Jelly Bean Ball 2021 WELCOME TO THE DANII foundation

Page created by Danielle Lee
 
CONTINUE READING
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
WELCOME TO THE
            DANII foundation
            Jelly Bean
            Ball 2021
             SATURDAY 19TH JUNE 2021,
             HYATT REGENCY, SYDNEY

                                             GOLD SPONSOR

       Committed to Education & Advocacy for Type 1 Diabetes and to the Development and Introduction of new Technologies,
                      to provide Support and Security for the management of Type 1 Diabetes. DANII.org.au

DF_A4 2021 Booklet v10 sw 20210616.indd 1                                                                        17/06/2021 8:54:37 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
As Australia’s largest network of independently owned corporate travel providers, we
         understand the challenges in running a successful business better than anyone else.
        We are uniquely structured to provide a personal, professional service and have access to the best rates.
        Put simply you get the benefits of a nimble business partner, combined with access to competitive prices
                                      and savings, via our collective buying power.

                Local Service with Global Reach
                       Contact us today to find out how we can help you.

                                hwfb.com.au     enquiries@helloworldbusinesstravel.com.au

          PROUD GOLD SPONSOR OF
           THE JELLY BEAN BALL IN 2021

DF_A4 2021 Booklet v10 sw 20210616.indd 2                                                                 17/06/2021 8:54:41 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
EVENING EVENTS

       Welcome to the 9th
       Annual DANII Foundation
       Jelly Bean Ball!
       We have a fabulous evening planned for you with
       dinner, entertainment, dancing and celebrating
       our foundation mile-stones achieved and the
       legacy of Daniella on what would have been today
       her 27th Birthday. Our 2021 Foundation theme is
       BRAVE!
       Celebrity Emcee for our evening this year is Rod
       Kafer and Live Auctioneer Vic Lorusso. Special
       Celebrity guests Justin Melvey, Ada Nicodemou
       from Home & Away with live performances from
       the Australian Girls Choir. Our Main-Act is Speed
       Artist Brad Blaze, with Kerrie Garside and our
       resident live band to dance the night away with
       the Lakeside Lovers.
       During the course of the evening there will be a
       Live Auction and plenty of Silent Auction Ballot
       Bidding opportunities for you to put your best
       bid forward. This year as always we have some
       fantastic prizes.
       Please have some fun with our Social Media
       Hashtags, and be sure to visit our French
       Champagne Bar.
       We hope you enjoy yourselves and together we
       hope to raise much needed funds to support the
       type ONE Diabetes community.
       Happy Bidding!

                                            Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 03

DF_A4 2021 Booklet v10 sw 20210616.indd 3                                                                                     17/06/2021 8:54:53 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
DANII FOUNDATION UPDATE

       #NOMOREFEAR
       2021 AND BEYOND:
       SUPPORT FOR EVERY AUSTRALIAN
       LIVING WITH TYPE 1 DIABETES
       These last 18-months have certainly been a challenge for many including our DANII Foundation. Covid presented many
       hurdles in this social-distancing world that has fast become our reality of what seems to most of us today as our NEW
       Normal! That said, we are pleased to share that our DANII Team and Volunteers have forged ahead and continued to
       creatively advocate for a Type 1 Diabetes Voice as well as adapted to further education via social channels on what Type
       ONE diabetes is like to live with and how Continuous Glucose Monitoring (CGM) and new diabetes technologies both saves
       and changes lives.
        Type 1 diabetes is not a disease that happens due to poor diet, it is an auto-immune disease for which the cause is still very much un-known.
       Without a cause, there is still no cure. Evolving management technology is the closest we can dream for.

         Our social media pages have been overwhelmed with personal accounts of how CGM technology has changed the lives of T1D’s and their
       families. Parents have experienced sleep, and T1D’s tell us great stories of regained confidence and renewed positivity for life. Many report
       very real improvements in their HBA1C ~ which is a glycated haemoglobin measurement that enables clinicians to get an overall picture
       of what average blood sugar levels have been over a period of weeks/months. In some cases there have been massive improvements and
       stability unknown to the individual in the past and “time in range” has become a new level of diabetes management.

         The documented health benefits of well controlled diabetes cannot be underestimated. When we see the serious morbidity of poorly
       controlled diabetes, including the high health costs of complications, it is easy to understand the very real cost saving of CGM and evolving
       diabetes technologies over the medium to long term.

          When our Government rolled out Stage 1 of CGM funding, Teens’ who were age 17 in 2017 are now in 21 in 2021. At age 21, our government
       no longer provides funding for these young people who are at the beginning of their adult lives. Many at university, funding car and private
       health payments, just moved out of home and embarking on their new careers. Sadly at around $5000 a year, the cost of CGM is way out of
       the range of these young adults and so they now find themselves unable to continue to self-fund this technology that has transformed their
       life and given them a new sense of safety and hope.

         2019 brought Stage 2 CGM funding gifting Australian women pregnant and planning free access to glucose monitoring devices as well as
       a hand-full of health-card holders. Yet again when baby is born, these new mothers tell us they cannot afford to continue the cost of CGM
       and so like those turning 21, they reach out to DANII requesting financial support.

         Following Stage 2 funding, the DANII Foundation did not wait long to start the campaign for those over the golden age of 21. 2020 and
       this year to date has been somewhat quieter on the government relations front, primarily a direct result of governments focus on Covid
       safety of our overall Australian population. Whilst DANII played a leading role in securing and implementing Stage 1 and Stage 2 CGM
       government funding packages, we continue to keep communication lines open with government and health officials. DANII continues to drive
       our #NoMoreFear campaign, targeting Federal politicians to support an extension of CGM funding for ALL. With an election looming we are
       hopeful to again see a bi-partisan election commitment for Stage 3 funding. DANII friends are collectively focused on presenting Government
       with the financial savings that CGM will ultimately provide. Real saving on the public purse by avoiding costly health complications including
       but not limited to mental health, limb amputations, organ failure, and eye disease.

          Whilst CGM funding to date has been a gift to around 43,000 type 1 Australian’s, sadly for many CGM funding was a gift of life and safety
       that has since been revoked due to age or maternal circumstance. DANII foundation continues our work with the Medical Services Advisory
       Committee (MSAC) in their 2021 review of CGM products available on the NDSS. Our message and advice remains clear that CGM is both a
       clinical and cost effective device that should be made affordable to all. Whilst we understand the limitations of government funding and the
       need for a staged approach. We are now calling on the government to release any data they have on the first 48 months of CGM funding. We
       believe there will be a wealth of evidence to support our stream of anecdotes that demonstrate life renewed.

          DANII is the only organisation to provide free CGM trials and an extensive 12-month scholarship program. To date we have provided
       over 1200 CGM trials and 412 CGM 12-month fully funded scholarships. Each CGM scholarship is a life changed and saved at a cost of
       around $5000. Our focus continues to financially and emotionally support Australians’ most vulnerable and at risk into diabetes management
       technologies. Our commitment to political advocacy is considerable, despite the Foundations limited resources we continue to lobby and
       influence the political agenda and also to support our friends when they engage politicians and the media in their local community. Our initial
       rounds of success was overwhelming and we proudly achieved this in a very short timeframe.

