CanadianCELIAC It's Not Pretend - May is Celiac Awareness Month Advocacy Efforts Dear Dietitian - Canadian Celiac Association
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CanadianCELIAC
It's Not Pretend
PLUS
May is Celiac Awareness Month
Advocacy Efforts
Dear Dietitian
Growing Up Celiac
CCA board of directors
Executive CCA National Board of Directors
Janet Bolton, President David Congram
Treena Duncan, Past President Meredith Birchall Spencer
Jennifer Stebbing, Secretary Jessica Danford
Andrew Kotys, Treasurer Tamara Close
Ravil Veli
Melissa Secord, Kathryn Djordjevic
National Executive Director Lizbeth Wall
Contact us
Canadian Celiac Association
1450 Meyerside Dr., Suite 503
Mississauga, ON. Canada L5T 2N5
Phone: 905.507.6208 or 800.363.7296
Fax: 905.507.4673 | Email: info@celiac.ca
www.celiac.ca
Canadian CELIAC
A MAGAZINE FOR CANADIANS WITH
CELIAC DISEASE AND GLUTEN SENSITIVITY
Editorial Board
Melissa Secord Graphic Design Services:
Nicole Byrom Mark Ascione
Contributors
Nicole Byrom Janet Dalziel
Jennifer Brown Salene Pyke
Colette Ledoux Howard Selig
Caleigh McAulay Mary Dooley Thiffault
Melissa Secord Sadie Thiffault
COVER PHOTO BY CARLEY TERESA PHOTOGRAPHY
Copyright © 2021 by the Canadian Celiac Association
Publication Agreement#40787580
DEPOSIT PHOTO
Canadian Celiac is published for the Canadian Celiac Association, L’Association Canadienne de la maladie coelique. Reproduction of this
magazine in whole or in part is prohibited without the express written consent of the publisher.
Disclaimer: The contents of Canadian Celiac are provided in good faith for information purposes only, and using the most current information
available subject to amendment, and should not be used as a substitute for the advice of a qualified medical professional. The Professional
Advisory Council of the Canadian Celiac Association (CCA) has not reviewed the contents of Canadian Celiac. Use of the information is at
your own risk. The CCA does not endorse any product referenced in this publication. To the fullest extent permitted by law, the CCA, its
local chapters and all persons involved in the compiling of this publication disclaim any responsibility for, and make no representations or
warranties regarding the information provided. In no event will CCA, its Chapters or those persons involved in compiling this publication be
liable for any damages of any kind resulting from the use of the information.
2 | Canadian CELIAC
A magazine for Canadians with celiac disease
and gluten sensitivity
SPRING 2021
MAY IS CELIAC AWARENESS MONTH! 6
ADVOCACY EFFORTS 7
LILY’S STORY 10
GROWING UP CELIAC 12
DETECTIVE DELICIOUS WORD SEARCH 13
REGISTERED DIETITIANS 16
DEAR DIETITIAN 19
A MEMOIR – BROKEN BREAD 21
WELCOME TO VALLEY FLAXFLOUR! 24
UPDATE ON RESEARCH 27
CCA PUZZLER 29
RECIPES 30
10 21 30
VOLUME 5 | ISSUE 2
Canadian CELIAC | 3
From the editor’s desk
Celiac Disease is real. #ItsNotPretend.
Let us stand together to bring awareness.
years ago my At the CCA we want to ensure that
husband was you are supported and guided
diagnosed. In through each step of your celiac
addition, my journey. From pre-diagnosis, to
sister-in-law newly diagnosed and for our
and niece also empowered members, we want to
have celiac ensure that we have content that
disease. As is relevant and focused on you
you can see, and your stage in the disease.
this is not
just a job for Thanks to our donors, we are
me. This is very proud to be providing high
my lifestyle, quality content for our readers. By
and this is my supporting the CCA’s research,
community. I advocacy, and education efforts,
decided many you’re making a REAL difference
My name is Nicole Byrom, and I years ago that I wanted to focus to those living with this life-
am pleased to be the new Editor my career as a Dietitian on celiac changing, autoimmune disease.
