HIGHLAND AUTISM STRATEGY & OUTCOME PLAN - 2018 DRAFT - DRAFT - NHS Highland
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DRAFT
HIGHLAND AUTISM STRATEGY & OUTCOME PLAN
2018
THIS DOCUMENT IS IN DRAFT FORMAT AND THEREFORE IS NOT THE FINAL DOCUMENT
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Contents:
1. Introduction Page 3
2. Vision, Values & Outcomes Page 4
3. The Highland Context Page 6
4. Implementation Page 7
5. Highland Autism Strategy Outcome Plan Page 9
Appendix 1:
Membership of the Highland Autism Strategy Group Page 20
Appendix 2:
National Policies, Guidance & Strategies that have
influenced our strategy Page 21
Appendix 3:
Glossary Page 22
We need your views. Consultation document. Page 23
Highland Autism Strategy & Outcome Plan Dec 2017
With kind thanks for use of photographs: Sunset over Kessock Bridge – Alan Simpson, Fairy Pools, Glenbrittle – ITM Parnell
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Highland Autism Strategy & Outcome Plan 2018 December 2017
1. INTRODUCTION
1.1 Who is this strategy for? This strategy has been written for all people living and working in Highland. It aims to
summarise the aspirations of autistic people and to ensure that they receive support and services that are informed, of high quality
and meet their needs. It is relevant to all sectors including NHS Highland, Highland Council, University Highlands & Islands (UHI)
Inverness College, support providers, third sector organisations and the voluntary sector. It is also hoped that it will influence the
general services accessed on a day to day basis eg shops, transport etc.
1.2 What is autism? “Autism is a lifelong developmental disability that affects how a person communicates with and relates to
other people, and how they experience the world around them. Autistic people see, hear and feel the world differently to other
people. If you are autistic, you are autistic for life; autism is not an illness or disease or cannot be cured. Often people feel being
autistic is a fundamental aspect of their identity. Autism is a spectrum condition. All autistic people share certain difficulties, but
being autistic will affect them in different ways. Some autistic people also have learning disabilities, mental health issues or other
conditions, meaning people need different levels of support. All people on the autism spectrum learn and develop. With the right
sort of support, all can be helped to live a more fulfilling life of their own choosing.” (National Autism Society website, accessed
Nov 17)
1.3 Consultation: This document has been developed in partnership by the members of the Highland Autism Strategy Group.
Membership is detailed in Appendix 1. It is also available for consultation via the NHS Highland website
http://www.nhshighland.scot.nhs.uk/YourHealth/Pages/Autism.aspx . Comments can be sent to high-uhb.autismstrategy@nhs.net
1.4 Highland Autism Strategy: This strategy is based around the Scottish National Strategy for Autism (2011) and works to
achieve the four strategic outcomes outlined in the National Outcomes Framework. The outcomes and actions are informed by a
Human Rights Approach to ensure the equality of autistic adults in all areas of their lives. Taking a human rights based approach
is about making sure that people's rights are put at the very centre of policies and practices. Other National policies, guidance and
strategies that have influenced our strategy are included in Appendix 2.
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2. VISION, VALUES and OUTCOMES
2.1 The vision, values and outcomes outlined in the Scottish Strategy for Autism (2011) underpin the Highland Autism Strategy.
Highland has chosen to personalise these to meet the Highland context.
2.1 VISION: To contribute to the improvement of the quality of life for autistic people and their parent/carers in the Highlands.
This will be achieved through the development of better awareness, services, support and employment opportunities and
recognition that each autistic person is an individual.
2.2 VALUES: The PANEL principles, Five Ambitions outlined in A Fairer Scotland for Disabled People and a commitment to Co-
Production will be used to underpin the Highland Autism Strategy:
PANEL Principles
Participation: People should be involved in decisions that affect their rights
Accountability: There should be monitoring of how people’s rights are being affected as well as remedies where things go wrong
Non-discrimination: All forms of discrimination must be prohibited, prevented and eliminated. People who face the biggest barriers
to realising their rights should be prioritised
Empowerment: Everyone should understand their rights and be fully supported to take part in developing policy and practices which
affect their lives
Legality: Approaches should be grounded in the legal rights that are set out in domestic and international laws.
FIVE Ambitions
1. Support services that promote independent living, meet needs and work together to enable a life of choices, opportunities
and participation.