         Our DANII focus continues in supporting and educating our diabetes community. Our foundations success in saving and changing lives is
       thankfully supported by the wider community we continue to serve ~ #daniisgift

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 4                                                                                                   17/06/2021 8:54:55 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
#DANIISGIFT

                                            Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 05

DF_A4 2021 Booklet v10 sw 20210616.indd 5                                                                                     17/06/2021 8:55:02 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
ABOUT US

                                                     A WIN FOR
                                                     TYPE 1 KIDS,
                                                     BUT THE FIGHT
                                                     IS NOT OVER…
                                                     Firstly I want to say thank-you for being here tonight, supporting
                                                     the foundation that changed our lives...

                                                     It is just over 9 years since our world was turned upside down. My 11 year
                                                     old daughter, Monique was diagnosed with Type 1 Diabetes (T1D) when an
                                                     unexplained autoimmune response killed all the insulin producing cells in her
                                                     pancreas. Life cannot exist without insulin, so there is no time to gather your
                                                     thoughts, treatment commences and never ends. To keep her alive I became
                                                     responsible for calculating and administering a lethal drug that if miscalculated
                                                     could have catastrophic consequences.
                                                        Every minute of every day is spent fearing for the future of your child, no matter
                                                     what age they are. Type 1 Diabetes never ends. You never outgrow this disease,
                                                     it doesn’t become more manageable with age or maturity, it never rests or takes
                                                     a holiday, it is 24/7 for the rest of your life. I cannot adequately describe the fear
                                                     that responsibility invoked from that day. And that was nothing compared to
                                                     the fear that overcame Monique, ultimately resulting in a diagnosis of anxiety
                                                     disorder. I could not believe in an age of technology and medical advancement,
                                                     such archaic methods were used to manage this relentless disease. So began
                                                     the search for answers, and standards of care in other parts of the world.
                                                        This led me to the newly established DANII Foundation, and two grieving
                                                     parents, who were living my worst nightmare. Daniella’s death could have been
                                                     prevented. A Continuous Glucose Monitor (CGM) would have saved her life,
                                                     but the Australian T1D community were in the dark. Donna and Brian made a
                                                     promise to their Angel, not to stop until this device was approved, affordable and
                                                     readily available to every Type 1 Diabetic. I’m so grateful I crossed their path.
                                                        The Foundation took on the unenviable task of lobbying our government for
                                                     approval of CGM followed by the grueling campaign for its prohibitive cost to
                                                     be subsidised. They started raising awareness about “What is type ONE” and
                                                     fundraising through events like tonight’s Jelly Bean Gala Ball to bring to Australia
                                                     the device and provide CGM trials and Insulin Pump/CGM scholarships to
                                                     assist those most at risk. Those who are hypo unaware, or pregnant managing
                                                     erratic hormone affected bloods sugars, or the T1D suffering complete burnout
                                                     from years of managing this relentless disease, and families like mine - sleep
                                                     deprived and struggling to provide proper diabetes care to their child crippled
                                                     with debilitating T1 related anxiety. These trials and scholarships have changed
                                                     thousands of lives, including mine.
                                                        5 years of relentless campaigning and the impossible was achieved. In April
                                                     2017, “DANII’s Gift” was partially realised. CGM was made available through
                                                     Federal Funding to all T1D’s under the age of 21. I cannot describe the relief I
                                                     felt. This device has had such a positive impact on absolutely every aspect of my
                                                     entire family’s life. I had lived for 5 years in a constant state of sleep deprivation,
                                                     compromising the care of my children, my ability to work, to manage my home
                                                     and care for myself. I can now Sleep! I rely on CGM technology to alarm and

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 6                                                                                         17/06/2021 8:55:07 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
#DANIISGIFT
                                                                                This makes me feel both gratitude and guilt. Why is Monique’s
                                                                             life more important than the 21 year old starting out in life, the
                                                                             31 year old starting a family, the 41 year old trying to hold down
                                                                             a job and raise teenagers or..... Why is my sleep deprivation or
                                                                             my fear more valid than the mum of the 50 year old, living alone
                                                                             in another state? This privilege is not shared by an estimated
                                                                             97,000 Type 1 Diabetics over the age of 21. They continue to
                                                                             live in fear, or bear the enormous costs of self-funding this life
                                                                             saving device, because unlike a pacemaker, it is not funded by
                                                                             Medicare or private health insurance.
                                                                                Donna and Brian’s’ and the DANII Foundation’s mission was
                                                                             and still is all about saving lives. Not just preventing death, but
                                                                             allowing all T1D’s and their families to be free of overwhelming
                                                                             fear and really live their lives.
                                                                                My plea tonight is for each and every one of you to commit to
                                                                             saving the life of all Type 1 Diabetics’, by supporting the work of
                                                                             The DANII Foundation. Can you help us FIGHT ON and provide
                                                                             DANII’s Gift to every single T1D. We need your help to continue
       wake me when Monique’s blood glucose falls or rises too               raising awareness, to provide education about advancements
       quickly. During the day I can finally breathe, knowing an alarm       in T1D care, to continue providing support and education
                                                                             through loan and scholarship programs to improve the lives of
       will alert Monique or her teachers at school. She can attend
                                                                             T1d’s today and to change the status quo by lobbying for CGM
       a party or sleepover without the gut wrenching worry that
                                                                             to be made available and affordable for all T1’s.
       something could go terribly wrong. She now has the space and             For whatever contribution you can make, we say a heartfelt
       freedom to be more independent, to be a “normal” teenager, to         thank-you, because without the work and support of Donna,
       take on a part-time job and to learn to drive. But the biggest        Brian and the DANII Foundation, I can honestly say Monique
       gain has been watching my beautiful, happy girl return. CGM           and I would most definitely not be “living life.”
       has given her, her life back.                                            Rachel & Monique Cambrey, Vic

       EVERY CHILD GROWS TO BE 21 YEARS
       ~ EVERY AUSTRALIAN DESERVES ACCESS TO THIS LIFE-SAVING AND LIFE-CHANGING TECHNOLOGY
                                                                                                                  “That’s my
                                                                                                                  ambulance
                                                                                                                  pulling away after
                                                                                                                  responding to a
                                                                                                                  Dexcom alarm.
                                                                                                                  That’s the drive away
                                                                                                                  after they come in
                                                                                                                  bust in my door load
                                                                                                                  me with IV dextrose
                                                                                                                  bring me back sit
                                                                                                                  with me for an hour
                                                                                                                  until I level off. No
         “First day on CGM trial and it’s an absolute
                                                                                                                  CGM=no life for
         life changer!! I’ve gone back to work after                                                              me. This is the grim
         insertion and caught a hypo before it                                                                    reality. CGM’s are
         happened. I can already see how beneficial
                                                                                      HAPPY 16TH                  needed. Absolutely
         this technology is. It shows my up and                                        BIRTHDAY                   needed. Coverage is
         down trends making planning my next
         doses more accurate. Thanks so much                                         TODAY OLIVIA                 a must. I’m Ella and
         DANII Foundation, looking forward to                                                                     I support the DANII
         amazing numbers over the next 13 days.”                                    FROM ALL YOUR                 Foundation”
         Mitchell Cole                                                              DANII FRIENDS!                Ella Arden Grace

