Annual Review 2015 - supporting children, teenagers and young adults with cancer - Redkite
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Annual Review 2015 supporting children, teenagers and young adults with cancer
National and NSW office contents
Level 8, Tower 1, 1 Lawson Square
Redfern NSW 2016
PO Box 3220, Redfern NSW 2016
Tel: (02) 9219 4000
In 2015 Our vision and experience 04
Redkite provided more From our Chair and CEO 06
Fax: (02) 9280 1518 than $1.9million in
financial assistance 2015 highlights 08
Queensland office to almost 1700
families Support at diagnosis 09
Level 3, 80 Petrie Terrace
Brisbane QLD 4000
Support through treatment 14
PO Box 2224, Milton QLD 4064
Tel: (07) 3087 4750 Support beyond treatment 18
Fax: (07) 3087 4799
Our community of supporters 24
Victorian office Governance and regulation 32
7/71 Victoria Crescent,
Abbotsford VIC 3067 2015 financials 36
PO Box 1221, Richmond North VIC 3121
Tel: (03) 9066 0566
Western Australia office
Lower Ground Floor,
2v29 Stirling Highway,
Claremont, WA 6010
Tel: (08) 6188 2900
Fax: (08) 6188 2949
You can reach us wherever
you are in Australia on
1800 REDKITE (1800 733 548)
Redkite.org.au
info@redkite.org.au
facebook.com/redkitesupporters
twitter.com/redkite
Instagram.com/redkitecharity
2 Redkite Annual Review 2015 Redkite Annual Review 2015 3
our vision we believe our promise today
to families
To support every
We believe the best way to support a Redkite is a leading national cancer
child or young person with cancer is to You are not alone with cancer. We will charity with over 30 years’ experience
support the whole family. We believe respectfully listen to you and your in providing professional and essential
child, teenager
in walking alongside the whole family family, and respond with essential support to children and young people
for the whole cancer journey; that all support from hospital to home. with cancer and their families. We
families have strengths and resilience, rely on the generosity of individuals,
and young adult
and cancer does not define a person. community groups and corporate
We believe in equity – that no family of beginnings Australia to deliver our programs and
a child or young person facing cancer we receive no government funding.
with cancer, and
The man who inspired the founding
should be disadvantaged by their socio- of Redkite, Sir Malcolm Sargent, was a
economic circumstances. We believe brilliant musician and internationally
in our people and collaboration and
their family, who
renowned conductor who often
in ensuring that all who engage with directed his support to children and
Redkite feel valued, connected and young people. His compassion and
need us.
supported. love of music is felt to this day in cancer
wards across Australia through Redkite’s
our purpose Music Therapy Program. Originally
named ‘The Malcolm Sargent Cancer
To provide essential support to children, Fund for Children’, Redkite was founded
teenagers and young adults with cancer in Australia in 1983 by Sylvia Darley
(up to the age of 24) to ensure the best OBE, Sir Malcolm Sargent’s long-time
possible quality of life for them and their Secretary and Manager. Sylvia identified
families – now and into the future. the need for assistance with family
essentials and established Redkite to
provide practical, must-have care.
4 Redkite Annual Review 2015 Redkite Annual Review 2015 5
a message from our Chair a message from our CEO
Today there are around 40,000 people in Australia who are affected by With clear purpose, passion and direction we have again managed to take
childhood and youth cancer. These children and young people undergoing significant steps toward bridging the gap in need for children and young
treatment—and their parents, siblings and grandparents—need information people with cancer and their families across Australia in 2015.
and support. When you add to this the thousands of partners and other
Just over four years ago, we launched ‘Real Connect ‘, a services expansion
carers affected by childhood cancer, the great need for Redkite’s support is
plan that included a clear focus on strengthening sector collaboration. It was
clear.
a plan that firmly positioned young people and their families at the centre.
We recognised the need for a more seamless and connected experience
In 2015 we expanded Redkite’s support to reach more of these young
that ensured timely and easy access to high quality services and information
people, their families and carers with information and counselling, financial
across their entire cancer experience. We also knew that there was a serious
help, and education and career support.
lack of age-specific support for teenagers and young adults and their families
both in hospital, and when they returned home.
We were also able to achieve a 4% increase in fundraising revenue over the
previous yearto ensure increased support, and kept our administrative and So where are we now? The plan has been executed with great success; new
marketing costs to 9% alongside our continued commitment to constant and expanded services are in place, and successful sector collaborations
improvement. have been established. One in two, rather than one in four teenagers and
young adults are now supported by Redkite at diagnosis. With our dedicated
We know that the pressures faced by many Australians in the current donors and volunteers, real support and connection has been achieved. We
economic environment are amplified for those facing their child’s cancer. are particularly grateful to the Kinghorn Foundation and the Coles team and
Redkite is there for them at this time of need. We reached 13% more customers for their generosity in making this possible.
families with financial assistance last year, providing $1.9 million in direct While we are proud of our progress, particularly expanded financial,
grants through this program alone. We anticipate the demand for financial counselling and educational support, we remain committed to bridging the
assistance will continue to increase in 2016 as more young people and gap so no child or young person is alone through cancer. We continue to
families discover Redkite and find themselves experiencing financial focus on reaching all families who need us. Some of our achievements in 2015
challenges. included:
Our committed corporate partners and community of supporters across • increased telephone support groups, including new groups for parents
the country, along with our Board, Club Red members, workplace givers, pro of children with brain cancers, grandparents and fathers of young
bono supporters, ambassadors and volunteers, are enabling us to support people with cancer
more young people and families than ever before. We look forward to • significant expansion of our Education and Career Support Program,
continuing this important work together – now and in the future. the only national service of its kind for young people living with the
effects of cancer
Bruce Morgan • the opening of face-to-face counselling rooms in our four offices
Chair • partnerships with researchers to investigate how the sector currently
supports young cancer patients and what more needs to be done
including the Youth Friendly Cancer Care project led by Professor
Susan Sawyer, where vital national research was conducted into the
needs of young people with cancer and their parents, and what a best
practice model of supportive care could look like
• expanded support for bereaved families through tailored telegroups
and a new support pack
• evaluation of our parent support groups at Camp Quality camps and
our Care Pathways program at Lady Cilento Hospital in Brisbane,
which improves connections to Redkite support and other community
services for families once they leave hospital.
