IMPACT REPORT 2017-2018 - Understanding dementia - Alzheimer Society of Canada
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Understanding
dementia
2017-2018
IMPACT
REPORT
Our vision: Our mission: Our values:
A world without To alleviate the Summarized by
Alzheimer’s personal and social the acronym CARE,
disease and other consequences of our values are
dementias. Alzheimer’s disease collaboration,
and other dementias accountability,
and to provide respect and excellence
research. in everything that
we do.
Contents
4 10 19 25
A message Understanding the Understanding Corporate
from the CEO role of research the role of information
government
6 14 26
Understanding Understanding the 20 Understanding
people living with role of partners Understanding the the role of the
dementia role of donors Alzheimer Society
of Canada
BY THE NUMBERS
THE URGENCY
TODAY 2031 $359
Canadians
living with
dementia
500,000+ 937,000 MILLION
Cost to bring
a dementia-
treating drug
$16.6
$10.4
65 %
Costs of
caring for Of those living from lab to
Canadians BILLION BILLION with dementia market
with aged 65 +
dementia are women
THE PROGRESS
1 in 5 Canadians have experience MORE
caring for someone living THAN
$53
with a form of dementia
56
MILLION
% invested to date in research
through the Alzheimer
of Canadians are Society Research Program
concerned about being
1Canadians
in 4admit affected by Alzheimer’s
they would feel
ashamed or
embarrassed if
disease
Of greatest concern is their
fear of being a burden to
25,000
Canadians participated
87
they had dementia
% of caregivers wish that others, and of losing their in the 2017 Walk for
more people understood independence and the Alzheimer’s to support
the realities of caring for inablility to recognize those affected by dementia
someone with dementia
family and friends
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 3
We must first seek to understand
My mother is living as long as possible, perhaps to avoid
embarrassment and stigma.
with late-stage
vascular dementia. These results confirm our belief that
Pauline Tardif, CEO stigma is one of the biggest barriers
for people with dementia to live fully
As one of her caregivers, I am well-
with dignity and respect. The findings
acquainted with the services the
underscore the work we must still do to
Alzheimer Society can provide to those
end stigma once and for all. There is no
living with dementia. I am also painfully
shame in having dementia. We can’t let
aware of the current limitations of our
negative perceptions stand in the way
country’s supports and resources when
of people with dementia seeking help
it comes to meeting the needs of this
and support. Life without discrimination
rapidly growing community.
is a right for anyone affected by this
I also understand the impact of stigma. disease.
Stigma is what caused my parents to
Our three-year awareness campaign,
wait a long time before telling our
“Yes. I live with dementia. Let me
family about my mother’s dementia
help you understand,” tackles the
diagnosis. And as we learned this year
issue of stigma head-on through the
in our research, they were not alone. We
stories of Canadians who are living
learned that 50 per cent of Canadians
with Alzheimer’s disease and other
would not want others to know if they
dementias (read more on page 8). We
had Alzheimer’s disease. We learned
are grateful to our ambassadors for their
that one in five Canadians admit that
candour and bravery in sharing their
if they thought they had dementia
experiences to help us all understand.
they would avoid seeking help for
4 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT
Alzheimer’s disease and other dementias are It is essential that we continue to build on this
gaining national profile in other ways, too. As the momentum. As the number of Canadians living
development of the national dementia strategy with Alzheimer’s disease and other dementias
moves forward, we are collaborating with like- grows exponentially, our support of dementia
minded partners like never before (read more research needs to grow even faster. Many
on page 14). The leading-edge research you researchers are optimistic that we are close to
are helping to support through the Alzheimer breakthroughs in finding the answers we need to
Society Research Program is edging us closer fight and cure this disease. Now more than ever
every day to finding more effective treatments before is the time for us to focus and ensure that
and the cure for Alzheimer’s disease, as well as they are well-supported.
new and innovative ways of improving the care
of and quality of life of people with dementia. Ensuring that support means building more
More Canadians are raising awareness and dementia-inclusive communities. And that
money through our national Walk for Alzheimer’s begins with understanding. I invite you to visit
each year. And we’re expanding community ilivewithdementia.ca to learn more about the
programs like Minds in Motion® (read more on experiences of your fellow Canadians. Let’s work
page 15), with multiple benefits for participants together to increase everyone’s understanding
with dementia and for those who interact with of dementia.
and care for them.
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 5
Underst nding people
living with dementia
Those who have Dementia is not a natural But it is not just a disease of
been diagnosed with part of aging even though the elderly—you could be
dementia often struggle age is the biggest risk diagnosed in your 50s, 40s
with misconceptions factor: After 65, your risk for or even 30s.
about the disease. dementia doubles every
five years.
6 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT
Understanding people living with dementia
Faye Forbes:
Building understanding through
active social connections
Shocked by her diagnosis of Alzheimer’s disease
at age 57, Reverend Faye Forbes says that the
right medication and a positive outlook have
helped her to not only manage her symptoms,
but also to set a positive example for everyone
she interacts with. Eight years after her diagnosis,
she has achieved her goal of becoming an
ordained minister, participates in numerous
events and educational forums to help increase
understanding of dementia, and is a director of
the board of the Alzheimer Society of Canada.
Faye also shared her experience as part of this
year’s awareness campaign, including appearing
in several videos outlining typical symptoms of
dementia and strategies for dealing with them.
“Alzheimer’s is not the end of life,” says Faye. “I’m
still the same person as I was before. I have the
same feelings and outlook. I can still think for
myself but just can’t always express my thoughts
as I used to.”