for the Canadian Celiac magazine. disease to learn more about the
As the new Health Promotions condition that has affected my We hope you enjoy this issue! It
Manager with the Canadian Celiac family so deeply. Now, working is packed with personal stories,
Association, Melissa Secord CCA’s with the CCA allows to me play an evidence-based resources, expert
Executive Director has handed integral role in how celiac disease help, recipes and even a little
over the reins of this important is portrayed in Canada. I am fun in the form of a crossword
community resource to me! focused on science, research, and puzzle and some ‘kids only’
innovation. I promise to strive for content! We have also created
I am very excited to be part of this excellence in my communication a ‘Dear Dietitian’ column where
thriving community. I am also a to this community and assist you our resident nutrition experts
Registered Dietitian with 17 years in any way that I can. will answer commonly asked
of experience in both hospital and questions about celiac disease!
out-patient settings. My position May is Celiac Disease Awareness
with the CCA means a great deal Month. This month we want to From our homes to yours, we
to me. 15 years ago, after years of focus on celiac disease being a hope you stay safe and stay well!
health struggles my mother was real disease. This not a fad diet
diagnosed with celiac disease, and this is not a condition that will Nicole Byrom, RD u
6 years ago my middle daughter fade over time. When you have
was diagnosed with celiac and 3 celiac disease, you have it for life.
4 | Canadian CELIAC
Now Available to order online
www.Promiseglutenfree.ca
Celiac Awareness Month
Celiac Disease is NOT Pretend! Join us all month long as locations illuminated in green to raise awareness for celiac
we #ShineALightOnCeliac disease with lots of fun events disease.
and activities!
Celiac Awareness Month is brought you by our Lead
Throughout the month of May, the CCA is offering cooking Sponsor Promise Gluten Free.
demos, educational webinars, daily recipes, and more to
celebrate Celiac Disease Awareness Month. Don’t forget
to check out our affiliated Chapters websites for events in
your local community! All times shown in Eastern Daylight
Savings time.
On Sunday May 16, the international celiac community is
coming together to #ShineALightOnCeliac. Iconic buildings
and destinations across North America including Toronto’s To learn more about Celiac Awareness Month and the
CN Tower, Niagara Falls, Montreal’s Olympic Stadium #ShineALightOnCeliac initiatives, visit ItsNotPretend.ca.
and Vancouver’s Science World will be just some of the
Celiac Awareness Month Events
CCA Launches new provocative video International Celiac Awareness Day:
To break through the myths about celiac disease and Shine a Light on Celiac
gluten disorders, CCA has launched a provocative video When? May 16, 2021, 11:30 AM EST (Online cooking demo)
featuring 8 year-old Sadie. Dusk (Building lighting)
It’s International Celiac Awareness Day! The
Click here to watch and share: international celiac community is coming together to
https://youtu.be/E542CnpeE_E #ShineALightOnCeliac. Iconic buildings all over the world,
including Toronto’s CN Tower, Montreal’s Olympic Stadium
Recipe of the Day and Vancouver’s Science World, will be lit up green to raise
When? May 1-31, 2021 awareness for Celiac Disease Awareness. To learn more,
Every day throughout the month we’ll be bringing you meal visit https://shinealightonceliac.org/.
inspiration from our sponsors on our social media channels! CCA’s ‘Shine A Light’ on Celiac Disease events are
Sponsored by: Schar, ValleyFlax, Kinnikinnick, Cup4Cup, sponsored in part by OREO.
and Promise Gluten Free.
Webinar Wednesdays sponsored by Glutino
Outdoor Video: Dundas Square, Toronto, ON Free educational webinars every Wednesday in May!
When? May 3-9, 2021 Topics include: Shared Kitchen Tour, GF101, Bone Health,
Take a stroll through Dundas Square in Toronto to Could it be Celiac Disease? Click here to register:
check out our ads from May 3-9. Sponsored by https://www.celiac.ca/news-events/events/
Promise Gluten Free.