2. Decent incomes and fairer working lives
3. Places that are accessible to everyone
4. Protected Rights
5. Active Participation
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Co-Production
“Co‐production means delivering public services in an equal and reciprocal relationship between professionals, people using
services, their families and their neighbours. Where activities are co‐produced in this way, both services and neighbourhoods
become far more effective agents of change”. Scottish Co-production Network (accessed Nov 17). It is an expectation that
everyone involved in realising the aspirations of the strategy will work together utilising a co-productive model.
2.3 OUTCOMES: The National Outcomes Framework as set out by the Scottish Government National Autism Strategy Group
are used to structure and set priorities in the Highland Autism Strategy.
Outcome 1: Healthy Lives – people with autism enjoy the highest attainable standard of living, healthy family life and have timely
access to diagnostic assessment and integrated support services.
Outcome 2: Choice and control – people with autism are treated with dignity and respect and services are able to identify their
needs and are responsive to meet those needs.
Outcome 3: Independence – people with autism are able to live independently in the community with equal access to all aspects of
society. Services have the capacity and awareness to ensure that people are met with recognition and understanding
Outcome 4: Active Citizenship – people with autism are able to participate in all aspects of community and society by successfully
transitioning from school into meaningful educational or employment opportunities.
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3. THE HIGHLAND CONTEXT
Statements of Intent:
There is joint multi-agency vision and joint outcomes within the Highland Autism Strategy and Outcome Plan
All communications from the Highland Autism Strategy Group will be via a range of different media (eg email, reflective
videos, face to face meetings)
All communications to the Highland Autism Strategy Group will be accepted via a range of different media (eg email, online
forum). All forms of communication will be held with equal status
The Chair of the Highland Autism Strategy Group will ensure that the needs of autistic people are represented in all other
relevant NHS Highland & Highland Council strategy documents (eg Learning Disability strategy, Mental health strategy)
The Highland Autism Strategy will continue to evolve to meet changing needs and to reflect national priorities
Outcome 1: Healthy Lives – people with autism enjoy the highest attainable standard of living, healthy family life and have timely
access to diagnostic assessment and integrated support services.
Priorities:
Improved access to mental health resources and reduction of suicide rates among the autistic population
Increase knowledge, understanding and support for transitions through all life stages and events (eg pregnancy, school
holidays, bereavement, moving house etc)
Autistic adults, family members and those who support them formally and informally will have access to support, guidance
and information
Improved knowledge and understanding of autism
Ensure the needs of autistic carers and those who care for autistic people are met and they are empowered and supported
to continue their caring role
Improved access to diagnostic assessment service and post diagnostic support
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Outcome 2: Choice and control – people with autism are treated with dignity and respect and services are able to identify their
needs and are responsive to meet those needs.
Priorities:
Develop & commission a wider range of services and support provision opportunities available to support autistic people (to
ensure individuals can be supported in their local community)
Build capacity within community settings to ensure ease of access and a wide range of opportunities
Autistic adults have easy and genuine access to advocacy.
Outcome 3: Independence – people with autism are able to live independently in the community with equal access to all aspects
of society. Services have the capacity and awareness to ensure that people are met with recognition and understanding.
Priorities:
Autistic adults are confident that professionals are skilled and knowledgeable. Autistic adults are treated equitably and are
free from discrimination. Professionals have access to continued professional development. General public and
professional awareness of autism is raised.
Autistic adults and family members are involved in the development of a local Autism Strategy and its outcome plan
Access for autistic adults throughout life to employment, lifelong learning opportunities and social inclusion
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Outcome 4: Active Citizenship – people with autism are able to participate in all aspects of community and society by successfully
transitioning from school into meaningful educational or employment opportunities.
We have chosen to focus on the transitions for young people aged 14 – 25 years, other life transitions are recognised in the other
outcomes.
Priorities:
Positive transitions from school.
A consistent approach to Transitions and sharing good practice
More people with Autism will be accessing Apprenticeships or employment
There will be a stronger sense of self sufficiency (people know what’s available)
4. IMPLEMENTATION: It is the responsibility of all members of the Highland Autism Strategy Group to implement the
Highland Autism Strategy.
The Highland Autism Strategy Group oversees the work of 3 sub groups to ensure the outcomes of the Scottish National Strategy
are met. Each of these sub groups is working to achieve the vision and outcomes of the Highland Autism Strategy and Outcome
Plan. Each group has its own work plan that is discussed at the Highland Autism Strategy group.
