CHLA Imagine Magazine 2019 Fall - Children's Hospital Los
imagine FALL 2019 Every patient who visits Children’s Hospital Los Angeles benefits from philanthropists who support the hospital. A LEGACY OF COMPASSION The Anderson family’s generosity—including The Anderson family’s generosity—including a recent $50 million gift—touches the lives a recent $50 million gift—touches the lives and futures of all our patients, including and futures of all our patients, including the five pictured here. the five pictured here.
CHLA.org/DONATE Founded in 1901, Children’s Hospital Los Angeles is the top-ranked pediatric hospital in California and among the top five in the nation, according to the prestigious U.S.
News & World Report Honor Roll of children’s hospitals for 2019-20. The hospital is home to The Saban Research Institute and is one of the few freestanding pediatric hospitals where scientific inquiry is combined with clinical care devoted exclusively to children. Children’s Hospital Los Angeles is a premier teaching hospital and has been affiliated with the Keck School of Medicine of USC since 1932.
WE CREATE HOPE AND BUILD HEALTHIER FUTURES.
Imagine Magazine Children’s Hospital Los Angeles has been ranked by U.S. News & World Report as the No. 1 children’s hospital in California, No. 1 in the Western U.S., and No. 5 in the nation. The CHLA Board of Directors and senior management fully appreciate that our ability to continue serving the health care needs of the most vulnerable children in the region and achieve national rankings for clinical services, academic training programs and research endeavors results from the generosity of all CHLA supporters—donors such as the Anderson Stewart Family Foundation and others like them featured in this issue of Imagine.
When the late Marion and John E. Anderson were honored for their philanthropic efforts, they would often repeat four simple words: “Do the right thing.” The couple’s mantra reverberates throughout the city and community they loved, especially for those who support the care delivered by CHLA’s experts. Faculty and staff remember Marion as a deeply engaged member and Chair of the Board of Trustees who connected with patients and had an unbridled passion for supporting the hospital’s family-centered care.
Today, Marion and John’s legacy of improving lives endures through the Anderson Stewart Family Foundation.
There are no adequate words to thank the family for being steadfast partners in creating healthy, hope-filled futures for the children we serve—with no better example than their recent $50 million gift. This is an investment in advancing pediatric medical care and a commitment to children and families experiencing some of the most challenging moments of their lives. Every story chronicled in the following pages connects CHLA’s ability to provide transformative, compassionate and life-enhancing care to the power of philanthropy. The generosity reflected in each gift received by our institution helps ensure that we are able to conduct pioneering research, train the next generation of pediatricians and provide world-class clinical care, while also continuing to proudly serve as the safetynet provider for all those in need.
Ultimately, every philanthropic partner helps do the right thing by supporting this vital work.
On behalf of all of us at Children’s Hospital Los Angeles, please accept my profound gratitude for your continued, invaluable support. Warmest regards, Paul S. Viviano President and Chief Executive Officer CONNECT WITH PAUL Go to CHLA.org/PaulViviano to find out more about Paul and connect with him on LinkedIn, where you can read articles he’s written on issues related to pediatric health care. U.S. News & World Report ranks Children’s Hospital Los Angeles: No. 1 in California No. 1 in the Western U.S. No. 5 in the nation A LETTER FROM THE PRESIDENT AND CHIEF EXECUTIVE OFFICER
CHLA.org/DONATE A LETTER FROM THE CHIEF DEVELOPMENT OFFICER At Children’s Hospital Los Angeles, our mission to create hope and build healthier futures is fueled by philanthropy.
We are so grateful for the generous support—and true dedication—of each and every one of our donors who share our commitment to improving the lives of children and families. This issue’s cover story, about a transformative gift from the Anderson Stewart Family Foundation, is an extraordinary example of one family’s generationspanning legacy of philanthropic engagement with CHLA. Their visionary investment will help ensure that all our patients have access to the lifesaving care they need.
We also hear from Betty Porto of Porto’s Bakery and Cafe about her family’s longstanding relationship with Children’s Hospital, which dates back to 1976. Whether delivering treats to patients and staff at the hospital, creating signature CHLA butterfly cookies for our annual Make March Matter fundraising campaign or making financial donations, Porto’s has been a true community partner. You can also read about the John Stauffer Charitable Trust, which, like Porto’s, began supporting CHLA in 1976. The trust has donated more than $9 million throughout the years.
In addition, we feature the inspiring story of JP LeVeque, a grateful uncle who ran the Los Angeles Marathon and raised more than $115,000 for CHLA to honor the care his nephew received.
Finally, we share the story of one young father, Eszylfie Taylor, who was inspired to support CHLA and is committed to ensuring healthier futures for children. It is an honor to share these stories of kindness and generosity. With the support of the philanthropic community, we can give every child the best possible chance for a healthy future.