6 | Canadian CELIAC
Improving Access to Safe Food
KINGSTON CHAPTER WORKS
WITH CCA’S FOOD DONATION
PROGRAM SUE JENNETT
PRESIDENT, KINGSTON CHAPTER CCA
At the Kingston, Ontario Chapter of The “Save Me For Gluten Free” cam- I made my first donation for the “Save
the CCA we were looking for a way paign encourages anyone to attach Me for Gluten Free” program in person
to help our fellow celiacs during this a note with the special logo on it to a to the foodbank a couple of weeks
difficult time. We have often taken up bag of gluten-free food for donation. ago, and look forward to many more.
a collection of non-perishable foods This may be in the bin at the exit door I also posted a picture on my Insta-
at some of our events for many years. of the store, or by individual drop off at gram page and was happy to hashtag
Our members were very generous the foodbank itself. The label is avail- both the CCA (#SaveMe4GlutenFree
and by delivering the donations to our able on the CCA website at https:// and #CCAceliac) and our adopted
foodbank in person, we were able to www.celiac.ca/get-involved/saveme- foodbank. I was pleased to get such a
ensure they would be kept separate, forglutenfree/. positive response online.
to be given to those who required a
gluten-free diet. So much has been Chapters are encouraged to go one We are a small chapter in Kingston,
complicated over this past year, but step further and develop relationships and as with other groups, we have not
the CCA has developed a very simple with local food banks, starting by been able to meet in person for more
program to allow anyone to make “adopting” a foodbank. As President than a year now. This makes planning
donations to foodbanks, that allows of the Chapter, I called the Partners in anything to mark Celiac Awareness
the foodbanks to easily identify the Mission Foodbank, Kingston’s largest Month very difficult. We’ve decided to
donations as gluten free. food charity, to offer to work with them. have a “Curbside Gluten-Free Food
The Executive Director, Dan Irwin was Donation Pickup” on Celiac Aware-
thrilled to receive my call. We spoke ness Day, Sunday, May 16th. Our
about the challenges a foodbank members have been asked to gather
has with volunteers and food supply. suitable gluten-free foods and leave
Through our chapter, we can offer them in a bag at the end of their drive-
assistance in the form or volunteers to way, or front door at a scheduled time
help with the gluten-free donations, or that day, and a volunteer will pick up
signage and education. The approach the donation and collectively we will
was to not only solve our issues of deliver the “Save Me for Gluten Free”
getting gluten-free food to those who donations to our adopted foodbank –
need it, but also to address any issues a great way to celebrate and give back
the foodbank might have in carrying all at the same time. u
out our plan.
Canadian CELIAC | 7
Behind the Scenes…
LET’S REVIEW HOW CCA IS WORKING ON BEHALF
OF GLUTEN-FREE CANADIANS
When you support CCA, you are supporting work that often cannot be done by one person alone. It takes a
team of dedicated of expert volunteers and staff to advance advocacy on key issues. Here’s a peak at what
has been happening behind the scenes.
1. Self-care and nutritional on the introduction of gluten- on pulse-based foods/recipes
products free oats with support from as a staple.
Currently retail products that Dietitian Inez Martincevic. As • Pulses are high in dietary fibre
are categorized as self-care part of its work, CCA undertook and a good source of protein
like nutritionals, probiotics an international survey to • With the rise in plant-based
and prebiotics and other understand how doctors are foods, this will be an area of
supplements, do not need managing this ingredient or increasing concern about the
to follow the same labelling what clinical guidelines exist. safety of both pulses and nuts
regulations as food despite Work will continue over the as consumption increases.
people still ingesting them. coming months.
Health Canada is looking to 4. Diagnosis Working Group
provide the public with clear 3. Food surveillance – is your A group of volunteers recently
language packaging and food safe? met to begin strategically
strengthen claims made on CCA’s Dietitian Working Group planning CCA’s efforts to
packages. CCA has been invited has sent a proposal to Health address the lack of coverage
to participate in the second Canada and CFIA to do food of the celiac blood test (ttg
round of Spring stakeholder surveillance surveys on pulses, iga) at the primary healthcare
consultations to help address nuts, cereal, seeds and wheat level. CCA had to halt its efforts
the gaps in labelling of these starch. Of particular concern are last year due to the COVID-19
products. CCA and Coeliaque pulses and nuts. CCA is hoping outbreak. Ontario will be
Québec have been advocating to see CFIA track some of these heading to the polls in June
for priority allergen labelling to ingredients over a period of 2022 and CCA will be asking
follow the same standards as time this fall and measure the the community to support its
food and beverages. gluten levels in these products. efforts once again. Stay tuned.