These sub groups are:
Working Group 1: A Healthy Life (Outcome 1)
Working Group 2: Choice, Control, Autonomy and Independence (Outcome 2 & 3)
Working Group 3: Active Citizenship (Outcome 4)
This Outcome Plan also includes Highland Council Children’s Services Autism Strategy and the outcomes they aim to achieve.
Outcomes specific to Children’s Services are noted in GREEN and with the initials CS.
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Highland Autism Strategy Outcome Plan 2018 December 2017
Outcome 1: Healthy Lives – people with autism enjoy the highest attainable standard of living, healthy family life and have timely
access to diagnostic assessment and integrated support services.
What we are trying to achieve.
Improved access to mental health resources and reduction of suicide rates among the autistic population
What are we going to do? Who is How long
responsible for will this
this? take?
Ensure all workers in mental health services are informed regarding autism, using NES training NHSH
framework
Ensure the Highland Choose Life Plan is relevant to and meets the needs of autistic people
Train a range of staff in use of Decider skills, ensure access to Decider therapeutic interventions.
Ensure mental health staff can use Decider skills with Autistic people.
Increase availability and access to relevant, adapted, (if required) and evidence based
Psychological therapies
Increase knowledge of resilience, the supports available and the potential impact on mental
health
Ensure mental health services react appropriately to all co-occurring conditions and disorders
What have we achieved?
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What we are trying to achieve.
Increase knowledge, understanding and support for transitions through all life stages and events (eg pregnancy, school holidays,
bereavement, moving house etc)
What are we going to do? Who is How long
responsible for will this
this? take?
Ensure recognition and understanding of the range of lifelong transitions
Develop knowledge and relevant resources for older autistic people
CS: Further develop NDAS (Neurodevelopmental assessment & screening) pathway
CS: Continue to build paperwork into Child Plan process
What have we achieved?
What we are trying to achieve.
Autistic adults, family members and those who support them formally and informally will have access to support, guidance and
information
What are we going to do? Who is How long
responsible for will this
this? take?
Provide easy access to information about autism and services
CS: Draft plan for a range of courses to be run either from The Pines or pan Highland.
What have we achieved?
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What we are trying to achieve.
Ensure the needs of autistic carers and those who care for autistic people are met and they are empowered and supported to
continue their caring role.
What are we going to do? Who is How long
responsible for will this
this? take?
Ensure inclusion in the Highland implementation plan of the Carers (Scotland) Act 2016
Educate and inform autistic carers and those who care for autistic people regarding their rights
Signpost to organisations within the third sector who can provide support such as Carer Support
Plans and informal support
What have we achieved?
What we are trying to achieve.
Improved access to diagnostic assessment service & post diagnostic support
What are we going to do? Who is How long
responsible for will this
this? take?
Develop post diagnostic information packs with autistic community
Review and evaluate Highland diagnostic service
CS: Further develop NDAS (Neurodevelopmental assessment & screening) pathway
What have we achieved?
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Outcome 2: Choice and control – people with autism are treated with dignity and respect and services are able to identify their
needs and are responsive to meet those needs.
What we are trying to achieve.
Develop & commission a wider range of services and support provision opportunities available to support autistic people (to ensure
individuals can be supported in their local community)
What are we going to do? Who is How long
responsible for will this
this? take?
Ensure implementation of SDS legislation meets needs of autistic people
Increased creativity, flexibility and consistency of SDS options
Increased use of SDS options within the autistic community
SDS Option 3 commissioned support is person centred and individualised and is developed in
partnership with individuals and their families
Collaborate with autistic people and their families to understand their experiences with services
Ensure all support provision commissioned by NHS Highland and Highland Council meets the
needs of autistic people (including Care at Home, Housing Support, Care homes, Registered
Social Landlords etc)
What have we achieved?
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What we are trying to achieve.
Build capacity within community settings to ensure ease of access and a wide range of opportunities
What are we going to do? Who is How long
responsible for will this
this? take?
Ensure greater awareness and effect change in built environments to ensure they are able to be
flexible to meet individuals sensory needs (eg noise, lighting, smells etc)
To develop access to autistic space
What have we achieved?
What we are trying to achieve.
Autistic adults have easy and genuine access to advocacy.