Sincerely, Alexandra Carter Senior Vice President and Chief Development Officer Imagine PRESIDENT AND CHIEF EXECUTIVE OFFICER Paul S. Viviano SENIOR VICE PRESIDENT AND CHIEF DEVELOPMENT OFFICER Alexandra Carter, MBA, CFRE SENIOR VICE PRESIDENT AND CHIEF STRATEGY OFFICER Lara M. Khouri, MBA, MPH VICE PRESIDENT AND CHIEF MARKETING AND COMMUNICATIONS OFFICER Deborah A. Braidic, MABC EXECUTIVE DIRECTOR, STRATEGIC CONTENT Kelly Carolipio, MS EDITOR Marla Lehner EXECUTIVE EDITOR Sarah T. Brown PROJECT MANAGER Rachael Humphries DESIGN Jessica Kucinskas CONTENT Sarah T. Brown, Marla Lehner, Owen Lei, Sara Nafie, Eunice Oh, Katie Sweeney and Jeff Weinstock PHOTOGRAPHY Bobby Quillard Photography, Linda Bradley, Bronson Photography, Keats Elliott, Brian Feinzimer, Jared Green, Jillian Green, Marnie Gruen, Kelly LeVeque, Maryly LeVeque, Claudia Linh, Marc Glassman Photography, Vanessa Preziose, Monica Rizzo, Alberto E.
Rodriguez/Getty Images for Children’s Hospital Los Angeles, Karine Simon, Kelly Walsh and Walter Urie Make sure to visit CHLA.org for more great content!
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Imagine Magazine | 1 F E AT THREE OF A KINDNESS The trio of trustees behind the John Stauffer Charitable Trust continues the charity’s 40-plus years of support for CHLA. 4 A LEGACY OF COMPASSION Through three decades of giving, including a recent $50 million gift, the Anderson family has helped to cement CHLA’s position as a leader in pediatric health care. 10 PORTO’S BAKERY: WHY WE GIVE The beloved local eatery has been supporting Children’s Hospital Los Angeles and sharing its sweet treats with patients and families for more than 40 years.
12 BEST UNCLE EVER Grateful for his nephew’s life-changing care, JP LeVeque raised an impressive $115,000 to support CHLA—and all he had to do was run the L.A. Marathon. 16 A FATHER’S GIFT Even before his twins were treated at Children’s Hospital, Eszylfie Taylor was committed to making a difference in the lives of kids in the community. In this issue Fall 2019 D E PA Calendar of Upcoming Events 18 CHLA Happenings 30 Anonymous Donor Gives $25 Million Gift 30 Honor Roll of Donors 61 Board of Directors and Foundation Board of Trustees On the Cover Clockwise from top: Jia,12; Jordan, 7; Michelle, 4; Lex, 3; and Max,15, pictured in front of the Marion and John E.
Anderson Pavilion Learn more about these incredible kids on page 8.
16 10 12
2 | CHLA.org/DONATE Q+A With the John Stauffer Charitable Trust In the very conference room where they regularly meet to pore over grant applications submitted to the John Stauffer Charitable Trust, Tim Gosney is reading aloud to John Bradley and Michael Whalen from the list of donations the trust has made to Children’s Hospital Los Angeles. The three men, all attorneys, preside over the trust, established in 1974 by the will of John Stauffer Jr., onetime director of the Stauffer Chemical Co. Children’s L.A. has been a frequent recipient of the trust’s philanthropy, which goes exclusively to hospitals and universities.
As Gosney reads from the earliest contributions to CHLA, Whalen, who has the closest connection with the hospital— having served on its Board of Trustees throughout the 1990s and into the early 2000s—is interested to hear that the first donation was made in 1976. “What did we give the grant for?” he asks. “Prenatal equipment for critically ill newborns,” Gosney answers. “50,000 bucks.” “What was the next one?” “December ’78. Carbon dioxide labor equipment for 50,000.” Gosney continues down the list, through the most recent, a $3 million gift to the Cancer and Blood Disease Institute to fund research.
In all, the donations total $9.4 million. The Stauffer name adorns multiple parts of the hospital, including the John Stauffer Conference Room and the John Stauffer Lobby.
In a recent conversation, Gosney, Whalen and Bradley discussed what has sustained the trust’s relationship with CHLA for over 40 years. Why has the Stauffer Trust consistently chosen to donate to Children’s Hospital Los Angeles? Whalen: We learn a lot about hospitals. The fact that we have a continuing association with Children’s Hospital says a lot. Over the years, they have really selected good management. That’s what has been important. Children’s is always rethinking their management to make sure it is working.
Bradley: They’re ultracompetent. They’ve shown the ability to raise large sums of money and to invest it well ...
into doing a lot of original research. They’re not simply a hospital; they’re a research hospital, and to me that has great appeal. What funding proposals are most likely to make you say yes? Gosney: We’re not real big on “general support” kinds of things. The way I’ve said it to hospitals and universities is: “Pick your need and tell us what it is you want, and why.” Then we make our decision when we sit down in this room.
Whalen: We are willing to be surprised. On the hospital side, we start with equipment and facilities, and then as the relationship expands we look at broader programs, laboratories—things we can track. What influences you to support one institution over another? Bradley: We pick ones we have faith in and figure they’ll make good use of their money. They report back to us what they’ve done with it. Children’s Hospital gives us reports on every fund we’ve established. Gosney: That’s certainly a big factor. If they don’t report back and tell us what they’ve done, the next time they come in with a request, that might make the difference.