• Foods like prepared soups
2. Introduction of Oat-based and stews are a concern.
products • For some cultures and diets
CCA has been leading a study (vegan/vegetarian) rely heavily
Bringing safe gluten-free grains to your plate
CCA had the opportunity to make a submission to support Canada’s desire to “collectively shape a vision for
a world-class grain quality assurance system and producer protection framework that meets the needs of the
sector, now and for the future.” CCA made a submission for the Canadian Grain Act Revivew. As a key consumer
stakeholder, the CCA was pleased to advocate for individuals seeking safe gluten-free grains from farm to fork.. u
8 | Canadian CELIAC
Lily’s Story
is brought to our readers by
THE CCA WOULD LIKE TO INVITE YOU TO MEET LILY. LILY’S STORY HAS TOUCHED ALL OF OUR HEARTS
AND GIVEN US A MOMENT OF PAUSE. LILY’S EXPERIENCE IS NOT AN ISOLATED ONE. SADLY, MOST
PEOPLE GO UNDIAGNOSED FOR, ON AVERAGE NINE YEARS BEFORE DISCOVERING THAT THEY HAVE
CELIAC DISEASE. LILY WAS JUST A BABY WHEN HER TREMENDOUS HEALTH STRUGGLES BEGAN. HER
STORY HAS A HAPPY AND JOYFUL ENDING, BUT THE JOURNEY TO GET THERE WAS WROUGHT WITH
FEAR AND ANXIETY. HERE IS A LETTER WRITTEN TO US BY LILY’S MOTHER JENNIFER. THANK YOU,
JENNIFER, FOR SHARING LILY’S STORY. WE ARE SO GRATEFUL THAT SHE IS NOW HEALTHY AND WELL.
Dear Canadian Celiac Association,
In September 2019, my daughter, Lily, was just past
her first birthday. For the past 6 weeks we had
witnessed a gradual decline in Lily’s mood, mobility
and, most noticeably, her weight. She was extreme-
ly constipated, vomiting, she refused to walk, would
rarely smile and looked sunken and pale. We visited
our family doctor twice in one month and went to
Children’s Hospital three times. There we received
ultrasounds, x-rays, blood work, the works. Each
time with left with the diagnosis of “severe constipa-
tion” and a script for laxatives. Each visit, I told the
doctors and nurses, that my father was diagnosed
with celiac disease 30 years ago and I requested
numerous times that they test Lily. Each time I was
met with reassurance that her symptoms were “not
consistent with celiac disease” and were rebuffed.
On Sunday of the September long weekend, we
took Lily to Children’s Hospital for the 4th time. They
took her again for x-rays, blood work and ultra-
sounds. We were told to stay overnight for further
investigations. We were told that the laxative should
have worked. This time we demanded that Lily be
screened for celiac disease. Over the next three
days we had more blood work, an NG tube, and
another x-ray, all while Lily continued to waste away.
On Tuesday, a GI specialist stopped in to inform Continued on next page
10 | Canadian CELIACWithin two days our baby was once again
laughing, smiling and dancing.
us that Lily’s celiac screen came
back “unmeasurably high”. She
was immediately put on a strict
gluten-free diet and a lifelong
multivitamin. Within two days our
baby was once again laughing,
smiling and dancing. It took her six
months to catch up to her peers
on the growth chart, and one year
later she surpasses many of them.
The CCA has been a
lifesaving resource for my
family. We have leveraged
the tools and tips for
discussing celiac disease
with school providers and
our extended family.
Watching my father’s experiences
having been diagnosed 30 years
ago to today, I can attest to the
on-the-ground benefits of the
advocacy efforts of the CCA for
food labelling and education to
the general population. We do still
struggle with confidence in eating
out (pre-pandemic) and anxiety
that those feeding Lily truly under-
stand the proper food handling
necessities, but we feel signifi-
cantly better equipped to handle
these scenarios with the advice
and work of the CCA.
Thank you,
Jennifer u
Canadian CELIAC | 11Growing up celiac
Brought to you by Kinnikinnick
Visit the
MEET SADIE!
Growing Up
Celiac
page!
Sadie’s Tips!!
