Vision problems after stroke - Stroke Association

 
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Vision problems
after stroke
Stroke Helpline: 0303 3033 100
or email: helpline@stroke.org.uk

About two thirds of people have vision problems after a stroke.
This guide looks at the different ways your vision can be
affected, and how you can get treatment and support.

Vision loss after a stroke can affect      Assessing vision
your daily life in many ways. You          You should have your vision assessed
could find it more difficult do things     before leaving hospital, and any sight
like reading, shopping or watching         problems should be treated. When you
television. You may need support for       have an assessment, the healthcare
returning to work, such as help with       team should ensure you have your
travel or new ways of doing your job.      glasses or other aids you may use
                                           with you. If you notice new vision
Sight loss is linked to an increased       problems after you go home, tell
risk of emotional problems like            your GP, or local optician or specialist
anxiety and depression, and this           stroke nurse. They can refer you to the
can affect your ability to take part in    hospital eye clinic for an assessment.
rehabilitation. Sometimes the practical
and emotional difficulties that sight      If you had sight problems before your
loss causes are not apparent in            stroke, it is important to carry on with
hospital, and you may only become          any treatment like eye drops, and
aware of them when you return home.        keep having regular sight checks. This
                                           includes conditions like cataracts,
                                           age-related macular degeneration,
                                           diabetic retinopathy or glaucoma. Your
                                           vision, and the effects of a stroke, can
                                           change over time, so it’s important to
                                           get advice if you notice any changes in
                                           your sight.

For more information visit stroke.org.uk                                          1
Vision problems after stroke

Eye tests for people with                     Reduced central vision and
communication or cognitive                    other visual field loss
problems
Depending on someone’s                        Your visual field is everything you can
communication difficulties, some              see, including straight ahead (central
opticians are able to conduct eye tests       vision) and out to the side (peripheral
using pictures, symbols or numbers.           vision).
If this isn’t possible, there is a tool
called a retinoscope that uses light          Visual field loss means that you are
reflections to determine someone’s            unable to see a section of your field of
prescription, without the need for            vision, usually because the vision areas
language. See ‘Other sources of help          of your brain have been damaged by
and information’ for organisations that       the stroke. The eyes themselves work
can help you find an eye professional         normally, but the brain can’t process
with experience in this area.                 the images from one area of vision.
                                              Where the visual field loss happens
                                              depends on where the stroke occurred
How can a stroke affect                       in your brain. It almost always affects
my vision?                                    the same side of the visual field in
                                              both eyes (this is called ‘homonymous’
Like the other effects of stroke, vision      visual field loss). How much visual field
problems can improve over time,               is lost varies between people. The
as the brain recovers. How you are            most common type is homonymous
affected depends on exactly where the         hemianopia, which means losing the
stroke occurred in your brain. There          left or right half of the visual field of
are four main areas of visual problem,        both eyes. A less common type is
and you may have one or more:                 scotoma, when there is a small patch
                                              of vision loss, often near the centre of
• Reduced central vision and other            vision.
  visual field loss.
• Eye movement problems.                      Often people think that the vision in
• Visual processing problems.                 one eye has been affected, but it is
• Other sight problems.                       usually one side of the visual field of
                                              both eyes.

                                              If just one eye is affected, often with
                                              combined central and peripheral
                                              vision loss, it may be due to damage to
                                              the blood supply to the eye itself (see
                                              ‘Retinal vessel occlusion’ at the end of
                                              this section).

2                                          Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke

How do I know if I have visual              Visual scanning training
field loss?                                 This encourages you to look to your
Some people with visual field loss may      left and right sides in a systematic
not be aware of the missing area of         way. It is used to help you be more
vision. People with hemianopia often        aware of your visual field loss and
have difficulty reading, and may bump       reminds you to look into your blind
into things on the affected side. You       side. Eyesearch and Readright are
might only notice the field loss if you     free online therapies designed to
look in a mirror and can only see one       improve the speed and accuracy of
side of your face. When reading, it         eye scanning and reading (see ‘Other
can be difficult to locate the start of     sources of help and information’ for
a line if you have left-sided field loss.   further details). Other options include
If you have right-sided field loss, it’s    using line guides when reading, having
harder to see ahead along the line of       good lighting, and using edge markers
text. It can be difficult to get around,    on books and newspapers.
particularly in unfamiliar or crowded
places.                                     Widening your field of view with
                                            optical aids
Will visual field loss recover?             This involves using a plastic prism on
Visual field loss can improve, usually      your glasses. The prism is worn on
within the first month after a stroke.      either one or both lenses). It creates
Around 15% of people recover                an image of part of the side of visual
completely and 30% have a partial           field loss (your blind side) and reflects
recovery. For about half, the field         it over to your good side. This acts as a
loss will be permanent but there are        prompt or cue for you to look towards
techniques to help you make the most        your blind side or may help you to
of your remaining vision.                   notice things on that side.