Do you make regular visits to CHLA to see where the money goes? Whalen: Oh, sure. We visit every site we give money to. I saw the Stauffer Conference Room before it was built out. I also inspected it as it was being completed. Gosney: We get to know the doctors, too. Whalen: After a day of seeing children sick in so many ways, you understand you are seeing money used well to save lives. THREE OF A KINDNESS The trio of trustees behind the John Stauffer Charitable Trust continues the charity’s 40-plus years of support for Children’s Hospital Los Angeles. By Jeff Weinstock Left to right: Stauffer Trustees John Bradley, Michael Whalen and Tim Gosney ►
Imagine Magazine | 3 March 2020 Make March Matter® During the month of March, local businesses and the community work together to raise funds for Children’s Hospital Los Angeles. To find out how you can get involved, visit MakeMarchMatter.org. STAY IN THE LOOP With so many fun ways to support Children’s Hospital Los Angeles, which event will you attend? March 2020 Men’s Guild Poker Tournament Join the Men’s Guild for its 15th annual Texas Hold ’Em tournament benefiting CHLA. For information, visit MGCHLA.com. April 20, 2020 Seahorse Classic Golf Tournament Tee up in the South Bay at the Peninsula Committee’s 31st annual Seahorse Classic Golf Tournament benefiting Children’s L.A.
For information, visit PCCH.net.
May 3, 2020 The Great Chocolate Race 2.5K/5K Join the Flintridge Guild and more than 500 participants at this sweet event in La Cañada Flintridge to raise funds for CHLA. For information, visit FGCH.la. Summer 2020 Walk and Play L.A. Join the fun at CHLA’s fourth annual 3K walk and family fun festival at the Los Angeles Memorial Coliseum.The event features sports activities, performances and more. For an official date announcement and registration information, keep an eye on WalkandPlayLA.org. UPCOMING EVENTS Make March Matter raised $2 million for CHLA in 2019.
Oct. 3, 2020 The Children’s Hospital Los Angeles Gala Save the date for the hospital’s signature biennial event.
Stay tuned for more information about this unforgettable evening.
4 | CHLA.org/DONATE Learn more about these incredible patients and their experiences at CHLA on page 8.
Imagine Magazine | 5 During her life, Marion Anderson loved being a part of tours of Children’s Hospital Los Angeles. “Every time I visit Children’s Hospital, I want to reach out and help,” she once said. Reach out and help is exactly what Marion and her husband, John E. Anderson, did at CHLA. Their extraordinary dedication over the course of three decades left a legacy of incredible philanthropy and leadership. And while both Marion and John have passed away, their family’s history of compassion not only lives on— it’s growing.
This year, Children’s Hospital Los Angeles was honored to receive a visionary investment from the Anderson Stewart Family Foundation—a $50 million gift to advance CHLA’s commitment to worldclass, family-centered pediatric care and further the hospital’s goal of providing a safety net for the most critically ill. With this gift, the family is the greatest single benefactor in the hospital’s history. “Philanthropically, the Anderson family is devoted to improving the lives of others. Their years of support and leadership helped Children’s Hospital Los Angeles save hundreds of thousands of lives,” says CHLA President and CEO Paul S.
Viviano. “We are honored and humbled to receive this gift that will continue their legacy of creating a better future for the children of this world.” The Anderson name is one that is familiar to every patient, parent, team member and visitor at the hospital. In 2011, the family made a $50 million gift to complete construction of a new, state-of-the-art hospital building: the Marion and John E. Anderson Pavilion.
Anderson Stewart Family Foundation FEATURE “The entire Anderson family has always demonstrated true generosity of spirit by sharing ideas, inspiring others and leading by example, and for that reason we are so grateful for this gift.” —Jeffrey Worthe Chair of the CHLA Board of Directors A LEGACY OF COMPASSION Through three decades of giving, including their most recent $50 million gift, the Anderson family has helped to cement CHLA’s position as a leader in pediatric health care. By Katie Sweeney, Marla Lehner and Jeff Weinstock But the family’s contributions extend even further. Marion served as a member of the CHLA Board of Trustees from 1989 until 2017.
She co-chaired the Board from 1999 to 2012, leading the hospital during its most successful fundraising campaign to date and through a period that saw landmark shifts and significant expansion in the institution’s ability to deliver care. John was the Founder and Chairman of Topa Equities Ltd. and a role model of corporate and community leadership. “Success,” he often said, “is living a life you can be proud of.” The family’s latest gift is one more example of John’s humble philosophy. “The Anderson family is honored to continue our family’s dedication and support of the important work of Children’s Hospital Los Angeles,” says Judy Munzig, the Andersons’ daughter and Chair of the Anderson Stewart Family Foundation.
The hospital’s steadfast devotion to its mission to provide worldclass care to critically ill children inspires us and makes us very proud to be among its supporters.” (continued on next page)
6 | CHLA.org/DONATE The Extraordinary Impact of Philanthropy The Anderson family is an integral part of the history—and future—of Children’s Hospital Los Angeles. The family’s transformational philanthropy, which includes more than $100 million to the hospital over the past 30 years, has been essential to the institution’s ability to fulfill its mission of creating hope and building healthier futures. During its 118-year history, Children’s Hospital has evolved from a two-story house on Castelar Street that was a labor of love for dedicated volunteers and civic leaders into one of the country’s premier pediatric academic medical institutions.
Today, CHLA is ranked No. 1 in the Western U.S., No. 1 in California and a top-five children’s hospital nationwide by U.S. News & World Report. But CHLA has not accomplished this alone: The institution’s history is an ongoing story of exceptional clinicians, scientists, philanthropists, leaders and community members coming together to ensure world-class care for children and families. The hospital’s legacy of providing the best care is matched only by its commitment to treating underserved children. A safety-net hospital, CHLA treats the most vulnerable members of the community, including critically ill children and those covered by Medi-Cal (California’s Medicaid program).
Last year, half of all children hospitalized in Los Angeles County with a complex condition or a severe illness were admitted to CHLA.
