. The publisher does              are entitled to lodge a complaint with the Therapeutic Goods Administration. Such complaints should be
                                                                                                                                 not check the veracity of claims made in advertisements and accepts no responsibility for their content.        addressed to the TGA Complaints Resolution Panel, PO Box 764, North Sydney, NSW 2059.

6 |   Ostomy Australia December 2020                                                                                                                                                                                                                                                          Ostomy Australia December 2020                          | 7
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
Your say
                                                                        Dear Editor,
                                                                        I’ve just received the August copy of Ostomy Australia and
                                                                        really enjoy reading how other ostomates manage and deal

                                                                                                                                               Not all barrier
                                                                        with the highs and lows of living with their best friend.                                                                                                                  Get more confidence and more peace of
                                                                                                                                                                                                                                                   mind so you can get on with life. Caring
Letters to the editor                                                      My best friend is named Thor (for obvious reasons!) and                                                                                                                 for an ostomy can be a challenge – but it
                                                                        celebrated his first birthday here in hospital on 23rd August. It’s
                                                                        been a great first year and the best thing that could have             films are created                                                                                   doesn’t mean you have to miss out on life.
                                                                                                                                                                                                                                                   3M™ Cavilon™ No Sting Barrier Film helps

                                                                                                                                               equal.
                                                                        happened to address my various problems.                                                                                                                                   protect the tender skin around your stoma,
Dear Editor,                                                                                                                                                                                                                                       for improved comfort and pouch adhesion.
                                                                          The habit of naming our various add-ons always intrigues me
                                                                                                                                                                                                                                                   Available on the Australian Stoma Appliance
I was diagnosed at 50 years of age with bowel cancer,                   and I would love to hear what other people have come up with to
                                                                                                                                                                                                                                                   Scheme in a convenient pump spray bottle.
over the years since, I have had many colonoscopies, I’m                make their friend feel part of the family!
sure others that have had cancer of the bowel or follow up                  Thank you for a really interesting and informative magazine;                                                                                                           Choose Cavilon No Sting Barrier Film.
surgeries have also had multiple colonoscopies like I have.             I look forward to the next issue in due course.
   Procedures related to the bowel usually require bowel
                                                                        Carol Bouwens, SA                                                                                                                                                            3M Code:                 3346
cleansing i.e. a bowel prep beforehand, the utilities that we use
from day to day are too small or are often non-drainable, after                                                                                                                                                                                      SAS Code:                3544M
consuming litres of the bowel prep solution, the quantities
                                                                                                                                                                                                                                                     Volume:                  28 mL
expelled are far too great.                                             Dear Editor,
                                                                                                                                                                                                                                                     Allowance:               1/month
    My question to my fellow ostomates is how do we manage?             In response to the question posed by Gary about stoma
How can we make it better? There appears to be no generalised           guards (August 2020 edition), it is true that as far as I’m
kit available from the supply companies, my association does            aware there are no producers in Australia.
provide a kit however I think it could be improved.
                                                                          I did order one from somewhere in outback NSW at one stage,
   While I understand we are often different in our requirements,       but it was obviously a scam and I lost my money.
surely our companies, ASCA the AASTN and our associations                                                                                                                                   Try it for yourself and
                                                                           I have sourced a reasonably inexpensive design from a                                                        experience the difference, visit
can come up with a universal kit with directions. Often our
doctors refer us for this procedure without the involvement of a        delightful Irishman that accommodates all sizes of stoma and
                                                                                                                                                                                       3M.com.au/ostomy                                            * Please note that samples will be the 1 mL size.

stomal nurse.                                                           types of bag. I have included his website - Stoma Protector                                                       to request a free sample.
                                                                                                                                                                                                                                                   Always read the instructions for use.
                                                                                                                                                                                                                                                   Do not use on infected areas of skin.
                                                                        (https://www.stomaprotector.com/stoma-protector-design/). The                                                                                                              If symptoms persist, talk to your health professional.
   Even with advice and suitable appliances we are left to carry
                                                                        price is a very reasonable but I believe the prices are either in US
out the bowel prep alone and in private, having suitable                                                                                                                                                                                           3M Australia Pty Limited   3M and Cavilon are trademarks
                                                                        dollars or euros. Delivery cost is next to nothing.
                                                                                                                                               3M.com.au/ostomy
                                                                                                                                                                                                                                                   ABN 90 000 100 096         of 3M Company. © 3M 2019
instructions would greatly assist.                                                                                                                                                                                                                 Phone 1300 363 878         All rights reserved

   Ostomates living in rural and remote areas don’t always have            I hope this helps Gary!
access to a stomal nurse. Even in a major city alone this can be        Dr Lachlan Mairs BVSc PhD, NSW
a very testing procedure.
    I suggest if you have experienced difficulties please speak up,
it’s the only way we can expect changes.
   It’s demoralising and stressful if things go wrong. Surely I’m not                                                                           Dear Editor,
the only one that’s had problems, and I guess many of us are too                                                                                After reading the letter from lady nearly 80 with leakage
embarrassed to complain.
                                                                                                                                                problems (April 2020 edition) I think I may have a solution and
   I intend to speak up, hoping that it’s not just me, I think that                                                                             have sent photos of a contraption my husband fashioned for
things could be a whole lot easier and less stressful.                                                                                          himself when having similar trouble.
David Paterson, QLD                                                                                                                             Rae Carrick

Dear Editor,
I read with interest an article by Margaret Allan titled ‘The
Importance of Zinc’ (August 2020 edition). It dealt with
nutrition for ostomates and the importance of Zinc in the diet.
   As a result of many bouts of chemotherapy etc to cure bowel
cancer, my husband’s skin was left dry and scaly especially on his
arms, with patches of hair turning white. He also suffered from
bruising from taking blood thinners.
   His surgeon recommended using zinc cream (Sudo Crem) on
the affected areas.
   The results were amazing. His surgeon had his patients use it
on their ulcers and it worked where nothing else did.                                                                                                                                                                      Ostomy Australia does not endorse the contents of readers’ letters nor do we
  Sudo Crem is available on the Stoma Appliance Scheme                                                                                                                                                                     vouch for the accuracy of any claims made in those letters. Readers should
Code 9821                                                                                                                                                                                                                  not rely on any such claims in the absence of medical advice and should
                                                                                                                                                                                                                           consult their treating doctors prior to embarking on any course of treatment.
  I thought that this was worth mentioning in the hope that it
might help someone.                                                                                                                                                                                                        Write to us: send your letters to the Editor PO BOX 267,
   As always, thanks for a great and informative Journal.                                                                                                                                                                  Gosnells WA 6990 or email: journal@australianstoma.com.au

