2020pivoting during a pandemic - community - Down Syndrome Network Arizona
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community pivoting during a pandemic 2020 DSNETWORKAZ.ORG
10 5
parents, family members,
self-advocates
and professionals
attended workshops
DSNetwork assisted
2,500
14 4 A D U LT S
individuals with
with Down syndrome
Down syndrome and
as they experience
their families receive
accelerated aging that
essential services
affects them medically,
from DSNetwork
physically and functionally
13 6 YO U T H 949 FA M I LY
were engaged in MEMBERS
team building activities participated in new
while gaining innovative ‘drive-thru’
self-confidence designed events
1, 5 67
VO L U N T E E R
HOURS
were provided in
countless ways,
valued at
$ 4 4 ,72 2
2020
will be remembered
as the year of COVID-19,
but even more so as the year of
E M B R AC I N G D I V E R S I T Y.
DEM OGRAP H I CS
2% asian
2,500 individuals with
Down syndrome
DSN ETWORK EN RICH MEN T CEN TER :
• provided a myriad of resources for families, educators,
service providers and medical professionals
• families accessed hundreds of relevant books from
and their families
8% native american were reached with
the lending library
10% african american essential services • pivoted from in-person services to virtual programming
45% american caucasian • distributed 500 PPE masks and hand sanitizer to families
30% hispanic • agency e-newsletter total impressions: 44,806
5% unknown • social media total impressions: 153,100
volunteer engagement 118 volunteers
• volunteers were an integral part of programs and provided contributed
encouragement to the participants, even as the platform 1,567 hours,
pivoted from in-person to virtual. valued at
$44,722
AGES OF T H O S E WIT H
DOWN S YNDRO ME
31% ages 0-7
41% ages 8-17
28% ages 18+
41 161
resource packets
were provided
babies a year
are born
to parents who with Down
learned their baby syndrome
has Down syndrome in Arizona
C L U B X T R A F OR K ID S ( 0 - 7 ) :
• prior to the pandemic, 20 children along with a parent,
participated in program activities
• since the pandemic did not make it safe for in-person
programming, parents were surveyed to find out how
they felt about participating in a virtual platform
• survey results indicated parents preferred not to attend
virtually with their little ones; therefore, the Club Xtra
program was placed on hold
• parents were encouraged to participate in the virtual
Moms Night Out and Dads Appreciating Down Syndrome
(D.A.D.S.) groups
M O M S ’ N I G H T O UT: D . A. D .S. (Dads Appreciating Down Syndrome):
78 moms attended
monthly gatherings
63 dads participated in
monthly gatherings
workshops
• two workshops were held in the first quarter of 2020
• topics focused on ‘communication and nutrition,
and ‘bodies, boundaries & puberty’ which included
adolescents with Down syndrome
105parents, family members,
self-advocates
and professionals
• Adult Summit scheduled for May, pivoted from an
attended workshops
in-person conference to a virtual one
• the Adult Summit was in collaboration with the National
Down Syndrome Society and the topics were based on
vital information related to aging with Down syndrome
144
adults with Down syndrome were
assisted as they experience accelerated
aging that affects them medically,
physically and functionally
DOWN SYNDROME NETWORK
X C E L L F O R A DU LTS: A GIN G WITH DOWN SYN DROME:
• monthly group sessions were held for aging adults with Down syndrome, addressing
safety, stability, social (emotional) issues, and symptoms.
• since the pandemic made it nearly impossible for people with Down syndrome and their
families to meet up in a community environment, virtual experiences were developed
for the participants
• program addressed how issues of loneliness, social isolation and inactivity was
affecting this vulnerable, at-risk population
A D U LT S • on a weekly basis, volunteers safely delivered the activity materials, food, and whatever
else was needed to the participant's homes so their virtual experiences were meaningful
with Down syndrome and productive
who needed services relied
on DSNetwork for ways to
cope with the challenges TWEEN S & TEEN S U P FOR DOWN SY NDR O M E:
that arose from concerns • monthly group sessions assisted youth to be more
socially involved and emotionally healthy, while making
about the pandemic. long-lasting friendships
As a result, the number of • when program pivoted from in-person to virtual due to the
pandemic, participation decreased; however, the popularity
program related activities of the virtual sessions grew after a few months
increased from once to • safely delivered activity materials, food and other program
items to the participant's homes so their virtual experiences
3 times a month by offering were meaningful
virtual exercise and
136
• to avoid the feeling of isolation and lack of physical exercise,
participants were kept engaged while making new friends
activities to maintain a and enjoying virtual activities
youth participants with
H E A LT H Y Down syndrome (ages 8-18)
• Absolute HCBS, Inc., a collaborating partner, provided
qualified individuals to assist the youth
balance and lifestyle.
engaging youth
B U D D Y U P TEN N IS:
• 34 children, youth and adults with
Down syndrome participated in 8 clinics
• learned tennis, fitness skills, became
more self-confident, fostered friendships
pivoting • 31 volunteers assisted athletes with nearly a 1:1 ratio
65
• 100% of participants rated the program as ‘Excellent’;
change 88% felt the program was ‘Extremely Organized’.
• fall clinic was not held due to COVID-19 participants
DSNetwork
C LOSE LY
outreach and awareness
M O N I TO R E D
the situation with the
pandemic while planning
302
family members
participated
for how to best deliver in the comfort
programs and services. of their own
vehicle
________ HOL ID AY CEL EB RATION S:
Trunk or Treat Drive-thru replaced the in-person Halloween gathering and a Drive-thru
Merry Everything & Happy Always holiday special & turkey giveaway replaced the family
The agency’s holiday gathering.