Many of the vital services delivered at Children’s Hospital are not reimbursed or fully reimbursed by government or private insurance. Philanthropy helps make it possible for all CHLA patients to access the lifesaving care they need, and equips the institution’s physicians, researchers, nurses and other team members with the appropriate resources to provide that care. Building healthier futures In 2011, CHLA opened the Marion and John E. Anderson Pavilion, a gleaming facility that greatly expanded the hospital’s capacity to care for children. Now, the Anderson Stewart Family Foundation is making another investment in CHLA during a crucial time of rising demand for high-quality care.
FEATURE Anderson Stewart Family Foundation ▲ Children’s Hospital Los Angeles opened in 1901 in a seven-room house and saw 14 patients in its first year of operation. Today, it is a world-class pediatric academic and research medical center conducting more than half a million visits each year. Children and families rely on CHLA during some of the most difficult times of their lives. The Anderson Stewart Family Foundation’s latest gift helps Children’s Hospital to: Save and improve the lives of more children Conduct research that has ripple effects across the field of medicine Invest in innovative ideas and technology Expand capacity at the Sunset campus Build a network of caregivers in the community Educate pediatric care leaders who will extend our mission for generations to come
Imagine Magazine | 7 Anderson Stewart Family Foundation FEATURE A NEW ERA OF CARE In the eight years since the Anderson Pavilion opened, CHLA’s total patient visits have risen from 393,000 a year to nearly 568,000, which includes close to 100,000 visits to an Emergency Department that was built to handle 65,000. Philanthropy contributes to every aspect of the unique care provided at Children’s L.A. Whether a child is undergoing lifesaving surgery, participating in a leading-edge clinical trial, receiving around-the-clock treatment in an intensive care unit, or having a followup visit at a CHLA specialty care center, that care has been impacted by the generosity of the hospital’s supporters.The institution is deeply grateful for the Anderson Stewart Family Foundation’s partnership and dedication to the community’s most precious resource: children.
The entire Anderson family has always demonstrated true generosity of spirit by sharing ideas, inspiring others and leading by example, and for that reason we are so grateful for this gift,” says Jeffrey Worthe, Chair of the CHLA Board of Directors. “It vividly reflects the same heart and devotion for children that guided Marion and John as they supported our hospital over the years, and it allows Children’s Hospital Los Angeles to continue exemplifying that conviction of purpose for years to come.” (continued on next page) “The Anderson family is honored to continue our family’s dedication and support of the important work of Children’s Hospital Los Angeles.
The hospital’s steadfast devotion to its mission to provide world-class care to critically ill children inspires us and makes us very proud to be among its supporters.” —Judy Munzig Chair of the Anderson Stewart Family Foundation and the Andersons’ daughter
8 | CHLA.org/DONATE FEATURE Anderson Stewart Family Foundation Every patient is touched by your generous gifts ... Philanthropy supports organ transplants for kids like Lex, who at 6 weeks old was found to have biliary atresia. Blocked ducts were preventing the outflow of bile to his small intestine, compromising his liver. He underwent the Kasai procedure, where surgeons remove the bile ducts and connect the small intestine directly to the liver. Afterward, however, Lex’s liver still wasn’t functioning, and doctors determined he needed a liver transplant. He was admitted to CHLA’s Liver Transplant Program, which has performed more than 370 liver transplants in children.
On July 25, 2017, after celebrating his first birthday in the hospital, Lex received his new liver. The transplant was a success, and today Lex is back home, a happy and healthy boy. Philanthropy supports complex cases like Jordan, who was born with several serious conditions, including Rubinstein-Taybi syndrome, a genetic disorder characterized by crooked thumbs; nearsightedness so extreme he was designated legally blind; and severe breathing and feeding difficulties. The combined efforts of doctors in CHLA’s Children’s Orthopaedic Center, Division of Medical Genetics, The Vision Center, Aerodigestive Program and more addressed Jordan’s medical issues.
Surgery corrected the shape of his thumbs, eyeglasses helped his vision, and removing the enlarged tonsils and adenoids that were obstructing his airway helped his breathing—which improved his eating, sleep and performance in school. Philanthropy supports life-changing care for patients like Jia, who came to CHLA as a toddler for a cleft lip and palate repair. Now Jia, 12, meets annually with specialists in reconstructive surgery, pediatrics, speech and hearing, dentistry and orthodontics, otolaryngology and psychology. Her mother, Kathy, who brought Jia home from China at 17 months old, is a prolific hospital supporter.
She is a founding member of the CHLA fundraising team called the Ambassadors, and a founding co-chair of the Care Ambassadors, a group that supports the Institute for Nursing and Interprofessional Research. Kathy has helped raise more than $1 million for the Institute. JIA LEX JORDAN ◄ Jia, pictured at ages 12 and 2, has had nine surgeries at CHLA. ▲ After undergoing a liver transplant as an infant, Lex is now thriving.
Imagine Magazine | 9 Philanthropy supports children with congenital heart disease like Max, who was born with a cardiac defect called tetralogy of Fallot, which required replacing his pulmonary valve and implanting a pacemaker. He has undergone more than a dozen procedures, but throughout he’s been a resolute advocate for CHLA, raising funds for the hospital while serving as a Junior Ambassador. A child actor who had a longtime role on “The Young and the Restless” and starred as a mini Darth Vader in the 2011 Volkswagen Super Bowl ad, Max travels annually with his family to Washington, D.C., to participate in Family Advocacy Day, urging lawmakers to pursue policies that benefit children’s health.