We were also pleased to be able to take custodianship of the Westmead
Family Support Program last year, continuing the work of Cure Our Kids,
an organisation set up by parents, for parents and supporting families with
children at Westmead Children’s Hospital in Sydney.
None of this could support could happen without our loyal community of
corporate supporters; our experienced, engaged and committed Board; our
warm, professional and hardworking team, our many volunteers who give their
time and energy year after year; and the children, young people and families
who inspire all of us with their strengths, resilience and willingness to share
the reality of their cancer journey. We have come a long way together. We
know we still have a way to go. I thank you for continuing on this journey with
us, a journey and future that will include further collaboration and embracing
digital opportunities to ensure even greater ease of access to information and
support – where, when and how young people and their families need it.
Jenni Seton
CEO
6 Redkite Annual Review 2015 Redkite Annual Review 2015 7
why your support matters to every six hours
children and young people a family in Australia
facing cancer is told their child
has cancer
Today more than 25,000 children and young people, parents and siblings are directly affected by childhood Redkite reaches almost all children in
and youth cancer. Thousands more grandparents, partners and other carers in their support networks are major children’s hospitals at the time
also affected. of their cancer diagnosis. We are now
reaching 1 in 2 young people (15-24
They need the essential, practical support Redkite provides. years).
Too many teenagers and young people
with cancer do not know how we can
help them. Many of them are treated
in the adult hospital system, where
they are likely to feel isolated and
without access to age-appropriate
support. Similarly, families of younger
In 2015: children may not know the full extent
of support available to them.
Our vision is to support every child,
THROUGH TREATMENT teenager and young adult with cancer
AT DIAGNOSIS and their family who need us. We still
have a lot of work to do.
More than 1690 people
received essential phone and
1150 children and
email support.
38
young people
received Redkite Red AND BEYOND 38 Redkite
Bags and Diagnosis and Coles
Support Packs Dare to
Dream
Scholarships
were granted
Redkite Social
Workers provided
Our Education and
16,000 hours More than Career Support Program
of support at the $1.9 million supported 645 young
cancer patients and
hospital bedside was provided survivors
in financial
assistance $400,000
grants in grants helped them with
essential education costs
Redkite Music Therapists
based in 6 children’s
hospitals delivered
75%
of young people surveyed said they now have
over 4100 sessions more clarity about their next steps towards
their education and career goals thanks to
Redkite
8 Redkite Annual Review 2015 Redkite Annual Review 2015 9
support at diagnosis
Redkite’s support begins at
the moment of diagnosis. 4
families are
told their child has
� Redkite Red Bags and cancer each day in
Diagnosis Support Packs Australia. Their lives
It’s vital that when life is turned upside are immediately turned
down by a cancer diagnosis, families upside down.
receive practical support and that they
know Redkite is here for them.
Redkite Red Bags contain essential
items for unexpected hospital stays
such as toiletries, a diary to record
information, and fuel vouchers. There’s
also information to help families navigate
their time in hospital and learn about the
support available to them. Last year, 1150 children
The contents of the Redkite Red Bags (for and young people with
the families of children diagnosed with cancer received Redkite
cancer) and Diagnosis Support Packs (for Red Bags and Diagnosis
teenagers and young adults with cancer)
have been determined by listening to
Support Packs.
what families and young people tell us
they most need at the time of diagnosis.
“Getting this bag when you are
faced with such a catastrophic
diagnosis, and torn from your home
and life so unexpectedly, is an utter
life saver. It’s hard to think beyond
your child’s immediate needs which
are 24/7, in those first few weeks or
They’re also connected
even think about what you need. to Redkite Social
Having those possessions, in one Workers. Redkite is
bag, that you can just go to and use Australia’s largest
with ease, really is practical help non- government funder
that’s necessary. It’s now a beach of social workers in
bag, a reminder that miracles do children’s hospitals
happen and that we should enjoy across the country.
every freedom and moment.”
10 Redkite Annual Review 2015 Redkite Annual Review 2015 11
support at diagnosis
� Experienced professionals Jodi and Trystan
in hospitals
People facing a cancer diagnosis often talk about being thrust into a
whole new world.
Redkite Social Workers help them navigate this world, providing
information, advice and counselling, and connecting young people and
families to other support services.
We are Australia’s largest non- government funder of social workers
in children’s hospitals, with professionals in nine major hospitals and
Redkite Hospital Social
treatment centres around the country:
Workers help people
• The Children’s Hospital at Westmead facing a cancer diagnosis
• John Hunter Children’s Hospital, Newcastle to navigate a whole
• Lady Cilento Children’s Hospital, Brisbane (formerly Royal
Children’s Hospital)
new world
• Monash Medical Centre, Melbourne
• Peter MacCallum Cancer Centre, Melbourne
• Princess Margaret Hospital for Children, Perth
• Royal Children’s Hospital, Melbourne
• Sydney Children’s Hospital, Randwick
• Women’s and Children’s Hospital, Adelaide
Westmead Family Support
We were pleased to be able to continue providing support services In 2015 Redkite Social
previously delivered by Cure our Kids at the Children’s Hospital Workers provided 16,000 Jodi was shattered when she heard her three-year-old son, Trystan, had cancer. Her
at Westmead in NSW in 2015. This organisation focused on the hours of support at the husband, Darren, had died from cancer a few years before. “I thought I was going to lose
day-to-day needs of families who have a child with cancer. We are hospital bedside my son too,” Jodi says.
continuing this support at Westmead through our Family Support
Coordinator Anne, and other services including a weekly delivery of “Trystan had been unwell for several ambulance, I didn’t even get to say that bag with us to hospital now,”
groceries to the parents’ room on the oncology ward. weeks, but at first we thought it was just goodbye to my other children, and it still Jodi says.
a virus. hadn’t really sunk in.
“There are a lot of extra expenses
I took him to the doctor and a few hours Redkite was there from diagnosis. “I that you just don’t even think about.
later, he told me to pack an overnight didn’t know what support services Hospitals are very expensive places,
bag and call an ambulance – Trystan had were available, but the fantastic social particularly when you are there for a
leukaemia.” workers at the hospital applied for some long time, and you have to run out to the
support for me through Redkite. An supermarket, to the shops to buy this
Trystan’s treatment took longer than
initial grant and further support such that. I can’t thank Redkite enough, they
expected, and the two to six weeks of
Redkite Music Therapists treatment she initially expected turned
as fuel and food vouchers from the kept us afloat during this period as I was
based in 6 children’s supermarket was just amazing. supporting two households.”
into 12 months. Jodi had left her three
hospitals delivered over youngest children in the care of her “I’ll never forget being presented with Trystan is now in remission. He is doing
4100 sessions in 2015 eldest daughter—who returned home a Redkite Red Bag. At a very hard really well at school and loves to be there
from university—while she stayed with and lonely moment it showed that with his friends.
