2020 Caregiver Resource Booklet - Coastal Region Chapter 1.800.268.7582 | - MS Society of Canada

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2020 Caregiver Resource Booklet - Coastal Region Chapter 1.800.268.7582 | - MS Society of Canada
2020 Caregiver Resource
        Booklet
     Coastal Region Chapter
  1.800.268.7582 | info.bc@mssociety.ca
          www.mssociety.ca
2020 Caregiver Resource Booklet - Coastal Region Chapter 1.800.268.7582 | - MS Society of Canada
OUR MISSION
To connect and empower the MS Community to create positive change.

We will have achieved our mission when:
1. The cause and cure for multiple sclerosis
   are identified in the shortest possible time.
2. People with MS have the opportunity to
   participate fully in all aspects of life.
3. The Canadian public is fully aware of MS,
   the MS Society and what it does.
4. All necessary activities of the MS Society
   are adequately funded.
5. The volunteers and staff of the chapters,
   division and national organization are working
   together effectively towards our common mission.

Caregiver Resource Booklet 2020                                      2
2020 Caregiver Resource Booklet - Coastal Region Chapter 1.800.268.7582 | - MS Society of Canada
Caregiver Resource Booklet 2020   3
CONTENTS
FOREWORD ......................................................................................................... 6
     The Needs Assessment ........................................................................................................ 6
     Talk To Your Case Manager ............................................................................................... 7
     Accessing Private Home Care Services .............................................................................. 8
     Additional Resources .......................................................................................................... 8
     How To Read This Guide .................................................................................................... 9
     Disclaimer ......................................................................................................................... 11
A PUBLIC HEALTHCARE SERVICES ......................................................... 12
     A-1      Background ............................................................................................................. 12
     A-2      Eligibility ................................................................................................................ 13
     A-3      Accessing Services.................................................................................................. 14
     A-4      Costs........................................................................................................................ 16
     A-5      Descriptions of Publicly Subsidized Home Health Services .................................. 17
     A-6      Choice in Supports for Independent Living (CSIL) ............................................... 27
B PRIVATE HOME HEALTHCARE SERVICES .......................................... 30
     B-1      ABC Home Support Service Ltd. ........................................................................... 31
     B-2      Access Health Services ........................................................................................... 31
     B-3      Angels There For You ............................................................................................ 32
     B-4      Aviva Home Health ................................................................................................ 32
     B-5      Bayshore Home Health ........................................................................................... 33
     B-6      Caring Touch Home Health Services ..................................................................... 34
     B-7      Classic LifeCare ...................................................................................................... 35
     B-8      Cloverdale At Home Care....................................................................................... 36
     B-9      Comfort Keepers ..................................................................................................... 35
     B-10 Cornerstone Care Society Home Support Services ................................................ 37
     B-11 Driving Miss Daisy ................................................................................................. 37
     B-12 Evergreen Nursing Services .................................................................................... 38

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B-13 Fraser Valley Seniors Companion Care .................................................................. 39
    B-14 Greater Vancouver Community Services Society .................................................. 39
    B-15 Harmony Health Care ............................................................................................. 40
    B-16 Helping Hands & Heart .......................................................................................... 42
    B-17 Helping Hands Home Support and Nursing ........................................................... 42
    B-18 Home Care Assistance ............................................................................................ 42
    B-19 Heart to Heart Care ................................................................................................. 44
    B-20 Home Instead Senior Care ...................................................................................... 44
    B-21 Independence Matters ............................................................................................. 44
    B-22 Independent Quality Home Care ............................................................................ 44
    B-23 Karp Home Care ..................................................................................................... 45
    B-24 Living Well Home Care Services ........................................................................... 46
    B-25 Loving Home Care Services ................................................................................... 47
    B-26 Melody’s House Calls ............................................................................................. 47
    B-27 Nurse Next Door Home Care Services ................................................................... 48
    B-28 Ocean Breeze Home Care ....................................................................................... 49
    B-29 PacifiCare Services ................................................................................................. 49
    B-30 Paragon Home Care ................................................................................................ 50
    B-31 Premier Homecare Services .................................................................................... 50
    B-32 ProGroup-ProCare Health Services ........................................................................ 51
    B-33 Revera – Long Term Care....................................................................................... 52
    B-34 Royalty Home Care................................................................................................. 52
    B-35 Safe Care Home Support ........................................................................................ 53
    B-36 Shylo Nursing and Home Healthcare ..................................................................... 54
    B-37 Simplified HomeCare Ltd ....................................................................................... 54
    B-38 Verity Home Care ................................................................................................... 55
    B-39 We Care Home Health Services ............................................................................. 55
    B-40 Westside Nursing Services Ltd ............................................................................... 56
C CAREGIVER PUBLICATIONS .................................................................. 58
    C-1      A Guide for Caregivers by the MS Society of Canada ........................................... 58
    C-2      A Guide for Caregivers by the National MS Society (USA) .................................. 58
    C-3      Caring for Loved Ones with Advanced MS: A Guide for Families by the
             National MS Society (USA) ................................................................................... 59
    C-4      Caring for Someone with MS: A Handbook for Family and Friends by the MS
             Society UK .............................................................................................................. 59