                                               Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 07

DF_A4 2021 Booklet v10 sw 20210616.indd 7                                                                                             17/06/2021 8:55:10 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
BOARD OF DIRECTORS
                                  Donna Meads-Barlow Co-Founder I Director I Volunteer Acting CEO
                                  Donna Meads-Barlow was born in 1961 in Sydney, NSW. She is co-founder and Director of the DANII Foundation
                                  and Managing Director of the Donna Barlow Travel Group (DBT). Donna Meads-Barlow has more than thirty-
                                  five (35) years Business Travel Management experience, the last twenty-eight at DBT since she founded the
                                  company.
                                     Donna is Managing Director of Donna Barlow Travel Group (DBT) and oversees the high-level management
                                  of her DBT company. Donna has a sincere passion for her company, her team, her customers and the travel
                                  industry as a whole. Her guidance of these partners is impeccable and fundamentally rewarding. Donna is
                                  arguably the best “engineer” in the Travel industry and is often called upon by her peers for guidance and
                                  assistance. In 2012 following the death of her daughter Daniella from diabetes complications known today
                                  as “dead in bed” syndrome, Donna co-founded the DANII Meads-Barlow Foundation Ltd with husband, Brian
                                  Meads-Barlow. Today Donna drives and directs the DANII Foundation supporting people across Australia who
                                  live with type ONE diabetes. Donna sat on the Corporate Travel Board for the Helloworld group from 2009
                                  till 2014 and as a representative on a number of steering committees for the Travel Industry. Donna and her
                                  DBT company have won many prestigious awards over the years including Best Travel Management Company
                                  Nationally, Telstra Business Women’ finalist, nomination for Australian of the Year just to name a few. In 2017
                                  Donna was recognised by Finder.com.au as one of 16 Most Valued Professionals Health and in 2018 Donna was
                                  awarded the Inaugural Blackmores International Women’s Day Award.

                                  Brian Meads-Barlow Co-Founder I Director
                                  Brian Meads-Barlow was born in London UK in 1957 and immigrated to Australia with his family in 1968 where he
                                  grew up and schooled to later become Director of the Donna Barlow Travel Group (DBT) in 1994 and the ensuing
                                  DANII Meads-Barlow Foundation in 2012. Brian’s tertiary studies include Business, Scheduling/Timetabling;
                                  Marketing and Information Technology. His current employment relies heavily on these qualifications as well
                                  as his ability to demonstrate efficient publicising across Social Media platforms. Brian is father to five children,
                                  including Daniella; his daughter sadly lost due to complications surrounding her Type 1 Diabetes in 2011. He is an
                                  integral but often quiet member of the DANII Meads-Barlow Foundation Board of Directors.

                                  Robert Bryan Cameron Chair
                                  Robert Cameron Bachelor of Laws (LLB) from University of Sydney 1980. Robert is recently retired from
                                  Cameron Legal, a successful and busy legal practice in Epping, NSW. Robert has over 35 years’ experience
                                  as a solicitor, his practice covering a wide range of legal services. Robert has been heavily involved in serving
                                  the community and charitable organisations for many years. Robert has been a member of the board of the
                                  DANII Meads-Barlow Foundation Ltd since its inception in 2012 and is committed to ensuring DANII’s Legacy in
                                  providing benefits to all living with type 1 diabetes.

                                  David Harrison Director
                                  David Harrison is a director of EFS Strategic, Elite Financial Solutions Group and Refresh Finance. He is a
                                  public practice accountant and financial advisor with over 25 years’ experience working with small to medium
                                  enterprises. He is passionate about helping build sustainable businesses and families achieve financial freedom.
                                  David has worked with a large number of businesses across many industries and has been instrumental
                                  in developing and implementing systems and processes to improve profitability and sustainability. He has
                                  mentored many employees in his time and finds great motivation in coaching others to perform above and
                                  beyond expectations. With a willingness to adapt to change David has championed technology and has
                                  involvement in a number of online start-up businesses. David previously held a senior board position for over
                                  10 years at Ballet Australasia Limited and in this time helped build and develop strong foundations for the
                                  organisation. As an accountant and advisor he continues to assist and guide many not for profit organisations
                                  and charities still. David is a founding Director of DANII Meads Barlow Foundation Ltd joining the board in 2012.

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 8                                                                                                   17/06/2021 8:55:15 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
SUPPORT TEAM
                                                                                          Joanne Abboud
                                                                                          DANII Foundation Events Manager
                                                                                         Joanne joined the DANII Foundation in August
                                                                                         2019. Owning and running an event business,
                                                                                         Joanne has decades of experience developing
                                                                                         relationships and providing exemplary customer
                                                                                         service. Joanne is passionate about making a
                                                                                         difference and helping others. Joanne’s two
                                                                        young children have created an avenue for fundraising and helping
       Jessica Boulis Director                                          those around her through the school and local communities.
       Board Member ▪ Executive Assistant at Macquarie                  Joanne’s attention to detail and passion for connecting with
       Group                                                            others makes her the perfect addition to DANII Foundation
       General management, marketing and sales professional             teams. Joanne is looking forward to many more successful and
       with an outstanding track record. Previous Real Estate           prosperous years assisting people living with type 1 Diabetes
       experience as Executive Assistant, Property Officer and          through the DANII Foundation.
       Personal Assistant. Jessica completed her education
       at University of Sydney with a Degree Bachelor of
       Applied Science – BASc in the Field Of Studying Speech-                            Blerina Mesiti
       Language Pathology/Pathologist. Key strengths include                              DANII Foundation Advocacy
       Business management, strategic planning, identifying                               CGM Co-ordinator
       and securing new business opportunities, leadership,                                Blerina joined the DANII Foundation in December
       and organisational skills. Director of the DANII Meads-                             2019 as the Administration/CGM Coordinator.
       Barlow Foundation since 2020.                                                       Bler has a Master of Science degree and is
                                                                                           passionate about the environment and moved
                                                                                           to Australia from Albania last year to live with
                                                                        her husband Eddie. Bler has an extensive background in office
                                                                        administration, services, events and project management. Bler
                                                                        is honest, kind, caring and compassionate with a great attention
                                                                        to detail and excellent customer service skills. She is your first
                                                                        point of contact when you get in touch with the DANII Foundation.
                                                                        In Albania she was involved with many charities for fundraising
                                                                        events and we are lucky to have her experience. Always eager
                                                                        to make a difference and Bler is passionate about our cause of
                                                                        keeping those with diabetes safe.

       Peter Fogarty Director                                                             Patrick Cameron
       Peter was born in 1979 in Sydney. Bachelor of                                      DANII Foundation Fundraising Director
       Laws from University of Technology Sydney, Master                                  Prior to joining 360HR Patrick was a Chief
       of Applied Finance from Kaplan and currently                                       Executive Officer (CEO) and an award winning
       completing a Master of Laws at The University of                                   professional fundraiser gaining a wealth of
       Sydney. Peter has over 17 years’ experience working                                experience, expertise and in depth knowledge
       in legal and compliance roles in the financial services                            of the not-for-profit (NFP) sector including
       industry.                                                                          the challenges of recruiting staff. 15 years
          Peter has type 1 diabetes. He was diagnosed as a              of experience was gained in senior fundraising positions for
       12 year old and in his early 20’s had hypoglycaemia              organisations that included Care Flight, Make-A-Wish Australia,
       in his sleep resulting in coma, he was fortunate to be           Wheelchair Sports NSW and CEO at FSHD Global Research
       found by a family member and received life-saving                Foundation. Patrick also works consulting to NFP’s and has been
       medical attention. Peter is passionate about sharing             working with the DANII Foundation since 2016.
       his personal experience of living a full life with type
       1 diabetes.
          Peter joined as a Director of DANII Meads-Barlow
       Foundation Ltd in 2018.

