TULIP TALKS - Parkinson's New Zealand
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ISSUE 3 - JUNE 2019
TULIP TALKS
Parkinson's Auckland's Local
Newsletter
Living Positively with
Parkinson's
Robyn Cotton was recently voted onto the Parkinson's New Zealand
board. She is also a member of a new Action Group committee for the
Rodney and North Shore area. "I was diagnosed with early onset
Parkinson’s Disease two and a half years ago, although I had the tremor
for some years before that. I have suffered poor gut health throughout Robyn Cotton
my adult life, and I suspect this is related to PD. I’ve always been a Parkinson's
positive person and have believed in finding the good in bad and Action Groups
turning negatives into positives. I approach my PD in the same way. Need You
PD will not define me. The early onset diagnosis is a blessing as I’m Are you passionate about the
services we provide the
young and fit enough to do the hard yards. After the initial shock of the
Parkinson's community and
diagnosis, PD became my adversary and I’m determined to fight its do you want to be a proactive
progression. This I do with exercise, drugs, diet, cognitive challenges voice for the future?
and prayer. I believe the earlier we start the fight, the more effective
we’ll be. We are expanding our
committees in the wider
I’m grateful to Matthew Philips and his team for the opportunity to Auckland area and are calling
on people with
partake in the dietary trial at Waikato Hospital. Keto diet flicked a
diverse business skills to join
switch for me; my gut health is now good, I’m more diet conscious and one of 5 Action Groups from
my energy is back. South Auckland to the North
Shore.
I’ve always been fascinated by our brains and the way they learn, adapt
and protect; often without our awareness. There are so many To find out more contact:
unknowns, and neuroscience is advancing at a rapid rate. My hope is in Graeme Roberts
neuroplasticity and I’ve been experimenting with a challenging exercise Auckland Chair
021 140 9797
programme that I continually change to avoid patterns.
This approach seems to be working for me; friends and family are
amazed at my progress. Things that once were impossible, I can now
do with ease; such as applying mascara, and even carrying and drinking
coffee on my affected side.
If you would like to chat and hear more, you can contact me via email:
rmcotton.hatherop@gmail.com
Golf Day Success @ Wainui
The second annual Play for Parkinson's Golf Day sponsored by
Summerset Villages was held at the Wainui Golf Club in March raising
$11,700. Our sincere thanks to the Wainui Golf Club who donated the
Golf Day Fundraiser Success
course and staff. This year we had an Electric Bike for the first Hole in
One on the 3rd, sponsored by Peter Hill and his team at 100% Electrical
in Albany.
This event was managed by Ann Cambie and we cannot thank her
enough for the huge amount of time and energy put into this wonderful
community event. Parkinson’s New Zealand wishes to also thank the
following contributors for their donation of prizes and auction items:
Alan Meyers for his vibrant auctioneer skills; Youngman & Richardson;
Flat White Cafe Waihi Beach; Waihi Golf Club; Jill Hall; Icebreaker; NZ
Rugby; Akarana, Muriwai, North Shore, Clarks Beach, Omaha and
Pukekohe Golf Clubs; Rainbow's End; Silverdale Adventure Park;
Parakai Springs; Snowplanet; Swiss Bel-Hotel; Countdown; The Golf
Warehouse; Delegat's Wine; Blunt Umbrellas; Pak 'n Save - Pukekohe,
Mt Albert, Silverdale, Glen Innes & Ormiston; Runner Duck Vineyard;
Dad's Pies; Allan & Unwin Publishers; Brittain Wynyard; David Bateman
Publishing; Mindfood Magazine; The Cut Magazine; Hibiscus Neuro
Rehab; The Cellar Door; The Clubroom; Diane Nicholson.
Funds raised will go towards Auckland Community Educator Services.
Graeme Roberts, Auckland Chair
I would like to thank our Action Group members for their ongoing
contributions to our region. Additionally, it was a pleasure attending our
event, The Science of Parkinson's in Auckland and seeing so many of us
gathered from the North, Auckland and the Waikato regions. Thank you to all
speakers who contributed their time and expertise and sharing new insights
with us. In July we have our Upbeat members gathering in Whangarei and we
wish them the best. Over the coming months, we will be busy strengthening
our committee's in the wider Auckland region and we will begin to plan for our
Awareness Week Appeal in November. Get in touch if you can help!
Coming Soon
Can you spare a few hours?