In 2019, the Children’s Hospital Association honored his family with the Mighty Advocate Award. ... from the bottom of our hearts, we thank you!
Anderson Stewart Family Foundation FEATURE Philanthropy supports clinical trials for kids like Michelle, who at age 2 was found to have a cancerous tumor blocking her airway and endangering her life. The results of a genetic test called OncoKids®, developed by the hospital’s Center for Personalized Medicine, showed that Michelle might benefit from treatment with larotrectinib, an oral cancer drug under evaluation in a CHLA clinical trial. Within 24 hours of being enrolled in the trial, Michelle, who was in critical condition on a Saturday, responded to the medication; she returned home the following Tuesday.
Her tumor has since shrunk to the point where it wasn’t detected on her last three MRIs. MAX ▲ Thanks to specialized genetic testing and a clinical trial available at CHLA, Michelle received lifesaving medication. ▲ Several CHLA physicians collaborated on the treatment of Jordan’s multiple health issues. Born with a heart defect that has required a dozen procedures, Max has become an influential health advocate for children. ► MICHELLE “As philanthropists, the Anderson family is steadfastly devoted to improving the lives of others. Their years of support and leadership helped Children’s Hospital Los Angeles save hundreds of thousands of lives.” —Paul S.
Viviano, President and CEO of Children’s Hospital Los Angeles
10 | CHLA.org/DONATE Each time Betty Porto attends an event at Children’s Hospital Los Angeles, she witnesses something special. “There will be a boy or girl who’s crying and a little cranky. But give them a cookie and you’ll see those tears turn into a smile from ear to ear,” says Betty, who often personally delivers donated goods for CHLA parties. “For a sick kid in the hospital, a little sweetness can go a long way.” As Vice President of Community Relations for Porto’s Bakery and Cafe, Betty has been bringing her family’s famous pastries to cheer up patients and thank staff members for years, upholding a partnership that dates back to 1976—the year her parents, Rosa and Raul Sr., opened the doors to the first Porto’s storefront less than 2 miles from the hospital.
More than four decades later, Porto’s still gives generously to CHLA. These days, the partnership is more formalized.The business has been an ardent supporter of the hospital’s annual Make March Matter fundraising campaign, donating a portion of sales from specially designed CHLA butterfly cookies; it hosts another fundraiser the week after Thanksgiving featuring its best-selling cheese rolls; and recently Porto’s made a sizable donation to fund a renovation project in the hospital. Porto’s Bakery The beloved local eatery has been supporting Children’s L.A. and sharing its sweet treats with patients and families for more than 40 years.
By Eunice Oh WHY WE GIVE Porto’s Bakery Porto’s Bakery founders Raul Sr. and Rosa Porto (center) with their three children and seven grandchildren Margarita (left) and Betty Porto at the bakery’s first location in the late ‘70s ►
Imagine Magazine | 11 Here, in her own words, Betty explains why philanthropy has always been important to her family—including siblings Raul Jr. and Margarita, who now operate and co-own five Porto’s locations with her—and why it remains a fundamental pillar of the bakery today. Porto’s Bakery WHY WE GIVE CHLA patient Kairi Ramirez holds a CHLA butterfly cookie designed by Porto’s for the Make March Matter campaign. ► At Porto’s, our customers are like family, and we have some relationships as old as 40 years. We’ve made wedding cakes for couples whose children are now adults, and baby-shower cakes for parents who are now grandparents.
When you’re a family-owned and family-run business, it’s not about making money. It’s about relationships that last a lifetime. The more I think about it, we’ve been connected to Children’s Hospital in one way or another for quite some time. It started at a grassroots level, with nurses stopping by or calling me about a party they were throwing for some patients, wondering if we could donate some treats. Or I’d talk to customers who had kids at the hospital. Even right now, we have 1,200 employees, and I can guarantee nearly all of them have either had a child treated at Children’s Hospital or know someone who has.
Porto’s is all about family and making memories, so it just makes sense to share a journey with CHLA. Children are everything in our family, and our customers are all about their kids. There are a lot of wonderful charities and causes out there, but I can’t imagine aligning ourselves with something other than Children’s Hospital. Giving is natural for us because it all started with my parents. They are simple, humble people. Even when they were living in Cuba, under communist rule and without much, they always made sure to share whatever they had with our grandparents, aunts, uncles—everyone.
That continued when they came to the United States. They believed in helping others, often giving people money so that they could start their own businesses, too. We were taught early on this is what you’re just supposed to do— help anyone who needs it.
We’re passing this on to the next generation in our family. There are seven grandchildren, and we want them to be aware of their role in society. My brother, Raul, is always telling them that if they really want to make a difference in this world they need to work hard and stay focused so that they are in a position to give later on. But there are many, many other ways to help, not just through money. I’ve brought my children to the hospital to volunteer with me. I want them to know it’s their social responsibility to make any kind of improvement, big or small. For us, it can be as simple as donating our treats for different events.
We have to keep in mind that even though they are hospitalized and fighting some tough battles, at the end of the day they are still kids.
Porto’s supports Children’s Hospital because we believe in the hospital’s mission. We also support CHLA because we want to give back and support our community. For our family, we give because it comes from the heart. It’s in our makeup. It’s who we are. It’s what we do. ▲ Raul Sr., decorating the bakery’s festive holiday cakes in the mid-’90s Rosa and Raul Sr., outside the family’s first storefront on Silver Lake and Sunset Boulevards in 1976 ▼ “Porto’s supports Children’s Hospital because ... we want to give back and support our community. For our family, we give because it comes from the heart.