Reverend
Faye Forbes
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 7
Understanding people living with dementia
Dementia refers to a group of conditions inform researchers and research funding The cornerstone of the campaign was
that affect the brain and cause problems organizations as well as the Government the powerful, first-person stories of
with memory, thinking, speaking of Canada’s national dementia strategy. 37 ambassadors from across Canada
or performing familiar tasks. But whose lives have been touched by
Alzheimer’s and other dementias don’t The initiative, known as the Canadian Alzheimer’s and other dementias in
fundamentally change—or define—the Dementia Priority Setting Partnership some way, each with the headline: “Yes.
people who are living with them. And study, was funded by the Alzheimer I live with dementia. Let me help you
with the right help and support, people Society Research Program as part of understand.” A bilingual digital toolkit
living with dementia can continue to do our commitment to the Canadian was provided to all provincial Societies
the things they love and remain active in Consortium on Neurodegeneration in containing key messages, customizable
their communities. Aging (read more about both initiatives print materials, radio scripts, social
on page 11). media posts and images, and tips on
People living with dementia tell us, how to run the campaign locally.
“Nothing about us, without us.” They The top priority identified in the study
have the right to be actively involved came as a bit of a surprise to researchers: Alzheimer Societies ran the campaign as
in the work of organizations, like the It was understanding the stigmas part of national Alzheimer’s Awareness
Alzheimer Society, that represent their associated with dementia, their impact, Month in January 2018. The results
interests. It’s up to us to learn how to and strategies for reducing them. were astounding, with national radio,
accommodate their needs to make their television and newspaper coverage,
engagement possible—and meaningful. viral social media activity, nearly 25,000
visitors to ilivewithdementia.ca, and a
“Yes. I Live With Dementia”: 2,397 per cent increase in media reach
Our three-year nationwide year over year.
Canadian Dementia Priority awareness campaign
Setting Partnership study
With stigma identified as our top
In 2017, researchers at the Toronto research priority, the Alzheimer Society
Rehabilitation Institute, University of Canada surveyed more than 1,500
Health Network, Dr. Jennifer Bethell Canadians in November 2017 to learn
and Dr. Katherine McGilton surveyed more about their attitudes and beliefs
more than 1,200 Canadians living with when it comes to Alzheimer’s disease
dementia, as well as their friends, family, and other dementias. Using the survey
caregivers and health-care providers. results, we developed a three-year multi-
They identified their top 10 dementia channel awareness campaign with the
research priorities, which will help to goal of increasing understanding of the
realities and experiences of Canadians
who are affected by dementia.
8 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT
Understanding people living with dementia
Roger Marple:
Sharing his experience
to educate others
Since he was diagnosed with young onset
Alzheimer’s disease in 2015, Roger Marple has
become a vocal advocate for others, working to
dispel myths about the disease and reduce the
stigma surrounding dementia.
As a participant in the Canadian Dementia
Priority Setting Partnership study, he helped to
identify the top 10 dementia research priorities
for Canadian researchers and research funding
organizations. As one of eight members of the
Alzheimer Society of Canada Advisory Group,
all living with dementia, he contributed to the
development of a resource manual to help
organizations foster the meaningful engagement
of those living with the disease. He and other
members of the Advisory Group have also led
training sessions to help Alzheimer Society staff
become even better partners for people with
dementia. And perhaps most important, he has
shared his experience through our awareness
campaign. “Dementia does not discriminate and
that includes age,” says Roger. “When you meet
someone with dementia, clear your mind of any
preconceived perceptions you may have and
see the person for who they are—in the here
and now.”
Roger Marple
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 9
Underst nding
the role of research
Research is getting us closer Finding a treatment will benefit We’re proud to
every day to finding the cause all Canadians by improving the support some of
and the cure for Alzheimer’s lives of all who are touched Canada’s brightest
disease and other dementias, by dementia, reducing the minds in this vital
as well as new and effective growing burden on our health work.
approaches to improving care care system, and helping to
and quality of life for those create a better future for the
living with dementia. next generation.
How drugs are approved in Canada for the treatment of Alzheimer’s disease
STAGE 1 STAGE 2 STAGE 3 STAGE 4
BIOMEDICAL RESEARCH PRE-CLINICAL RESEARCH CLINICAL TRIALS
Laboratory testing Drug is administered to animals* to Phase 1: Drug is Phase 2: Drug is administered to
occurs to determine determine effectiveness. Only five in administered to humans to humans with Alzheimer’s disease,
the effects of a drug. 5,000 drugs make it past this stage. determine tolerance and who are compared against a control
effective dosage. group. Researchers assess the safety,
effectiveness, side effects and
optimal dosage of the drug.
3 – 6 years 6 – 7 years
* The Alzheimer Society of Canada supports only research that meets the Guiding Principles set out by the
10 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT
Canadian Council on Animal Care.Understanding the role of research
The Alzheimer Society Canadian Consortium for Neurodegeneration in Aging (CCNA)
Research Program (ASRP)
The largest effort to understand • Establishment of 20 teams across
Celebrating 30 years, our flagship dementia in Canada is the Canadian Canada doing cutting-edge research
national peer-reviewed program Consortium for Neurodegeneration in in the areas of prevention, treatment
awarded $3.4 million to 24 researchers Aging (CCNA). More than 350 clinicians and quality of life
working on a range of biomedical and and researchers throughout Canada • Publication of research findings in
quality-of-life research projects. We have come together to form the CCNA more than 100 scientific journals
are grateful to Alzheimer Societies and and are accelerating progress in the
donors across the country for funding research of Alzheimer’s disease and • Creation of a national patient cohort
the ASRP. other age-related neurodegenerative of more than 2,000 Canadians for
diseases, including Vascular dementia, research purposes
Frontotemporal dementia, and Lewy • Ongoing knowledge transfer to
body dementia. public and policy makers through a
dedicated program
As a founding CCNA partner, the
• Collaboration with other federal
Alzheimer Society of Canada has
initiatives, including the Centre for
committed $4.05 million over five years
Aging & Brain Health Innovation
(2014-2019) to these efforts and is
(CABHI), the Canadian Longitudinal
proud to have supported many of the
Study on Aging (CLSA), and AGE-
researchers leading key projects within
WELL
the CCNA through the Alzheimer Society
Research Program. Achievements to
date include:
On average it takes 12 years and $359 million to bring a drug from the research lab to a person with dementia.