                                             Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 09

DF_A4 2021 Booklet v10 sw 20210616.indd 9                                                                                         17/06/2021 8:55:23 AM
Jelly Bean Ball 2021 WELCOME TO THE DANII foundation
OUR MISSION

                                             DANII FOUNDATION VISION AND VALUES

                        vision
                          A world where people with type 1 diabetes live
                          without fear of never waking up.

                             mission                               To make affordable, life-saving alert technology a
                                                                   reality for people with type 1 diabetes. To educate
                                                                                  and advocate for a Type ONE Voice.

                                    values
                                    Innovative, compassionate, inspirational, caring, driven, focused, brave.

                     What is Type 1 Diabetes
                     DIABETES THE FACTS: Type 1 diabetes is the fastest growing chronic disease in Australian children. There are
                     over 140,000 Australians with type 1 diabetes and with six new cases every day. Australia has one of the highest
                     incident rates in the world. The number of Australian children being diagnosed with this disease is increasing by
                     almost 6.5% every year. Striking both the young and adults, type 1 diabetes destroys the ability to produce insulin,
                     which is vital for life. It requires an essential daily regime of multiple injections or continuous infusion of insulin
                     through a pump, as well as up to 12 finger-prick blood tests. Type 1 diabetes is associated with a significantly
                     increased risk of serious health complications. An autoimmune disease, type 1 diabetes is thought to be caused
                     by a complex mixture of genetic and environmental factors but not by an unhealthy diet or obesity. The number of
                     Australians diagnosed with diabetes is expected to grow to 3.5 million by 2033.

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 10                                                                                               17/06/2021 8:55:26 AM
A DAY IN MY LIFE

                                                                                  THE
                                                                                  LIFE
                                                                                  OF A
                                                                                  YOUNG
                                                                                  DIABETIC…
                                                                                            BY DANIELLA MEADS-BARLOW 2008

         I was at school. It was almost half past four in the                 down when I got across the road and do another test, it was
       afternoon and I had been studying at the library. I sat                getting really hectic. I knew I was really low as I crossed the
       at my locker and did a test because I was hungry and                   road. I burst into tears. I couldn’t see properly anymore and I
                                                                              was crying so hard that the people that walked past probably
       all I wanted was those chocolate in and out Oreo like
                                                                              thought I had a brain problem. I didn’t know what to do. I tried
       cookies. So I did.
                                                                              to get a lady’s attention to get her to help me. She looked and
         The pricker gave me a soft flick and I squeezed my finger
                                                                              I tried really hard to get out what I had to say. I said, “Help.
       so blood came out for me to put in the Meter. I was happy
                                                                              Please help me. Please!” she stopped and so did some other
       with myself, as the reading was a good one (7.1) after a whole
                                                                              ladies.
       humid day of not normal readings (9 and up). So I had the
                                                                                 I was so lucky that I had my diabetes band on thanks to the
       delicacy that they are and got one to the walk down through
       Greenwood Shopping centre to the North Sydney Train                    south coast diabetes camp people. One of the ladies was a
       station. I looked at the Diva shop but didn’t stop on my way.          nurse and saw it and went into the Toyota shop to see if she
       Some of the jewellery was huge. I think that they just keep            could get some food for me. I was very thankful for the three
       getting bigger and in some cases better.                               ladies that helped me and calmed me down, and then I could
         Then down pass the fruit grocers. Eventually down the                talk to them and tell them what was really going on. I don’t
       stairs to the platform. It was three minutes till we got on the        know how long I was there, but I was horrified.
       train and it was packed upstairs and down like in the morning,            It is so scary to go through something like that. I am sure it
       but it wasn’t that bad in the main area, I even got to sit down. I     would have been just as scary to watch it happen to someone.
       was reading the latest book for me, which was Hating Alison            I don’t remember much, but I do remember the lady Jacqui
       Ashley by Robin Klein. I was hoping to see the movie once I            that walked me to my street. I saw the next-door neighbours
       had finished the book.                                                 and walked through my house gate. I dropped my stuff and
         Then I felt myself getting tired and more tired. I felt dizzy in     ran into the office where my Dad was and gave him a hug. I
       the head, so I did another test. At a low, I had an apple juice        was so happy to see him and feel properly safe again.
       and kept walking. I went the escalator. So did my level again,            Diabetes isn’t always easy, as you may have noticed. And
       but still I was not high enough. I felt like I was going down fast,    people need to be aware of it. But thank-you to those who
       and as I got to the Pacific Highway crossing cars zooming in           helped me back to safety. I feel much better now and more
       front of me. I waited for the traffic lights. I was going to sit       than that, I feel happy and safe.

                                                Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 11

DF_A4 2021 Booklet v10 sw 20210616.indd 11                                                                                           17/06/2021 8:55:28 AM
YOUR STORY IS OUR STORY

                                                             WHY I
                                                             DREADED
                                                             TURNING 21!
                                                             BY: LIBBY WILSON

                                                             DANII CGM Scholarship Recipient

         Words cannot describe how deeply grateful I am                      This is on top of everybody’s everyday dilemmas and
       for the opportunities and freedom there is with the                 activities - such as working full time, studying, saving money,
                                                                           weddings, funerals, birthday parties, travel, friendships,
       Continuous Glucose Monitoring (CGM). For just a few
                                                                           relationships, dating, cleaning, errands, holidays, exercise,
       years I had the privilege of accepting Government                   cooking, pets, family, friends and more.
       funded CGM, which in turn, improved my HBA1C,
       and significantly reduced my hypoglycaemia and                        Being diabetic is excruciatingly hard, frustrating and
       hyperglycaemia episodes.                                            exhausting. It is not rewarding and there are none to very little
                                                                           upsides. It is time consuming, emotionally draining, physically
         Devastatingly, last year I turned 21 - I was no longer eligible   painful and expensive to say the least. It is relentless. There
       for subsidised access to the CGM. My Gift of CGM was taken          will never be a moment in my life from this day on where I
       away! This put me under significant and serious financial,          won’t have to manage or think about diabetes. It never takes
       physical and emotional stress. I knew immediately I would           a break. Even when I’m asleep it is still there.
       not be able to afford my freedom and better health.
                                                                             As I approached my 21st birthday I also applied to the
          Science, statistics and several studies have proven how          DANII Foundation for a CGM Scholarship. Thankfully, I was
       extremely beneficial a Continuous Glucose Monitor (CGM)             granted #daniisgift to help me through these next 12 months.
       is for an insulin-dependent diabetic. So, I will not repeat the     Technology like the CGM lets me feel somewhat normal. It
       evidential facts. Instead, I would like if you could read into      takes the pressure and stress off worrying “will I make it
       a small glimpse of my daily life and let you decide just how        through the night?”… CGM helps ease the anxiety of doing
       important CGM funding for all is.                                   activities that will likely alter my sugar-levels dramatically
                                                                           without my noticing. To give an example, even the degree
         I would like to think I am a good example of understanding        of weather temperature can drop or spike blood sugars to a
       both worlds of nondiabetic and diabetic living. For example,        dangerous or deadly level.
       I was diagnosed a week before my 18th birthday, almost 4
       years ago. Which meant I had grown up normal. I understand            With the CGM I feel more in control of my own body, it
       how most of us think about diabetes, I mean exercising and          helps me live a somewhat normal life and my general health
       healthy eating seems to work for people… right? False. Type         continues to improve. My CGM has become my life-saver – I
       1 diabetes is so much more than that! It is repetitive injecting    hold down a great job, I pay my taxes, do activities, recover,
       multiple times per day and night, suffering bruises. Falling        sleep at night, then do it all again.
       extremely ill, enduring high ketones which is acidity in the
       blood which can kill within hours. Managing hyperglycaemia
       and hypoglycaemia - can also kill, but within minutes.
       Pricking fingers until blood comes out, up to but not limited
       to 12 times per day without the CGM.