Techniques for better vision                Vision restorative treatment
An eye specialist can assess your eye       There are some treatments available
problems and advise you on what will        privately that aim to restore part of
work best for you. The missing area         the lost area of visual field, using
of vision can’t be restored, but you        computer-based therapy. These are
can get help to make the most of your       not available through the NHS, but
vision. The technique that seems to         if you wish to try this treatment it’s
help most is visual scanning training.      a good idea to get advice from your
Using special lenses and optical aids       stroke nurse or eye specialist first.
may help some people.

For more information visit stroke.org.uk                                             3
Vision problems after stroke

Making the most of your sight                 They can improve over time, and may
Ask your orthoptist or optometrist            eventually stop. They can return or
(optician) about low vision aids such as      get worse if your sight gets worse or
magnifiers. An eye health specialist or       if you are unwell due to an infection.
GP can give you a referral to the local       Hallucinations can be caused by other
low vision service, where you can get         conditions affecting the brain, so if
low vision aids and advice.                   you start having them tell your GP,
                                              optician or specialist stroke nurse.
You may be given magnifiers for               There is no medication or treatment
use with near objects and reading,            for visual hallucinations, but you
or telescopes for distance. You can           can find organisations that support
try anti-glare glasses or overlays, to        people with hallucinations in ‘Other
reduce excessive glare. You can try           sources of information’ at the end of
using brighter lighting, and using            this guide. RNIB publishes a guide to
colours to make household objects             Charles Bonnet Syndrome available at
easier to find.                               rnib.org.uk and Esme’s Umbrella is a
                                              campaign group raising awareness of
You might need someone to help                the condition.
you get around in the early days
and weeks after the stroke. With              Retinal vessel occlusion
support, and by learning techniques           Retinal vessel occlusion is due to a
like visual scanning, people can              blockage in one of the blood vessels
regain confidence and become more             to the retina (retinal arteries). It is
independent.                                  also called an ‘eye stroke’ but unlike a
                                              stroke, it does not affect the brain.
Visual hallucinations
Visual hallucinations happen when the         The retina is a light-sensitive area of
brain generates images in the missing         nerves at the back of your eye. If the
area of vision. The images appear in          blood supply is blocked, it can cause
your blind area. You might see simple         sudden loss of sight. Some people
patterns, or more complex images of           have brief periods of sight loss before
people and places. For some people, it        having permanent vision loss.
is the only time they notice the area of
vision loss. It is also known as Charles      It’s possible to treat a blockage in
Bonnet syndrome.                              a retinal artery if you are seen at a
                                              hospital within four hours. However,
Visual hallucinations are caused by           the retina is very sensitive to loss
sight loss, and they are not a symptom        of blood supply, and it may not be
of a mental health problem. They often        possible to avoid permanent sight
start after a sudden loss of vision.          loss.

4                                          Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke

If you notice any sudden loss of vision,   Inability to move both eyes together
you should visit your local hospital       If the nerve control to your eye
emergency department straight away.        muscles is affected, one of your
                                           eyes may not move correctly. This
With a blockage in a retinal vein          may cause you to have blurred
(vessel carrying blood away from the       vision or double vision (diplopia).
retina), your sight can become dim or      This is sometimes called a squint or
blurry over a few days.                    strabismus.

Retinal vessel occlusion shares many       Eyes move constantly, or wobble
of the risk factors for stroke, so you     This can make it hard to focus on
will be given tests and checks for         objects, or cause double vision. This
conditions like high blood pressure,       condition is called nystagmus.
diabetes and high cholesterol. You
should be advised on taking steps to       Impaired depth perception and
improve your health such as stopping       difficulty locating objects
smoking, maintaining a healthy weight      For example, when making a cup of
and eating a balanced diet.                tea, you may misjudge the position of
                                           the cup, and pour water over its edge
                                           rather than into it.
Eye movement problems
                                           How are these problems treated?
A stroke can lead to a variety of          There are a number of treatment
problems with the fine nerve control       options. Exercises can help if you have
that is needed to move your eyes. We       difficulty moving your eyes to look at
have listed the main ones below:           objects held close to your face. Prisms
                                           can improve double vision or allow
Impaired eye movements                     you to see things to one side if you are
These may affect your eyes’ ability        unable to look in that direction. Like
to move from looking at one object         glasses, prisms are prescribed for each
to another or to follow a moving           individual after a sight test.
object, like someone walking past.
These problems can make reading            A patch over one eye can also be used
more difficult and can also affect your    to avoid double vision. This makes it
general mobility. For example if you       easier to see, but using only use one
are unable to look around quickly,         eye (monocular vision) can also cause
walking outside is likely to be more       some difficulty. You can work with
challenging.                               an orthoptist to choose which option
                                           works best for you.