STAGE 5 STAGE 6 STAGE 7
CLINICAL TRIALS – CONTINUED NEW DRUG SUBMISSION ONGOING MONITORING
Phase 3: Phase 3 Clinical Trial application is submitted to the Therapeutic Drug is submitted to the Health Canada continues to monitor
Products Directorate (TPD) of Health Canada. This phase includes additional Therapeutic Products Directorate drug’s effectiveness and side effects
people with Alzheimer’s disease who also have other conditions for which they of Health Canada for risk/benefits after approval.
are taking additional medications. Drug effectiveness, side effects, use and ideal assessment. If its benefits outweigh
dose are considered among a broader population. risks for target users, the Health
Products and Food Branch of Health
Canada will approve the drug.
0.5 – 2 years
Source: The Consortium of Canadian Centres for Clinical Cognitive Research (C5R).
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 11Understanding the role of research
Research
Dr. Anne Almey Dr. Gillian Einstein
Investigating the connection between
highlights
estrogen and dementia
As women tend to live longer than men, they also have a higher
risk of developing dementia. However, age may not tell the whole
story behind women’s higher susceptibility to the disease.
Supervised by Dr. Gillian Einstein (a distant cousin of famed
scientist Albert Einstein), Wilfred and Joyce Posluns Chair in
Women’s Brain Health and Aging at the University of Toronto,
and Dr. Natasha Rajah, Director of The Brain Imaging Centre at
the Douglas Institute, and Associate Professor, Department of
Psychiatry at McGill University, post-doctoral fellow Dr. Anne
Almey is using her ASRP funding to study the role that estrogens
play in both cognitive and brain health in women. She will
compare a specific population of women with low levels of
circulating estrogen with a control group of women with normal
levels of circulating estrogens.
Dr. Almey hopes to clarify the role that estrogens play in cognitive
and neurobiological functioning in women, and perhaps
contribute to treatments to slow the progression or prevent the
development of Alzheimer’s disease in women.
12 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORTUnderstanding the role of research
Dr. Simon Duchesne
Detecting dementia years before
symptoms begin Dr. Debra Sheets
There is growing evidence to suggest that Understanding the power of music
certain changes can be detected in the brain to improve quality of life
years—even decades—before symptoms of
dementia begin to appear. Supported by an One of the frequent side effects of Alzheimer’s, for those with
ASRP biomedical grant, Dr. Simon Duchesne, the disease and for their caregivers, is social isolation. The
Associate Professor in the Radiology Department benefits of music and the arts for people living with dementia
at Université Laval, and who is also the Chair of are well-known, and anecdotal evidence has shown choirs to be
the ASRP Biomedical Panel, is using magnetic particularly promising. Choirs provide their members with a sense of
resonance imaging (MRI) to study the brains of connection, improved mood and self-esteem, reduced stress,
individuals with dementia and those without the and an opportunity to express their voices and learn more about
disease. each other.
Dr. Duchesne’s goal is to identify the disease Using a quality of life grant from the ASRP, Dr. Debra Sheets,
early, thereby maximizing the treatment Associate Professor in the School of Nursing at the University of
window—and therefore the effectiveness—of Victoria, is studying the benefits of an intergenerational choir for
both lifestyle and drug approaches to combat people with dementia. Voices in Motion is an intergenerational choir
Alzheimer’s and other dementias. that brings together people with Alzheimer’s disease, caregivers and
high school students from the community in Victoria, B.C. The goal
is to use the study’s findings to create a toolkit of best practices that
can be used by other organizations who are interested in starting a
community choir for people with dementia.
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 13Underst nding the role of partners Our corporate and They contribute their in their own communities community partners are expertise and energy through and across Canada whose helping to expand our ongoing programs and lives are touched by reach and impact in annual events to make a Alzheimer’s disease. amazing ways. difference for people David Hearn 14 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT
Understanding the role of partners
Minds in Motion®
Research shows that a healthy lifestyle
can not only help to reduce our risk of
dementia and other chronic diseases,
but may also improve quality of life,
slow the progression of the disease and
improve capacity to manage some of the
challenges of the disease.
That’s the thinking behind the Alzheimer
Society’s Minds in Motion® program,
a physical activity and cognitive
stimulation program for people
in the early to middle stages of
dementia and their caregivers.
Participants in a Minds in Motion class
First developed by the Alzheimer Society
of BC in 2009, the program, which is
currently available in 16 locations, has For people with dementia, there are recreation centre hosting the program
expanded to 12 additional pilot sites multiple benefits of Minds in Motion: reported an increase in their knowledge
across Canada with more in the planning improved balance and mobility, and understanding of older adults and/
stages—thanks to support from the sharpened mental functioning, or dementia.