Trystan during his increasingly intensive somebody cared. I didn’t know these
Jodi has found her own strength through
treatment. people but somebody cared and the
the experience as well. “I can take on the
items in the bag were very, very useful. It
Jodi says the impact on her other world, I know I’ve got a lot more fight
became my security blanket. I still carry
children was huge. “We left in an in me,” she says.
12 Redkite Annual Review 2015 Redkite Annual Review 2015 13
support throughout treatment
Cancer treatment can last for months or years.
Redkite is there every step of the way with financial
assistance, professional counselling, music
therapy, and other information services.
� Information and counselling
The professional and highly-skilled Redkite support team is
available to families across Australia on the phone, face-to-face We supported more
and via email. Any member of the family or a child or young person’s health and education
support network can connect with us. professionals than ever
More than 1690 people received essential phone and email support before in 2015.
in 2015. 74% of them were young people and family members, and
26% were health or education professionals.
Redkite Social Workers in the community also facilitate phone
support groups for families at various stages of the cancer journey.
Support through telegroups increased significantly in 2015, with
groups for grandparents, bereaved parents, and for parents of
children with brain tumours. Single information sessions were
also created in 2015 for newly bereaved parents, dads of young
people with cancer, and parents of teenagers with cancer. Further
expansion of this service is planned for 2016.
In 2015 we also opened counselling rooms in our Sydney,
Melbourne, Perth and Brisbane offices – so that young people and 97% of those surveyed
families can visit us in central, welcoming locations. were satisfied with our
Redkite Social Workers also share our tailored information support services
resources with families. Last year we saw an increase in total
resources distributed, including 600 books through the Redkite
Book Club. We also saw a dramatic increase in visits to the support
sections of our website, and will invest in continuing to improve the
quality and depth of information available online in 2016.
� Supporting the experts
Support to health professionals strengthened in 2015 and remains
a priority to ensure our experienced team can provide them with
cancer specific information and resources wherever they are in
Australia. 99% agreed they would
A survey of health, education and community professionals who recommend our services
had referred people to Redkite or contacted us for information to other professionals
found a high level of satisfaction with our service. Nearly all (99%)
agreed they would recommend the service to another professional.
In 2015 we also connected with 38% more health professionals
through the Redkite Report, a regular digital e-letter which provides
information on our services and referral processes.
We opened face-to-face counselling rooms in Sydney,
Perth, Brisbane and Melbourne
14 Redkite Annual Review 2015 Redkite Annual Review 2015 15
support throughout treatment
� Financial assistance
Cancer can be expensive. A cancer diagnosis brings extra financial
demands at a time when at least one parent may have to stop work to
be at their child’s bedside. For young people with cancer who are living
independently, financial pressures can be overwhelming.
One study has found that parents can lose more than $19,000 on extra
costs like travel to hospital after a child’s cancer diagnosis. Almost 20% of
parents reported taking a second job or working overtime to meet extra Cancer is expensive.
expenses.
Redkite can help cover
In 2015 we reached 13% more families with financial assistance, helping the cost of many essential
keep food on the table and fuel in the car for trips to treatment. More than items and connect young
$1.9 million was provided through the program last year, and there was a
13% increase in the number of grants provided specifically to young people
people and families to
with cancer. other support.
Our financial assistance for families is also deepening, either for longer
periods of time as we strengthen the transition from hospital to community
support, or because their needs are more extreme.
As awareness of Redkite’s services grow, we expect increased demand for
financial support from families facing financial pressures.
Financial assistance provided by type (%)
utilities
One study showed
� Music therapy because heat, families can spend
Redkite Music Therapists are available to help children and young people cope with the “Redkite Music
light and water
are essential
$19,000 on costs like
stress of cancer in six children’s hospitals across Australia. They give young cancer patients Therapists are
food
vouchers
travel to hospital and
phone
the chance to manage their pain, express themselves, regain a sense of control, and have so needed and to keep food
communication
meals while there after
critical areas of growth and development stimulated. Redkite Music Therapists delivered so very much on the table
to keep families diagnosis.
over 4100 individual and group sessions in 2015. appreciated. 18% connected
We are very
thankful for the
music therapist 5% other
1%
‘Twinkle twinkle, Amy’s Story’ as shared by a Redkite Music Therapist that my son met
while he was 32%
“One of the unique aspects of music therapy in many settings I feel is that it transcends 2015
hospitalised. The
spoken language. This was really brought home to me recently when I met little Amy* who music therapist financial
comes from a remote aboriginal community and found herself suddenly surrounded by brought much assistance
strangers in the completely foreign environment of the hospital. Our first few sessions happiness and a by type
were brief and I spoke mostly with her mum or dad, watching to see Amy’s reaction each calming feeling
In 2015 we supported
time. As I slowly gathered information about what music might be familiar to her and also to my son - as 26% almost 1700 families with
discovered that her dad played the guitar, Amy slowly began to show interest in my visits. well as myself. “ fuel and
transport
financial assistance, 13%
Then one day, we were on! She watched me enter the room and spoke the first word I had like help to get more than in 2014.
heard from her, “guitar!” I brought my guitar and a smaller one for her which I placed gently 9% to hospital
on the bed and then stood at the end of her bed and played “Twinkle twinkle.” She simply 9% and expenses
like keeping the
watched at first, before I encouraged her to pick up the small guitar. She smiled and began car registered
to play. We joined together in music and her voice got louder and louder with each rendition accommodation and maintained
of “Twinkle twinkle.” Before long Amy was sitting up and we were improvising songs and and housing
like rent or help with
laughing together. It was truly a privilege to witness this little girl coming out of her shell and bereavement
accommodation when expenses
her parents’ delight in again seeing the cheeky little girl they obviously knew well. Since that hospital is a long way such as funeral costs
day Amy has appeared to better manage being in hospital and is regularly chatting and from home
interacting with staff – with the help of her parents translating.”