Caregiver Resource Booklet 2020                                                                                                             5
C-5      Caring for the Caregiver Newsletter by the MS Society of Canada ....................... 59
    C-6      Family and Friend Caregivers Information and Resource Handbook .................... 60
    C-7      Getting Started: So Now You Are a Caregiver by Net of Care .............................. 60
    C-8 Hiring Help at Home: The Basic Facts by the National MS Society (USA) ............. 60
    C-9 Home and Community Care: A Guide to Your Care by the BC Ministry of Health . 61
    C-10 MS Carers: The Man’s Guide to Caring Someone with Multiple Scelorsis by the
         MS Society UK ....................................................................................................... 61
    C-11 MS In Focus: Caregiving and MS by the MS International Federation ................... 61
    C-12 You Have Needs, Too by Net of Care...................................................................... 62
D CAREGIVER RESOURCES ........................................................................ 63
    D-1      Multiple Sclerosis Society of Canada – Lower Mainland Chapter ........................ 63
    D-2      Can Do MS ............................................................................................................. 63
    D-3      Canadian Caregiver Coalition ................................................................................. 64
    D-4      Canadian Home Care Association .......................................................................... 64
    D-5      The Caregiver Network........................................................................................... 64
    D-6      Caregiver Media Group .......................................................................................... 64
    D-7      Caregiver Tax Credits ............................................................................................. 65
    D-8      Caring for the Caregiver by the Ministry of Health’s SeniorsBC .......................... 65
    D-9 The Family Caregiver ................................................................................................ 66
    D-10 Family Caregiver Alliance ....................................................................................... 66
    D-11 Family Caregivers of British Columbia ................................................................... 66
    D-12 Multiple Sclerosis Association of America.............................................................. 66
    D-13 Multiple Sclerosis International Federation ............................................................. 67
    D-14 The Caregiver Action Network (USA) .................................................................... 67
    D-15 National Multiple Sclerosis Society (USA) ............................................................. 67
    D-16 Persons with Disabilities Online by Service Canada ............................................... 68
    D-17 Well Spouse Association.......................................................................................... 68
    D-18 Your Caregiving Planner by the Royal Bank of Canada ......................................... 68
E    MS Society Resources .................................................................................. 69
    E-1      Programs & Services .............................................................................................. 69

Caregiver Resource Booklet 2020                                                                                                           6
FOREWORD
       Sometimes a little bit of help is all that we need. Individuals with MS are affected
       by MS in a variety of ways and at times may require help to remain independent
       and safe at home, or to simply improve their quality of life. Caregiving needs vary
       by individual and can vary at different points in time – some people may only need
       help with shopping, others may need 24/7 nursing support. In addition, individual
       situations differ – you may live alone and have limited support from friends and
       family or you may have a close network of friends and family to meet most, if not
       all, of your care needs. Financial situations also differ and can affect the caregiver
       options available to an individual with MS.

       Realizing you need help can be emotional, whether you are the caregiver or person
       needing care. Figuring out how to find this help can be overwhelming as you may
       have many questions:
                  • What kind of help do I need?
                  • What kind of help is available?
                  • Is there funding available?
                  • How do I select the right person?
                  • Where do I start?

       This guide will provide information to help you address these questions. This guide
       starts with providing some tips to help you determine what kind of help you need
       and introduces you to the types of services available. We discuss the programs
       provided by provincial health regions and the steps to take to access these services
       and funding provided by the Ministry of Health.

       Help! Where do I start?
       The Needs Assessment
       Once you have a clearer picture of what you need, finding the appropriate support
       is easier. Needs usually fall into the following categories:
               • Personal care – bathing, dressing, shaving, meal preparation,
                   transportation, bathroom routines, medication management

Caregiver Resource Booklet 2020                                                                 7
•   Companionship – conversation, entertainment, outings and adventures
               •   Home management – shopping, errands, house cleaning, laundry, light
                   gardening, bill paying, home safety
               •   Medical – occupational and physical therapy, pain and symptom
                   management
               •   Live-in care – 24/7 support based on individual needs

       Assessing your needs will help you determine the best type and level support for
       you. Creating a worksheet to assess your needs can be helpful in this process. See
       the National MS Society’s guide “Hiring Help at Home: The Basic Facts” for a
       needs assessment worksheet:
       http://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Br
       ochures/Brochure-HiringHelpAtHome-BasicFacts-FINAL.pdf
       - Additional resources can be found at C-5 or page 70

       Evaluating and organizing your needs will be valuable when discussing your needs
       with service providers, or your case manager from your local Health Authority (i.e.
       Vancouver Coastal Health or Fraser Health).

       Talk to Your Case Manager
       Through the provincial health regions, the Ministry of Health provides a range of
       health care and support services to people who have acute, chronic, palliative or
       rehabilitative health care needs, and who meet certain eligibility and residency
       requirements. These services include caregiver support, home support, nursing,
       and occupational and physical therapy. Having a case manager is important to
       ensure you are accessing the services and funding to which you are entitled
       under your provincial health plan. They can also be a valuable source of
       information on resources in your community. If you do not have a case manager,
       contact your local Health Authority (see section A-3: Accessing Services on page
       15).

       Your case manager is there to assist you and your family meet your health care
       needs. They will work with you, your family and care team to help determine:
                 • Your needs and services to best meet your needs
                 • Your eligibility for services
                 • Fees and funding eligibility

       Your case manager will work with you to help develop a care plan and arrange for
       services. Some of the services are provided free of charge and others may include
       a fee based on your income.

       People with high support needs who want more control over managing their home
       support may be eligible for direct funding through “Choices for Support in
       Independent Living (CSIL)” program. Under the CSIL program, you hire your

Caregiver Resource Booklet 2020                                                              8
own home support workers. This provides you with more autonomy and
        responsibility in managing your home care. Your case manager will determine
        your eligibility for this program and help you decide if CSIL is best for you. For
        more information on CSIL, go to page 20 under A-5.

        Home care services provided by the Ministry of Health are explained in greater
        detail in Section A: Public Healthcare Services, or page 13.