Jan Driscoll, NSW

8 |   Ostomy Australia December 2020                                                                                                                                                                                                                        Ostomy Australia December 2020                    | 9
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
CONFIDENCE                                          ®                      Congratulations Gerry Barry
                                                                               NATURAL ADVANCE                                                               – 50 years as QSA President                                                                             By Kylie McGrory

                                                                                                                                                                                                            During Gerry’s first 14 years as QSA    to provide the effective distribution of
                                                                                                                                                                                                        President, the association’s                ostomy appliances under the Stoma
                                                                                                                                                                                                        membership numbers increased                Appliance Scheme. The first paid
                                                                                                                                       WITH EXTRACTS OF                                                 steadily and so it was agreed in 1984       employee of QSA was appointed that
                                                                                                                                          ALOE VERA
                                                                                                                                                                                                        that the association should move into its   year and Gerry developed the present
                                                                                                                                                                                                        own rooms. Under Gerry’s guidance           operational concept of allowing the
                                                                                                                                                                                                        and vision, the association purchased       manager and staff to take responsibility
                                                                                                                                                                                                        its first property: a two storey house      for all operational matters, while
                                                                                                                                                                                                        situated on Newmarket Road, Windsor         providing strategic direction and
                                                                                                                                                                                                        on the Brisbane’s north side. The house     high-level decision making both
                                                                                                                                                                                                        was named ‘Grayson House’ after the         personally and through the Executive
                                                                                                                                                                                                        association’s first secretary and           Committee and Board.
                                                                                                                                                                                        Celebrating     matriarch, Mrs Grayson. For the rest of         In 1998 with membership numbers
                                                                                                                                                                                        50 years at     the decade and into the next, the
                                                                                                                                                                                    the anniversary
                                                                                                                                                                                                                                                    still increasing consistently, it became
                                                                                                                                                                                       (COVID safe
                                                                                                                                                                                                        association happily operated from the       very obvious that the association had
                                                                                                                                                                                         of course)     ground floor of the house while the         grown too large to continue to work
                                                                                                                                                                                                        upstairs floor was rented to tenants to     from the ground floor of Grayson
                                                                                                                                                                                                        provide an additional revenue stream to
                                                                                                                                                          T   his year Queensland Stoma                                                             House. So Gerry, with the support of
                                                                                                                                                                                                        help support the operations of the          the Committee, commenced searching
                                                                                                                                                              Association Ltd reached an
                                                                                                                                                                                                        association.                                for a warehouse that would provide
                                                                                                                                                          incredible milestone, celebrating the
                                                                                                                                                          50th anniversary of Gerry Barry as its            Since 1960, QSA had operated            additional space and goods handling
                                                                                                                                                          President and Chairperson.                    successfully as a wholly volunteer          facilities. The committee eventually
                                                                                                                                                                                                        organisation. In the early 1990’s           settled on Unit 4/10 Valente Close
                                                                                                                                                              Gerry was first introduced to ostomy
                                                                                                                                                                                                        however as Stoma Appliance Scheme           Chermside as an appropriate site

  Adheres faster,
                                                                                                                                                          in 1967 when, at age 29, he had surgery
                                                                                                                                                                                                        arrangements became increasingly            because of its size (more than double
                                                                                                                                                          to remove his bowel and to have a
                                                                                                                                                                                                        complex, Gerry foresaw that                 the Newmarket space), its central
                                                                                                                                                          stoma created as a result of ulcerative
                                                                                                                                                                                                        Queensland Stoma Association’s future       location and its proximity to the Prince
                                                                                                                                                          colitis. As soon as he was discharged
                                                                                                                                                                                                        relied upon its ability to attract and      Charles and Holy Spirit Northside
                                                                                                                                                          from hospital, he joined Queensland
                                                                                                                                                                                                        retain skilled staff to support its         Hospitals. Like Grayson House, the new

  stronger, longer
                                                                                                                                                          Stoma Association, then known as QT
                                                                                                                                                                                                        volunteer workforce. So, in 1992 Gerry      warehouse was double story and so the
                                                                                                                                               *          Australia (Queensland Division), which
                                                                                                                                                          was a very small peer support group of
                                                                                                                                                                                                        was instrumental in changing QSA from       ground floor space was custom
                                                                                                                                                                                                        a 100% volunteer organisation to one
                                                                                                                                                          only about 70 members. Because of his
                                                                                                                                                                                                        using a small number of paid employees                                Continued page 13
                                                                                                                                                          background as a qualified accountant
                                                                                                                                                          and university lecturer he was quickly
                                                                                                                                                          recruited to the QSA Committee and in
  The unique features of the                                                      Thinner and more flexible                                               1970, at 32 years of age he was elected
  Confidence® Natural Advance                                                     Stronger and faster adhesion                                            as Association President. In the early
  hydrocolloid can help                                                           Easier removal, with reduced residue                                    days, the association was based in a
  prevent leakage and sore skin:                                                  Closed, drainable and urostomy                                          room at the home of its then Secretary,
                                                                                  bags are available                                                      Mrs Veronica Grayson, and there was
                                                                                                                                                          only a very limited range of about ten
                                                                                                                                                          appliances and other pharmaceuticals,
  For free samples call Toll Free 1300 784 737 (NZ 0800 100 146)                                                                                          all of which had to be purchased by
  or visit www.ainscorp.com.au                                                                                                                            members. As legend has it, Gerry had
                                                                                                                                                          agreed to act only temporarily as
                                                                                                                                                          President following a request by then
                                                                                                                                                          President Harold Hayden to take 12
                                                                                                                                                          months leave. 50 years later, Gerry is
                                                                                                                                                          still waiting for Harold to return … and is                                                            Gerry with wife Yvonne at
                                                                                                                                                          yet to find anyone else to fall for the                                                         Government House after receiving
                                                                                                                                                          same trick he did!                                                                            his Member of the Order of Australia

  ® Registered trade mark of Salts Healthcare Ltd. © Salts Healthcare Ltd 2020. Products and trade marks of Salts Healthcare Ltd
  are protected by UK and foreign patents, registered designs and trade marks. *Than previous Salts Healthcare hydrocolloids.