         Doing this forever is a lot. Waking up exhausted. Dealing
       with UTI’s -turned kidney infections. Seizures, arthritis,
       tonsillitis, retinopathy, migraines, infected wounds, IBS and
       that’s just to name a few short-term effects. Not to mention
       the severely damaging and deadly long-term side effects.

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 12                                                                                        17/06/2021 8:55:31 AM
#DANIISGIFT

                                                    TRAVELLING DANII BEARS
                                                        These travelling bears bring comfort and friendship and they help
                                                        us spread awareness about “What is type 1 diabetes”. Whilst our
                                                        DANII Friends ‘bear-sit’ they document their day-to-day lives into
                                                        a diary that travels with the bear. This community programme is
                                                        gathering a rich collection of personal stories and continues to build
                                                        new friendships ultimately forming a stronger diabetes network

                                                        This programme symbolises the mantra DANII lives by of impacting
                                                        on the here and now, helping to improve daily lives. These photos
                                                        tell us just how much we are making an impact.

                                                        You can support our travelling DANII bears programme by buying a
                                                        bear, name your bear and donate bear back to the foundation. Help
                                                        us spread the bear-love and much needed T1 diabetes advocacy
                                                        work into our wider communities.

                                             Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 13

DF_A4 2021 Booklet v10 sw 20210616.indd 13                                                                                     17/06/2021 8:55:49 AM
OUR 2021 ENTERTAINMENT

                                              ROD KAFER 2021 EMCEE
                                              Rod Kafer is a Former rugby union
                                              player for the ACT Brumbies and the
                                              Australian Wallabies. At the age of
                                              15 Rod was diagnosed with type ONE
                                              diabetes and told by the medical
                                              profession that he should not play
                                              rugby because it’s too dangerous. Rod
                                              refused to allow diabetes to rob him of
                                              his ambition to play rugby for Australia
                                              and used it as motivation. Today Rod is
                                              considered a true Hero in the Sporting
                                              world and gives up much of his time to
                                              support young people with type ONE
                                              and he is also a great inspirational
                                              speaker.

                                              VIC LORUSSO
                                              2021 Live Auctioneer
                                              Vic Lorusso is one of Sydney’s most
                                              recognised TV and Radio personalities.
                                              He pioneered airborne traffic reporting
                                              in Australia for the TEN Network in
                                              2002. He can be seen every weeknight
                                              on Channel TEN’S 5pm news bulletin,
                                              and heard regularly across many Sydney
                                              Radio stations including WSFM and
                                              the ABC. Vic is also regarded as one of
                                              Sydney’s best real estate auctioneers. Vic
                                              returns in 2019 as the DANII Foundation
                                              Celebrity Auctioneer of the Jelly Bean
                                              Ball and has been incredibly supportive
                                              of DANII and our mission since 2012.

        Crack the Code
        Donated by TOK Jewellers

        ‘Crack the Code’ to win a pair of 18
        carat white gold DIAMOND STUD
        earrings valued at $2750. There
        are only 100 tickets available at
        $100 each so get in quick when the
        tickets go on sale. The earrings are
        displayed in our Auction Gallery
        where there is a safe waiting for
        you to unlock.

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 14                                                 17/06/2021 8:56:36 AM
JUSTIN MELVEY ~ DANII Celebrity Ambassador
         Like many Australian actors, Justin Melvey’s rise to fame       with Diabetes Australia and is a proud Ambassador for the
         began with his Logie Award winning role on Australia’s          Special Olympics of Northern California raising thousands
         most popular television drama – Home Away.                      of dollars to sponsor athletes with Down syndrome. In
           Throughout his life, Justin’s passion for skiing led him      Australia, Justin has supported the Sydney Children’s
         to represent Australia in the Freestyle World Cup. Living       Hospital, Leukaemia Foundation and Make a Wish
         in America he uncovered his passion for acting where he         Foundation & also is a 12 year Bandage Bear Westmead
         studied dramatic arts in L.A and New York. Over the five        Hospital Ambassador, Australia Day Ambassador and
         years, Justin played a leading role on NBC’s number one         became our Celebrity DANII Foundation Ambassador in
         daytime drama, Days of Our Lives, and landed another            2014. He holds a 25 year Active reserve Voluntary life Guard
         leading role on the ABC’s Emmy Award winning daytime            service with North Bondi Surf Club. He was also honoured
         Soap, General Hospital. He also starred in US released
                                                                         as a proud Olympic Torch bearer for 2000 Australian
         Movies & had the great opportunity to work opposite
                                                                         Olympic Games; a 2nd degree Black belt in Martial Arts
         Michael Caine in “The Debtors” He also performed at the
                                                                         Karate where he taught a school at North Bondi Surf Club
         Sydney Opera House, a hilarious leading performance in
                                                                         & competed at national level. Currently, Justin is Australian
         the hit play, The Complete Works of William Shakespeare,
                                                                         Managing Director of Privé Professional Products, which is
         before touring nationally. His comedy skills were also
         challenged as a guest performer in the Great Debates            an international Celebrity Hair Care brand and Director of
         series on Network Ten’s Hit show Good New Week.                 Dawn Property Management, a family property investment
           Justin challenged his skills on Channel 7’s hit show,         management company established in 1959 using the best
         Dancing with the Stars raising in excess of $40,000 for         locations throughout the eastern part of Sydney with strong
         the deserving charity, Diabetes Australia. He starred in his    portfolios in Bondi and Paddington.
         own primetime series “The Phone” then put his sporting            Justin and his family have a very special heartfelt
         prowess on show in Canada as a Foxtel presenter for the         understanding of Type 1 diabetes. The DANII Foundation
         2010 Winter Olympic Games. He was also runner-up in             is proud to welcome Justin Melvey back in 2021 as our
         Channel 7 hit series Australian Celebrity Survivor. Justin is   Celebrity Ambassador, he is a symbolic advocate of the
         a passionate humanitarian. Justin holds Ambassadorship          Foundation’s mission to help save lives.

                                              Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 15

DF_A4 2021 Booklet v10 sw 20210616.indd 15                                                                                         17/06/2021 8:57:03 AM
OUR 2021 ENTERTAINMENT

                                                            Australian Girls Choir
                                                            The Australian Girls’ Choir was established in 1984 by Judith Curphey
                                                            OAM. Today there are over 4,000 girls learning to perform across Australia.
                                                            DANII joined AGC when she was 7 and remained with the Choir for 12 years.
                                                            We are thrilled that The AGC has accepted our offer of a DANII Foundation
                                                            scholarship that was first awarded in 2013. In 2014 the DANII Foundation
                                                            commenced a dual scholarship nationally – One to always go to a girl in
                                                            NSW and the second scholarship to go to a girl in another Australian State.