        Accessing Private Home Care Services

        If you require support that is not available to you through your regional health
        authority, or have qualified for the CISL program and are managing your home
        care, there are a wide variety and number of home care service providers throughout
        the Lower Mainland. 1 Some home care businesses provide a range of care from
        companionship to nursing to palliative care. Some are very specialized, focusing
        on a single type of service, such as transportation. Others may employ staff with a
        range of qualifications, including therapists and registered nurses. Many businesses
        offer services on a temporary as well as on an ongoing basis. Understanding your
        needs will help to ensure that you hire the service appropriate for you.

        Your relationship with your home support worker is extremely important and,
        therefore, it is important that not only are they qualified and competent, but they
        are someone that you actually like and trust. Having the opportunity to interview
        the home care worker is critical as is the opportunity to request a different worker.

        Fees vary based on your needs and the level of care to be provided. Certainly, fees
        for someone to provide companionship will be less costly than for someone to
        provide nursing services. In Section B: Private Home Healthcare Services we
        have provided a list of a number of businesses providing varying levels of support
        services. This list is not an endorsement of these businesses, nor is it a complete
        list of all Lower Mainland businesses that offer home care support services
        appropriate for individuals with MS. To find more home care service providers:
            •    Search “Home Care” on the internet
            •    Go to the Better Business Bureau website (Home Support Services)
                 (http://www.bbb.org/mbc/accredited-business-directory/home-support-
                 services )
            •    Look under “Home Care” in your Yellow Pages directory

        Additional Resources

1
 Some home care businesses focus on providing support to seniors. Older people with MS may find that these
services are more appropriate for their needs.

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In addition to family and friends, the Ministry of Health, and private businesses,
       you may also want to consider the use of volunteers or a live-in care provider.

       Volunteers
       Volunteers may be suitable for providing some basic home care services or
       companionship. Your case manager can refer you to a volunteer service agency in
       your community that can help you find a suitable volunteer.

       Live-in Care Provider
       Some people require a live-in caregiver or a caregiver that can meet the needs of
       person with MS as well as the needs of the family. When you cannot find a live-in
       care provider locally, hiring a foreign domestic worker may be a viable and
       economical option. There are businesses that provide support in hiring qualified
       workers from abroad: Foreign Worker Program:
       https://www.canada.ca/en/employment-social-development/services/foreign-
       workers/caregiver.html
How to Read This Guide
       The Caregiver Resource Guide comprises a wide variety of businesses that provide
       services to make it easier for people with disabilities to live independently and to
       ease the burden for caregivers. This guide strives to make caregiving and finding
       care easier. The last sections of this guide include a list of caregiver resources and
       publications that address specific topics and support. Making the decision to get
       help is tough enough; getting help should not be. View the Table of Contents for
       a full overview of the listings in this publication.
       The organization of this guide is as follows:
       • Each section is designated a letter. For example, “Public Healthcare Services”
           is letter A, and “Caregiver Resources” is letter D.
       • Each service listing falls under the letter of their section, and is designated a
           number. For example, the second listing in Public Healthcare Services is “A-2”.
       • Each healthcare service listing is formatted using this template:

   Letter - # Organization or Program Name
                  Address:        Address
                  Phone:          Number        Fax:     Number
                  Email:          Email address
                  Web:            Website URL

                  This section beneath the contact information contains a description on the
                  organization and the services it offers. If there are multiple components to
                  a listing, the components are put into an alphabetized list, and
                  immediately follow the principal listing.

           Services:
               Personal
               Home
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               Medical
               Respite
               Specialized
Disclaimer
Please note that the MS Society does not endorse any particular business or organization, and that
the following listings are for reference only. In addition, while this guide aims to be
comprehensive, it is not exhaustive and should not be considered as such. There may be other
service providers in your community that may be more suitable for your needs.
Some of the businesses and organizations identified in this document have approached the MS
Society in order to share information and services in their area of professional practice. Some may
have a past history and knowledge of working with individuals with MS, while others may not.
The MS Society does not endorse the services any of these businesses or organizations, but wishes
to pass along this information for your consideration.

Caregiver Resource Booklet 2020                                                                 11
A PUBLIC HEALTHCARE
  SERVICES
       This section contains information on publicly funded home support services
       available to residents of British Columbia’s Lower Mainland. Home support
       services are provided by the BC Ministry of Health, and administered by the
       two health authorities of the Lower Mainland: Vancouver Coastal Health and
       Fraser Health.

       While there are many user-pay private service providers throughout the
       Lower Mainland that offer similar home support services, it is recommended
       that all individuals go through the Public Home Support assessment process
       by their local Health Authority as they may qualify for some level of
       funding/support through the BC Ministry of Health.

A-1 Background
       Information for A-1 was taken from the “Home and Community Care” section of
       the Vancouver Coastal Health website (http://www.vch.ca/your-health/health-
       topics/home-support/home-support). Please be advised that while this information
       was taken from Vancouver Coastal Health, both Vancouver Coastal Health and
       Fraser Health – the two health authorities of the Lower Mainland – provide the
       same information on their respective websites and offer the same services (unless
       otherwise stated).

       What Is Publicly Funded Home Support?
       The goal of publicly funded home support services is to help your loved one remain
       independent and safe in their own home as long as possible. As with all home and
       community care services, the services each person receives are based on their
       personal care needs and situation. Home support services provide assistance with:
           • Daily living activities at home such as bathing, dressing and grooming
           • Special exercises, medication administration and other care needs
           • Support and relief for the primary caregiver

       Your BC Health Authority

Caregiver Resource Booklet 2020                                                             12
BC’s Ministry of Health administers services through BC’s individual health
       authorities. Vancouver Coastal Health and Fraser Health support the communities
       represented by the Lower Mainland and Fraser Valley Chapters. Specifically:
          • Vancouver Coastal Health (VCH): serves Vancouver, Richmond, and the
              North Shore
          • Fraser Health (FH): serves Abbotsford, Agassiz-Harrison, Boston Bar,
              Burnaby, Chilliwack, Delta, Hope, Langley, Maple Ridge, Mission, New
              Westminster, Pitt Meadows, Surrey, and the Tri Cities.