It’s in our makeup. It’s who we are. It’s what we do.” —Betty Porto
12 | CHLA.org/DONATE In thanks for his nephew’s life-changing care, JP LeVeque raised an impressive $115,000 to support CHLA—and all he had to do was run the L.A. Marathon. By Marla Lehner BEST UNCLE EVER JP LeVeque and his nephew, Sebastian, spend some quality time together.
Imagine Magazine | 13 JP LeVeque DONOR PROFILE Early on the morning of March 24, 2019, JP LeVeque sprinted through the starting line of the Los Angeles Marathon full of excitement. After about an hour of running, his energy started to flag—until he was reinvigorated by the sight of Children’s Hospital Los Angeles’ Sunset campus.
It was really nice to see Children’s,” says JP. “It was an emotional experience.” He had decided to run the marathon a couple of months earlier—not enough time to properly train—but JP was committed to doing it to raise money for CHLA, where his nephew, Sebastian, had received life-changing care. Running by the institution where “Bash,” as his family calls him, had been hospitalized flooded JP with memories of that difficult time—and gratitude that Bash is now a happy, healthy baby. An unexpected complication It started Oct. 16, 2018: Chris and Kelly LeVeque were at Providence Saint John’s Health Center in Santa Monica preparing to welcome their first child.
Kelly, a nutritionist and wellness expert, had gone into labor nearly 24 hours earlier, when finally she gave birth to an 8-pound, 9-ounce boy. The doctors brought baby Sebastian to his thrilled parents—but whisked him away moments later. “It was the best and worst moment of my life,” says Kelly. “He was laid on my chest for seconds, then he was transferred to a baby warmer and someone hit an alarm.” At birth, Sebastian displayed signs of hypoxic-ischemic encephalopathy (HIE), a condition that occurs when a baby is deprived of oxygen during pregnancy or delivery. Babies suspected of having HIE need to be treated with hypothermia therapy—an intervention that reduces the risk or extent of brain injury by lowering the overall body temperature—but it must be administered within six hours of birth.
A rush to CHLA JP was a few blocks away waiting for word of his nephew’s birth when he received a text saying something was wrong. He rushed to the hospital, and when Sebastian and Chris were put into an ambulance headed for Children’s Hospital Los Angeles, JP jumped in his car to follow them. “When I got to the hospital, my brother said, ‘The doctors think Sebastian might have brain damage, but we don’t know,’” JP recalls. “But Chris’ response was so positive to the worst possible news. He said, ‘No matter what happens, I’m here for him.’ I felt like Chris really became a grown-up in that moment.
It was the first time I’d seen him as a parent and I could not have been prouder.” The next few days were agonizing for the family. In CHLA’s Steven & Alexandra Cohen Foundation Newborn and Infant ▲ After Sebastian was given a clean bill of health, his parents could finally hold him. Critical Care Unit (NICCU), Sebastian was cooled to 92.3 degrees. Due to the therapy, no one could hold him—they could simply sit beside him and hope. “We were in purgatory from the moment we were told HIE was a possibility,” says Kelly. “Living with the unknown was so hard.” Children with HIE can suffer from a variety of brain-related conditions and have lifelong disabilities.
Hypothermia therapy minimizes the chances and severity of potential health issues, but doctors could not accurately predict Sebastian’s prognosis until he had undergone 72 hours of cooling. “At CHLA, the doctors and nurses were exceptional and gave Bash amazing care,” says JP. “But it wasn’t just the doctors: Every person who worked there, top to bottom, was exceptional. They made my whole family feel comfortable. It felt like everyone had a common purpose.” After three days, Bash was slowly rewarmed and underwent an MRI to look for signs of brain damage. To everyone’s relief, he received a clean bill of health: Aside from a small brain bleed that occurred during delivery and would resolve on its own, he was perfectly healthy.
(continued on next page) “At CHLA ... every person who worked there, top to bottom, was exceptional. They made my whole family feel comfortable. It felt like everyone had a common purpose.” —JP LeVeque
14 | CHLA.org/DONATE “An unremarkable brain MRI, along with normal EEG findings, are the optimal results,” says Tai-Wei Wu, MD, the neonatologist who oversaw Sebastian’s care. “It was a pleasure to give the LeVeque family this good news.” Sebastian remained in the NICCU for another two weeks, and went home on Oct. 31 as a healthy newborn. “Childbirth is a miracle,” says Chris. “Between the incredible care we received at CHLA, the results of Bash’s MRI, and finally getting the green light to go home, we felt like we’d been blessed with miracles two, three, four and more.” But how to give back?
Chris, Kelly and Sebastian quickly settled into life as a new family.
Everyone was grateful for Bash’s good health—but JP could not shake the feeling that he should honor their good fortune. At CHLA, he had seen countless families coping with their own children’s health crises, and he knew many of them were still there facing critical diagnoses. “You can’t help but put yourself in their shoes,” says JP. “I wondered, ‘Why did we get so lucky?’ I felt like I had to somehow give back.” Searching for an idea, JP landed on one that would lead him through a little more than 26 miles. Calling himself “a regular person who runs,” he had never considered running more than his usual 3 to 5 miles—until he got the idea to do the marathon to celebrate Sebastian and support CHLA.