For more information visit stroke.org.uk                                           5
Vision problems after stroke

Visual processing problems                    How are visual processing
                                              problems treated?
Some vision problems after stroke             Many people recover well from
are due to the brain having difficulty        visual neglect. If you have neglect
processing the information received           you might be able to learn scanning
from the eyes and other senses. This          and awareness strategies. If you have
can happen in many ways, for example          problems such as difficulty recognising
difficulty recognising objects or people      colours, faces, objects, complex
by sight, or recognising colours. It          scenes or text, you may be taught to
can cause difficulty when you try to          use your other senses (for example
reach for objects or make it harder to        touch or hearing) to process the
see more than one object at the same          information in a different way and to
time.                                         help you to improve your awareness of
                                              the affected side.
Visual neglect
The commonest type of visual
processing problem is visual neglect,         Other sight problems
which means that you are unaware
of your surroundings to one side. You         Dry eyes
may not realise that you are missing          If you have weakness in your facial
things around you. For example, you           muscles and eyelid muscles, you may
may be unaware of objects and people          have difficulty closing the eyelids fully,
on your affected side, and may ignore         or your eyes could stay open when you
people or bump into things without            are asleep. This can lead to a dry eye
realising they are there. Visual neglect      and irritation. It is important that this is
can reduce your ability to look, listen       treated early with lubrication drops or
or make movements towards part of             ointment to prevent more serious eye
your environment.                             complications such as ulcers. Taping
                                              the lid closed at night is also very
Neglect is more common in people              important if the eye does not always
who have had a stroke on the right            close fully.
side of the brain, which affects their
awareness of the left side. The person        Light sensitivity
is not aware that they are missing            Light sensitivity is common after
part of their vision. When neglect is         a stroke. You might be bothered
severe it may be impossible to draw           by bright light, or glare from light
someone’s attention round to their            coloured surfaces. Some people find
affected side. Visual field loss and          that a yellow or orange tinted overlay
neglect can occur together, which can         helps reduce glare.
make it harder to use strategies like
visual scanning or patches.

6                                          Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke

Eye health professionals                    You might have a full vision
                                            assessment in an outpatient clinic. You
• An orthoptist can assess and treat a      may be referred to a low vision clinic
  range of eye problems, particularly       where you can have an assessment
  eye movements.                            and advice on using magnifiers or
• An ophthalmologist is a medical           other visual aids. You can ask your GP
  doctor who specialises in                 or local optician for a referral.
  diagnosing and treating diseases
  of the eye. Only a consultant             If you have sight problems, there is a
  ophthalmologist can certify people        wide range of specialist equipment
  partially as sight impaired.              and household items available to help.
• An optometrist (optician) tests           These include clocks and watches with
  sight, prescribes and dispenses           large numbers, big button telephones
  glasses or contact lenses and can         and large print books and calendars.
  screen you for eye disease                Contact the Royal National Institute
• Support workers and eye clinic            of Blind People (RNIB) for more
  liaison officers (ECLOs) can give         information (see ‘Other sources of
  additional support. They can provide      help and information’ at the end of
  you and your family or carer with         this guide).
  information on practical aids and
  emotional support. ECLOs provide
  a bridge between the eye care             Driving
  professionals in hospital and other
  organisations that can provide you        After a stroke or TIA, by law you
  with support at home.                     cannot drive for one month. Whether
• Visual rehabilitation officers help       you can return to driving depends on
  you make use of your remaining            the type of stroke you had and the
  vision and other skills to increase       vehicle you drive.
  your independence.
                                            If your vision was affected by the
Accessing an eye specialist                 stroke, you must get a proper visual
After a stroke, you should be referred      assessment before attempting to
to an orthoptist or ophthalmologist         return to driving, even if you think your
specialising in stroke and brain injury.    vision has recovered. This can take
They can assess you and arrange             place in a hospital eye department.
treatment for poor vision, double           You should be given clear information
vision or visual field loss. Ideally this   about your condition and offered
assessment should happen before             treatment if it is appropriate, which
you leave hospital, as visual problems      may help improve your vision to the
can affect daily life and rehabilitation    level needed for driving.
of other problems after stroke.