       Congratulations to our 2020 & 2021 Scholarship award winners
       These girls 100% embody the characteristics required of the DANII Foundation Scholarship awards with some of their
       individual qualities that mimicked DANII being:
            •S
              he is an incredibly enthusiastic, eager and attentive        • She is a very talented singer and performer
             member of the group
                                                                            • Her leadership skills are starting to blossom
            • She is a friend to all
                                                                            • She is always smiling and having a laugh
            •H
              er attendance at choir is outstanding, she never
             wants to miss it

       2020 Scholarship Recipients

       Evangeline Keppie NSW                                                      Annie Sinclair NSW
       Evangaline joined the choir in 2013 and progressed through                 Annie joined the choir in 2013 and progressed through the
       the levels of training and is now a member of the Performing               levels of training and is now a member of the Performing
       Choir in Sydney. Evangaline was a Camerata Section Leader                  Choir in Melbourne. In 2016 Annie was selected for the
       in 2019 as well as a member of the specialist dance group                  specialist vocal group Canto as well as the International
       Danzare.                                                                   Touring Choir that travelled to New Zealand. In 2021 Annie
                                                                                  was selected to join the specialist vocal group Bel Canto and
                                                                                  specialist dance group Ballare

       2021 Scholarship Recipients

       Zali Turner NSW                                                            Zara Consen WA
       Zali joined the choir in 2013 and progressed through the                   Zara joined the choir in 2016 and progressed through the
       levels of training and is now a member of the Performing                   levels of training and is now a member of the Performing
       Choir in Sydney. Zali was a member of the National Touring                 Choir in Perth. Zara was selected for the specialist vocal
       Choir in 2019 travelling to Western Australia and in 2020 she              group Canto in 2019 and for the specialist dance group
       was selected for the specialist dance group Danzare.                       Danzare in 2020.

                                 Congratulations to Evangeline, Annie, Zali & Zara. DANII wishes you every success for your
                                     future with the Australian Girls Choir and your future entertainment endeavours.

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 16                                                                                            17/06/2021 8:57:05 AM
#DANIISGIFT

                                                                                  BRAD BLAZE
                                                                                  Speed Artist Rated the World’s No. 1 Live Artist!
                                                                                  Brad makes four minute portraits with unconventional
                                                                                  methods of glitter, fire and gold on spinning canvasses.
                                                                                  It's unique, innovative and audiences can't look away.

                                                                                  It's not only the amazing art that astounds audiences,
                                                                                  it's in his delivery: Creativity, story-telling, audience
                                                                                  participation and comedy. Named Entertainer of the
                                                                                  Year at the Australian Event Awards, Brad is in high
                                                                                  demand performing at corporate and special events in
                                                                                  Australia and Asia. He has raised over $3 million dol-
                                                                                  lars for charities.

                                             Lakeside Lovers
       Right from the beginning, Kerrie Garside has been
       part of the DANII Foundation Jelly Bean Ball dance
       band and this year she has teamed up with Rodric
       White on keys, Toby Hill on drums & Ashley Turner on
       bass to bring you The Lakehouse Lovers. Let’s Dance!

                                                                                  SCOTT GIBBONS MR SOLD
                                                                                  Livestream EMCEE

                                                                                  Scott Gibbons, known as ‘Mr SOLD’ he has a passion
                                                                                  for winning – for being the best in sales. He was the #
                                                                                  1 salesman in Australia for Century 21 Australia – part
                                                                                  of the world’s biggest real estate group – 13 years in a
                                                                                  row! He won the Annual Leonard Oades Auction Trophy
                                                                                  10 years in a row! Scott is a tremendous supporter of
                                                                                  the DANII Foundation, he has volunteered his time as
                                                                                  Emcee on our Jelly Bean Educational Cruises and oth-
                                                                                  er fundraising events.
                                                 Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 17

DF_A4 2021 Booklet v10 sw 20210616.indd 17                                                                                         17/06/2021 8:57:10 AM
MERCHANDISE

                                                                                                                                                             W
                                                                                                                                                             r
                                                                                 DANII Wristbands                                                            c
                                                                                 DANII Wristband ~ show your support. $5 each
                                                                                                                                                             a
                                                                                                                                                             A
                                                                                                                                                             i
                                                                     dance in the                                               DANII CGM                    o

                                                                     rain cushions                                               Patches                     o
                                                                                                                                                             t
                                                                                                                                   10 for $25                g
                                                                     Purchase one or a pair of
                                                                     these sophisticated looking                                                             s
                                                                     cushions embossed with                                                                  t
                                                                     DANII’s life motto.                                                                     o

                                                                     1 for $30                                                                               V

                                                                     2 for $50
                                                                                                                                                             C
                                                                                                                                                             m
                                                                                                                                                             c
                                                                                                                                                             g
                                                                                                                                                             e
                                                                                                                                                             C

                                              DANII Bears
                                     Purchase one or more of
                                these signature “DANII Bears”.
                                             $20 each or 3 for $50

                          DANII FaceMASKS
                          $10 each

                                                                            DANII HATS
                                                                            Help us spread the word and work of DANII and raise awareness for
                                                                            people living with type ONE diabetes
                                                                            Hats are $20 each
                                                                            OR 2 for $30

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 18                                                                                           17/06/2021 8:57:57 AM
We use all of our
    resources when it
    comes to making
    an impact.
    At Macquarie Group, we know that making a difference
    is achieved by giving our time, money and skills. Since
    our inception in 1985, together with Macquarie staff,
    our Foundation has contributed over $A485 million to
    thousands of non-profits around the world*. But we also
    give back by hands-on volunteering or putting our business
    skills to work for a non-profit organisation. We think it’s
    this flexible approach that can best help the community
    organisations we support.

    Visit macquarie.com/community

    Contribution figures comprise Macquarie employees’ donations and fundraising; Foundation
    matching support for employees’ donations and fundraising; Foundation donations to
    commemorate employees attaining 10-year and 25-year anniversaries at Macquarie; Foundation
    grants to non-profit organisations to recognise 12 months of board service by a Macquarie
    employee; and Macquarie and Foundation grants to community organisations (including
    COVID-19 donation fund and Macquarie 50th Anniversary Award) since inception in 1985.

                                                                                                                                                         .edu.au

                    Nationally recognised building trade qualifications
               subsidised through state government skills training programs
                    Award-winning Apprenticeship Training                                        Recognition of Prior Learning & Skills Training
                    Have your apprentice on site when you need them                              Nationally recognised trade qualifications
                                                                                                 designed for buidling contractor licence requirements
                    Custom training plan to suit your on-site skills progress
                                                                                                 We come to you to assess your skills
                    Personalised online and on-site training delivery
                                                                                                 Online, on-site, face-to-face
                       Call: 1300 642 457                                                        Registered Training Organisation No. 40666

DF_A4 2021 Booklet v10 sw 20210616.indd 19                                                                                                                 17/06/2021 8:58:08 AM
A DAY IN A LIFE