Canadian Centre for Aging & Brain increased confidence and a sense
Health Innovation’s Industry Innovation of social inclusion. In fact, many “There is one gentleman who is quite far
and Partnership Program. Throughout participants choose to seek out into his Alzheimer’s and we wondered if
the eight-week program, participants are additional exercise and community maybe the group was too much for him,”
led through a series of simple exercises programs beyond their weekly Minds in says the daughter of a Minds in Motion
that focus on flexibility, strength and Motion class. participant. “But then things in his brain
balance, with some fun and challenging started turning on. His caregiver told
activities thrown in such as Zumba or For caregivers, it’s an opportunity us he was doing things he hadn’t been
dancing. Brain games, trivia, visual arts, to focus on their own health and well- able to do before. Another lady told me
creative storytelling and a host of other being, all while having fun with the it’s helped her memory. It’s helped her
activities make up the cognitive portion person they care for. And at one site, spirit. That is something a doctor can’t
of the program. 90 per cent of staff and volunteers at the prescribe.”
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 15Understanding the role of partners
Canadians participating in the Walk for Alzheimer’s
to raise funds to help those with Alzheimer’s and other dementias
CC
16 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORTUnderstanding the role of partners
RBC Wealth Management, The David Hearn Foundation Extendicare
Estate & Trust Services and
planned giving After losing two close family members In July 2017, Extendicare Assist, the
to Alzheimer’s disease, PGA Tour golfer management and consulting division
More than 90 per cent of the planned David Hearn and his wife, Heather, were of Extendicare Inc., hosted its sixth
gifts we receive at the Alzheimer driven to help others who are affected annual Charity Golf Classic in Ottawa
Society of Canada are from wills and by the disease. Founded in 2015, The to benefit the Alzheimer Society of
bequests. Our partnership with RBC David Hearn Foundation’s central focus Canada. The tournament has raised
Wealth Management’s Estate & Trust is to support the Alzheimer Society more than $600,000 to date—$127,000
Services team began in 2016 and of Canada in increasing awareness, in 2017. Extendicare’s contributions have
focuses on helping us ensure that our improving care for those in need and been used to create a Relational Caring
online resources for Canadians who enhancing quality of life for those Learning Series to improve the quality
are interested in making a planned affected by Alzheimer’s disease, while of care and life for Canadians living with
gift to the Alzheimer Society in this also empowering Canadians to act and Alzheimer’s disease and other dementias
way are clear and supportive. Our RBC create positive change. in long-term care homes.
partners have also helped us educate
our community members about the In July 2017, The Foundation hosted the Relational caring, or person-centred care,
opportunities for legacy and planned sixth annual David Hearn Foundation is a model of care based on relationships
giving to the Society. Visit the Gift in Golf Classic, raising more than $130,000 of respect, trust, compassion and
your Will page at alzheimer.ca to explore to support the work of the Alzheimer empathy between those who work in
our resources, which include blog posts Society of Canada and the Alzheimer long-term care, residents with dementia,
and videos with legacy donors as well Society of Brant, Haldimand Norfolk, their caregivers and families. The
as estate and trust experts on why and Hamilton Halton. To date, the Hearn Relational Caring Learning Series is an
how to incorporate a planned gift into Classic has raised more than $500,000 to important component of our ongoing
your will. help Canadians living with Alzheimer’s work to drive a much-needed culture
disease and the people who care change toward person-centred care.
for them.
Learn more about our culture change
the initiative at: alzheimer.ca/culturechange
DAV D
HEARN
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 17Understanding the role of partners
Walk for Alzheimer’s Coffee Break®
The national Walk for Alzheimer’s (newly In 2017, 2,000 Coffee Break events were
branded as the Investors Group Walk for held in communities across Canada,
Alzheimer’s in April 2018), is Canada’s raising $600,000—money that directly
biggest fundraiser for Alzheimer’s benefits programs and services offered
disease and other dementias. Each year, by local Alzheimer Societies. Our
enthusiastic walkers come together for longest-running fundraiser, Coffee Break
a common goal: to raise vital funds for has grown from a grassroots initiative
local Alzheimer Society programs and to a community celebration of friends,
services, which will help individuals and families and neighbours who gather
families living with Alzheimer’s disease together at public venues to donate
and other forms of dementia. More funds in exchange of a cup of coffee and
than 25,000 participants in more than show their support for those living with
250 walks raised over $4.9 million in or caring for someone with dementia.
“
communities across Canada in 2017. To Thank you to Melitta, our in-kind
learn more and sign up for the Investors sponsor, for making this year’s event
Group Walk for Alzheimer’s a success. Find out more about Coffee
in your community, visit Break at alzheimer.ca/coffeebreak.
People with dementia walkforalzheimers.ca.
who come out to their
family and friends
with this disclosure
are my everyday
heroes. If one person
is enlightened about
dementia it is passed
on to the community
and we are all the
better for it.”
– Alzheimer’s awareness campaign
ambassador Mario Gregorio
18 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORTUnderst nding the role
of government
On June 22, 2017, Canada Our national dementia The strategy itself is
committed to a national strategy will become our expected to be delivered
dementia strategy. The single most powerful tool in early 2019. Policy
passing of An Act respecting to transform and elevate makers, people living with
a national strategy for Canada’s dementia care. dementia, caregivers, and
Alzheimer’s disease and stakeholders from across
other dementias means the The experiences of countries the country are working
Government of Canada will with national dementia together to offer feedback
address the overwhelming strategies show that and suggestions for this
scale, impact and cost of coordinated, targeted efforts precedent-setting national
dementia. at the national level improve dementia strategy. The
results for all aspects of Alzheimer Society of Canada
dementia care and research. is proud to contribute to
the development of the
strategy and will continue
to be a vocal advocate for
all Canadians affected by
dementia.
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 19Underst nding the
role of donors
Thank
!
Your generous support is different forms of dementia,
helping us to find a cure and and enhance quality of life, care
you identify potential new disease-
modifying therapies for
and safety for all those who are
affected by dementia.