10 |    Ostomy Australia December 2020                                                                                                                                                                                                                Ostomy Australia December 2020     | 11
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
Associations commenced, it was                  provided leadership for the association
                                                                                                                                                                                                       obvious that the distribution framework         as it navigated its way from having just
                                                                                                                                                                                                       was under scrutiny by the Department            70 members operating out of a small
                                                                                                                                                                                                       of Health. Gerry recognised the threat to       room in 1970 to the great association it
                                                                                                                                                                                                       QSA and agreed that it was time for the         has become in 2020 with over 4,000
                                                                                                                                                                                                       association to reconsider its legal             members and its own spacious
                     m to Perf
                 sfor
                                                                                                                                                                                                       structure and to adopt one which would
               n               orm                                                                                                                                                                                                                     premises and property investments. He

          T ra                                                                                                                                                                                         provide an enhanced level of assurance          acknowledges that he has been able to
                                                                                                                                                                                                       to government that the associations             continue with his role as QSA President
                                                                                                                                                                                                       governance and capability was                   and Board Chairman for so many years
                                                                                                                                                                                                       consistent with what could reasonably

             eakin
                                                                                                                                                                                                                                                       because of the assistance and support
                                                                                                                                                                                                       be expected from an organisation
                                                                                                                                                                                                                                                       of dedicated and competent committee
                                                                                                                                                                                                       dealing with taxpayer funds. Together,

           Cohesive®
                                                                                                                                                                                                                                                       members over the years, and through
                                                                                                                                                                                                       Gerry and QSA Manager, Kylie
                                                                                                                                                                                                                                                       the support of an outstanding team of
                                                                                                                                                                                                       McGrory, worked to convert the legal
                                                                                                                                                                                                                                                       staff and volunteers. Most importantly,

             seals
                                                                                                                                                                                                       structure of the association from an
Fr o m

                                               gel                                                                                                                                                                                                     Gerry’s achievements at QSA could not
                                                                                                                                                                                                       Incorporated Association to a Company
                                                                                                                                                          Continued from page 11                                                                       have been possible without the support
                                                                                                                                                                                                       Limited by Guarantee, giving it access
                                          iv e

                                                                                                                                                                                                                                                       and understanding of his very patient
                                                                                                                                                                                                       to a wider range of government and
   ab

                                                                                                                                                          outfitted for QSA operations and the                                                         wife Yvonne and his four children Mark,
          or
                                      ct

                                                                                                                                                                                                       commercial benefits. The change in
               be                         te                                                                                                              mezzanine floor developed so that it
       s

                                   pro
                                                                                                                                                                                                       structure also provided the impetus for         Paul, Kevin and Cathy who have stood
                    nt s e 1 t o                                                                                                                          could be rented for additional income
                          al                                                                                                                                                                           the decision to register QSA as an NDIS         with him and encouraged his efforts
                                                                                                                                                          (after quite a bit of arm twisting by                                                        over the past five decades.
                                                                                                                                                                                                       provider and in 2020, QSA became the
                                                                                                                                                          Gerry).
                                                                                                                                                                                                       first Australian Stoma Association to be           The members of Queensland Stoma
                                                                                                                                                              By 2013, QSA membership had
                                                                                                                                                                                                       NDIS registered. Also in 2020, at the           Association Ltd as direct recipients of
                                                                                                                                                          reached 2,400 and was again bursting
                                                                                                                                                                                                       height of the COVID-19 pandemic,                Gerry’s efforts and commitment over
                                                                                                                                                          at its seams. It was a complete stroke of
                                                                                                                                                                                                       Gerry single handedly lobbied the               the past 50 years are very fortunate to
                                                                                                                                                          luck then that in that same year, Unit
                                                                                                                                                                                                       Queensland Government for financial             have had and to continue to have such
                                                                                                                                                          1/10 Valente Close which was in the
                                                                                                                                                                                                       support to assist the QLD Stoma                 an incredible man at their helm. •
                                                                                                                                                          same complex and which had nearly
                                                                                                                                                                                                       Associations with the additional costs of
                                                                                                                                                          double the capacity of Unit 4 became
                      Now I have confidence to get on with my life
                                                                                                                                                                                                       operating during a pandemic and
                                                                                                                                                          available for sale. Despite the relatively
                                                                                                                                                                                                       successfully secured a grant which was
                                                                                                                                                          high price tag of Unit 1, Gerry was of
                                                                                                                                                                                                       shared with all six Queensland ostomy
                                                                                                                                                          the view that the extra space would be
     Need to                                                                                                                                              invaluable for meeting the future needs
                                                                                                                                                                                                       associations.

     prevent                    eakin Cohesive® seals transform into a gel to                                                                             of QSA and so recommended that the              Gerry was also involved in ostomy

   embarrassing                 give the best protection against leaks.                                                                                   QSA committee take advantage of the          activities at the national and international
                                                                                                                                                          opportunity and negotiate to purchase        level. He was ACSA President from
      leaks?                                                                                                                                              the property. The committee accepted         1997 to 2010 and from 1994 to 2004 he
                                                     As eakin Cohesive® seals absorb moisture                                                             Gerry’s recommendation and the new           represented Australia at the International
                                                                                                                                                                                                       Ostomy Association and was a member
                                                     they transform into a protective gel, which                                                          warehouse was purchased and
                                                                                                                                                                                                       of the IOA World Executive.
                                                     safeguards against skin damage.                                                                      redeveloped. In August 2014, QSA
                                                                                                                                                          moved into Unit 1/10 Valente Close               While Gerry is the first to admit that it
                                                                                                                                                          which remains its home today. Gerry,         has not always been smooth sailing
                                                     eakin Cohesive® seals Transform to Perform.                                                          following his approach of using property     during his 50 year tenure with QSA, it is
                                                                                                                                                          to provide an additional revenue stream,     clear that he has always had the vision
                                                                                                                                                          convinced the Committee (and a               and the determination to make a
                                                                                                                                                          somewhat unenthusiastic manager) to          difference to the wellbeing and quality of
                                                     eakin Cohesive® seals absorb output up to 4x                                                         retain Unit 4 as a rental proposition.       life of ostomates, not just in
                                                     more than other seal on the market1.                                                                 Although it did take 12 months to find a     Queensland, but also throughout
                                                                                                                                                          tenant for the ground floor space, Gerry     Australia and internationally. This vision
                                                     Absorbency matters most for preventing skin                                                          backed his judgment and this space is        and determination was officially
                                                     damage and stopping leaks.                                                                           now leased to a long term tenant who,        recognised when Gerry was invested as
                                                                                                                                                          with the original tenant from the Unit 4     a Member of the Order of Australia (AM)
                                                                                                                                                          mezzanine, is providing a substantial        for his work with ostomy associations in
             If you would like more information or wish to try a free sample of the                                                                       ongoing income source for QSA outside        Queensland and nationally at a
           eakin Cohesive® Seals, please contact our Customer Service team today                                                                          of its Scheme activities.                    ceremony at Government House on                  Gerry receiving the
                                                                                                                                                             In 2019, 44 years after the Stoma         3 September 2008.                                painting as a gift
                                                                                                                                                                                                                                                        after 25 years as
                                                                                   AU 1800 819 274 info@omnigon.com.au                                    Appliance Scheme product distribution          Gerry’s success with QSA over the              president in 1995
                                                                                    NZ 0800 440 027 www.omnigon.com.au                                    through the Australian Stoma                 years can best be seen from the way he