– Testimony from a Redkite Music Therapist
*Name changed for privacy reasons
16 Redkite Annual Review 2015 Redkite Annual Review 2015 17
support beyond treatment
Cancer doesn’t end when treatment ends, so Redkite
continues to be there with support. No matter where a
family’s cancer journey leads, we believe in hope, dignity In 2015 the Redkite
and the resilience people bring to their cancer experience. Education and Career
Support Program
� Education and career support supported 645
young people
Cancer treatment can mean months or years of disruption to
education, training and work. A child or young person diagnosed
with cancer aged between 12 and 18 is more likely to need special
education services, repeat a grade, be absent from school, and is less Redkite Education
likely to graduate from school or university. People with childhood and Career Specialists
cancer are twice as likely to be unemployed. delivered over 1320
Redkite’s Education and Career Specialists have a unique individual sessions
understanding of the specific challenges cancer can bring. They
provide support and advocacy on the phone, via email and in person.
They work with young cancer patients and survivors to develop plans
so they can pursue their dreams and build their best possible futures.
There is no other national program in Australia addressing these
needs.
The program launched in 2014, and is contributing to improved
emotional wellbeing for many young cancer patients and survivors. Grants worth $400,000
A survey of our Education and Career Support Program in 2015 went to essential education
found 83% of young people said the program had increased their costs including tutoring,
knowledge of the opportunities available to them, and 75% said they classroom support,
had more clarity about the next steps they needed to take towards equipment,
their education or career goals.
and university/course fees
� Care Pathways stops families
falling through the gaps
Redkite knows that some points in the cancer experience come
with particular challenges. For example, families and young people
sometimes face gaps in support when they move from intensive 38 Redkite Coles Dare to
cancer treatment to maintenance therapy, return home from Dream scholarships were
hospital, finish treatment, or go through bereavement. awarded
To address these gaps, Redkite launched a pilot Care Pathways
Program at Brisbane’s Lady Cilento Children’s Hospital to ensure
more children, young people and families are supported seamlessly
throughout their cancer experience through a systematic,
endorsed referral system and increased awareness of our services
and their benefits.
An evaluation of the pilot from March to July 2015, found 67% more
individuals linked with Lady Cilento Children’s Hospital accessed 75% of young people
support from Redkite compared to 35% at all other paediatric surveyed had more clarity
hospitals. Our learnings will contribute to the effective rollout of about their next steps
other Care Pathways Programs across Australia. towards their education
and career goals
“I could not do my job or deliver the quality of service to
adolescents and young adults without the support of
[Redkite] services.”
18 Redkite Annual Review 2015 Redkite Annual Review 2015 19support beyond treatment
and one trying to earn a living.”
With her family back home in regional Victoria,
phone calls were important in helping Bec get the
moral support she needed and for keeping Martin
informed, but they had a huge financial impact
on the family. “Our phone bills were massive,”
she says. “Redkite actually paid for one of those
bills, which was a huge help financially because
other things were mounting up. You don’t want
to have to be worried about suddenly getting an
unexpected, very large bill.”
With Martin travelling to Melbourne on weekends
to see his wife and children, as well as frequent
trips back for appointments and check-ups
once they moved back home, fuel costs quickly
added up too. “Redkite also gave us some petrol
vouchers, which made a huge difference with all
the travel between home and Melbourne,”
Bec says.
� Support for In 2016 we are launching additional
Bec and Henry
information and resources based on the
bereaved families “I think what Redkite does is the best kind
experiences of 100 parents who generously of help that a family needs. Our main need
shared the stories of their child’s cancer
When 10-year-old Henry started
A child or young person’s death is one was just that bit of financial help, right
diagnosis, end of life and their family’s
experiencing severe headaches and
of the most devastating events that can when a bill comes in, because you’ve got
transition into bereavement. The new
Our information and vomiting, the cause was put down to
happen to any family. The grief that support pack for bereaved one parent pretty much out of action and
resource recognises parents as experts dehydration, exhaustion, or a virus. But one trying to earn a living.”
follows lasts a lifetime. families includes two
in their own world, and aims to share books that offer coping after an optometrist noticed bleeding on
Our services for bereaved families strategies and share the Henry’s retina, an MRI showed Henry had a
experiences, reduce isolation and affirm the
recognise the importance of hope and experiences of other
brain tumour. The next day, he underwent Henry’s now been in remission for three years and
value of other families living through similar bereaved families, along
dignity, and acknowledge the resources, an eight-hour surgery to remove it. is managing the long-term effects from treatment.
experiences. with a memory candle and
strengths and commitment people bring information about how we Bec says their experience helped put smaller
with them to the journey. Redkite’s support � Collaboration can continue to support A Redkite Social Worker at the hospital was problems in perspective. “It is horrific to watch
bereaved families and
team provides one-on-one grief counselling there for Henry’s mum Bec and her family with your child go through such a huge number of
loved ones.
for bereaved families as well as support In 2015, we continued to facilitate Parent information and counselling. “The social workers
Groups at Camp Quality Family Camps intense and ongoing treatments and procedures,
groups that bring parents together over there were the main people who helped. They but it does highlight constantly to me the
the phone, inviting them to share their across Australia to ensure children with were great for counselling, they were fantastic
cancer and their families receive important importance of trying not to get distracted in life by
experiences and learn from others. at just helping organise anything that needed the things that don’t matter.
support. An evaluation of the group organising.”
Redkite also helps with the cost of funeral sessions found 96% of the parents who “Redkite was there right when we needed some
expenses as many families can face responded agreed they felt ‘heard’ in the Once he recovered from the surgery, Henry went support. It was like a hand out of a trench – an
significant financial strain after cancer group setting, and 85% agreed they felt straight into six weeks of radiation, followed by ongoing battle of back and forth! We felt great
treatment and related expenses. This is comfortable to participate and share their four months of chemotherapy. Because their support from a community of people we’d never
essential help at a challenging time for ideas. They said they left feeling less alone local hospital wasn’t equipped to do the type of met – support which stands out in our memory of
most families, as they can continue to face and isolated, learnt tips and techniques treatment Henry needed, it meant staying two that time.”
significant financial strain after months and to help them manage day to day, and had hours away in Melbourne for almost a year while
years of treatment. greater awareness of the support available. Bec’s husband Martin stayed at home to keep his
We know there is a distinct lack of business running.