Before he could change his mind, JP began telling people about his plan. He set up a fundraising page at CHLA.org/FUNDRAISE and sent an email to friends, family and peers announcing his intentions. As soon as he hit send, though, JP began to worry. “If I couldn’t finish the race or raise the money, I’d feel embarrassed,” says JP, who had set a $20,000 fundraising goal. As it turned out, he had no reason to fret. Within two days, he had raised nearly $15,000. He was astonished by people’s generosity: Many gave larger gifts than he ever expected, donating $100, $250 or even $500.
JP works in commercial real estate, which he describes as a generous community.
He had sent his solicitation to many industry contacts, including Jeffrey Worthe, whom JP had known for years and who is Chair of the Board of Directors at CHLA. Although JP thought Worthe might support his efforts, he never anticipated his generosity: “Jeff said he and his wife, Kristin, would match whatever I raised.” As the date of the marathon neared, JP surpassed his goal, raising more than $50,000. As promised, the Worthe family matched the funds, ultimately helping JP raise a whopping $115,603.
The bow on top About 2 miles from the marathon’s finish line, a group of JP’s friends and family— including Chris, Kelly and Sebastian— gathered to cheer him on. “We made huge signs and rallied our friends,” says Kelly. “We were tracking him on the app and knew when he was going to run by. We were all screaming. Chris even dropped his poster and started running with JP. I started crying. It was really emotional for us.” Later that day, the group gathered at JP’s home to celebrate. “It felt like the bow on the gift of Sebastian’s health,” says Kelly. “We all needed that positive experience to wrap it up.” JP says the journey—from his successful fundraising to completing the marathon— was more rewarding than he had imagined, but he is modest about his achievement.
It’s not about me,” he says. “All I did was send out an email and go running. It’s all about the generous people who donated. There were 200 individuals and families who stepped up and gave. I think that’s what’s so impressive.” As for the future, look for JP at the Los Angeles Marathon in 2020. “I’m going to run again to raise more for CHLA,” he says, “and try to beat my time.” Chris—who plans to join his big brother in the marathon—is touched by JP’s dedication to his family. “My brother has shown us the true meaning of love, sacrifice and selflessness,” he says. “Bash is beyond lucky to have him in his life.
He’s the best uncle, ever.” Children’s Hospital Los Angeles is proud to be a featured charity partner of the 2020 Los Angeles Marathon. To register, go to: bit.ly/LAMarathonCHLA. Join as a charity runner for CHLA and do more with your race.
DONOR PROFILE JP LeVeque JP LeVeque (third from left) after finishing the L.A. Marathon, surrounded by his family, including wife Marisa, son Henry, nephew Sebastian (on JP’s lap), brother Chris, son Everett, and sister-in-law Kelly
Imagine Magazine | 15 You can create hope and build healthier futures for our children. When you leave a gift to Children’s Hospital Los Angeles in your will or trust, you create a legacy that ensures future generations can benefit from CHLA’s lifesaving clinical care, innovative research and education. For your gift, you will be recognized as a legacy donor in the Emma Phillips Society.
We invite you to become a member of the Children’s Hospital Los Angeles family of supporters. CREATE A LASTING LEGACY OF CARE To discuss including CHLA in your estate plans, please contact the Gift Planning Office at 323-361-2308 or visit CHLA.org/PlannedGiving for more information.
16 | CHLA.org/DONATE For Eszylfie Taylor, it was never a matter of if he would support Children’s Hospital Los Angeles. It was simply a matter of when. “I’ve always had a soft spot in my heart for children,” says the father of three. “They don’t choose to be healthy or unhealthy. They don’t choose their environment. They’re just dealt a hand.” This reality—that children are some of the most vulnerable members of the community—has motivated Taylor to focus his philanthropic efforts on kids’ causes. He’s donated to and served on the boards of several children’s charities and launched his own nonprofit, Future Stars, which awards scholarships to local kids to attend its youth basketball camp, as well as academic scholarships.
DONOR PROFILE Eszylfie Taylor A FATHER’S GIFT TO HELP MORE CHILDREN IN NEED Even before his twins were treated at Children’s Hospital, Eszylfie Taylor wanted to make a difference—a commitment he’s now solidified through a planned gift. By Eunice Oh Eszylfie Taylor with his daughters (from left to right) Shae, Nya and Zoe A few years ago, the Pasadena-based financial adviser began giving to CHLA, inspired by the hospital’s work helping families to navigate an incredibly difficult time—their child’s hospitalization. “I’m always drawn to things where, if I were in that person’s shoes, I would want the same,” he explains.
Imagine Magazine | 17 Still, it never crossed Taylor’s mind that he would one day find himself in need of CHLA’s expertise. A devastating diagnosis Taylor’s twins, Shae and Zoe, had been the picture of perfect health.Then, seemingly out of the blue, they both started having seizures. Confusion and fear quickly set in. “What is going on? Why is this happening?” Taylor remembers thinking at the time. After undergoing multiple tests and seeing different specialists, his daughters were eventually diagnosed with an epileptic disorder.Though their condition is under control today and the girls, 10, are thriving, the ordeal left an indelible mark on Taylor and reinforced his decision to support Children’s Hospital.