                                                                Reference: 1. McGroggan G, Haughey S, McDowell K. An absorbent, enzyme-inhibiting
12 |     Ostomy Australia December 2020                         seal reduces peristomal skin complications. Gastrointestinal Nursing 2018; 16(1):42-49.                                                                                                  Ostomy Australia December 2020   | 13
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
ANZ ConvaTec Scholarships for
Stomal Therapy Nurses announced

C   onvaTec ANZ is delighted to
     announce that three nurses have
                                                                                       coordinate evidence-based care in the
                                                                                       highly specialised area of stomal                NEW                                                                               Soft convexity... for when
been awarded scholarships to take the                                                  therapy nursing.                                                                                                                   extra comfort is needed
Graduate Certificate in Stomal Therapy                                                    ‘This is a very challenging area and
Nursing, which commenced in July                                                       ConvaTec is delighted by the
2020.                                                                                  collaboration between the nursing
   As part of a collaboration between                                                  organisations to provide Vivian, Linda
The Australian College of Nursing                                                      and Rochelle with the opportunity to
(ACN), the Australian Association of                                                   progress their careers in Stomal
Stomal Therapy Nurses (AASTN) and                                                      Therapy nursing’, explained Karen
The New Zealand Nurses Organisation                                                    O’Connor, General Manager of
(NZNO), the scholarships, provided by                                                  ConvaTec Australia and New Zealand.
ConvaTec, will help support the nurses                                                    ‘The calibre of applicants was very
to progress their careers in what is a                                                 high and we’d like to thank everyone
dynamic and very demanding area.                                                       who applied. It was a hard decision for
   This year’s recipients, chosen by the                                               the independent selection committee to
nursing organisations’ committee, are                                                  make but we are sure that the three
Vivian Nguyen who works within NSW                                                     recipients will really value and embrace
Health; Linda (Ching Yi) Chen from The     Therapy and Wound Management.               the knowledge and leadership skills that
Wesley Hospital, Qld; and Rochelle         Inspired by her colleagues, she’s
Pryce from Capital and Coast District      enthusiastic about progressing her
Health Board, NZ.                          career in Stomal Therapy Nursing.
                                              In New Zealand, Stomal Therapy
                                           Nurse, Rochelle Pryce, values her ability
                                           to deliver and co-ordinate evidence-
                                           based care for her patients, whilst
                                           staying abreast of new innovations that
                                           continue to shape the future of ostomy
                                           patient care.
                                             Each of the nurses has a clinical
                                           background and the completion of the
                                           Graduate Certificate in Stomal Therapy                                                  Introducing
                                           Nursing will provide them with the skills
                                           and expertise necessary to deliver and
                                                                                                                                                                                                            Convex
                                               the scholarships,                                                                                                          ALL BODIES ARE DIFFERENT. Esteem®+ Soft Convex combines
                                                                                       this course brings’.                                                               flexibility with a shallow convexity, and is designed to conform
                                                  provided by                             ‘The scholarships are part of                                                   well to the body and be comfortable to wear.
                                              ConvaTec, will help                      ConvaTec’s commitment to improving
                                                                                                                                                                          Flexible Convexity: conforms to the body and helps improve the pouch
                                                                                       stomal therapy care - valued at just over
                                                                                                                                                                          seal by minimising leaks
   Vivian Nguyen is a Wound and               support the nurses                       $12,000 each, they bring an enormous
                                                                                       saving to nurses’ keen to advance their
                                                                                                                                                                          Easy-View Window: for accurate positioning and observation
Stoma Clinical Nurse Specialist who’s
passionate about her work within the
                                               to progress their                       career.                                                                            Filter: designed to help minimise odours and ballooning
NSW public health system supporting           careers in what is a                        ‘By supporting this specialist                                                  Safe Seal Clipless Closure: designed to make emptying and cleaning easy*
highly vulnerable patients with complex                                                education and pioneering trusted
care needs, throughout the state.              dynamic and very                        medical solutions, ConvaTec seeks to
  Linda Chen has been nursing for              demanding area.                         help those with stomas to live the life
                                                                                                                                   For Customer Care and to order your FREE samples, call:
more than ten years and recently                                                       they want’, she concluded. •
                                                                                                                                   Freecall 1800 335 276 (Australia)                              0800 441 763 (New Zealand)
became a Clinical Nurse in Stomal                                                                                                  or email connection.au@convatec.com                            connection.nz@convatec.com
                                                                                                                                   Australia www.convatec.com.au New Zealand www.convatec.co.nz
14 |   Ostomy Australia December 2020                                                                                              *Drainable options only. ® /TM indicates trademarks of ConvaTec Inc. ©2020 ConvaTec Inc. AP-021235-AU May 2020 O576   Ostomy Australia August 2020   | 15
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
Vit amin D – an excus e                                                                   Nutrition for Ostomates
for ostomates to enjoy                                                                                                                    “After using Brava® Protective
s ome s uns hine!                                                                                                                         Seal I have not experienced                                                                                                                                     Free
By Margaret Allan
                                                                                                                                          any leakage - everything                                                                                                                                       Sample

                                             from the sun shining on a cholesterol
                                                                                                                                          is more secure.”
Margaret advises both ostomates
and the public on diet and health-           precursor in the skin. This creates a                                                        Sean, 52
related matters. She is the director         pre-vitamin molecule, which works its
of the consultancy Nutrition For             way slowly into the body. The pre-
Ostomates. To contact her or read
                                             vitamin molecule must then become
more nutrition articles supporting
the health of ostomates, go to               activated, which occurs through the
www.nutritionforostomates.com.au             action of the liver and kidneys.
                                                Skin exposure to sunlight accounts
                                             for more than 80% of the vitamin D in
                                                                                                                                          Brava Protective Seal
T   here has been a lot of focus on
    vitamin D in recent years, and with
                                             the body, but the skin exposure must
                                             occur when the sun is directly overhead.
                                                                                                                                          Proven to significantly reduce leakage
good reason. It is a vitamin that
provides many health benefits to
                                             Short periods of sun exposure are more
                                             effective at raising vitamin D levels than
                                                                                             Vitamin D has many valuable
                                                                                          functions in the body, and its effects are
                                                                                                                                          compared to other seals on the market 1
humans, yet it is estimated that more        long periods. It should also be noted        widespread. Vitamin D receptors have
than 30% of Australian adults have           that a Sun Protection Factor (SPF) of 8      been found in cardiac tissue, muscle            Brava Protective Seal delivers a 50% reduction in leakage under the seal after 24 hours1
inadequate vitamin D status.                 or higher reduces vitamin D synthesis        tissue, the pancreas, the brain, the skin                                Brava
   Part of the reason for this is that the   significantly. Vitamin D stores from         and throughout the immune system.                                      Protective
                                                                                                                                                                    Seal        Seal A            Seal B              Seal C            Seal D             Seal E            Seal F                          Extra-wide
number of foods naturally containing         summer synthesis alone are not               The nervous system and reproductive                             0%                                                                                                                                                    now
significant amounts of vitamin D is          generally sufficient to meet winter          organs are also target tissues of                               1%                                                                                                                                                  available
                                                                                                                                                          2%
limited. It is primarily found in animal     needs, and many people become                vitamin D.                                                      3%       5.5%          6.6%              7.8%                 8.2%             8.5%              10.5%             11.1 %