“My husband for the first time ever
Australian-specific resources for families took part. The group environment “I think what Redkite does is the best kind of help
who have experienced the death of a child made him happy to share. He’s never that a family needs,” Bec says.
from cancer. In 2015 we developed a new really opened up before so I was
information and support pack for those who “As a family, our main need was just that bit of
really surprised and so was he.” financial help, right when a bill comes in, because
have recently experienced the death of a
loved one. you’ve got one parent pretty much out of action
20 Redkite Annual Review 2015 Redkite Annual Review 2015 21support beyond treatment
dare to dream scholarships
Dare to Dream Scholarships were awarded to 38 young people in 2015
Jessica, 19, used her
scholarship to pay for books
and equipment as she studies
for her degree in journalism.
“From my earliest days
of my childhood, all I can
remember is wanting to
be a journalist. When I was
diagnosed with cancer, my
education came to a halt. I
missed an entire year and
felt like I was so far behind
in terms of learning. I’m
proud I didn’t let cancer
hold me back and actually Tahra, 24, will use her scholarship to enrol in a Diploma for Early
used it to help further Childhood Education and Care, and towards the cost of tuition
achieve my dreams. I and a laptop.
believe what I did as a “My dream is to become an early childhood teacher.
cancer patient, and what I can no longer have children but love them, so going
I will continue to do, has into the childcare industry would help me through life,
granted me an advantage filling the void in a way.”
towards my future as a
journalist.”
“After cancer, it’s exactly the Niamh, 18, used her scholarship to
kind of kick start I need to help volunteer at Sunrise Children’s Village in
make my lifelong dream become Cambodia.
a reality. I have been involved “When I was first diagnosed, they
with and surrounded by music my really thought I wasn’t going to
whole life, and I want to be able make it. I spent 10 days in a coma
to further my passion and really on life support. I think it just makes
make something of it.” the scholarship more special
because it’s something I didn’t think
I’d be able to do. Today my dream
is to travel to countries including
Vietnam and Cambodia to allow
me to gain a first-hand knowledge
of developing countries. While in
these countries I want to work in
hospitals and orphanages so that I
Jarrod, 21, received a scholarship to help him achieve his dream of
can help children and gain a greater
working as a physiotherapist or exercise physiologist. His advice to
other young people facing cancer:
understanding of the challenges they
face. Volunteering there is definitely
“Basically say yes to everything and take all the something I’ve always been interested
National Redkite and Coles Dare to Dream recipient Tristian used his scholarship to pay for musical opportunities that you can. Don’t let your disability in. For as long as I can remember,
instruments, and singing and piano lessons to help turn his passion for music into a career. hold you back.” that’s always been something that’s
important to me.”
22 Redkite Annual Review 2015 Redkite Annual Review 2015 23our community of supporters
The remarkable community of Redkite supporters the distance for children and young people with cancer.
3
1
6 7 8
2 4 5
13 14
9
12
20
20
18 19
1.WA businessmen and passionate Redkite supporters Alan Pavisich and Danny Psaros raised over $90,000 for families
as they walked 20km in tutus 2. Jo Kinghorn opened the Redkite family counselling room in Sydney 3. Celebrity players at
10
15 16
11
the 2015 Sydney Swans Celebrity Match kicked goals for Redkite 4. Coles Tuggeranong team members and local MP Gai
Brodtmann launched the annual Redkite Christmas donation card campaign in December 5. Redkite Ambassador Susie
Latimore traded painting during our Trade a Treat campaign 6. Wallabies Nick Cummins and Will Genia visit children at
Lady Cilento Hospital 7. Wadalba House Captains present Redkite with a $500 donation 8. Tough Mudder competitors
compete in support of Redkite in NSW 9. Redkite Chair Bruce Morgan flew the Redkite at the Myer Precious Metal Ball
10. Ambassador Jude Bolton’s appearance on Dancing with the Stars benefited Redkite 11. Flight Centre’s Jason conquers
the IRONMAN 70.3 Western Sydney in support of Redkite 12. The WA Charity Orchestra donated $20,000 to families
facing cancer from their 2015 concerts 13. Generous Coles Victoria team members raised funds and awareness for
Redkite at Run Melbourne 14. The generous Taylors Wines team at the Sydney Corporate Quiz 15. Country Road team
members fundraise in store for children and young people with cancer 16. The Rawsthorne Family raised over $3,750
through their annual Lithgow Lights Christmas display 17. Fremantle Dockers stars Tendai Mzungu, Jack Hannath and Kobi
McGurk sing Christmas Carols at Princess Margaret Hospital for Children 18. Coles Diamond Creek team members get
15
21 22
16 23
17
behind the Christmas donation card campaign. 19. Keen supporters at SAP’s annual Golf Day for Redkite raised a record-
breaking $33,000.
24 Redkite Annual Review 2015 Redkite Annual Review 2015 25Redkite’s Premier Partner
Coles has been Redkite’s Premier Partner, committed to supporting children and young people with cancer and their Leading partners
families, since Australia Day 2013. The extraordinary Coles team - from in-store teams to the executive team - take
great pride in investing energy, creativity and passion into supporting Redkite. Every day they inspire customers and A Member of The Linde Group 5+ years
communities alike to join them and make a genuine and lasting difference to families facing cancer. 15+ years Country Road generously made
BOC’s significant support to Redkite’s Red Bag Program possible
30+ years Redkite’s Cancer Journey Program for over seven years. Red Bags provide
has enabled Redkite to support families with practical support in
Since Redkite’s inception, Herbert
thousands of families for over 17 hospital at the time of their child’s
Smith Freehills has generously
years. BOC staff and families also diagnosis. Dedicated Country Road
provided legal counsel on a
organise a range of fundraising team members also make regular
pro bono basis. Herbert Smith
activities and generously volunteer workplace donations, pack the bags
Freehills has been a committed
at Redkite events, including the and organise in-store promotions.
and important partner, providing
essential legal work and advice to Redkite Corporate Quiz which the
the whole organisation. company supports.
Ernest Heine
Family Foundation Flight Centre Foundation is the
major supporter of Redkite’s
Coles team members at Wambro turn superheroes for Redkite Since 2014, the Ernest Heine Family diagnosis support packs. These
5+ years Foundation has generously donated provide immediate support in
to ensure more financial assistance hospital, so teenagers and young
JB Hi-Fi has been a major
is available to help families across people know they are not alone with
supporter of Redkite for the
Australia face the overwhelming cancer. The Flight Centre team also
last six years. The team’s
impacts of cancer. generously volunteers to pack the
passion for supporting families
is demonstrated in JB Hi-Fi’s diagnosis support packs.
nationally recognised workplace
giving program. The team also Kinghorn
raises money through in-store Foundation
donation boxes.