Volunteers needed
Tulip Cream Tea Events
Bring us your skills and
experience and put them toward
A fun way to support our cause. a good cause! We need new
volunteers to help our local
Tulip Cream Tea events will be held during
areas. We value your local
Sept-Oct 2019. knowledge and connections.
If you are interested in hosting a Tulip Cream Tea event
info@parkinsons.org.nz
and would like an event pack please contact
0800 473 4636
karen.schade@parkinsons.org.nz
A Word From Your Yvonne Glassborow, East Auckland
Phone: 09 533 1105 or email:
Community Educators yvonne.glassborow@parkinsons.org.nz
If you live in East Auckland, please contact me if you
are in need of any support to do with your
Rachel Turner, West Auckland Parkinson's. I work part time however will endeavour
Phone: 027 520 6260 or email: to get back to you at my earliest, and I would love to
rachel.turner@parkinsons.org.nz see you at an upcoming meeting.
Our Mid Year Lunch will take place on June 11th from East Auckland beginners Tai Chi class is held in
11.30am for noon lunch. Cost is $35 per person. Howick Tuesdays 11am-12noon at St Andrews Church
Bookings essential. Rsvp by June 1st. Cash only please Centre, corner of Ridge Rd & Vincent St, Howick.
There are 3 places left. Cost is $70 for 10 weeks. This
to Rachel Turner before or on day. Bricklane
class is specifically for people with Parkinson’s and
Restaurant, 5 Clark Street, New Lynn.
has shown it can improve your balance, strength and
Additionally, we are working to form a new Action
coordination.
Group committee for West Auckland - this is your East Men’s Coffee Group ran by members is held
chance to have your say in how we support people every Friday at 10am. Hawthorn Dene Café, 280
with Parkinson's. Botany Rd, Botany Downs. All welcome.
Additionally, we are working to form a new Action
Margaret Mcnab, Central Auckland Group committee for East Auckland - this is your
Phone: 09 827 1447 or email: chance to have your say in how we support people
margaret.mcnab@parkinsons.org.nz with Parkinson's.
I look forward to seeing you all during home visits or at Caroline Yandall, North Shore
our upcoming meetings. Please, if you need any help Phone: 09 818 2793 or email:
with your Parkinson's you can get in touch directly. caroline.yandall@parkinsons.org.nz
We need new Action Group committee members for
I would like to thank Lisa Gombinsky from
Central Auckland - this is your chance to have your say
Counterpunch Parkinson’s for this wonderful
in how we support people with Parkinson's. Get in
programme. If the Saturday class is to continue more
touch with Graeme Roberts our Chair if you are
participants are needed so please get in touch with Lisa
interested. 021 140 9797
on 021 0287 8470 if you are interested. I have had great
feedback from Outward Bound attendees, three of
Rhonda Thorn, South Auckland & whom are in my area who loved the challenge and
Franklin experience. Please do not hesitate to contact me
Phone: 09 299 6607 or email: should you need any support with your Parkinson’s.
rhonda.thorn@parkinsons.org.nz
Our new group at Waiuku is going well, so let’s keep Paddy Sullivan, Rodney
it growing. This group meets every 2nd Monday of Phone: 09 422 2540 or email:
the month at St Andrews Centre, 85 Queen Street, paddy.sullivan@parkinsons.org.nz
Waiku starting with a cup of tea at 10am. We have On behalf of us all, I would like to thank Sarah and
commenced a new carer’s group held the 2nd Ulrika from Hibiscus Neuro Rehab who had a “dress in
Tuesday of the month at 10am, Porter Brothers Café, retro” exercise class and a walk on Orewa Beach to
Kitchener Road, Waiuku. Come and have a coffee, mark World Parkinson’s Day, raising $285.00 for
share and enjoy some well needed time out. Parkinson’s.