                                                                                                                                        % leakage area
foods, such as fatty fish (salmon,           vitamin D deficient during the winter           The primary function of vitamin D is                         4%
                                                                                                                                                          5%
herring, mackerel, sardines), eggs,          months. Interestingly, the sun imposes       to raise blood concentrations of                                6%
                                                                                                                                                          7%
butter, cheese, liver, meat and milk.        no risk of vitamin D toxicity, as            important bone minerals such as                                 8%
However, these foods only provide small      prolonged exposure to sunlight               calcium and phosphorous. However,                               9%
                                                                                                                                                         10%
amounts. Most adults are likely to obtain    degrades the cholesterol precursor in        vitamin D has also been shown to                               11%
only 5-10% of their vitamin D                the skin, preventing its conversion to the                                                                  12%

requirements from food, and a vegan          active vitamin.                                                        Continued page 18
diet cannot meet vitamin D needs.                                                                                                         A better fit means greater confidence
   The good news is that humans are
                                                                                                                                          Creating a tight seal between your stoma and baseplate is key to preventing leakage and protecting against skin issues.
not totally reliant on food sources to                                                                                                    Brava Protective Seal moulds into skin dips, creases and folds to improve appliance fit by sealing the gap between your
obtain vitamin D, as we have the                                                                                                          stoma and baseplate, for a more secure fit. Brava Protective Seal is easy to shape, stays firmly in place, comes easily
capacity to synthesise the nutrient                                                                                                       and cleanly away, leaving minimal residue behind.
ourselves. This is very beneficial for
                                                                                                                                          As stomas and bodies come in various shapes and sizes, we’ve added two extra-wide seal sizes to the range.
ostomates. The absorption of adequate                                                                                                     An extra-wide seal may be a good fit if:
amounts of nutrients is an issue for
                                                                                                                                          •               you have an irregular stoma shape                               •       your surrounding skin area is moist
many ostomates, and so a nutrient that
                                                                                                                                          •               your baseplate adhesive breaks down                             •       your surrounding skin area has scarring
is not dependent on food sources or                                                                                                                                                                                               or deep creases and folds
                                                                                                                                          •               you require a greater area of coverage
intestinal absorption to maintain
adequate status is positive.
   The other reason for inadequate
vitamin D status in Australia is the                                                                                                                     To receive your free samples, contact Coloplast today
successful public health campaigns                                                                                                                             coloplast.to/AU-TryBrava                               1800 531 823
recommending that Australians avoid
too much sun exposure to reduce their
skin cancer risk. The synthesis of                                                                                                        1. TM7064 Leakage test. Coloplast. Data on file. Data from 2019. VV-0283280
vitamin D depends on ultraviolet rays
                                                                                                                    Continued page 20     Coloplast Pty Ltd, PO Box 240, Mount Waverley, VIC 3149 Australia
                                                                                                                                          www.coloplast.com.au The Coloplast logo is a registered trademark of Coloplast A/S. ©2020-09 OST711. All rights reserved Coloplast A/S

16 |   Ostomy Australia December 2020                                                                                                                                                                                                                                                 Ostomy Australia August 2020   | 17
The Magic Bag PAGE 31 What's in your cupboard PAGE 34 Enjoy some sunshine! PAGE 16 - IN THIS ISSUE
Continued from page 16                         Another factor that can lead to         the incidence and severity of these
                                            deficiency of the vitamin is obesity, as   illnesses.
maintain muscle strength, having a
                                            the vitamin becomes trapped in the fat         It’s important for ostomates to ensure
particularly positive effect on skeletal
                                            cells and is therefore not available to    that their vitamin D status is adequate to
muscle, and to enhance the immune
                                            the body.                                  be supportive of good general health,
system’s response to both bacterial and
                                               Infants who are breast fed by vitamin   especially if the reason for becoming an
viral agents.
                                            D-deficient mothers are also at risk of    ostomate is cancer or Crohn’s disease.
     Some people are at greater risk of
                                            deficiency themselves.                     In the case of a urostomy, poor
developing a vitamin D deficiency than
                                               Deficiency symptoms for vitamin D       immunity and repeated urinary tract
others.
                                            include muscle aches and weakness,         infections can be an issue, and this may
     People with malabsorption issues are
                                            pain in the lower back, pelvis and legs,   be reflective of low vitamin D levels.
at risk of deficiency, which can be the
case for many ileostomates. Vitamin D
is a fat-soluble vitamin and therefore
                                            and disorders of calcium metabolism
                                            such as osteoporosis and osteoarthritis.
                                                                                           Adequate sun exposure is a critical
                                                                                       step in the synthesis of vitamin D. The       A Sense of
                                               Observational studies have also         Cancer Council has developed
requires a fat-functioning digestive
                                                                                       guidelines on how much sun exposure