Alzheimer’s, understand the
20 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORTUnderstanding the role of donors
Caroline Wight:
Giving to support other caregivers
Caroline Wight and her husband, Laurence,
worked side-by-side as real estate agents for
many years of their 48-year marriage. But
when Laurence was diagnosed with Lewy
body dementia and Caroline’s mother with
Alzheimer’s disease, Caroline suddenly found
herself in the full-time role of caregiver.
Supporting both her husband and her mother
with home-care workers while trying to
maintain her career was overwhelming and
isolating. “As a caregiver to two loved ones, I
knew that if I crumbled, the whole castle was
going to fall,” says Caroline. “I wish I had known
the Alzheimer Society could have helped all
of us, but I didn’t. I thought we had to cope by
ourselves.”
Caroline didn’t discover the Alzheimer Society
until both her husband and mother had passed
away, eight years later. “Because of my own
lonely experience, I always encourage caregivers
to contact the Alzheimer Society. And I’m so
impressed with their work that I’ve included the
Alzheimer Society in my will,” says Caroline. “No
one should have to face dementia alone.”
Laurence and
Caroline Wight
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 21Understanding the role of donors
Estates Significant Donors
Estate of Alan B. McLean
Estate of Anne Marie Schott $100,000+ $5,000 – $9,999 RBC Capital Markets Mrs. Christine A Babcock
Estate of B Joan Hazen Baycrest Mrs. Shamim Ahmad Paul Rosen Mr. Darren Baccus
Estate of Dale Ann Humphries Extendicare (Canada) Inc. Amex Canada Margaret Shaw Mary Bacon
Estate of Donna Gunnell Delaney Constance Ryan Fund Ann and Roger Phillips Foundation Smith Family Foundation Mr. Mauro Bagnariol
Estate of Eleanor G Chapman Almanzor Michaud Archibald & Lavina Knight Fund Joan Alston Stewart Ms. Linda Marie Ball
Estate of Eleanore Crawforth The Warren Y Soper Charitable Trust Mr. William E Barnett The Barber Family Charitable Mrs. Nancy Barat
Estate of Elizabeth Crawford B Lynn Beattie Foundation Mr. Lloyd Barbara
Estate of Ernest Bradshaw Jocelyn N N Braithwaite Thomas, Large & Singer Inc. Mr. Kirk Barton
Estate of Ethel Yvonne Leslie Samuels $50,000 – $99,999 Mr. Malcolm Burford Ms. Debbie Watt Beacon Hill Enterprise Inc.
Succession Francoise Carignan The David Hearn Foundation Caisse De Bienfaisance – CN Willa Woods Madame Agathe Beaumont Bezeau
Estate of Genette Grondin Garron Foundation Community Fund Mr. David Wright Bison Transport Inc.
Estate of Gladys L Collings William & Odna McCarlie Foundation Charles River Laboratories Inc. Ms. Shirley E. Young Mr. David Black
Estate of Helen Godwin Morres Bob Cronin Black & McDonald Ltd.
Estate of Hélène Tanguay Gagnon Walter & Shirley Durk Mrs. Cynthia Blumenthal
Estate of Inger Hansen $10,000 – $49,999 Dr. Roger Eamer $1,000 – $4,999 Paul Boesch
Estate of James N Sauvageau AGF Management Limited Mr. John Emery Anonymous (5) Walter M Bowen
Estate of Katherine Constance Millins The Barrett Family Foundation Enertrak Inc. Mr. Robert Abrams The Brabant Foundation
Estate of Kathleen Bresnahan Ivan J Beare Ezekiel and Cely Schouela Endowment Mr. Grant Abriel Ms. Gillian R Brain
Estate of Kenneth Snowdon Bob Collier Foundation Fund Mr. Chad Adams Mr. Dean Brayer
Estate of Leslie H Bertouche Kathleen Bresnahan Lisa Foster AESARA Foundation Mr. Joseph Brazier
Estate of Magnus Harper Bayne Yokie Chu Mr. David French Heinz Ahmer Brian and Susan Thomas Foundation
Estate of Margaret Cunningham CIBC Mellon Global Securities Services Mr. Rick Giammarino Mr. Gino Alberelli Monsieur Raymond Brodeur
LaForest Colliers Macaulay Nicolls Inc. Greater Toronto Sewer & Water Alberta Lift Mr. Barry Brookes
Estate of Mary Louise Fitz Contractors’ Assoc. Alderwood United Church
Crist Family Foundation Mr. John Brophy
Estate of Mike Wiersma Mr. William Haines All In One Canada Inc.
GJ Garden of Life Foundation Trustees Walter & Lisa Balford Brown
Estate of Morton Lewis Manilla Denise Herbert Miss Helen Anderson
Hazel & Fred Dearsley Fund Benjamin Brown
Succession Noella Lahaie Mr. Joseph Hrubizna Mr. E Edvard Anderson
Leon’s Furniture Ltd. Mel Bruce
Estate of Olive Andriashyk Vivian Hutchison Mr. Wiliam J Anderson
LeVan Family Foundation Mr. Michel Brusset
Estate of Pauline Spatz Innovative Medicines Canada Mr. Stuart Anderson
Mrs. Marjorie Logan Mrs. Janet Brydon
Estate of Reginald GG Allman IT Weapons Anonymous Fund
Basil F McDonald Mr. Robert Buchanan
Estate of Robert Grant Smith C Kurt Anthony McNally Dental Office
Mr. John Allan Mills The Burnie Group Inc.