       Core community and home care services provided are the same throughout the
       province and amongst health authorities in terms of services provided, eligibility
       requirements, and fees. However, some additional services may be provided within
       a region, or even a specific community based on community funding that may be
       provided outside of the Ministry of Health. For example, VCH provides a caregiver
       support program that is supported by community funding within the City of
       Vancouver. Priority to access the services provided by this program is given to
       individuals living or working within the City, and secondarily to individuals within
       the VCH region.

A-2 Eligibility
       In order to be eligible for publicly funded home support provided by either
       Vancouver Coastal Health or Fraser Health, you must meet citizenship and residency
       requirements, as well as the following requirements:

       Eligibility requirements for all home and community services
           • Be a resident of British Columbia
           • Be a Canadian citizen or have permanent resident status*
           • Require care:
                    ⋅ after you have been released from the hospital,
                    ⋅ at home to prevent you from going to the hospital, or
                    ⋅ for a life limiting illness

       Additional eligibility requirements for some of services
       You must meet the following additional eligibility requirements for certain publicly
       funded services, including home support, assisted living, adult day services, and
       residential care:
           • Be 19 years of age or older
           • Have lived in British Columbia for three months
           • Be a Canadian citizen or have permanent resident status*
           • Be unable to function independently because of chronic, health-related
              problems or have been diagnosed by a doctor with an end-stage illness
           • Meet specific criteria as may be in place for particular programs

Caregiver Resource Booklet 2020                                                               13
*Be a landed immigrant or are on a Minister’s permit approved by the Ministry of Health
       Services

A-3 Accessing Services
       You can access publicly subsidized Home and Community Care services for
       yourself or a family member by following the three steps below. Check eligibility
       requirements (section A-2: Eligibility or page 14) to make sure you meet all the
       requirements for publicly subsidized Home and Community Care.

       Step 1: Contact your Health Authority
       Contact your local Health Authority for more information on the publicly
       subsidized healthcare you or your loved one can receive. To do this, speak with a
       hospital social worker or transitional service team member if you or your loved one
       are in the hospital. If you or a family member are at home, call your local Home
       and Community Care Access Line:

       Fraser Health:
       New Client Inquiries: 1-855-412-2121
       Note: Fraser Health is transitioning into one central in-take line.

             Community               Phone             Community                Phone
                                    Number                                     Number
             Abbotsford           604-556-5000           Mission             604-814-5520
           Agassiz/Harrison       604-793-7160      New Westminster          604-777-6700
              Burnaby             604-918-7447           Newton              604-572-5340
             Chilliwack           604-702-4800         South Delta           604-952-3552
                Hope              604-860-7747      Surrey/North Delta       604-953-4950
              Langley             604-532-6500           TriCities           604-777-7300
            Maple Ridge           604-476-7100         White Rock            604-541-6800

       Vancouver Coastal Health:
             Community               Phone             Community                Phone
                                    Number                                     Number
              North Shore         604-986-7111           Vancouver           604-263-7377
               Richmond           604-278-3361

       Or visit the “Accessing Services” section of your local Health Authority’s website:
       Fraser Health:
          http://www.fraserhealth.ca/patients-and-visitors/amenities-and-services/
       Vancouver Coastal Health:

Caregiver Resource Booklet 2020                                                                  14
http://www.vch.ca/your-health/health-topics/home-and-community-
           care/accessing-services/accessing-services

       Step 2: Conduct an Assessment
       The health care professionals will work with you, your family, doctor and other
       health care professionals to assess:
          • Your eligibility for home and community care services
          • What services best meet your needs and situation
          • How long you need these services for
          • The costs, if any, for these services

       Remember that you have the right to consent to care that is offered to you. Before
       you make a decision, it is important that you feel everything has been explained to
       your satisfaction. If you are unsure or do not understand something, ask for an
       explanation.

       If you have documented your wishes about the health care you want to receive, at
       the moment or in the future, in an advanced care plan such as a representation
       agreement (sometimes referred to as a living will), or a similar document, bring this
       to the attention of your family and health care providers and bring a copy with you,
       if possible.

       What do I need to bring to my assessment?
         • BC Care Card
         • Medication prescriptions
         • War veteran and pension cheque stubs or regiment number
         • Most recent income tax return or notice of assessment (some services charge
             a fee based on your income)
         • Name and telephone number of your doctors
         • Name and address of a close relative or friend

       It is important that our health care professionals fully understand your health care
       situation and needs. Please ask questions if you are not sure about what services are
       available to you.

       Step 3: Develop a Care Plan
       If you are eligible for services, a health care professional will work with you to
       develop a care plan that meets your needs. The care plan will be updated as your
       care situation changes.

Caregiver Resource Booklet 2020                                                                15
If there is a waiting list for the services that best meet your needs, the health care
       professional will work with you to ensure that the best services are in place to
       address your health needs while you are waiting.

A-4 Costs
       Some public Home Health services are provided at no cost and others may have an
       associated cost that is based on your after-tax income. The Province of BC sets the
       service charges for Home Health clients.

       For those viewing this document online, each of the following services (when
       underlined in blue) directly links you to Fraser Health’s description of that service.
       All services are also described in section A-5: Descriptions of Publicly
       Subsidized Home Health Services.

       The following services were included only if they apply or might apply to people
       with MS. All information was taken from the Home and Community Care section
       of the Fraser Health website and the Home and Community Care section of the
       Vancouver Coastal Health website.