                   “HELLO MY NAME
         IS TENIKKA, I’M 21 YEARS OF
          AGE AND I’VE BEEN A TYPE
            1 DIABETIC FOR 15 YEARS.
                 HERE IS MY STORY….
                 When I was 5, just before my diagnosis, I became
       severely ill. My symptoms were loss of appetite, weight loss
       and excessive thirst. At my 6th birthday party, I stuffed myself
       with lollies and cake just like any child would. By the end of
       the party, I told my grandmother that I wasn’t feeling too well
       and I wanted to go home. Later that evening I was vomiting,
       I had a migraine and was fighting my grandmother for water
       every few minutes. The next day she took me to the doctors
       where the doctor dismissed my sickness for a cold and I was                 I just wanted it to disappear so I could be a teenage
       told to eat vegemite on toast and drink flat lemonade noting       girl and worry about teenage things. I wanted to be able to
       children in my area all had the same symptoms due to a bug         play sport with my class mates without embarrassingly have
       being passed around that season. My grandmother watched            a juice after because I was sweating, couldn’t concentrate,
       over me closely that night, she tells me she was so worried
                                                                          shaking and stuttering. I wanted to look forward to the future
       and slept with me so she knew I’d be okay. The next morning, I
                                                                          and not think about the diabetic complications that I was
       started to go in and out of consciousness, vomiting and I smelt
       “sweet”.                                                           warned about since I was 6 years old. Amputations, nerve
                                                                          damage, kidney disease, eye damage, hearing damage. It’s
                My father took me to the doctors immediately as           sad to think about how depressed and anxious I felt about my
       my family knew something was extremely wrong. Straight             disease ~ this disease that I just wanted it to disappear. But T1
       away the doctor tested my blood sugars and they were above
                                                                          diabetes unfortunately doesn’t work like that.
       30mmol. I was then rushed to hospital by ambulance and I
       was in intensive care for a week.                                           So for a few years my diabetes was poorly managed
                                                                          and then I was introduced to the DANII Foundation through
                 I was diagnosed with Type 1 Diabetes and my family
       and I attended countless diabetic team meetings and were           Lloyd Williams who is close friends with Donna. Lloyd
       educated on how to take care of my disease and administrate        explained my circumstances and Donna reached out to
       insulin injections and measure my blood sugar levels. This         help me straight away. She saw I was struggling with my
       was new to my family and it upset them of course as they           management and took me under her wing. I really appreciate
       were scared for me and loved me so dearly.                         everything the DANII Foundation has done for me such as
                                                                          giving me access to a pump and a CGM which I could never
                 I now had to adjust my whole lifestyle. I had to
       check my blood sugars, administrate insulin injections into        afford.
       my stomach, learn how to treat highs and lows, learn about                   Since discovering this technology, I have found that
       measuring carbs and sugars in different foods. It was tough        my diabetes management is a lot easier and much improved
       and as a child I found it quite hard to actually care about        thanks to the Royal North Shore Team, DANII and Donna. The
       those things because I just wanted to play with my friends         CGM has changed my whole lifestyle around, my diabetes is
       and do kid’s stuff. I wasn’t prepared for this responsibility
                                                                          a lot easier to manage and I feel less stressed. My HB1AC is
       and it showed as a teenager when I turned 16! I started to
                                                                          in perfect range and I finally have peace of mind and better
       do my own injections and finger pricks. For a few years I
       pushed my disease to the side because I was…ashamed. I was         physical health. Finally, I have a future to look forward too.
       embarrassed of my disease. I went through a “why me” faze.         My single biggest fear right now is now that I have just turned
       This resulted in drastic highs and lows and poor management.       21, I no longer qualify for our Governments CGM Funding so I
       I neglected my diabetes. My family took me to countless            can continue to keep my type 1 on track. I pray one day CGM
       3 monthly appointments, diabetic educators, doctors and            will be made affordable for ALL no matter the age…
       dietitians and I just wanted it all to go away.                    Diabetes Story By Tenikka Maher

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 20                                                                                       17/06/2021 8:58:09 AM
#DANIISGIFT

       Greg Leahy ~ CGM Scholarship Recipient ~ Diagnosed in the solomon islands!
                                                                            July 2015 was a life changer for me as a newly diagnosed
                                                                            Type 1 diabetic. Diagnosed in The Solomon Islands while I
                                                                            was working there as a Primary Health Care Nurse. Not the
                                                                            best place to be diagnosed in an underdeveloped country. Very
                                                                            challenging conditions as there were only a few insulins that I
                                                                            could administer and injectable equipment was limited.

                                                                            At first diagnoses I was aware of weight loss, vision
                                                                            disturbances, thirst and increased voiding. High urine
                                                                            glucose and a BGL of 35 was evident on examination. After
                                                                            consultation with the GP, insulin was administered ASAP.
                                                                            It was suggested by my nursing management that I be flown to
                                                                            immediately to Brisbane, however due to the lack of outgoing
                                                                            flights it was impossible. SO I quickly learned, I had to manage
                                                                            this new disease myself! Albeit I am a Nurse, my biggest fear
                                                                            at diagnosis was administering insulin to myself and making
                                                                            sure I was doing all the right things to control my BGLs.

                                                                            As a Registered nurse I look after many patients with Diabetes
                                                                            everyday, but having diabetes myself was very different. In
                                                                            my practice as a nurse I can surely sympathise with all my
                                                                            diabetic patients now and have a better understanding of what
                                                                            they too are going through.

                                                                            With increased education from Diabetic educators,
                                                                            Endocrinologists, Dietitians I was able to stabilise and manage
                                                                            my type 1 diabetes condition. There have been many ups and
                                                                            downs that I have been challenged with along the way. My
                                                                            lifestyle was turned completely upside down.

       My work now in the Emergency Department at The Canberra Hospital became extremely challenged, as I would experience many
       hypos each day. I have had to change my role in the ED to more regular day shifts which has helped.

       A friend told me about the DANII Foundation and after investigating and reading about this amazing foundation I was gifted a
       scholarship to use the CGM. Initially the CGM had its challenges for me, skin irritation was my main issue, yet after using many skin
       preps and dressings I now have had no issues.

       The use of the CGM has completely changed my life! I can now see my real time BGLs and the auto suspend that blue-tooths
       to my insulin pump has saved my life many times over ~ especially at night. Measuring Insulin accurately balanced with glucose
       levels can be like walking a tight-rope to get it right…. With CGM I live safer.

       These days in my spare time I look for every opportunity to give-back the gift I have been given. I fundraise for DANII, I mow lawns,
       create cake-stall, what-ever it takes, so fellow T1Ds can also have this gift of CGM. It just makes sense for Government to fund this
       life-saving and life-changing device! My Sole WISH would be for CGM to be more affordable and accessible for ALL Australian’s
       living with type 1 Diabetes and those type 2 who are Insulin dependent. #daniisgift

                                             Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 21

DF_A4 2021 Booklet v10 sw 20210616.indd 21                                                                                         17/06/2021 8:58:13 AM
2021 DANII FOUNDATION VOLUNTEER OF THE YEAR

       Rhonda Alexander ~ 2021 Volunteer of the YeaR
                                                                                             I was diagnosed with Type 1 Diabetes at 46
                                                                                             years old, on January 14th, 2004. I knew that
                                                                                             if I was to become a diabetic it would be type
                                                                                             1 as it was hereditary in our family. My father
                                                                                             and his brothers were Type 1.

                                                                                             The day the Doctor told me I was diabetic he
                                                                                             gave me tablets thinking I was type 2, but after
                                                                                             2 weeks they hadn’t brought my levels down
                                                                                             so I offered to take insulin and I remember the
                                                                                             Doctor saying no one offers to take needles and
                                                                                             I replied if it is going to help I will, it can’t be
                                                                                             that bad, I watched my father all my life. So he
                                                                                             gave me syringes, insulin and some directions
                                                                                             and sent me home.

                                                                                             Over the next 2 weeks my sugars came down
       to a healthy level and I also lost 40 kilos. The Doctor ordered me not to go to work for the next month or until he was happy
       with my Blood Glucose levels.