Estate of Robert Lock Mr. Marc Legault M Jacques Archambault
Patricia Mulder Bruce Burton
Estate of Robert Watters Mr. Robert Lemon Melissa Armeni
New Brunswick Health Research Calgary Foundation
Estate of Sandra Jill Wieland Foundation Inc. Gary H Macdonald Mrs. E Louise Arnott Mr. Peter Callaghan
Otto & Marie Pick Charitable Mrs. Ephraim Martin Mr. Lowell Aronoff Ms. Lilias Cameron
Foundation Keith McQueen Stacey Arthur Mr. John W. Campbell
RBC Foundation/RBC Wealth Audrey Miklos Robert John Ashe Canadian Bridge Federation
Management 1625895 Ontario Limited Mrs. Martha-Lynn Astle Canadian Living
Rene Karrer Foundation Ontario Power Generation Inc. ATCO Electric Mr. Bruce D Cappel
Revera Long Term Care Inc. M Alain Ouimet Joy Atherton Mr. Wayne R Carswell
Alois Schoen The Philip Smith Foundation Robert Atkinson Dr. John Catherwood
Sobey’s Popeyes Supplements Canada Raymond Auger
Corporation CDSPI
The Walter Peterborough Fund Peter Aust
Michele Power Cenovus Employee Foundation
22 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORTUnderstanding the role of donors
Dr. Zdenek Cernovsky Miss Kamala Dixon Frank & Azniv Lochan Family Dr. Brian P Higgins Philip Lamont
Celine Chabot Don, Edith & Tom Bumstead Foundation Nancy Hobin Raymond Langlois
Madame Monique Chamberland Gifting Fund Philip Freischer Donald D Hogarth Monsieur Roger M Laporte
Mr. Daniel Ruben Kwong Chan Madeleine Downs Jason Friedmann Ms. Barbara J Holding Dr. Mona Lavoie
André Charpentier Dr. Patrick Gudgeon Medicine Dr. William Clark Friend Mr. Robert Hole Sean Lawton
Mr. Robert Chiasson Professional Corporation Mr. Harvey Fruitman Adair Hope Madame Thi My Hoa Le
Mr. Robert Child Grant S Drysdale Mr. Michael Furtner Horn Family Fund Susan Florence Le Roy
Jessie Ching Mrs. N Louise Dryver Mrs. Anne Gagné Lindsay Horwood Madame Gaétane Leblanc
Mr. Roger Choquette Dr. Maire A Duggan Gregory Galardo W B G Humphries Ms. Rosemary D Leckie
Mr. D James Christie Yvonne Dumas Diego Daniel Gallo Mr. Brian Hurley Edwin Lehtinen
Mr. James Cline W A Dunsmoor Gallop Family Fund IATSE Local 891 M. Bernard Lemaire
The Coll Family M André Duval Mrs. Debbie Gardiner IBM Mme Angèle Lemire
Mr. William B Collins Stephen Earle Gary Bluestein Charitable IBM-UK Robert G Lemon
Congrégation Servantes de Notre- Mr. Ross Edgett Foundation International Transport Workers’ Mme Francine Letourneau
Dame Reine Du Clergé Mr. Stanley Elder Mr. Paul Gibbons Federation Normande Levésque
David Cook Elisabeth Fulda Orsten Family Fund Ian Gibson Investors Group Mr. Eric P Levy
Mr. Kenneth G Copland Mrs. Mary E Ellis Ms. Wendy Giuffre J E Panneton Family Foundation Sigrid Lewicki
Brenda Corkhill James E Ellis Globocam J M Forbes & Co. LLP Headley G Lewis
Byron Corner Ena & Bernard Tam Charitable Fund Mrs. Christina A Godber Jalima Holdings Ltd. Janice M Ley
Corvette Club Of Ontario Inc. Mr. Jeffrey Engel Dr. Peter Goldberg Janet Ingraham Personal Real Louise Lim
Ms. Eleanor Cosman Enterprise Rent A Car Canada Cynthia Goodman Estate Corporation Linda Uniat Professional Corp.
Cotton Family Charitable Foundation Mr. John Gordon John & May Haggans Foundation Lindy Corp
Foundation Mr. Joe Essaye Madame Aline B Gosselin Mr. John M Johnson M A Lukachko
Raymond Coulombe Shelley-Anne Eves Mr. Michael Grace Mr. Warren Jones Allan Lundell
Monsieur André Courtemanche Exiger LLC Grace Graham Nick Kaeser Mr. R Theodore Lutz
Mr. Neil Cousins Wendelin Ezzat Mr. Scott Graham Mr. Adrian A Karpluk Mrs. May Lynch
Mr. Russel Cox Mr. Matt Fagan Mrs. Olive Maxine Graham Jozefa Kastelic Dr. George MacDougall
Ms. Jane Cronin Mr. Alireza Faghani Mr. Gordon Grainger Marvin Katz Mrs. Marie A MacInnes
Dorothy Cruikshank Ms. Louise Fast Mrs. Anita Greenberg Klaas Keizerwaard Mr. Robert Mackenzie
Mr. David A Crump Mr. Klaus Feikes Greenhouse Marketing & Mr. Thomas R Kelly Mackenzie Investments Charitable
Murray Cummings Ernie Fels Commuincations Inc. Dave Kelman Foundation
Mrs. Agnes Curran Ms. Debra Fendrick Ms. Maria Gregorio Stephen Kennedy Ms. C K MacLaurin
Dr. Peter Cybulski Marguerite Fillion Grenadier Foundation Mr. John Kerwin Janet Macmillan
Simon Dallimore Russell Finch Alex Grenzebach Keybase Financial Group Inc. Esther Madill
Mr. Donald Daoust Mr. George Fink Margaret Halmer Mr. Adeel Khan Ms. Yan Yan Grace Man
Peter Davies Mrs. Elizabeth M Finlay Mr. Poul Hansen Vincent Kho Mr. Deborah Mansell
Davies Ward Phillips & Vineberg Dr. Michael Fiorino Hargrave Ranching Co. Inc. Mr. Kenneth P. Kirkland John T Mappin
Foundation Karen E Floyd Mr. Grant Harland Dr. Judy T Klassen Bianca Marcus
Mr. Gordon Davis Mr. Peter Fograscher Patricia Harriman Holger Kluge Marie and Fred Kernaghan Family