Sarah from Kangaroo Flat proudly ‘Tis the season for giving - Coles Bondi employees ushered Coles team members proudly ran for The Kinghorn Foundation has
displays donation cards sold in store in the Christmas spirit Redkite at the Bridge to Brisbane event enabled Redkite to deliver Real
Connect, an innovative expansion
In 2015, Coles continued to Through sheer dedication, Coles • 16,000 hours of essential program designed to better meet
generously donate five cents from raised $4.9 million from 26 January counselling and practical support the needs of families navigating
the sale of every loaf of Coles Brand 2015 to 25 January 2016, helping to families across nine hospitals the cancer journey. With the
and Coles Smart Buy bread to Redkite support more families from Foundation’s ongoing generous
• 1890 education and career
Redkite. the moment of diagnosis, through support, we are reaching more
support sessions to over 400
long treatment periods and when families with the specific support
Kitedays, a new national fundraising teenagers and young adults to
families return home. they need.
campaign launched in September, achieve their work and study goals
with teams across Australia holding Thanks to Coles team members and
• 38 Coles and Redkite Dare to
quirky fundraisers such as in-store messages on Coles bread products
Dream scholarships to help
bike challenges, BBQs, bake sales, and receipts, more families are
teenagers and young adults
head shaves and themed dress up aware of Redkite today and the
pursue their education and career Redkite was proudly nominated as
days. Dedicated team members essential financial, emotional and
aspirations the charity partner of the Myer Stores
have also shared their dedication education support we provide at a
and community spirit, hitting the time when it’s needed most. • 3300 support booklets to young Community Fund’s annual Precious
pavement and running in physical people, parents and family Metal Ball in 2015 for the third year.
Coles’ incredible support in 2015 Proceeds from this Ball ensured 100
challenge events for Redkite. In members facing cancer at
means we have been able to families received essential Redkite
December, customers purchased Christmas called “Getting through
provide: support for a full year of their cancer
$2 Christmas donation cards, raising Christmas”.
a record breaking $1.1 million for Country Road volunteers help pack Redkite Red Bags
experience.
families facing cancer.
26 Redkite Annual Review 2015 Redkite Annual Review 2015 27Major partners Supporting partners
10+ years 5+ years 5+ years 5+ years
20 years 10+ years 10+ years 5+ years
Crowe Horwath audits Redkite’s Bankwest generously sponsored the Direct Group has been committed
finances and ensures compliance Shout Out About Redkite Program, to children and families facing
with standards and regulations-all raising awareness and helping to cancer for over seven years. For Denton Family Johanna Sewell
on a pro-bono basis. The team also Trust Memorial Fund
reach more children, young people Christmas 2015, they generously
organises a variety of fundraising and families. Bankwest’s dedicated provided thousands of food 5+ years 5+ years 5+ years 5+ years
activities throughout the year in team also engaged in fundraising, hampers, supporting families at
support of families on the cancer workplace giving and volunteering. what is often an emotionally and
journey. financially difficult time.
Flannery Ronald The Trust Company
Foundation Geoffrey
Arnott
Australia Foundation,
managed by Perpetual
5+ years 5+ years Foundation
5+ years
For over five years, the Flannery Supporting Redkite’s Cancer
Foundation has been committed As the founding partner of Redkite’s Journey Program since 2008, SAP
to helping Redkite provide essential Exceptional Needs Assistance is dedicated to ensuring more
support to Queensland families Program in 2010, the Ponting families have access to essential Key supporters
facing the challenges of a young Foundation continues its generous information and counselling,
person’s cancer diagnosis. support for families facing extreme financial help and education and • John Almgren AM • Farrell Family Foundation • Santa Fe Wridgways
circumstances in addition to a career support. and Yvonne Almgren • G W Vowell Foundation Limited • SAP Ecosytem Foundation
childhood cancer diagnosis. • CSL • Intraining • Sofitel Melbourne On Collins
• Earth Catering • Jo Kinghorn • TLE Electrical
• Estate of the late • PPB Advisory Foundation • WM Ritchie
Daphne Malcolm Trust Paul Edward Dehnert • Qantas Credit Union Arena
In 2015 the Daphne Malcolm Trust
5+ years provided financial assistance for MPA generously supports Redkite’s
Boral has generously supported families facing the impacts of a Cancer Journey Program and Trusts and foundations
Redkite’s Financial Assistance childhood cancer diagnosis. Their committed to raise $100,000
Program since 2012, relieving generous grant helped families pay between July 2015 and June 2016 • Beeren Foundation • Joe White Bequest
pressures on families at a time for accommodation near hospital through staff fundraising activities • Benmark Foundation Pty Ltd • Johanna Sewell Memorial Fund
and transport costs to and from with the company matching dollar for • Brady Cancer Support • J.P. Stratton Trust
when continuing to work can be Foundation Inc • The Karen and John Kightley
impossible, yet the bills continue to treatment. dollar. MPA also provided substantial
pro-bono support, making the refit of • Channel 7 Telethon Trust Foundation
pile up. The enthusiastic Boral team • Count Charitable Trust • Kinghorn Foundation
also holds fundraising activities and Redkite’s National Office possible.
• Corio Foundation • Liangrove Foundation Pty Ltd
volunteers their time at events. • Daphne Malcolm Trust • Marian & E.H. Flack Trust
• Denton Family Trust • Norman, Mavis & Graeme Waters
Your Safety Factory supports • Dimmick Charitable Trust Perpetual Charitable Trust
• Ernest Heine Family Foundation • Ponting Foundation
Redkite by generously donating ten
• Estate of the late Paul Edward • R. A. Gale Foundation
cents from every pair of gloves sold Dehnert • Ronald Geoffrey Arnott Foundation
Stockland CARE Foundation through their stores. The program • Farrell Family Foundation • Stack Family Foundation
launched a new partnership in 2015 helps us to reach more children, • Flannery Foundation • Stan Perron Charitable Foundation
in support of the Cancer Journey young people and their families • The Gross Foundation • Todd Family Foundation
Program. Stockland team members facing cancer with support when • G W Vowell Foundation Ltd • The Trust Company Australia
will generously support more than they need it most. • James N Kirby Foundation Foundation, managed by Perpetual
40 families through the whole • The Jessica & Wallace Hore • William Angliss (Victoria)
cancer journey over the next 12 Foundation Charitable Fund
months.