What are we going to do? Who is How long
responsible for will this
this? take?
Develop plan for the implementation of a collective advocacy service
Develop partnership with advocacy organisations to improve access to independent advocacy for
autistic adults.
Develop and provide training to help autistic people and their guardian to advocate effectively
Ensure ease of access to supported communication aids (Alternative and Augmentative
communication AAC) as required.
What have we achieved?
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Outcome 3: Independence – people with autism are able to live independently in the community with equal access to all aspects of
society. Services have the capacity and awareness to ensure that people are met with recognition and understanding.
Autistic adults are confident that professionals are skilled and knowledgeable. Autistic adults are treated equitably and are free
from discrimination. Professionals have access to continued professional development. General public and professional
awareness of autism is raised.
What are we going to do? Who is How long
responsible for will this
this? take?
The development of a multi-agency training plan, informed by NES Training Framework,
Optimising Outcomes. (including health professionals, GP’s).
Conduct a training audit
Inclusion of autistic people in development and delivery of training
CS: Create a coherent training strategy offering courses to meet the needs of families and CYP Autism 2018-9
professionals Management
Group
CS: Continue to support Autism Champions (professionals who have gained Certificate or
Diploma in Autism Studies from Birmingham University). These Champions are based all over
Highland and form a network of trainers to support schools in their areas.
What have we achieved?
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What we are trying to achieve.
Autistic adults and family members are involved in the development of a local Autism Strategy and its outcome plan
What are we going to do? Who is How long
responsible for will this
this? take?
Develop communication strategy
Create stakeholder forums and communication frameworks with and for autistic adults and family
members, to include virtual media, open meetings, formal frameworks and to explore other
opportunities to engage as they arise.
Develop web page on NHS Highland website
What have we achieved?
What we are trying to achieve.
Access for autistic adults throughout life to employment, lifelong learning opportunities and social inclusion
What are we going to do? Who is How long
responsible for will this
this? take?
Develop stronger links with third sector, DWP, business organisations, further education etc
To explore opportunities to enhance resilience
Provide support for employment, health advice, money advice, food prep etc
What have we achieved?
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What we are trying to achieve.
To ensure that the needs of autistic people are met within the Criminal Justice system
What are we going to do? Who is How long
responsible for will this
this? take?
Develop stronger links with all sectors within Criminal Justice
Increasing knowledge and understanding of autism
Ensuring individuals are treated fairly and equitably
What have we achieved?
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Outcome 4: Active Citizenship – people with autism are able to participate in all aspects of community and society by successfully
transitioning from school into meaningful educational or employment opportunities.
What we are trying to achieve.
Positive transitions from school.
What are we going to do? Who is How long
responsible for will this
this? take?
Use evaluation of Bigger Picture against the Principles of Good Transition’s outcomes to inform group next steps July 2018
Develop a very simple QA framework to support the transition process pre and post school Shirlie Project Sept 2018
Principle 1. Planning and decision making should be carried out in a person-centred way Chair Dec 2018
Principle 2. Support should be co-ordinated across all services Chair Dec 2018
Principle 6. Families and carers need support Chair Dec 2018
What have we achieved?
What we are trying to achieve.
A consistent approach to Transitions and sharing good practice
What are we going to do? Who is How long
responsible for will this
this? take?
Use evaluation of Bigger Picture against the Principles of Good Transition’s outcomes to inform group next steps Shirlie Project July 2018
Develop a very simple QA framework to support the transition process pre and post school Shirlie Project Sept 2018
Principle 1. Planning and decision making should be carried out in a person-centred way Chair Dec 2018
Principle 2. Support should be co-ordinated across all services Chair Dec 2018
Principle 3. Planning should start early and continue up to age 25 Chair Dec 2018
Principle 7. A continued focus on transitions across Scotland Chair Dec 2018
What have we achieved?
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What we are trying to achieve.
More people with Autism will be accessing Apprenticeships or employment
What are we going to do? Who is How
responsible for long will
this? this
take?
Improve access to foundation apprenticeships Developing June
Young Workforce 2018
Ensure access to career progression pathways post school Chair June
2018
Ensure opportunities for good quality work experience while at school Developing June
Young Workforce 2018
Support transitions to continuing education to develop skills for learning, life and work in line with key documents UHI Inverness
“Principles of Good Transition 3” and Supporting You at College; A guide for people with additional support needs in College
Scotland’s colleges
Principle 1. Planning and decision making should be carried out in a person-centred way Chair Dec 2018
Principle 4. All young people should get the support they need Chair Dec 2018
Principle 5. Young people, parents and carers must have access to the information they need Chair Dec 2018
Promote clear and transparent information through the Hi Hope website Highland Council Sept
2018
What have we achieved?