                                                                                                                                     Security Means
system to be absorbed from food. This       indicated a correlation between low
                                                                                       is appropriate in different regions of
includes adequate production of bile        vitamin D status and: neurological
                                                                                       Australia. The trick is to get enough sun
from the liver and digestive enzymes        issues such as schizophrenia; mental
                                                                                       exposure at the right time of day to
from the pancreas. Any diseases or          health conditions such as depression;
                                                                                       synthesise sufficient vitamin D, but not
issues that affect the ability of these
organs to perform their functions will
                                            respiratory illnesses such as asthma;
                                            diseases of the cardiovascular system
                                                                                       enough to increase the risk of skin
                                                                                       cancer.
                                                                                                                                     Everything
affect absorption of vitamin D from
                                                                                           Generally, in Australia, the
food, including those with chronic
                                                                                       recommendation is for moderately
kidney failure.
                                                                                       fair-skinned people to walk with arms
     The elderly, sick, debilitated
                                                                                           exposed for 6–7 minutes mid-
and disabled with lack of
                                                                                              morning or mid-afternoon in
access to sunshine are
                                                                                                 summer, and with as much bare
especially vulnerable, as
                                                                                                  skin exposed as feasible for
well as those who are in
                                                                                                    7–40 minutes (depending on
good health but spend
                                                                                                     latitude) at noon in winter,
                                                                                                                                                                      Adapt barrier extenders
little time outdoors.
                                                                                                      on most days. This is                                           We know a sense of security and leakage prevention are top
Elderly people in
                                                                                                       considered likely to be
particular do not                                                                                                                                                     priorities for you.
                                                                                                       helpful in maintaining
always habitually
                                                                                                       adequate vitamin D levels
consume foods                                                                                                                                                         Adapt barrier extenders offer an additional layer of protection
                                                                                                       in the body.
containing vitamin D,
                                                                                                          However, if vitamin D                                       for those concerned about lifting around the edges of their skin
such as fatty fish and
                                                                                                    status is compromised by                                          barrier. A thin and flexible hydrocolloid formulation conforms
milk, and tend to have
                                                                                                   any of the issues discussed
inadequate exposure to                                                                                                                                                easily to body contours.
                                                                                                  above, then supplementation
direct sunlight to synthesise
                                                                                                may be required, and during
the vitamin. With advancing                                                                                                                                           Three convenient shapes make it easy to create a custom
                                                                                             winter it may be essential. Care
age they are also less efficient at                                                                                                                                   frame around the skin barrier. The end result is enhanced
                                                                                         needs to be taken in choosing a
synthesising vitamin D when they                                                                                                    Three strips create a custom
                                                                                       supplement to ensure its appropriate                                           security, when it matters most.
are exposed to the sun because their                                                                                                frame around your skin barrier.
                                                                                       and able to be fully absorbed by your
skin, liver and kidneys lose their
                                                                                       intestinal tract after stomal surgery.
capacity to make and activate the                                                                                                                                     Code                Monthly Allowance                             SAS Code
                                            (for example high blood pressure and       If you need assistance in this regard,
vitamin. A Tasmanian study revealed
                                            stroke); infectious diseases such as       please contact me to schedule a                                                79402               60 per month                                  80141Y
that 85% of people aged 60 years were
                                            urinary tract infections.                  consultation.
vitamin D deficient.
                                               Vitamin D also reduces expression of        In these warmer months enjoy the
     Another group of people at risk of
                                            autoimmune conditions such as Multiple     summer sun to synthesise some                                                  To order your FREE SAMPLE
vitamin D deficiency are those with dark
                                                                                       valuable vitamin D. Just do so safely
skin, as the pigments in dark skin          Sclerosis, Crohn’s disease, Rheumatoid
                                                                                       and appropriately. Moderation is
                                                                                                                                                                      contact Customer Care on:
reduce vitamin D synthesis. It can take     Arthritis, and Type 1 Diabetes, and
                                            demonstrates an inverse relationship
                                                                                       the key!                                                                       1800 880 851
up to six times longer for a person with
                                                                                           Wishing you good health and happy
dark skin to produce the same amount        with cancers of the breast, prostate,                                                                                     www.hollister.com.au
                                                                                       days,
of vitamin D as a person with               colon and skin. Therefore, a higher
lighter skin.                               vitamin D status is thought to reduce        Margaret     •                                                               Prior to use, be sure to read the instructions for use for information regarding Intended Use, Contraindications,
                                                                                                                                                                      Warnings, Precautions, and Instructions for Use. The Hollister logo, Adapt, and “Healthy skin. Positive out-
                                                                                                                                                                      comes.” are trademarks of Hollister Incorporated. © 2020 Hollister Incorporated. AUH143. October 2020.

18 |   Ostomy Australia December 2020                                                                                                                                                                                                Ostomy Australia December 2020                  | 19
‘OH SH*T!!! I HAVE CANCER’
By Sabrina Rojas

B    efore I was diagnosed with bowel
     cancer in November 2019, I had
always had issues with my bowels.
                                             They are my angels.
                                                Unfortunately, my marriage ended
                                                                                            In early February I was rushed to
                                                                                         emergency room in the wee hours of
                                                                                         the morning with a severe bowel
                                                                                                                                       the stigma often associated with having a
                                                                                                                                       stoma bag.
                                                                                                                                                                                         You can buy my book
                                                                                                                                                                                         www.222mindset.com.au/my-book
                                             tumultuously in 2011, but I was lucky in                                                     My book will show you how I mastered
Some of my earliest memories are of my       love in my late 30’s and I married my       obstruction. I needed a second surgery        the power of gratitude and the power of           You can book me for
mum taking me to a paediatrician to          amazing husband John. We live in the        and it was touch and go. It was much          clarity, igniting the warrior within to be able   Keynote Address and Half Day
help with my severe constipation. I can      beautiful Hunter Valley in New South        too soon from my last surgery.                to conquer ANYTHING life throws at you,           Sessions
remember being forced to eat very            Wales, Australia.                              I am lucky to be alive today. I decided    resulting in living a life that you are in love
                                                                                                                                       with every day.
                                                                                                                                                                                         You can contact me
grainy, fibrous gunk that almost always                                                  that if I survived this ordeal, I would
                                                In November 2019, I was diagnosed                                                                                                        E: sabrina@222mindset.com.au
made me throw up.                                                                        write a book and share my experiences            This is a snippet of some feedback I
                                             with bowel cancer and my entire world                                                                                                       W: www.222mindest.com.au
  Throughout my teen years, I had                                                        to help as many others as possible. By        received about my book and it brought
                                             imploded in a split second. I could not
                                                                                         opening myself up and showing this            tears of joy to my eyes:                          P: +61 411 056 123
bouts of severe cramping but when the        believe that at the age of 44 I faced the
                                                                                         vulnerable part of my life on my social
pain passed, I was fine. It wasn’t until I   very grim and too real possibility                                                           ‘What is striking about Sabrina’s life         You can connect
was 19 that I was diagnosed with                                                         media platforms and blog, I discovered        story is her essence, courage, resilience,        with me online
                                             of dying.
                                                                                         a world full of other ostomates, cancer       determination, gratitude for life and
Crohn’s disease.                                                                                                                                                                         Instagram: www.instagram.com/
                                                                                         survivors and IBD warriors that were all      passion to be able to influence and make
   Crohn’s is one of those diseases that                                                                                                                                                 sabrinarojas_222mindset
                                                                                         ready to support me on my journey             a difference in people’s lives. Sabrina is a
has no cure and management by way of                                                                                                                                                     Facebook: www.facebook.
                                                                                         as well.                                      true inspiration and through her sassiness,
drugs, lifestyle and surgery (a subtotal                                                                                                                                                 com/222mindset
                                                                                           I truly am blessed.                         spirit and warrior like bravery she reminds
colectomy at the age of 22) is what I’ve                                                                                                                                                 YouTube: https://www.youtube.
                                                                                                                                       us all that we too have a warrior within us.
endured, like many others, every day                                                                                                                                                     com/channel/UCMh7wLrQDtF_
                                                                                                                                       We can achieve anything we want in life as
since.                                                                                   About my book                                                                                   vmhbOJRaX1A/
                                                                                                                                       long as we have the right mindset.’
   Before my surgery, my                                                                 My book “OH SH*T!!!…I HAVE
gastroenterologist explained that due to                                                 CANCER” takes you through my life
scarring from my surgery, I should try                                                   journey and my message will hopefully
and have children as soon as possible                                                    inspire you. I share the good, the bad
as I might not get that chance when I
was older.
                                                                                         and the ugly with tears, cheekiness and
                                                                                         laughter with powerful life lessons and
                                                                                         messages throughout.
                                                                                                                                         Looking for a comfortable leak free fit?
    I was already married, I had married
the year before at the age of 21 and as                                                     I do not hold back with explicit details