1. Read all labels, and learn to
Sadie was diagnosed with
recognize the words wheat,
Celiac Disease at age 3, after
barley, rye and oats.
demonstrating signs of iron
2. Also learn how to recognize the
deficiency. Now 8 years old,
Gluten-Free symbol!
Sadie is a fantastic advocate for
3. I bring my own pizza and cup-
herself and her health, always
cakes to birthday parties. I don’t
remembering to check “is it gluten
eat the ones there. If there are
free?” and educating others about
gluten-free chips at the party, I
what that means! Sadie has a
pour some out from the bag, in-
wonderful attitude about having
stead of reaching into the same
celiac disease, and reminds
bowl as everyone else.
her family that it is what
4. I like to read books and watch
makes her unique. She is
TV shows about other people
optimistic that in her
who have celiac disease (Like
lifetime, doctors and
the book Eating Gluten-Free
scientists will find
With Emily and the TV show
a cure! When not
Sugar Rush).
sampling gluten-
5. If something doesn’t have in-
free snacks and
gredients on it, I don’t take it.
bakeries, Sadie
6. In the lunchroom at school,
can be found
I eat at the end of the table,
cartwheeling
where there are fewer kids
and dancing
around me with crumbs.
at home in
7. If you are disappointed when
Toronto!
someone offers you food that
you know you can’t eat, make a
plan to get something else after-
wards that will be just as good.
8. You even have to check toys -
PlayDoh and some other craft
kits contain gluten!
9. Whatever you can’t buy gluten-
free, you can try to make!
10. You should feel unique in your
own way! u
12 | Canadian CELIACDetective
DETECTIVEDelicious Word Search!
DELICIOUS
Detective Delicious Word Search!
WORD SEARCH
S U C F UDG EWY
K
S MU HC V
F UA D
NG I E
LW L A
Y
KI M
P OHMV D B H
A N I LI H
L C
A
NI PI O
CMRW DOB HT I HI O
C
N ZI OCMRW E O
A NT OI I O
NI Z OL M
A EJ A NF O
U YI O
K
TI Z
A A P PJ A
L A S B F Y
F U T KI
O
T AS AT P
L PI SI B
L F
L TL EI
OG S ET E
L EI ZI B
L D
L EL E
S G
O C EI N
E N AM
E Z B O
DN S
E E
S C I N N AMON S
Smoreables Chocolate Vanilla KinniTOOS
Waffle Pizza Donut Cinnamon
Smoreables Chocolate Vanilla KinniTOOS
Cookie Maple Fudge Pie
Waffle Pizza Donut Cinnamon
Cookie Maple Fudge Pie
PRINT THIS PAGE
AND PLAY!
Canadian CELIAC | 13PANCAKE BANANA BREAD!
MAKE THIS TOGETHER!
INGREDIENTS
z 1 package Kinnikinnick Pancake
and Waffle Mix (454 g)
z ½ tsp baking soda (3 g)
z ½ cup butter - softened (125 g)
z ½ cup granulated sugar (117 g)
z 2 large eggs (112 g)
z 1 tbsp vanilla extract (6 g)
z 2 cups mashed bananas
(approx. 6 - 7) (528 g)
DIRECTIONS
1. Preheat oven to 350°F (176°C).
Lightly spray a loaf pan.
2. In a medium bowl, cream butter,
vanilla and sugar until light and
fluffy.
3. Add eggs one at a time, mixing mixture. Mix until fully touched lightly on the top).
after each addition. incorporated. 8. Remove from oven and let loaf
4. Fold in mashed bananas. 6. Pour batter into loaf pan. cool slightly prior to inverting
5. Slowly add Kinnikinnick 7. Bake in preheated oven for 70 - pan. Carefully remove pan
Pancake and Waffle Mix 75 minutes (check for doneness and let cool completely before
and baking soda to creamed - loaf will spring back when serving. u
Online: Click here to make an online donation.
Donate The Canadian Celiac Association CCA uses a secure
online service www.celiac.ca/donate-today to process our
Today online donations. You will receive a tax receipt by email,
usually within minutes of making your donation.
14 | Canadian CELIACI HAVE
A DISEASE
PEOPLE
Lily, Four Years Old
It’s not that rare, either. They tell their friends
and coworkers they have it. Some even really
think they have it.