       Free Services offered by Fraser Health:
          • Case Management
          • Occupational and Physical Therapy
          • Community Nutrition
          • Health Services for Community Living

       Free Services offered by Vancouver Coastal Health:
          • Home Care Nursing
          • Caregiver Support
          • Case management
          • Occupational and Physical Therapy
          • Community Nutrition
          • Health Services for Community Living
          • Hospice Palliative Care

       Free Services Excluding Supplies for Fraser Health:
       You will not be charged for the following services, but you may have to cover the
       associated cost of supplies:
           • Home Care Nursing (though most Home Care Nursing supplies are
              provided free of charge for the first two weeks)
           • Caregiver Support

Caregiver Resource Booklet 2020                                                                 16
Service Charges May Apply:
       Services charges may apply to Home Support Services in both Fraser Health and
       Vancouver Coastal Health, where there may be a daily charge depending on your
       income.

       Services Charges Definitely Apply:

       Fraser Health
          • Assisted Living – A monthly charge based on 70% of your after-tax income.
           •   Day Programs for Older Adults – Community facilities usually charge a
               nominal daily charge to supplement the cost of transportation, supplies and
               meals.
           •   Convalescent Care – A flat minimum monthly rate. If your stay is less than
               a month, you will be assessed for a prorated charge, which is the minimum
               monthly rate divided by number of days in the month times your length of
               stay. If the charge represents a financial hardship, low income clients can
               request a financial assessment to get a temporary rate reduction.
           •   Hospice Residences – There is a flat minimum monthly rate. If your stay is
               less than a month, you will be assessed for a prorated charge, which is the
               minimum monthly rate divided by number of days in the month times your
               length of stay. If the charge represents a financial hardship, low income
               clients can request a financial assessment to get a temporary rate reduction.
           •   Residential Care Services– There is a flat monthly rate depending on your
               after-tax income. Rates are adjusted every year by the Ministry of Health.
               Access information on Care Options and Costs here.
           •   Home Health Support Services– People receiving home support services for
               personal care on a short-term basis, a few days up to two weeks after
               discharge from a hospital, will not be charged for services. However, if you
               are receiving ongoing services, you may be assessed a daily charge
               depending on your income. Most people pay very little or nothing at all.
               People who are considered to be palliative by their physician and who are
               in the last six months of life are not charged for home support services. Your
               local Health Authority will assess your care needs monthly to determine
               your ongoing eligibility.

       Vancouver Coastal Health
          • Assisted Living – There is a monthly fee based on 70% of your after-tax
             income, with a set minimum and maximum amount. There are pre-
             established rates for clients on income assistance and disability benefits.
             You may be required to pay other fees for services not covered in the
             monthly rate based on your personal choices, including telephone, cable,
             hydro, household and toiletry supplies, medications, personal care supplies

Caregiver Resource Booklet 2020                                                                 17
and insurance costs. Some facilities also require a damage deposit upon
               move-in. You will be notified of all fees before you move in.
           •   Adult Day Services – Centres usually charge a daily fee to assist with the
               cost of craft supplies, transportation and meals.
           •   Convalescent Care – You will be charged a daily rate. If you are unable to
               afford this fee, your financial situation can be assessed to see if you qualify
               for a temporary rate reduction.
           •   Hospice Palliative Care – You will be charged a daily rate. If you are unable
               to afford this fee, your financial situation can be assessed to see if you
               qualify for a temporary rate reduction.
           •   Residential Care – Publicly-subsidized residential care costs a monthly fee
               based on 80 per cent of your after-tax income, with set minimum and
               maximum rates. As residential care is considered your home, you may be
               required to pay additional fees for services or items you would pay for living
               on your own. For example, there may be additional fees for things like
               equipment or aids, optional activities, and hairdressing services. Facility
               staff will inform you of these fees prior to moving in.

               Costs may change over time. Contact the Home and Community Care
               access telephone number in your community for current costs.

       Option to purchase private services
         • In addition to services provided through your local Health Authority, you
             can also purchase home health services from private care agencies (see
             Section B: Private Home Healthcare Services, or page 33).
         • For example, if you are not eligible for publicly subsidized Home Health
             services, you may want to consider private agencies, or you may want to
             add to the services you are already receiving.

A-5 Descriptions of Publicly Subsidized Home Health Services
       This section describes the different home health services that the Province of BC
       and your local Health Authority offer. The following services were included only
       if they apply or might apply to people with MS.

       All information for A-5 was taken from the Fraser Health and Vancouver Coastal
       Health websites, and the online Fraser Health publication “Handbook for
       Caregivers”.

       For more information on any of the following public Home Health services, contact
       your local Health Authority’s Home and Community Care Access Line:

       Fraser Health: 1-855-412-2121 (Central in-take line)

Caregiver Resource Booklet 2020                                                                  18
Vancouver Coastal Health:
             Community               Phone            Community              Phone
                                    Number                                  Number
              North Shore         604-986-7111         Vancouver          604-263-7377
               Richmond           604-278-3361

       Or visit the “Accessing Services” section of your local Health Authority’s website:

       Fraser Health:
       https://www.fraserhealth.ca/health-topics-a-to-z/home-and-community-care/accessing-
       home-and-community-care-services

       Vancouver Coastal Health:
       http://www.vch.ca/your-care/home-community-care/how-to-access-services

        Case Management
         Offered by Fraser Health and Vancouver Coastal Health

           Case managers coordinate care for people with complex health needs requiring
           extra, ongoing support to live at home independently.
           Their goal is to help people live at home safely and avoid unnecessary or premature
           admission to a hospital or care facility.

           The list below provides an idea of the types of services available. Activities
           may vary by program.
                    Assess your needs
                    Determine your eligibility for services
                    Determine the costs for certain services, based on your financial
                      situation
                    Plan, coordinate and monitor multiple care services
                    Arrange relief for caregivers
                    Assess whether you need to move to an assisted living or residential
                      care facility

           It is recommended that all individuals undergo the Case Management
           process by their local health authority as they may qualify for some level of
           funding/support through the BC Ministry of Health.