                                                                                                                                                                    Aurum® Profile stoma pouches
                                                                                         about living life with a stoma bag. I
soon as I recovered from surgery, we
                                                                                         demonstrate how to have body
tried to fall pregnant. I was fortunate to
                                                                                         confidence for women and men living with
be blessed with two beautiful children,
                                                                                         a stoma bag and I am proud to normalise
my son Jordan and daughter Chelsea.

                                                                                                                                                                     Designed for lumps and
                                                 In the months following my diagnosis
                                             I endured an unimaginable amount of
                                             pain, despair, grief and anguish all
                                             leading up to the life changing surgery
                                             that would completely remove my
                                                                                                                                                                     bumps, rolls and scars,
                                             colon, rectum and anus; and hopefully
                                             all the cancer cells. This was booked in                                                                                creases and dips.
                                             for 13 January 2020, and so I had about
                                             five weeks to absorb my new reality and
                                             overcome the fear of being forced to live                                                                                   CONTACT US TODAY FOR A FREE
                                             out the rest of my days with a
                                             permanent ileostomy. I was terrified of                                                                                     SAMPLE THAT CONFORMS TO
                                             having a stoma bag attached to my
                                             stomach.
                                                                                                                                                                         YOUR CURVES COMFORTABLY
                                               I recovered from the surgery well and
                                             decided to name my stoma Stella. I was
                                             handling Stella with a positive attitude,
                                             some laughter and a truly gracious
                                             mindset for still being alive.
                                                                                                                                                                             Care Solutions
                                                                                                                                                                                                               AU 1800 819 274 info@omnigon.com.au
                                                                                                                                                                                                              NZ 0800 440 027 www.omnigon.com.au
20 |   Ostomy Australia December 2020                                                                                                                                                                                                Ostomy Australia December 2020   | 21
What clothing should I wear with a stoma?
                                                                                                                                By Nandani, STN QLD

                                                                                                           Stoma
                                                                                                           Skin
                                                                                                           Soul

                                                                                   Feeling comfortable
                                                                                      in your own skin
                                                                                             Lauren, Stoma Advocate            H    aving a stoma should not stop you from wearing your
                                                                                                                                     usual clothing. Initially you may feel more comfortable in
                                                                                                                               loose fitting clothing due to the swelling in your abdomen after
                                                                                                                                                                                                      • men may prefer shirts that sit out over their pants or shorts.
                                                                                                                                                                                                        A patterned business shirt may be more distracting than a
                                                                                                                                                                                                        solid colour, and darker colours often more camouflaging
                                                                                                                               your surgery. It is normal to feel anxious and many ostomates          • there are some companies who specialise in clothing for
                                                                                                                               often feel self-conscious thinking others will see their pouch.          people with a stoma. Some even have an internal pocket to
                                                                                                                               The following tips may be useful in helping you become more              allow the pouch to sit comfortably without restriction.
                                                                                                                               comfortable in everyday clothes and reduce the outline of your
                                                                                                                               pouch under clothing.                                                  INTIMATE APPAREL OR LINGERIE
                                                                                                                                                                                                      • Use of a lacy or skin coloured bandeau or band can be
                                                                                                                               CLOTHING CHOICES                                                         used over the pouch
                                                                                                                               • clothing can be fitted but not too tight as this will restrict the   • There are companies who specialise in lingerie or
                                                                                                                                 flow of the output and could cause leakage                             undergarments for men and women who have a stoma.
                                                                                                                               • pants, trousers, skirts or underwear should either sit below           Here are a couple of websites that may help with choices:
                                                                                                                                 the pouch or completely over the pouch. High waisted                   www.knightwear.com.au and www.ostomateactive.com.au
                                                                                                                                 pants, jeans or skirts are great. Ladies may find full briefs          but an internet search will deliver you a lot more options.

NovaLife TRE ostomy barriers are designed                                                                                        more comfortable, and men often feel the boxer style
                                                                                                                                 underwear gives more freedom for the pouch
                                                                                                                                                                                                      SWIMWEAR
                                                                                                                                                                                                      Wear what you will feel comfortable in. Patterned materials
to help keep your skin naturally healthy                                                                                       • try not to have clothing pressing on the pouch as it will
                                                                                                                                                                                                      are often more camouflaging and ruching or draped fabrics
                                                                                                                                 reduce the amount the pouch can hold and could cause a
                                                                                                                                                                                                      also provide more freedom across the abdomen.
                                                                                                                                 leak more easily
                                                                                                                                                                                                      • For women, a one piece or high waisted bikini may be an
• Stay in place, yet easy to remove                                                                                            • use of a belly band, tube top, bandeau or a maternity type             option
                                                                                                                                 band over the pouch can help to provide some support and
                                                                                                                                                                                                      • For men, a rashie or swim shirt with board shorts may be a
• Help absorb stoma output and perspiration to protect your skin                                                                 reduce the outline of the pouch under clothing
                                                                                                                                                                                                        good option
                                                                                                                               • a singlet under clothing can also help to conceal, keeping
• Help protect the skin from digestive enzymes by maintaining                                                                                                                                         There are also various pouch covers available online.
                                                                                                                                 things flatter against the abdomen
  the right pH level of the skin                                                                                               • use of patterns, pleats, layers, ruched or bunched up                BELTS
                                                                                       Flat • Soft Convex • Convex • 2 Piece
                                                                                                                                 clothing can help to distract the eye from the pouch under           • Avoid the belt buckle sitting directly near the stoma. It may
                                                                                                                                 your clothing                                                          cause damage to the stoma. Position the buckle slightly off
For more information about NovaLife TRE skin barriers                                                                          • layering your clothing can also help distract attention from           centre away from the location of the stoma
and to order a free sample, please call Customer Care                                                                            the abdomen, and allow for looser fitting garments as the            • Suspenders or braces could also be an option.
                                                                                                                                 top layer                                                               And, always remember that you can still enjoy life to the full
on 1800 880 851 or visit www.dansac.com.au
                                                                                                                               • ladies may find flowing dressings are often very                     with a stoma.
                                                                                                                                 comfortable, especially in the warmer summer months.
                                                                                                                                 Fabrics that do not make you sweaty are also more                    Source: https://omnigonconnect.com.au/advice/what-
Prior to use, be sure to read the Instructions for Use for information regarding
Intended Use, Contraindications, Warnings, Precautions, and Instructions.                                                        comfortable in warmer weather                                        clothing-should-i-wear-with-a-stoma/
The Dansac logo, NovaLife, and TRE are trademarks of Dansac A/S.
©2020 Dansac A/S. DAN045. August 2020.