Before you have kids, I don’t think you truly appreciate how precious it is to be given a child, a healthy one,” says Taylor. “I’m grateful my daughters are OK, but I realize other parents endure a lot more. If I’m able to help other kids and families who are going through something similar, I will do whatever I can.” Taylor, the founder and President of Taylor Insurance and Financial Services, began thinking about how he could make an even greater impact and immediately gravitated toward planned giving, an area in which he has extensive experience. He renewed his commitment to CHLA through an estate gift that will continue to grow over time and evolve into a much larger donation than one he could provide today.
Right now, I have a growing family and I can’t necessarily afford to give away a million dollars,” says Taylor, 41, who also has an older daughter, Nya. “By doing this, one day I will.” “I’m grateful my daughters are OK, but I realize other parents endure a lot more. If I’m able to help other kids and families who are going through something similar, I will do whatever I can.” —Eszylfie Taylor Eszylfie Taylor DONOR PROFILE ‘A light at the end of the tunnel’ With his gift,Taylor aims to make CHLA’s mission of creating hope and building healthier futures a reality for more kids. Specifically, he has allocated his donation to CHLA’s Child Life Program, which specializes in helping patients and families cope with the stress and uncertainty of an illness or hospitalization.
What I like most about this program is that it puts children’s minds in a different place,” he explains. “Child Life can help kids get into a headspace where they’re positive, informed and empowered and won’t be as fearful about what they’re going through. I think that’s often half the battle for them.” Taylor is now more passionate than ever about giving back and raising awareness about CHLA, often encouraging clients to support the hospital, a place he says embodies two key elements: hope and encouragement.
At Children’s Hospital, you will find hope. You’ll find answers. You’ll get support,” he says. “And you will see there’s a light at the end of the tunnel.” Today, Zoe and Shae are healthy, happy 10-year-olds.
18 | CHLA.org/DONATE Throughout the year, philanthropists, community leaders, corporate sponsors, and grateful friends and families come together to benefit Children’s Hospital Los Angeles. The enthusiasm and generosity of our supporters inspire everything we do and ensure the hospital’s ability to create hope and build healthier futures. It is an honor to showcase some of the recent celebrations and fundraising events on the pages that follow.
Mann Family Foundation Dedication ▼ A reception on June 12, 2019, recognized the Alfred E. Mann Family Foundation’s transformative $6 million gift to support leadingedge research in the fight against childhood cancers and other diseases. Half of the donation establishes the Alfred E. Mann Family Foundation Chair in Cancer Research—with Alan S. Wayne, MD, Director of the Cancer and Blood Disease Institute (CBDI), as the inaugural chair holder. The gift also provides $3 million to invest in a 3,000-square-foot aquatic research facility on CHLA’s Sunset campus: The Alfred E. Mann Family Foundation Zebrafish Facility.
Led by James F. Amatruda, MD, PhD, the research lab will support scientists in their discovery of new therapies for cancer, diabetes, heart disease and more. ◄ Left to right: James F. Amatruda, MD, PhD, Sarcoma Research Chair for the CBDI; Anoosheh Bostani, Secretary and Treasurer of the Alfred E. Mann Family Foundation; Mike Dreyer, President of the Alfred E. Mann Family Foundation; Robert E. Shaddy, MD, Pasadena Guild Chair, Pediatrician-in-Chief and CHLA Senior Vice President of Academic Affairs; Alan S. Wayne, MD, the inaugural Alfred E. Mann Family Foundation Chair in Cancer Research and Director of the CBDI; and Paul S.
Viviano, CHLA President and CEO Reception attendees included Yvonne Niami, founder of n:Philanthropy and a member of the CBDI Leadership Council, and Preston Blankenship. ► Higgins Family Charitable Foundation Trustees Samantha and Harvey Moss with their son, Caleb
Imagine Magazine | 19 Helinet Aviation Dedication ► On May 1, 2019, CHLA leaders gathered on the hospital’s main helipad to celebrate the life and philanthropy of former Trustee Alan Purwin, who passed away in 2015. The ceremony included a ribbon-cutting in front of the hospital’s new Sikorsky helicopter as the helipad was officially re-designated the Purwin Family-Helinet Aviation Helipad. The Purwin family’s company, Helinet Aviation, has covered the costs of transporting critically ill children to and from CHLA on nearly 9,000 missions over the past two decades. During the event, Lauren Cosentino, with husband Marco by her side, shared her family’s personal story of their infant son, Max, who was transported to CHLA during the Woolsey fire in 2018.
CHLA HAPPENINGS ▲ Left to right: Jeffrey Worthe, Chair of the CHLA Board of Directors and a member of the CHLA Foundation Board of Trustees; Arnold J. Kleiner, a member of the CHLA Foundation Board of Trustees; CHLA President and CEO Paul S. Viviano; Kathryn Purwin, Helinet Aviation CEO and a member of the CHLA Foundation Board of Trustees; Kevin Brogan, Chair of the CHLA Foundation Board of Trustees; and Alexandra Carter, Senior Vice President and Chief Development Officer at CHLA Helinet Aviation has covered the costs of transporting critically ill children to and from CHLA on nearly 9,000 missions over the past two decades.
A photo of the late Helinet Aviation founder and philanthropist Alan Purwin was displayed at the dedication event. CHLA’s new Sikorsky helicopter flying over downtown Los Angeles Kathryn Purwin (center) with team members of the CHLA Alan Purwin Emergency Transport Program Left to right: Lauren Cosentino; Marco Cosentino; Alexandra Carter, CHLA Senior Vice President and Chief Development Officer; and Becky Lythgoe, a member of the CHLA Foundation Board of Trustees