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What we are trying to achieve.
There will be a stronger sense of self sufficiency (people know what’s available)
What are we going to do? Who is How long
responsible for will this
this? take?
Develop a very simple QA framework to support the transition process pre and post school Shirlie Project Sept 2018
Identify local progressions for career, employment and quality of life opportunities Shirlie Project Oct 2018
Promote clear and transparent information through the Hi Hope website Highland Council Sept 2018
Hold inclusive Transitions Conference incorporating young autistic people leaving school in May 2018 Chair / HC May 2018
Principle 5. Young people, parents and carers must have access to the information they need Chair Dec 2018
What have we achieved?
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Appendix 1:
Membership of Highland Autism Strategy Group
Chair – NHSH Area Services Manager NHSH Complex Case Planning Manager
ARGH Representative Social Work Lead
HOSS (Autism Initiatives) Rep Highland Council Children’s Services Rep
Further / Higher Education Rep Friends of Autism Highland
Older Person Rep Highlands & Islands Autism Society
Third Sector Support Providers Rep Autism Diagnostician
Supported Employment Rep Sub Group Leads & Depute
Autism Network Scotland Police Scotland
Housing Mental Health Services Rep
NHSH Dental Services Department of Work & Pensions
Learning Disability Rep Carers Rep
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Appendix 2.
Other National policies, guidance and strategies that have influenced our strategy:
The Scottish Strategy for Autism, Scottish Government (2011)
Education (Additional Support & Learning) (Scotland) Act 2004
Getting it Right for Every Child (GIRFEC) Scottish Government 2008
Children and Young People (Scotland) Act 2014, Scottish Government
Self Directed Support Scotland Act (2013)
The Keys to Life: Improving Quality of Life for People with Learning Disabilities, Scottish Government (2013)
Mental Health Strategy for Scotland
Carers (Scotland) Bill
Adults with Incapacity Act (Scotland) 2000
Equality Act 2010
Human Rights Act 1998
A Fairer Scotland for Disabled People – Delivery Plan
United Nations Convention on the Rights for Persons with Disabilities (2006)
Autism Dividend , The National Autism Project 2017
Principal of Good Transition 3, Scottish Transitions Forum (2017)
Supporting you at College A guide for people with additional support needs in Scotland’s colleges 2016-17, Scottish
Government (2016)
The parents’ guide to additional support for learning, Enquire (2017)
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Appendix 3
Glossary
NHSH National Health Service Highland HC Highland Council
NAS National Autistic Society DYW Developing Young Workforce
NES NHS Education Scotland
AAC Augmentative and alternative communication
HASG Highland Autism Strategy Group
SDS Self Directed Support
QA Quality Assurance
CYP Children & Young People
CS Children’s Service
DECIDER SKILLS The “Decider” skills training package, which compromises of 32 skills drawn from standard cognitive
behavioural therapy and third wave cognitive behavioural therapies, was developed by Guernsey-based cognitive
behavioural therapists to improve communication about emotions and self-management between people, family and staff.
The skills can be used be used for people with a range of mental health issues, but it is also useful as a means of helping
everyone enhance their emotion management skills to promote good mental health for everyone.
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WE NEED YOUR VIEWS:
We would like to hear your views. You can comment on any aspect of the draft Highland Autism Strategy & Outcome Plan.
Here are some specific questions that we would welcome your comments on. You do not have to answer all the questions.
Is there anything missing from the Strategy and Outcome Plan?
Is there anything that shouldn’t be included?
Which 3 outcomes should we prioritise in Highland?
Any other comments.
Age range:
Please tell us a little about yourself: I am / I care for / I work with
I am an autistic person I live in Inverness Male Under 18yrs
I am related to an autistic I live elsewhere in Female 18 – 65yrs
person Highland
I am a professional I live outside Highland Other Over 65yrs
Other
Please return via email to: high-uhb.autismstrategy@nhs.net
or by post to Highland Autism Strategy, Alder House, Cradlehall Business Park, Inverness IV2 5GH
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