Monsieur André De Bellefeuille Ms. Betty Foley Temple Harris John Knebel Fund
Mrs. Connie De Rooy Christopher Forman Mrs. Janet Haslett-Theall Ms. Marilyn Knowles Glenn Marr
Dealer Solutions North America Ms. Patricia A Fortier Hawkey Family Charitable Fund S Jean Koetsier-Adams Karin Marshall
Madame Rita Desjardins Mr. Kenneth R R Fowler Henriette & Leonard White Mrs. Nathalie Kostka Rick Martin
Madame Julie Desmeules Mr. Geoff Francis Foundation KPMG MSLP Mr. Antonio Masella
Mr. Paul H Dirksen Thomas Hicks Roland Laird Mary Maselli
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 23Understanding the role of donors Mass Environmental Services Inc Northwest Atlantic (Canada) RBC Royal Bank Sandra Steeves Mr. Stuart Waugh Mr. Philip O Maude Ms. Lindsay Norton RCMP Officers’ Presentation & Mr. Norling Stevens WCPD Foundation Mr. Robert McDonald Margaret Nutt Floral Fund W R Stewart Stephanie Wegrzynowski Ms. Maria Z I McDougall Brian Oberback Mr. Alan Redway Mr. J Bruce Stickle Mr. John Weinmayr Ms. Mary Anne McDowell Mrs. Marion O’Keefe Mrs. Sandra Reid Joan Strothard WeirFoulds LLP Ms. Faye R McGillivray Brian Oliver Ms. Diane Relyea Sundance Foundation Marion Jean Wellwood Martin McGurk Patricia O’Malley Revera Mr. Sveinung Svarte Mrs. Claire Welychko Robert McKay Mr. Chris O’Reilly Revera Retirement LP Ms. Barbara C Tardif Vivian Wenger Ms. Catherine S McKay Mr. James P Ounsworth Mr. Richard C Robinson Pauline Tardif George R Whetham Karen McKeown Mr. Reginald Outhouse Mr. Martin Rodgers Mrs. Elizabeth (Betty) Taylor Whiteside Foundation Mrs. Janet McLean Marie José Overweel Rogers Group of Companies Ms. Elizabeth Taylor Philip Whittall McLeish Corr-A-Box Packaging & Mrs. Reyhan Ozmutlu Joanne F Rogusky Telsec Business Centres Inc. Mr. Yurie Wiens Design Madame Hélène Paquet Mrs. Margaret Roland Telus Corporation Mr. Robert John Wilcox G Douglas McLeod John C Parker Rovinelli Construction Inc. Boiler Inspection & Insurance Co. Peter Wilkinson Dianne McMullen Mr. Roberto Daniele Pascucci Royal Canadian Legion Branch 239 of Canada Audrey M Wille Mr. Gary McMurray Marcella Pastor Mr. Donald W Sales Mrs. A Devitt Thiel William H & Nora Hickson Kelly Maureen McVicar Scott Pattinson Saskatoon Bridge Club Ms. Sharon C Thomas Fund Mr. Patrick Meagher Paul Boucher Family Fund Dr. David W Saslove Jeremy Thompson William Pink Family Fund Roxanna L Meek Normand Payette Bill Saul Mrs. Maggie Thompson Miss E J Williams Mennie Foundation Mr. Ian Pearce Mr. H Murray Saunders Ms. Nancy Thomson Mrs. Beryl Williams Mr. Henry S Mews Carolyn Peek Bernadette Schmaltz Thomson Reuters Mr. Herbert A Willis Michael Allan Johnson Foundation Allen Penney Schmitz Family Foundation Pat Thorburn Miss June M Wilson Ellen Michelson M Francois Pepin Roy Schofer Dr. Gordon Roy Thordarson Roy Wilson Margaret D Middleton Ms. Carolyn J Pepler Dr. Peter Scholefield R John Todd Ann Wimmer Ms. Beverley Miller Dennis Perry Leslie Scott Fran Tomecko Mr. George T Winton Susan Mingie Mr. John Phelan Mr. Duncan Scott Suet On Tong Myron Wolfe Marcelle Mitchell Dorothy Phillips Serad Holdings Ltd. Gerald Toogood Mr. David Woods Ben Mitchell-Banks Philpot Fund Mr. Carlo Sguassero Madame Ada Trak The Woods Foundation Mr. F Grant Moffat Shirley Piers Chantal Shaner Mr. Victor Tucker Mr. Christopher J Woodward Ainslie Moignard Dr. Ruth Roach Pierson Mr. Richard Shepherd Ms. Betty Ruth Tuckett WRC Inc. Mold-Masters (2007) Limited Ms. Cynthia A Potts Ms. Ellen F Shields Mr. Robert Tully Mr. Robert Wright Mrs. V Louise Morley Randy Powell Mr. Stephen Sienko Mrs. Mary Jo Turner Jacqueline Wright Mr. Jack Morrish Power Corporation Of Canada Mrs. Patricia H Silverthorne V Alan & Leona Moore Fund York Realty Inc. Mary Mowbray Prairie Oilfield Contracting Ltd. Mr. David William Simpson Mr. Jeffrey David Vallis Dan Young Mr. Jack Mundy Andre Pratte Mr. Scott Sinclair Mr. Michael A Van Leeuwen Winston Yuen Mrs. Jean Murphy Provincial Employees Community Mr. Thomas C Singer Vast Auto Distribution Ontario Joyce Zemans Mr. William Murray Services Fund Mr. Roger Smith Pieter Venema Mr. John Murray Mr. Ralph Pyle Mr. Robert Somerset Mr. Larry Vernon Manon Nadeau Robert J Pyne Ms. Joan Souch Mrs. Shirley Y Viertelhausen Francie Nadeau-Keats Mr. Dick Quan Mr. John R Spice George H Vinall Mr. John Neely Rachelle Paradis Medicine Prof. Mr. James Spring Jacqueline Von Wishtinghausen Margaret Newall Corp. St. Andrew’s Presbyterian Church Marijke Waddell New-Can Group Inc. Raschkowan Foundation Staffmed Solutions Inc. Mr. Michael Walker Mr. David Lee Nichols Raymond James Canada James Stanford Mr. Ian Warkentin Nicol Family Foundation Foundation Mr. David G Steer Ms. Victoria Watkins 24 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT
Corporate Information
Alzheimer Society of Canada/Société Alzheimer du Canada
Statement of Financial Position
Our Board of Directors
March 31 2018 2017
The Alzheimer Society of Canada’s
Assets
Board of Directors consists of
individuals from across Canada, Current
including a member from each Cash $ 3,403,713 $ 2,694,493
Short-term investments (Note 3a) 311,220 1,983,698
provincial Alzheimer Society. Accounts receivable (Note 2) 4,889,966 4,734,537
Prepaid expenses 49,054 44,309
Chair
8,653,953 9,457,037
Marjorie Sullivan, Halifax, NS
Long-term investments (Note 3b) 8,376,726 7,967,363
Vice Chair Restricted long-term investments (Note 3b) 1,201,907 1,151,729
Property and equipment (Note 4) 41,103 43,725
Ian Rea, Regina, SK
$ 18,273,689 $ 18,619,854
Secretary
Kevin O’Shea, St. John’s, NL Liabilities and Fund Balances
Current
Treasurer Accounts payable and accrued liabilities (Note 5) $ 5,472,745 $ 6,286,226
Ron Noble, Toronto, ON Deferred revenue (Note 6) 2,310,150 2,185,808
Research grants payable (Note 7) 2,100,229 2,114,304
David Anderson, Edmonton, AB 9,883,124 10,586,338
Dr. B. Lynn Beattie, Vancouver, BC
Deferred revenue (Note 6) 2,169,462 2,216,018
Don Dybka, Winnipeg, MB Research grants payable (Note 7) 543,407 623,528
Rev. Faye Forbes, Windsor Junction, NS
12,595,993 13,425,884
André Halley, Montreal, QC
Lisette Joly, Montreal, QC Fund balances
Endowment fund 972,936 1,027,261
Ashley King, Fredericton, NB Invested in property and equipment 41,103 43,725
Lynn Murray, Charlottetown, PEI Internally restricted operating reserve 2,431,648 2,431,648
Internally restricted research fund 1,646,926 1,568,328
Christine Penney, Victoria, BC Unrestricted fund 585,083 123,008
Jim Rivait, Edmonton, AB
5,677,696 5,193,970
Pamela Waeland, London, ON
$ 18,273,689 $ 18,619,854
Honorary Patron
Dale Goldhawk, Pickering, ON On behalf of the Board:
Director
Director
The accompanying notes are an integral part of these financial statements.
4
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 25Underst nding the role
of the Alzheimer Society
of Canada
The Alzheimer Society Alzheimer Societies We rely on individual
is Canada’s leading across the country offer and corporate donors,
nationwide health charity programs and services, communities and
for people living with research funding, public health-care partners
Alzheimer’s disease and education and awareness to help us carry out
other dementias. campaigns, and advocacy our vital work.
for people impacted by
all forms of dementia,
including Alzheimer’s
disease.
26 ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORTA wealth of supportive resources
We have developed and continually Our goal is to help people dealing with dementia make informed decisions and live as
add to a wide range of up-to-date, well as possible, from diagnosis to end of life.
evidence-based resources—all
searchable online at alzheimer.ca—for In fact, in this year alone we distributed nearly 1.5 million
those living with Alzheimer’s disease resources to our provincial and local Alzheimer Society
and other dementias, and for health-care partners who deliver direct services.
professionals.
Our Moving to long-term care series,
for example, offers advice on everything
from planning to handling the transition
to long-term care for all family members,
including printable checklists for
evaluating long-term care homes and
packing for the move.
Our Meaningful visits tips help you
foster closer bonds when you visit
someone living with dementia.
And our advice on end-of-life and
palliative care can help you support
someone in the later stages of the
disease.
ALZHEIMER SOCIETY OF CANADA 2017-2018 IMPACT REPORT 27Learn more Take the pledge Get involved Give generously
Visit alzheimer.ca for I pledge to: Volunteer with your Visit alzheimer.ca
hundreds of helpful local Alzheimer Society to give online, or
resources and to locate BE VOCAL if I hear a joke or other phone 1-800-616-8816
the Alzheimer Society conversations that create stigma. Join in your local to speak with us
in your community Walk for Alzheimer’s
BE PATIENT if I encounter
someone with dementia. Participate in your local
Coffee Break® event
BE SUPPORTIVE to people living
with dementia and their families.
Alzheimer Society of Canada
20 Eglinton Avenue West, 16th floor
Toronto, Ontario, M4R 1K8
Phone: 416.488.8772
Toll Free: 1.800.616.8816
Email: info@alzheimer.ca
Website: alzheimer.ca
Charitable registration number: 11878 4925 RR0001You can also read