For more information visit stroke.org.uk                                             7
Vision problems after stroke

The DVLA (DVA in Northern Ireland)             A consultant ophthalmologist can
state that you cannot drive with:              complete the request to issue you with
                                               a certificate and referral for support
• Double vision.                               services. In England and Wales this
• Blurred vision.                              certificate is called the Certificate of
• Visual field loss, particularly central      Vision Impairment (CVI). In Scotland
  vision.                                      this is called the CVI (Scotland) form,
                                               and in Northern Ireland it is called
For information and advice, read our           A655.
guide ‘Driving after stroke’ or call our
Helpline.                                      To register your sight loss, contact
                                               your local social servicesor hospital
                                               eye clinic, and they will add you to the
Employment and sight loss                      register. RNIB has more information
                                               on the benefits of registering your
If you are having problems with your           sight loss and how to do it (see ‘Other
work because of your vision, you can           sources of help and information’).
ask your employer to make reasonable
adjustments to help you. You can get
information on your rights at work and         Tips for coping with vision
how to return to employment after a            problems
stroke in our guide ‘A complete guide
to work and stroke’, and The Royal             • If you have double vision, try using
National Institute of Blind People               a patch when reading or watching
(RNIB) has advice and resources on               television.
sight loss and work.                           • If you have lost your vision to one
                                                 side, it is important to move your
                                                 eyes and head towards the weaker
Should I register my sight loss?                 side, for example on entering a
                                                 room. The more you scan and move
If you are assessed as being sighted             your eyes and head to that side,
impaired (partially sighted) or                  the quicker you will detect objects
severely sight impaired (blind), you             on that side and reduce your risk of
can choose to register your sight                bumping into objects or tripping.
loss. This can make it easier to get           • When reading, use rulers and
practical help from social services, as          markers to highlight the beginning
well as entitling you to concessions             and end of sentences and to help
such as council tax reduction, the               you keep your position along a line
Disabled Person’s Railcard and local             of text.
travel schemes. It can also help when
claiming certain state benefits.

8                                           Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke

• Make sure your lighting is good and       My Stroke Guide
  where possible, have it positioned to     The Stroke Association’s online
  your side and not behind you, as this     tool My Stroke Guide gives you free
  causes shadows.                           access to trusted advice, information
• Reduce the number of objects              and support 24/7. My Stroke Guide
  that are on your surfaces at home,        connects you to our online community,
  particularly in the kitchen. If there     to find out how others manage their
  is too much clutter, it can be more       recovery.
  difficult to pick out individual items.
• Vision problems are not always            Log on to mystrokeguide.com today
  obvious for other people to see. You
  might find it helpful to explain your
  sight problems to friends, family and     Other sources of help and
  colleagues to help them understand        information
  the support you need.
• If you lack confidence in going out       Help with finding an optician for
  and about, a visual rehabilitation        people with communication or
  officer can help you to learn             cognitive difficulties
  strategies for safe travel on foot and
  using public transport.                   British Association of Behavioural
                                            Optometrists (BABO)
                                            Website: babo.co.uk/find-a-
Where to get help and                       behavioural-optometrist/
information
                                            Seeability – Find an Optometrist
From the Stroke Association                 Website: seeability.org/find-an-
                                            optometrist
Helpline
Our Helpline offers information and         Visioncall
support for anyone affected by stroke,      Website: vision-call.co.uk
including family, friends and carers.
                                            Free online therapy for vision
Call us on 0303 3033 100, from a            problems
textphone 18001 0303 3033 100 or
email helpline@stroke.org.uk.               Eye Search
                                            Website: eyesearch.ucl.ac.uk
Read our publications                       A website from University College
Get more information about stroke           London Institute of Neurology.
online at stroke.org.uk, or call the        Provides free online therapy for people
Helpline to ask for printed copies of       with visual search problems due to
our guides.                                 hemianopia and spatial neglect.

For more information visit stroke.org.uk                                          9
Vision problems after stroke

Read Right                                   Audio books
Website: readright.ucl.ac.uk
Free online practice-based therapy           Calibre
to improve reading speeds in people          Website: calibreaudio.org.uk
with hemianopia from the University          Tel: 01296 432 339
College London Institute of Neurology.       Free postal lending library of
                                             unabridged books. Membership is
Organisations offering information,          open to children and adults who are
support and equipment                        blind or partially sighted, or have
                                             dyslexia.
Esme’s Umbrella
Website: charlesbonnetsyndrome.uk            Listening Books
Helpline: 020 7391 3299                      Website: listening-books.org.uk
Support and information for people           Tel: 020 7407 9417
with visual hallucinations due to sight      Postal audio library service with a
loss (Charles Bonnet syndrome).              small annual membership fee.