           To be eligible, you must:
               Be eligible to receive Home and Community Care services (see A-2,
                  Eligibility on page 11)

Caregiver Resource Booklet 2020                                                              19
 Adult Day Programs
         Offered by Fraser Health and Vancouver Coastal Health

           Adult day programs offer a range of activities in a safe and caring social
           environment to help adults with disabilities and seniors live at home as
           independently as possible.

           The list below provides an idea of the types of services available. Activities
           may vary by program.
                    Therapeutic recreation activities
                    Assistance with personal hygiene
                    Assistance with health care needs such as nursing assessments,
                      monitoring chronic health conditions or medications
                    Social activities such as discussion groups, entertainment and crafts
                      as well as noon meals
                    Health monitoring and personal care assistance
                    Respite for family members and others to provide a break from their
                      caregiving responsibilities

           To be eligible, you must:
               Be eligible to receive Home and Community Care services (see A-2,
                  Eligibility on page 14)

        Ambulatory Home Care Nursing Clinics
         Offered by Vancouver Coastal Health. For Fraser Health: See “Home Health
         Clinics”.

           These Nursing Clinics are for people who are mobile and can attend
           appointments outside of the home. The Nursing Clinics provide a broad range
           of services to people who require nursing treatment and education in self-care
           management. Some examples of available services include chronic disease
           management, medication management, and wound care.

           To be eligible, you must:
               Be eligible to receive Home and Community Care services (see A-2,
                  Eligibility on page 14)

        Assisted Living
         Offered by Fraser Health and Vancouver Coastal Health

           Assisted Living is a housing plus health services option if you are still relatively
           independent but need extra help. Assisted Living services include housing,
           hospitality and personal care services to seniors and people with disabilities

Caregiver Resource Booklet 2020                                                                   20
who are no longer able to live at home independently but do not need 24-hour
           nursing care. Fraser Health and Vancouver Coastal Health arrange Assisted
           Living services through BC Housing.

           Your monthly contribution to Assisted Living services covers:
               Accommodation: includes a private, lockable apartment or suite that
                 you furnish with your own belongings. Buildings also have common
                 dining and socializing spaces
               Hospitality services: includes two meals a day (lunch and supper),
                 weekly housekeeping, weekly laundering of linens (towels and sheets),
                 social and recreational opportunities and 24-hour emergency response
                 system.
               Personal care services: includes assistance with bathing, grooming,
                 dressing and medication management.

           To be eligible, you must:
               Be eligible to receive Home and Community Care services (see A-2,
                  Eligibility on page 14)
               Be able to direct your own care and make decisions
               Be able to live independently but require help with daily activities
               Be able to communicate and be understood by others
               Not behave in ways that place the safety of others at risk
               Be able to take direction in an emergency and use the emergency
                  response system
               Not be managing well in your home with the available services

           For more information on Assisted Living, read the following online document
           provided by Vancouver Coastal Health:
              http://www.vch.ca/Documents/Assisted-Living-Handbook-February-2016.pdf

        Caregiver Support/Respite Care
         Offered by Fraser Health and Vancouver Coastal Health

           Many people accessing Home Health services are also cared for by someone
           close to them such as a husband, wife, daughter, son, or friend. Caregiver
           Support is for people caring for family or friends because we understand that
           care giving, even when given with love, can be stressful.

           Caregiver Support offers respite care, or a short period of rest and relief from
           the emotional and physical demands of care giving, allowing the caregiver to
           continue to provide quality care. A case manager must first assess people to see
           if they are eligible to use this care. An eligible person can then stay in a care
           facility for up to four weeks per year (depending on availability). This service
           provides the caregiver a break from caregiving responsibilities. Respite is also
           available to caregivers through home support and adult day programs.

Caregiver Resource Booklet 2020                                                                21
To be eligible, you must:
               Be eligible to receive Home and Community Care services (see A-2,
                  Eligibility on page 14)

           For more information on Caregiver Support, read the following online
           documents provided by Fraser Health and Vancouver Coastal Health:
              http://www.virtualhospice.ca/Assets/Fraser%20Health%20-
              %20Handbook%20For%20Caregivers_20180208183501.pdf

               http://www.vch.ca/Documents/Assisted-Living-Handbook-February-2016.pdf

        Choice in Supports for Independent Living (CSIL)
         Offered by Fraser Health and Vancouver Coastal Health

           Choice in Supports for Independent Living (CSIL) is a self-managed model of
           care where people receive funds to purchase and manage private home support
           services. Responsibilities may include recruiting, hiring, training, scheduling
           and supervising home support workers.

           To be eligible for CSIL, you must:
               Be eligible to receive Home and Community Care services (see A-2,
                  Eligibility on page 14)
               Be medically stable
               Require daily personal care
               Be able to direct all aspects of your care or have a client support group
                  that can do so
               Demonstrate the ability to manage care services and fiscal
                  accountability

           For more information on CSIL, go to section A-6 (page 30).

        Home Care Nursing
         Offered by Fraser Health and Vancouver Coastal Health

           Home Care Nursing is for people who need care at home, temporarily or
           indefinitely, for a variety of health reasons, including:
               Being released from the hospital after surgery or a sudden event such as
                   a stroke or serious injury
               Worsening of a chronic condition that requires a higher level of care
                   than is available at home
               Living with ongoing health issues that make it difficult to be at home

Caregiver Resource Booklet 2020                                                              22
What services are provided?
           Professionally trained and licensed home care nurses also provide:
               Wound care, intravenous therapy or palliative care
               Health education about chronic diseases and healthy living
               Referrals to other community services, such as a community
                  rehabilitation centre or social work services
               Self-care information to allow you to live as independently as possible
               Education to enhance your friends’ and family's abilities to provide care
               Home support services to enable you to care for yourself as much as
                  possible

           Generally, nursing is provided if you:
               Are released from hospital and need short-term care
               Have on ongoing, or chronic health issue requiring more care than you
                 or your family can provide
               Have a health issue that is getting worse and you need to support to
                 continue to live at home
               Be eligible to receive Home and Community Care services (see A-2,
                 Eligibility on page 14)

           Home visits for nursing care occur seven days a week. Visits are scheduled in
           advance according to medical priority and where you live.