28 Redkite Annual Review 2015 Redkite Annual Review 2015 29Workplace givers
• Australia Post • Country Road • Greenhill • Suncorp Bank
• Bankwest • CSL Limited • Herbert Smith Freehills • Sydney Opera House
• BHP • Department of Ageing, • I-med Network • Telcoinabox
• Bupa Australia Group Disability & Home Care • JB Hi-Fi • Transurban
• CGU Services • Lion • UXC Ltd
• Chartered Accountants • Devine • National Australia Bank • Wilson HTM Foundation
Australia & New Zealand • Ernst & Young • Nextgen Distribution • Wolseley Private Equity
• Coles • Flight Centre • SAP Australia and NZ
Redkite acknowledges the support of the Australian Charities Fund, ADF Employer Services, ADP, Benevity, Charities Aid Foundation,
Goodcompany, Karma Currency and United Way for facilitating payroll giving partnerships.
WA businessmen and passionate Redkite supporters Alan Pavisich and Danny Psaros raised over $90,000 as they walked 20 km in tutus
Valued friends
• Advertiser & Sunday Mail • Ellenbrook Rangers • Lawson Elliott • Carol Sharbanee
Foundation Cricket Club • Dr Geoff Lee, MP • Chris Shaw
• Robert Albert AO • Etihad Airways • Karni Liddell • Suzanna Sheed, MP
• Alibi Pictures • Facebook • Lighthouse • Fiona Simpson, MP
• The Andjelic family • Tiffany Farrington Communications • Jack Singleton
• John Angus • Anthony ‘Blue Wiggle’ • Matt Little • Jillian Skinner, MP
• Ruth Armytage AM Field • Vic Lorusso • Rosalind Smith
• Australian Reliance • Paul Field • Sam Mac • Kathleen Smith, MP
• Australian Turf Club • Ryan Fitzy Fitgerald • Daryl Maguire, MP • Jann Stuckey, MP
• Beastwear • Ben Fordham • Susan Maple-Brown AM • Social Diary
• Craig Bolton • Andrew Fraser, MP • Mark Matthews • Kim Speare
• James Brett • Lachy ‘Purple Wiggle’ • Rob Mills • Edwina Stuart
• Gai Brodtmann, MP Gillespie • Ben Mingay • Sydney Accueil
• Bec Brown • Scott Gooding • Lizzi Morrissey • Telcoinabox
• Leon and Sue Butcher • Lisa Gormley • Darcy Munn • The Royal Hawaiian
• Cable Beach Club Resort • Kris Giffin • Carmelo Munzone • Ros Thomas
& Spa • Troy Grant, MP • Nextgen Distribution • The Thomson Family
The 2015 Colour Ball Committee organised another glamorous event in support of Redkite in Sydney
• Cedars Tavern • Halekulani Resort • Gillian O’Shaughnessy • Vicky and Tom Todd
• Mark and Rebecca • Ed Halmayi • Willy and Mimi Packer • Paul Toole, MP
Ceglinski • Shelley Hancock, MP • Peter Phelps • UM
• Charlie Clausen • Jodie Harrison, MP • PGi • Unity Communications
Redkite ambassadors and • Abby Coleman • Hawaiian Airlines • Simon ‘Red Wiggle Pryce • Villa Sungai Bali
special supporters • Natalie Cook • Rhae Hooper • Robert Pyne, MP • Emma ‘Yellow Wiggle’
• Stav Davidson • Jarrod Hunt • Hugh Riminton Watkins
• Devine • I-Med Network • Paul Rogers • Philippa Weekley
• Jude Bolton • Susanne Latimore
• Leanne Donaldson, MP • Del Irani • Tim Ross • Wentworth Travel
• Rob Carlton • Brad McEwan
• Bill and Eileen Doyle • Ironman Asia-Pacific • Jaben Ryan • Western Australian
• Frank Coletta • Tendai Mzungu
• Barry du Bois • Joel Jackson • Salisbury Hotel Charity Orchestra
• Nathan Coulter-Nile • Myles Pollard
• Alex Dyson • Kailis Jewellery • Ron and Lyn Sayers • Mark and Joanne
• Ryan Crowley • Tatafu Polota-Nau
• Maree Edwards, MP • Cameron Judd • Scotch College Willcocks
• Harry Cunningham • Magdalena Roze
• Jonathan Egan • Ellie Laing • Helen Sewell AM • Gabrielle Williams, MP
• George Donikian • Rhyce Shaw
• Sam Lane • Adam Shand • Jim Wilson
• Georgie Gardner • Adam Spencer
• Jack Hannath • Tony Squires
• Marcus Harris • Nick Suban
Committees Sporting partners
• Les Hill • Jayde Taylor • Colour Ball • QLD Quiz
• Brett Kirk Committee Committee
• NSW Quiz • VIC Quiz Committee
Committee • WA Quiz Committee
Redkite Ambassador Georgie Gardner gave up chocolate for a week for our • WA Events
15 years 5+ years 5+ years
‘Trade a Treat’ campaign to support children and young people with cancer Committee
30 Redkite Annual Review 2015 Redkite Annual Review 2015 31governance and regulation The Board
Redkite’s Board oversees
and monitors the
Our Board and networks management of Redkite
and the performance
Redkite is committed to: of the Senior Executive Sarah Goodman
Bruce Morgan Adam Spencer
• Actively seeking and utilising innovative solutions to Remuneration Committee Team. Board members Chairman Sarah Goodman is currently
Adam Spencer is a well-known
improve service outcomes and organisational efficiency. • Ensures remuneration guidelines and policies are in meet at least six times Bruce Morgan is Chairman of an Executive General Manager
author, media personality and
• Evaluating the effectiveness of our work, undertaking place for the Chief Executive Officer, senior executives during the year and Sydney Water and a Director long-term Ambassador for at the Australian Prudential
continual process improvement and building on past and staff, and monitors implementation. receive detailed financial of Caltex Australia Ltd, Origin Redkite. Adam is also patron of Regulation Authority. She has 18
achievements. Energy Ltd, the University a number of science-related years’ experience as a voluntary
• Comprised Bruce Morgan (Chair), Jennifer Horrigan and and operational reports
• Delivering services and raising funds respectfully and of NSW Foundation and the events and programs and is Company Director of charities
Sarah Goodman. from management on a and other not-for-profit
with integrity. • The committee satisfied the requirement to meet at European Australia Business the University of Sydney’s
• Being accountable to families who access our services
regular basis. At the end Council. He was formerly the Ambassador for Mathematics enterprises, and has also been
least once during the year. of 2015, there were seven Company Director of several
and to Redkite’s supporters. Chairman of the Board of and Science and Number One
commercial companies.