22 |     Ostomy Australia December 2020                                                                                                                                                                                         Ostomy Australia December 2020     | 23
Celebrating 60 Years with a Stoma                                                                       By Geoff Rhodes                     NEW YEAR,
R   eaders might wonder at the title of this article. What could     computer system and spent an interesting year coming to                NEW BRAND,                                                                A Worldwide
                                                                                                                                                                                                                      brand now in
                                                                                                                                            NEW GARMENTS
     there be to celebrate about living with a stoma for 60          grips with this new-fangled technology.
years. Well, in my case, everything.
   About 10 years ago I wrote a piece for the journal entitled
                                                                        In 1980 I was looking for a different challenge as my
                                                                     opportunities in the Board in Sydney were limited and we had
                                                                                                                                                                                                                        Australia
‘A Lucky Life’. Now 10 years on I’d like to expand on that           just had our daughter in July 1979 and were building our first
article and my philosophy of ‘I like birthdays because they sure     house on the northern outskirts of Sydney. In 1980 I took a
beat the alternative’.                                               transfer to Department of Defence in an internal consulting
   I was nine years old when my specialist informed my               area as they were looking for someone with IT experience.
parents and me that an ileostomy was the only course of              This was the start of a very exciting and challenging five years.      Claim your new year support garment allowance from the 1st January 2021
treatment left for my rapidly deteriorating ulcerative colitis.      My area was tasked by the Royal Australian Air Force (RAAF)
Surgery was performed on 2 December 1959 (my mother’s                to investigate how computers could modernise their
birthday) and I spent Christmas 1959 in RPA hospital                 operational command and control. I was the junior member of
recovering. Surgery was successful and dad and I went about
exploring the wonderful world of the primitive appliances then
                                                                     our team working in conjunction with RAAF officers based at
                                                                     Operational Command in Glenbrook.
                                                                                                                                            WE’RE HERE TO                      Your are eligible to claim up to 6 Breathable pants or 3
                                                                                                                                                                               Shield belts, or mix and match with a combination of both.
available. We quickly worked out that my skin was allergic to
the rubber appliances predominant at the time. We however               This project took me around Australia, usually in the back of
                                                                     a Hercules transport aircraft gathering information on how the
                                                                                                                                            SUPPORT YOU                        (1 Shield belt = 2 Breathable pants)
discovered through the local stoma association (now ONL) that
one of the members made flanges (base plates) from a plastic         various element of the RAAF operated. Whilst I was engaged
material and using these in combination with Skin Bond               on this the senior member of the team was promoted to                        Our Customer Service team can help find the most suitable garment for you.
Cement, a belt and plastic bags held in place with a rubber          Canberra and I took his place. Also, around this time the Royal
ring, we had a workable appliance.                                   Australian Navy became aware of the project and asked us to
    I returned to my local primary school in 1960 and enjoyed        do a similar project for them. This saw me and my Navy

                                                                                                                                                      6                                   3
being able to do a whole lot of things including Cubs and            teammate hitch a ride on a Hercules aircraft to Hawaii to look
soccer that had previously been impossible. The nickname             at US Navy systems. Two days in the back of a Hercules with
‘stinky’ was not endearing but at least I could actively play with   an overnight at Kwajalein in the Marshall Islands proved a
the kids who thought up that moniker.                                challenging exercise in stoma management but all worked
  I changed schools in 1961. This provided the opportunity to        out well.                                                                                                                                           Contact your
meet new kids and experience new things including school                In 1983 the Falkland War had concluded and the Royal Air                                                                                      association today for
camps. Dad came along to help the teacher manage the class
and me to manage my stoma.
                                                                     Force in the UK had developed a system that contributed                                                                                            your allowance
                                                                     significantly to the British victory. Our RAAF team applied to go
   I did OK at high school and ended up being accepted into          to the UK on a fact-finding mission. The RAAF would not
the medical faculty at Sydney university. After three years the      authorise the cost of civil transport so my RAAF colleague
faculty and I reached a mutual decision that my future career        arranged for us to hitch a ride on another Hercules going to
lay elsewhere. However, the next chapter of my life was              UK via the USA which would allow us to spend four days with
starting as Carol and I discovered our first child was on the
way. I took on a series of jobs to pay the bills and in July 1972
                                                                     the RA. The return journey took 21 days but was an incredible
                                                                                                                                             Breathable Range                          Shield Belt                              Or call
our elder son was born.
                                                                     experience.
                                                                        By the middle of 1985 I had completed the work for RAAF
                                                                                                                                                  Moderate Support                       Firm Support                  1300 664 027
   This gave me incentive to seek a more stable career and in
                                                                     and the Navy and was looking for opportunities outside the
July 1973 I joined the Commonwealth Public Service. The
medical for permanent employment proved challenging but I            public service. I took a role with a Defence company in July
was accepted into the Provident Fund but not the full                1985 but the position was in Canberra so the family moved to
Superannuation Scheme. I worked in the Public Service                Cooma where we had friends and relatives. I began a two-
                                                                     and-a-half-year commute from Cooma to Canberra but the
                                                                                                                                                  1300 664 027                       For more information visit
Board’s Sydney Office in areas ranging from recruitment to                                                                                        Mon - Fri 9am to 5pm,              sutherlandmedical.com.au
organisation and methods and picked up a diploma in                  average travel time each way was less than my commute time
                                                                     in Sydney.
                                                                                                                                                  excluding Bank Holiday
Organisational Psychology along the way. In 1979 I asked to
work in the area of the Board managing the new personnel                                                               Continued page 26

24 |   Ostomy Australia December 2020
                                                                                                                                           Sutherland Medical, Unit 2, 195 Chesterville Road, Moorabbin VIC 3189      Ostomy Australia December 2020   | 25
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