           What services are not provided?
           There are a number of services that Home Care Nursing does not provide but
           can help you access, including:
               House cleaning or laundry
               Grocery shopping
               Rehabilitation equipment/aids
               Driving to appointments
               Companions
               Foot care

        Home Health Clinics
         Offered by Fraser Health

           You may be asked to attend a Home Health clinic for nursing care or other
           professional services if you are mobile and do not require in-home visits.

           Home Health office clinics are located in all communities of the Fraser Health
           region, and are open weekdays during regular business hours. Some office
           clinics are also open on the weekends. Home Health clinics are not an
           emergency service.

Caregiver Resource Booklet 2020                                                             23
Services offered in the clinics include:
               Wound care treatments performed by a nurse
               Intravenous antibiotic treatment
               Client teaching related to treatments, specific diseases, or conditions
               Rehabilitation
               Social work consultation
               Group education on managing a chronic health condition

           To be eligible, you must:
               Be eligible to receive Home and Community Care services (see A-2,
                  Eligibility on page 14)

        Home Support
         Offered by Fraser Health and Vancouver Coastal Health

           Home Support services are often provided to people after they have been
           discharged from hospital. Home Support services are provided by Home Health
           community health workers who are trained, screened, and insurance, and whose
           services meet established standards.

           Policies are in place that govern health care and support services provided to
           people in their homes to protect both clients and care providers.

           Some clients have unique care needs for which a worker’s gender, language or
           cultural awareness could make a significant difference. In such situations,
           efforts are made to consider those needs when scheduling a worker.

           How Can Home Support Help Me?
           Individuals who may require assistance:
                A physically or mentally disabled person may need help with daily
                  living activities such as bathing and washing, dressing, grooming,
                  taking medication and other personal care needs
                Someone recovering from illness or injury may find it difficult to
                  manage daily living without assistance

           Home Support services include the following:
              Daily living activities at home such as bathing, dressing and grooming
              Special exercises, medication administration and other care needs
              Support and relief for your primary caregiver

Caregiver Resource Booklet 2020                                                             24
The following are services that are not included in Home Support, but for which
           referrals can be made:
                House cleaning or laundry
                Grocery shopping
                Rehabilitation equipment/aids
                Driving to appointments
                Companions
                Foot care

           For more information on Home Support, and for information on how to prepare
           for your loved one getting discharged from the hospital, read the following link:
               https://www.fraserhealth.ca/homesupport

        Hospice Palliative Care
         Offered by Fraser Health and Vancouver Coastal Health

           Hospice Palliative Care offers services to help relieve suffering and improve
           quality of life for people with a life-limiting illness or for those grieving a loved
           one. Hospice palliative care becomes appropriate when treatment no longer
           supports quality of life.

           People who choose Hospice Palliative Care have made the decision with their
           doctor and family to move away from getting better to palliative, or comfort,
           care. Hospice Palliative Care is available in the community, at home, in assisted
           living and residential care facilities and in hospice residences.

           Hospice Palliative Care:
               Does not hasten or delay death
               Improves the quality life by offering comfort and dignity
               Offers comfort, emotional and spiritual supports to the person and
                 family
               Allows people to continue receiving treatments that slow the progress
                 of the disease and reduce uncomfortable symptoms
               Provides a variety of services designed to provide care and comfort

           Medical intervention is for symptom management, including pain control.

           Many people mistakenly associate hospice palliative care only with sorrow.
           However, most people’s experiences include times of joy, peace and heart-
           warming closeness. People often comment that hospice experiences, although
           involving a death, give them a deeper understanding of life.

           To be eligible, you must:

Caregiver Resource Booklet 2020                                                                    25
   Be eligible to receive Home and Community Care services (see A-2,
                   Eligibility on page 14)

        Medical Equipment and Supplies
         Offered by Fraser Health and Vancouver Coastal Health

           To accommodate your medical condition, you may be required to rent or buy
           equipment, such as walkers, bath seats, wheelchairs or lifts. Home Health staff
           can help you determine:
               What equipment you need
               How to access the equipment
               How to use the equipment

           For the most part you will be expected to pay for your supplies, medications
           and equipment. There are a few exceptions including:
               Wound care: if you are receiving wound care services through our
                  Home Health services, either at home or in a clinic, you will receive at
                  least two weeks of supplies that are outlined in our wound care
                  guidelines and protocols. All other supplies are your responsibility.
                  Intravenous (IV) medications: if you are receiving IV medications
                   through your local health authority’s Home Health services, either at
                   home or in a clinic, your local health authority will provide you with the
                   medication and the supplies you need at no cost until you are finished
                   with the medication. If no medications are involved, you will be given
                   supplies needed to care for the IV access device, such as flushing,
                   capping and dressing changes. Medications that are not approved for
                   use in BC or are experimental will not be covered.
                  Medical Supplies and Equipment for Palliative Clients

           Depending on your situation, some or all of your costs might be covered by
           another funding agency. There are also organizations that provide short-term
           and long-term loans, as well as financial assistance for eligible clients. Contact
           your local health authority’s Home Health Office for more information about
           options available:
               Fraser Health
               https://www.fraserhealth.ca/health-topics-a-to-z/home-and-community-care

               Vancouver Coastal Health
               http://www.vch.ca/your-care/home-community-care

        Occupational and Physical Therapy
         Offered by Fraser Health and Vancouver Coastal Health

Caregiver Resource Booklet 2020                                                                 26
The occupational and physical therapists of both Fraser Health and Vancouver
           Coastal Health provide assessment, consultation, treatment and education to
           you and your family. These services, sometimes called rehabilitation therapy,
           are available in community clinics and in your home, depending on your
           situation. Occupational and physical therapists also ensure your home is set up
           in ways that enable you to carry on with daily home tasks easily and safely.