Margaret Griffiths & Rose Drown
We extend our appreciation to Margaret Griffiths and
Pamela Stohr who helped us sell and distribute 755
packets of lovely Spring Tulip Bulbs in our region. Sarah and Ulrika
Parkinson's Groups Carers Groups
West Support Group: 4th WEDNESDAY OF EACH MONTH South Rodney: 4th THURSDAY OF EACH MONTH at 10am,
at 1pm, Pinesong Village, 66 Avonleigh Road, Green Bay Kings Plant Barn, Cnr East Coast Road & Hibiscus Highway,
West Men’s Coffee Group: 1st TUESDAY OF EACH Silverdale
MONTH at 10am, Kreme Cafe, 231 Universal Drive North Rodney: 3rd THURSDAY OF EACH MONTH at 10am
West Women’s Coffee Group: 4th TUESDAY OF EACH venue confirmed each month
MONTH at 10.30am, Kreem Café, 231 Universal Drive, North Shore: 1st THURSDAY OF THE MONTH at 10am,
Henderson Altura Café, 25 Anzac Road, Browns Bay
North Shore: 2nd TUESDAY OF EACH MONTH at 10am,
North Rodney: 1st TUESDAY OF EACH MONTH at 10am,
Settlers Retirement Village, 550 Albany Highway, Albany
Totara Park Retirement Village, 5 Melwood Drive,
West Auckland: 2nd WEDNESDAY OF EACH MONTH at 1pm,
Warkworth
Palmers Cafe, Northside Drive, Westgate (North West)
South Rodney: 2nd MONDAY OF EACH MONTH at 10am, West Auckland: 3rd TUESDAY OF EACH MONTH at 10am,
Maygrove Retirement Village, 65 Tauranga Place, Orewa Dawn Kitchen, Kelston Mall, main entrance (South/Central)
Rodney Early onset/young person’s group: 3rd Central Auckland: 4th THURSDAY OF EACH MONTH at
WEDNESDAY OF EACH MONTH at 10:30, Pine House Café, 1:30pm, Circus Café, 447 Mt Eden Road, Mt Eden Village
244 Hibiscus Coast Highway, Orewa. Waiuku: 2nd TUESDAY OF EACH MONTH at 10am, Porter
North Shore Young Persons: 3rd TUESDAY OF EACH Brothers Café, Kitchener Road, Waiuku
MONTH AT 11.30am, Northcote Tavern, 37 Queen Street, South Auckland: 3rd WEDNESDAY OF EACH MONTH at
Northcote 10am, Café Miko, Botanic Gardens, 102 Hill Road,
North Shore Group: 2nd THURSDAY OF EACH MONTH at Manurewa
10am, Windsor Park Baptist Church East Auckland: 3rd TUESDAY OF EACH MONTH at 10am,
Central Auckland: 2ND FRIDAY OF EACH MONTH at Hawthorn Dene Café, 280 Botany Rd, Botany Downs.
10am, St Barnabas Church Hall, Cnr Bellevue & Mt Eden Franklin: 4th THURSDAY OF EACH MONTH at 10am, Petals
Roads, Mt Eden ‘n’ Pots Café, 25 Paerata Road, Pukekohe
Kohimarama: 1st FRIDAY OF EACH MONTH at 10am, St North West Auckland: 2nd WEDNESDAY OF EACH MONTH,
at 1:30PM, Cafe Botannix, Palmer's, Westgate, Northside
Thomas’ Church Hall, cnr Kohimarama & St Heliers Bay
Drive
Roads, Kohimarama
Howick: 4th WEDNESDAY OF EACH MONTH at 10am, St
Blake Watch 651, Upbeat Outward Bound 2019
Andrews Church Hall, Cnr Vincent & Ridge Roads,
Howick
Franklin: 1st THURSDAY OF EACH MONTH at 10am,
Baptist Church lounge, 128 Victoria Street West,
Pukekohe
Manukau: 2nd WEDNESDAY OF EACH MONTH at 10am,
Manurewa Cosmopolitan Club, Manurewa
Waiuku: 2nd MONDAY OF EACH MONTH, 10am-12pm, St
Andrews Centre, 85 Queen Street, Waiuku
Karen Schade, Community Engagment Advisor Northern
In March, I had the pleasure of attending The Upbeat Outward Bound course at Anakiwa as a
F r ie n
support person along with Southland Community Educator Paula Ryan. Professionally and d ly r
personally it was a valuable experience I will never forget. Anakiwa is paradise itself and seeing r e n e w e m in d e r t
you r o
twelve amazing people graduate from what was a truly magical week of personal challenge, I found mem an n u
b e r sh al
uplifting. If you are thinking of doing Upbeat Outward Bound, don't think any longer, the 2020 0800 ip c a l
473 4 l
course is just around the bend, so just do it! It has been a pleasure working alongside the central 636
Auckland Action Group and the new North Shore and Rodney Action Group. We are now looking at
new committees in the East and West of Auckland, and are planning various initiatives in the region
to help with fundraising and awareness. It's all go. We really need new volunteers to help us with
events, Tulips and other activities so please get in touch if you can spare some time.
karen.schade@parkinsons.org.nz
Thanks to our recent sponsors!
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