       The main challenge I have living with Type 1 Diabetes is maintaining a healthy
       weight and keeping the sugar levels under control. Another big challenge I’ve had
       is to find an Endocrinologist that supports me and understands me.

       Something else I find essential in managing my diabetes is to be very strict with
       my diet, I weigh every meal and add the calories and carbs to maintain a healthy
       weight and good BGL. Sometimes it can be like riding a roller-coaster!

                                             I learnt about the DANII Foundation through the Diabetes NSW magazine where they had travel
                                             insurance advertised. It was just a call away and there is where my journey with the Foundation
                                             started. I have been on every Jelly Bean Educational Cruise since DANII introduced the inaugural
                                             programme. Over the years I‘ve learned a lot from the seminars and workshops on-board from
                                             Endocrinologists, Dieticians, and Diabetes Educators and I’ve tried to implement daily their tips
                                             and recommendations which has helped me enormously.

                                             The Jelly Bean Cruises stopped last year due to COVID-19 but I still continue my journey with
       the DANII Foundation volunteering my time on a weekly basis.

       Using the CGM has completely changed my life. The accessibility of looking at my pump and it shows what level my sugars
       are at is incredible. Knowing that CGM will alert me with this horrific noise if I am dropping too low or going to high is a
       blessing.

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 22                                                                                             17/06/2021 8:58:19 AM
RAFFLE PRIZE

                                             BUY YOUR TICKETS NOW!
                                             $50 EACH OR 3 FOR $100

        1st Prize
        Moreton Island 4 Night P&O Cruise - Set sail for 4 amazing nights on P&O Cruises
        Pacific Explorer to Moreton Island. Cruise in a Twin or Double Balcony Cabin for 2 inclusive
        food & Entertainment departing Sydney on 10th October 2022.
        *Not Transferable *Valid only on 10th October 2022
        Value $3000

       2nd Prize                                       3rd Prize                                       4th Prize
       Hyatt Regency Sydney - Hyatt Regency            Dozen 2019 Ballinaclash Tom Cabernet            Dashmate HD Dash Camera with
       Sydney-One night’s accommodation in a           Sauvignon - Dozen 2019 Ballinaclash             2.4” LCD Screen & Motion Detection
       Harbour View King Room with breakfast           Tom Cabernet Sauvignon                          - 720px Resolution captures your trip
       for Two Guests in Sailmaker                                                                     in full high definition, recording all
                                                                                                       details on the road. All details are
                                                                                                       captured for immediate playback or
                                                                                                       future reference. 90° FOV the wide
                                                                                                       angle lens brings all details on the
                                                                                                       road into frame.

                                               Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 23

DF_A4 2021 Booklet v10 sw 20210616.indd 23                                                                                              17/06/2021 8:58:20 AM
LIVE AUCTIONS

                                             This year we have well over $250,000 value of wonderful
                                               donated items in our Live and Silent auction including
                                                amazing travel prizes from the best travel suppliers
                                             globally, artwork, sporting memorabilia, jewellery, beauty
                                               products, experiences and wine... just to name a few!

                                              Many of the gifts are displayed in the Auction Gallery at
                                             the entry to the ballroom and a full list of items is set out
                                               in this booklet. The reserve price for items is less than
                                             their recommended value and you are encouraged to put
                                                             forward your maximum bid.

                                               Be sure to check the Terms & Conditions of each prize
                                                          Displayed in our Auction Gallery.

                                                        If you need some help, just ask one
                                                                 of our volunteers.

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 24                                                                   17/06/2021 8:58:23 AM
LOT 1
                                                                           Spend a day with world
                                                                           famous A/Prof Charlie
                                                                           Teo for two people
                                                                           Spend a day with world famous A/Prof Charlie Teo.
                                                                           The winners will spend an unforgettable day with Dr
                                                                           Teo spend the day with Dr Teo observing his surgical
                                                                           techniques and his warmth with the patients whom
                                                                           he treats as he would members of his own family. At
                                                                           a time mutually agreed with Dr Charles Teo.

                                                                           VALUE: PRICELESS
                                                                           STARTING BID: $5000
                                                                           Auction item Disclaimer: Each of the Auction items featured/
                                                                           purchased at the 2021 DANII Foundation Jelly Bean Ball are
                                                                           represented and managed by the contributing organisation, at their
                                                                           discretion. If the winning bid goes above the recommended value, the
                                                                           foundation thanks you for your generosity. Terms & Conditions may
                                                                           apply.

        LOT 2
                                                                                      14ct White Gold 2.28
                                                                                      carat Blue Sapphire
                                                                                      and Diamond Ring
                                                                                      14ct White Gold Blue Sapphire and Diamond
                                                                                      Ring - 2.28ct Sapphire, Royal Blue in Colour,
                                                                                      Clarity Eye-clean Oval Cut, Four claw
                                                                                      set centred around 18 round brilliant Cut
                                                                                      Diamonds

                                                                                      VALUE: $8430
                                                                                      STARTING BID: $2000
                                                                                      Auction item Disclaimer: Each of the Auction items
                                                                                      featured/purchased at the 2021 DANII Foundation
                                                                                      Jelly Bean Ball are represented and managed by the
                                                                                      contributing organisation, at their discretion. If the
                                                                                      winning bid goes above the recommended value, the
                                                                                      foundation thanks you for your generosity. Terms &
                                                                                      Conditions may apply.

                                             Life isn’t about waiting for the storm to pass, it’s about learning to Dance in the Rain 25

DF_A4 2021 Booklet v10 sw 20210616.indd 25                                                                                                    17/06/2021 8:58:27 AM
LOT 3
                                                                                                             Mick Fanning Signed
                                                                                                             & Framed Surf
                                                                                                             Competition Rash Vest
                                                                                                             Mick Fanning Signed & Framed Surf Competition
                                                                                                             Rash Vest - Three time Australian World
                                                                                                             Champion - Now Retired! - Large

                                                                                                             VALUE: PRICELESS
                                                                                                             STARTING BID: $1500

                  Auction item Disclaimer: Each of the Auction items featured/purchased at the 2021
                  DANII Foundation Jelly Bean Ball are represented and managed by the contributing
                  organisation, at their discretion. If the winning bid goes above the recommended value,
                  the foundation thanks you for your generosity. Terms & Conditions may apply.

                  LOT 4
                                                                                               DANII 2021 Signature
                                                                                               Winged Heart
                                                                                               Pandora Bangle
                                                                                               DANII 2021 Signature Silver bangle with
                                                                                               Angel Wings Heart clasp is a precious and
                                                                                               personal collector piece designed to carry
                                                                                               your collection of charms. The minimalist
                                                                                               sterling silver style has a heart-shaped clasp
                                                                                               embossed with ‘always by your side’ engraved
                                                                                               on back has a Pandora Rose Interlocking
                                                                                               Hearts Dangle Charm. Destined to be a
                                                                                               keepsake.

                                                                                               VALUE: PRICELESS
                                                                                               STARTING BID: $300

                  Auction item Disclaimer: Each of the Auction items featured/purchased at the 2021 DANII
                  Foundation Jelly Bean Ball are represented and managed by the contributing organisation,
                  at their discretion. If the winning bid goes above the recommended value, the foundation
                  thanks you for your generosity. Terms & Conditions may apply.

       DANII Foundation Jelly Bean Ball 2021 #daniisgift

DF_A4 2021 Booklet v10 sw 20210616.indd 26                                                                                                        17/06/2021 8:58:31 AM
You can also read