           Rehabilitation therapy is available for:
               People recovering from an injury or an operation
               Adults at risk of having a fall that may result in an injury

           Therapists work closely with you to help:
               Improve muscle strength, balance and coordination
               Learn to use mobility devices such as walkers and crutches
               Improve and maximize your ability to function independently at home
               Make the home more accessible and safer
               Acquire or use aids for personal care (bath seats, grab bars, scooters,
                  wheelchairs and lifts)

           To be eligible, you must:
               Be eligible to receive Home and Community Care services (see A-2,
                  Eligibility on page 14)

        Residential Care
         Offered by Fraser Health and Vancouver Coastal Health

           Both Fraser Health and Vancouver Coastal Health provide publicly subsidized
           Residential Care through their Home and Community Care services.
           Residential Care offers 24-hour nursing care in a supervised and secure
           environment. It is provided to people who have complex care needs, and who
           can no longer remain safely in their own home.

           What services are provided?
              24-hour professional nursing and personal care
              Accommodation in a safe and secure environment
              Nutritious meals
              Medication management
              Laundry
              Recreational activity programs
              Support and relief for families and loved ones who are providing care

           To be eligible, you must:

Caregiver Resource Booklet 2020                                                              27
   Be eligible to receive Home and Community Care services (see A-2:
                   Eligibility on page 14).

           Because publicly subsidized Residential Care is a limited resource, a priority
           system is in place so that those who most urgently need this service are placed
           first.

           Other services offered by Fraser Health and Vancouver Coastal Health that
           were not profiled in this section include; Community Intravenous Therapy
           (Fraser Health) / Home Intravenous Antibiotic Program (VCH), Convalescent
           Care, Home Oxygen Program (Fraser Health).

A-6 Choice in Supports for Independent Living (CSIL)
       Note: The following information was taken from the BC Ministry of Health’s
       webpage:
       http://www2.gov.bc.ca/gov/topic.page?id=14655A297B1A477F9A8468E6C6EC
       3436

       Choice in Supports for Independent Living, or CSIL (pronounced “SEE-suhl”),
       is a self-directed option for eligible home support clients. CSIL clients receive
       funds directly from their local health authority to purchase their own home support
       services. CSIL clients become employers who manage all aspects of their home
       support from hiring and supervising staff to overseeing how CSIL funds are spent.

       People who cannot manage CSIL on their own may be eligible if a client support
       group or an individual designated as a representative through a Representation
       Agreement is acting as the CSIL employer.

       CSIL clients have control over who they hire to provide personal assistance, when
       services are scheduled and how tasks are carried out.

       In addition to meeting the Home and Community Care services (see A-2:
       Eligibility on page 14) criteria, Clients eligible for CSIL must:
            have been assessed as requiring home support services as part of your care
               plan;
            have a physical disability and high-intensity care needs;
            have assessed needs that can be met within CSIL, within available
               resources;
            have agreed to pay the assessed client rate; and
            safely coordinate and manage CSIL services or have a client support group
               or a CSIL representative acting as a CSIL employer.

       If you are interested in receiving CSIL services or know of someone who might be
       in need of these services, you can contact your health authority's home and

Caregiver Resource Booklet 2020                                                              28
community care office or you can have a health care professional make a referral
       on your behalf.

       How does CSIL funding work?
       As a CSIL client, you receive a set amount of funding each month from the health
       authority to directly purchase your own home support services. The amount of
       funding you receive is calculated by multiplying the CSIL hourly rate by the
       number of hours of home support service you require each month (based on a
       clinical assessment performed by your health authority).

       Is there a cost for CSIL services?
       There is a daily client rate for CSIL services based on household income less
       deductions for taxes, basic living expenses and if applicable, earned income.

       For more information about how your remaining annual income is defined and
       determined, please see the Continuing Care Fees Regulation.

       Exceptions:
       You are not required to pay a daily rate for CSIL services for the first two weeks
       of receiving short-term home support services after being discharged from a
       hospital, or if you are eligible for palliative supplies and equipment under the
       BC Palliative Care Benefits Program.

       You are also not required to pay a daily rate for CSIL services if you receive
       one of the following government income benefits:
              the Guaranteed Income Supplement, the Spouse’s Allowance or the
               Widowed Spouse’s Allowance under the Old Age Security Act (Canada);
              support and shelter allowance under the Assistance Act or the Employment
               and Assistance for Persons with Disabilities Act;
              a War veterans Allowance under the War Veteran’s Allowance Act
               (Canada);

       Payment to Family Members
       CSIL clients may pay family members, except immediate family members (i.e.,
       parent, child or spouse), as caregivers in accordance with the BC Ministry of
       Health’s Policy 4.C.4, Payment to Family Members. Health Authorities may grant
       an exception for an immediate family member to be paid to provide care for a client,
       if the criteria set out in Policy 4.C.4 are met.

       For more information, contact your local Health Authority (see A-3: Accessing
       Services on page 12).

       To view online or to download Policy 4.C.4, visit:
       www.health.gov.bc.ca/library/publications/year/2011/PFM_policy_guidelines.pdf

Caregiver Resource Booklet 2020                                                               29
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