Nystagmus Network                            Playback
Website: nystagmusnet.org                    Website: play-back.com
Information and support for people           Tel: 0141 776 3395
with nystagmus.                              Provides a free service recording text
                                             to audio for people with sight loss.
Partially Sighted Society                    Also has an audio publication library.
Website: partsight.org.uk
Tel: 01302 965 195                           Professional bodies
Resources, products and support for
people with sight loss.                      British and Irish Orthoptic Society
                                             Website: orthoptics.org.uk
Royal National Institute of Blind            Tel: 020 3853 9797
People (RNIB)                                Provides information on the eye
Website: rnib.org.uk                         problems that occur following brain
Helpline: 0303 123 9999                      injury, including stroke. Search the site
Information about all aspects of sight       for ‘Stroke and neuro rehabilitation’
loss and an emotional support service.       for useful resources.

Visionary                                    College of Optometrists
Website: visionary.org.uk                    Website: college-optometrists.org
Helpline: 020 8090 9264                      Tel: 020 7839 6000
Email: visionary@visionary.org.uk            Professional body for optometrists in
UK network of local charities for blind      the UK.
and partially sighted people.

10                                        Call the Stroke Helpline on 0303 3033 100
Vision problems after stroke

Royal College of Ophthalmologists           Optometrist (optician): a specialist
Website: rcophth.ac.uk                      who tests sight, prescribes glasses and
Tel: 020 3770 5327                          contact lenses and screens people for
Professional body for eye doctors.          eye disease.
Offers a range of information on eye
conditions.                                 Orthoptist: an eye care specialist in
                                            eye movement problems.
Driving licensing agencies UK
                                            Photophobia: abnormally high
Driver and Vehicle Licensing Agency         sensitivity to light.
(DVLA) England, Scotland, Wales
Website: dvla.gov.uk                        Prism: a plastic membrane which is
                                            applied to a person’s glasses and
Driver and Vehicle Agency (DVA)             which moves the position of objects
Northern Ireland                            when they are seen through the prism.
Website: nidirect.gov.uk/motoring
                                            Ptosis: drooping of the upper eyelid.

Glossary                                    Retinal vessel occlusion: a blockage
                                            in a blood vessel to the eye.
Depth perception: the ability to see
the world in three dimensions.              Scotoma: area of visual field loss.

Diplopia: seeing two images of a            Strabismus: the two eyes do not line
single object (double vision).              up together (squint).

Hemianopia: loss of vision on               Visual field: the whole of your vision.
one side.
                                            Visual neglect/inattention: the
Homonymous hemianopia: losing               inability to notice things to one side.
half of the field of vision in both eyes.
                                            Visual perception: how the images
Monocular vision: vision in only            received by the brain are processed.
one eye.
                                            Visual scanning: training which
Nystagmus: a condition where the            encourages you to look in a systematic
eyes move constantly, or ‘wobble’.          way to the right and left sides.

Ophthalmologist: a medical doctor
specialising in eye conditions.

For more information visit stroke.org.uk                                              11
Vision problems after stroke

     About our information

     We want to provide the best information for
     people affected by stroke. That’s why we
     ask stroke survivors and their families, as
     well as medical experts, to help us put our
     publications together.

     How did we do?
     To tell us what you think of this guide, or to
     request a list of the sources we used to create
     it, email us at feedback@stroke.org.uk.

     Accessible formats
     Visit our website if you need this information
     in audio, large print or braille.

     Always get individual advice
     This guide contains general information about
     stroke. But if you have a problem, you should
     get individual advice from a professional such
     as a GP or pharmacist. Our Helpline can also
     help you find support. We work very hard
     to give you the latest facts, but some things
     change. We don’t control the information
     provided by other organisations or websites.

© Stroke Association 2020
Version 3. Published July 2020
To be reviewed: September 2022
Item code: A01F37

Every five minutes, stroke destroys lives. We need your support to help
rebuild them. Donate or find out more at stroke.org.uk.
                                                                                                                     JN 2021-089.7

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Also registered in the Isle of Man (No. 945) and Jersey (No. 221), and operating as a charity in Northern Ireland.

12                                                      Call the Stroke Helpline on 0303 3033 100
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