NUMBER ONE
65
Z U M B A Z OOM!
PR I O R I T Y Zumba for all ages was offered virtually people
was the safety of in order to keep everyone physically participated
the people served, active during the pandemic.
its volunteers,
sponsors, and staff.
BUDDY WALK TOGETHER WE ARE ONE:
• A hybrid approach ensured everyone could be
________
involved from the comfort of their own
vehicles, assured a successful Buddy Walk
Arizona fundraiser in a fun and different way.
With the pandemic,
• 18th annual Buddy Walk went mobile with a
DSNetwork parade of 237 cars with 647 attendees driving
QU I C K LY raised nearly through Phoenix ZooLights.
$105,000
• Safety precautions included: 50 volunteers
A DA P T E D
wearing PPE face masks and shields; hand
the ways in which sanitizer provided; drivers wore face masks
family gatherings while interacting with volunteers.
• Although the walk felt and looked different,
and outreach programs
we celebrated Down syndrome and raised
were conducted. $104,424
FINANCIAL EFFEC T
OF COVID -19
In March 2020, the COVID-19
outbreak was declared a pandemic.
The duration and volatility of the
pandemic’s impact on DSNetwork
is still unknown. As a result of
necessary social distancing measures,
DSNetwork’s planned programs
D E E PLY G R AT E FU L TO O U R C A R I N G D O N O R S moved to a virtual platform.
Some events, such as the agency’s
investment of resources
spring fundraiser and World Down
Syndrome Day celebration,
were cancelled. Others were adjusted
to innovative ‘drive-thru’ designed
Financial Overview For Fiscal Year Ending December 31, 2020
events, allowing families to
experience the festivities from
RE V E N UE & S U P P O RT EXPEN SES
the safety of their own vehicles.
All programming was offered
free of charge to help families
who were struggling with the
financial impacts of the pandemic.
Because participants could join
virtual programming from anywhere,
the agency saw increased attendance
8% contributions 82% program services for many of its programs.
53% foundations 10% fund development The economic downturn attributed
38% special event fundraising 8% management/general to a decrease of individual
1% program service fees & other contributions by 47%. However,
DSNetwork received federal relief
funding in the form of a $26,902
Down
DownSyndrome
DownSyndrome
Network,
Syndrome Network, Inc.Inc.
Network Inc. PPP loan and $19,000 EIDL loan.
Statement of Activities - Cash Basis
Statement
For
Statementof
Forthe
(with comparative
theYear
of Activities
YearEnded
Activities -- Cash
Ended December
totals for
CashBasis
December 31,
the as
year
Basis
31, 2020
2020
ended December 31, 2019)
The loans qualified for forgiveness
(with comparative totals of December
For the Year Ended December 31, 2020 31, 2019) and met the criteria, eliminating
(with comparative totals for the year ended December 31, 2019) the need for repayment.
2020 2019
Without Donor With Donor As the pandemic is still ongoing,
Restrictions Restrictions Total Total uncertainty of future economic
Support and revenue
Grants $ 137,478 $ 3,500 $ 140,978 $ 129,393 conditions persists, and the impact
Contributions 21,125 - 21,125 39,321 of this economic turmoil may not
Program income 2,638 - 2,638 10,219
Interest income 42 - 42 350 be reasonably estimated.
Miscellaneous - - - 1,608
Net assets released from restrictions 76,213 (76,213) - -
Event income: 118,682 1,500 120,182 182,250
Less: cost of direct donor benefits (17,972) - (17,972) (13,500)
Net event income 100,710 1,500 102,210 168,750
Total support and revenue 338,206 (71,213) 266,993 349,641
Expenses
Program 231,576 - 231,576 257,425
Administrative 22,168 - 22,168 27,694
Fundraising 29,751 - 29,751 50,182
Total expenses 283,495 - 283,495 335,301
Changes in net assets 54,711 (71,213) (16,502) 14,340
Net assets, beginning of year 158,201 79,213 237,414 223,074
Net assets, end of year $ 212,912 $ 8,000 $ 220,912 $ 237,414
mission
Our mission at DSNetwork
is to educate, support
and advocate for those
in our community touched
by Down syndrome.
vision
A community that
embraces, supports and
inspires individuals with
2020
Down syndrome to live
T H A N K S & G R AT I T U D E T O
healthy, self-determined
Concept & Design: Carol Kaminsky | Design Visual
and fulfilling lives.
Photography: Randy Bingham & Sophia Gonzales-Bingham | RSVP Photography
leadership 1445 East Guadalupe Rd, Ste 103, Tempe, AZ 85283 | 480.759.9150 | info@DSNetworkAZ.org | DSNetworkAZ.org
2020 BOARD OF DIRECTORS
Chair: Jill Nico
Vice Chair: Cassie Petre
Treasurer: Chandra Williamson
Secretary: Andrea O’Brien
•••
MEMBERS
Jessica Avena
Gonzalo Castaneda
John Escobar
Heather Wood
MANAGEMENT TEAM
Louise Bowden
Executive Director
Janae Chokey
Executive Program Assistant
Lan Thomas
Manager of Programs
& Community Engagement
Brenda Quinones
Manager of Family Resources
& Enrichment Center
Brendan Gertsen
Enrichment Center Assistant pivoting during a pandemic
DSNETWORKAZ.ORG
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