• Listening to and collaborating with donors, sector Investment Committee directors. Directors are Pricewaterhouse Coopers ticket holder for the Sydney
appointed for a term (PWC). Swans. “It’s an honour to serve
stakeholders and the families who access Redkite • Establishes and ensures appropriate investment and risk
strategies for Redkite’s general reserve fund, as well as of three years and for a “I’ve been a passionate Redkite’s families as part
services to ensure quality support is provided where it’s
of the Board. The essential
needed most. the Johanna Sewell Bequest reserve fund, in conjunction maximum of three terms. ambassador for Redkite
for 14 years and a Director support Redkite provides
• Practising diversity, equity and inclusion as a foundation with the Board and external professional advisors. All Directors volunteer
since 2014. As a father of means its services are critical
for all our work. • Comprised Jennifer Horrigan (Chair), Joost de Kock and their time and expertise.
two gorgeous girls, I know at the most challenging of
• Working closely with our donors, pro bono supporters external advisors Don Stammer, Geoff Brunsdon and to Redkite in support of the importance of Redkite’s times for families.”
and volunteers to keep operational costs to a minimum. Helen Sewell. children, young people
• The committee met five times during the year. support for the entire family
• Maintaining our positive, unified and professional culture. and their families. Ross Pinkerton not just the sick child.
• Creating a work environment that promotes Equal Risk and Audit Committee Professor Ross Pinkerton is
Employment Opportunity (EEO).
An enterprise risk management framework operates to the Director of Cancer Service,
• Using Occupational Health and Safety policies and Children’s Health Queensland
enable the Board and management to continue identifying
procedures to uphold a safe working environment. Hospital and Health Service.
and managing key risks.
• Monitors and oversees Redkite’s financial reporting, risk He also holds the position of
Board functions Professor of Oncology at the
management and compliance programs.
University of Queensland and is Joost de Kock
• Reviews and approves Redkite’s strategic plan and • Comprised Sarah Goodman (Chair), Bruce Morgan and Chair of Queensland Paediatric
operating and capital budgets. external professional advisor Jonathan Dooley. Mark Rigotti Haematology Oncology Joost de Kock is a Partner
• Appoints, guides and assesses Redkite’s Chief • The committee satisfied the requirement to meet at Network. and Managing Director at The
Mark Rigotti is the Joint Global Boston Consulting Group
Executive Officer. least three times during the year. Chief Executive Officer of Jennifer Horrigan
“Having witnessed first hand (BCG). He sits on BCG’s global
• Ensures the integrity of internal controls, risk Herbert Smith Freehills. Prior Jennifer Horrigan was most
in clinical practice over many leadership teams for both its
management and management information systems. Ethical standards and Code of Conduct to this, Mark ran a leading years the invaluable benefits recently Chief Operating Officer Technology Advantage and
• Ensures appropriate delegations, policies and Board members, senior executives, staff and volunteers are corporate, capital markets
of the range of services that at Greenhill Australia. She is Public Sector practices. He
procedures and compliance with all relevant legislations and fundraising practice for also a non-executive Director also oversees BCG’s social
expected to comply with all relevant laws and the values of Redkite provides to patients
and regulations. 15 years, spanning Australia of APN Funds Management impact work in Australia. For
Redkite as determined by the Board. This requires they act and the United Kingdom. Mark
and families, I am keen to
Limited, QV Equities
• Ensures financial viability, solvency and sustainability. with integrity, compassion, fairness, honesty and respect contribute to the further over 15 years, Joost has advised
is a member of the Business Limited, General Healthcare, private and public sector clients
• Advocates for Redkite. at all times when working with children, young people expansion and development
Council of Australia. Industrial REIT. Jennifer has on strategy, business model
• Ensures consultation and communication with all and families affected by cancer and also with colleagues, of the organisation’s work.” 25 years’ experience across
stakeholders regarding Redkite’s operations and “Redkite makes a difference design, and technology-driven
supporters and other stakeholders. investment banking, financial transformation.
future direction to people. That includes the
communications, investor
children and young people “Having spent 11 months in
Regulation relations and strategic
affected by cancer - and hospital as my 9-year old son
Board Committees marketing.
Redkite holds all relevant registrations, authorities and also others who are involved underwent his chemotherapy,
The Board has established Board Committees to oversee endorsements in Australia to operate as a charity and with them and Redkite. I am “As someone who has been
I understand the real
particular aspects of Redkite’s operations and administration. believes all are current and in good standing namely: always struck by the warmth touched by cancer, I know
difference Redkite’s support
Each Board Committee operates under a charter approved • Registration with the Australian Charities and Not for of people that have been that having the right support
makes to children with cancer
by the Board. These charters provide for external advisor touched by Redkite - not is vital – both through
profits Commission as a charity (Registration no 65 104 and their families when
members in addition to Director members and are reviewed just the children but also treatment and beyond. It
710 787) their lives are turned upside
annually and updated as necessary. The charters require families, broader family and is an honour to be part of
• Registration with the relevant fundraising authority in down. As a Board member I
that every committee includes at least one Director and friend networks, sponsors, Redkite providing essential
each state and territory of Australia for the purposes of am privileged to contribute
that members have suitable qualifications for the role. Each supporters and people who support to children and young
fundraising in that State or Territory to Redkite and provide a
committee reports back to the Board on their activities. work for Redkite. It is inspiring people with cancer and their
• The endorsement of the Australia Taxation Office as families.” parent’s perspective.”
to be part of something which
a Deductible Gift Recipient (DGR) and endorsement
does so much good and does
for charity tax concessions in respect of income tax it in a way which engenders
exemption, GST concessions and FBT exemption. genuine warmth.”
32 Redkite Annual Review 2015 Redkite Annual Review 2015 33You can also read