PRETEND
But they don’t feel like I do. They don’t
experience the pain that goes along with it.
The weakness. The malnourishment. Their growth
isn’t stunted like mine. And doctors didn’t lead
them to believe it was something else.
TO HAVE.
And the more people who pretend to have it,
the more people think I’m just pretending.
It’s not pretend. It’s Celiac.
itsnotpretend.ca
Canadian CELIAC | 15Empowering people with
celiac disease.
REGISTERED DIETITIANS –
A PARTNER AND INVESTMENT
IN YOUR OVERALL HEALTH.
Have you ever thought this A dietitian has
before, “I’ve been following a several roles, but no
strict gluten free diet for years, matter what the job
so why do I need to see a a dietitian is always
registered dietitian (RD)?” If this held accountable to
is a question you have asked the highest standards
yourself, you are not alone! When of education and
people are initially diagnosed ethics. A dietitian is
with celiac disease, a dietitian can continually learning
feel like a lifeline of support and and reporting on
direction. However, as time goes the most up to
by their importance may appear date evidence-
to decrease. You may feel like based information.
you have your diet under control This is true for all areas of initial diagnosis? Here are five
and that you can better manage work, including celiac disease. compelling reasons!
your new normal. So why visit an Research is on-going, as with
RD when you have such a good most disease states, and celiac 1. Aging.
handle on your diet? To better disease is no exception to As we age our bodies, and
understand this question, let us this rule. A dietitian is highly our nutritional requirements
delve a little deeper into the role personalized. Your dietitian will change with us. Perhaps you
of a dietitian. consider your goals, culture are experiencing bone loss and
and food experiences. They will have been told to increase your
A registered dietitian has a create a nutrition plan for you Vitamin D and calcium intakes.
minimum of a 4-year bachelor’s based on your medical history Perhaps, you have gained weight
degree in addition to completing and needs, diet history and with age, and as a result are
a 10-month dietetic practicum. eating patterns. All while being experiencing high blood pressure
Dietitians are registered with grounded in science and the and high cholesterol levels.
their provincial college to allow latest research. Neither of these conditions are
them to practice dietetics and use unique to celiac disease, however
DEPOSIT PHOTO
the title, ‘dietitian’. Dietitians are Now that we know what a people with celiac disease have
required through legislation to dietitian does, let’s answer our dietary restrictions, making these
maintain competence and meet initial question! Why do I need to
annual continuing competence. keep seeing a dietitian, after my Continued on next page
16 | Canadian CELIAChealth challenges more difficult most up to date information. are experiencing. Debunking
to navigate. A dietitian can easily Remember dietitians are required misinformation is one of our jobs,
pilot you through these dietary to practice safely, competently as is trouble-shooting a new
changes safely and easily. and ethically through government health concern. Dietitians are
approved Standards of Practice able to look at your diet history
2. Pregnancy. and a Code of Ethics. This and make suggestions to help
If you are thinking of becoming ensures that the information you improve your current situation. As
pregnant, prenatal care is receive is the most up to date mentioned before, we base all of
very important! You may and best suited for your health our recommendations on science.
have questions about which concern or question. We provide the evidence that
supplement is best for you, studies have shown to be reliable.
or which foods you need to 4. Nutrient Deficiencies. Dietitians are the place to go to
encourage or avoid in your diet. Do you think you may be lacking find the truth when you have a
During pregnancy you may have a specific nutrient in your diet? nutrition related health question!
food aversions or cravings and Or have you been told by your
wonder how to manage them and GP that you need to increase In summary, why not make your
if you are meeting your nutritional your iron, Vit D, B12, omega-3 life a bit easier? A dietitian does
requirements. During the post- or calcium intakes? These are the homework for you. We read
natal period, once your little one examples of common nutrient the journal articles and connect
is taking solid foods you will likely deficiencies that a dietitian can with the food companies. We
have questions about introducing talk to you about and help you to lead the studies and ask the big
gluten safely. navigate. Nutrient deficiencies can questions. We are your source
happen at any stage of life, or any for the truth, and we are here to
3. Latest studies. stage of your celiac diagnosis. help! Remember that the CCA
A Dietitian is the best source for how has a registered dietitian
evidenced based information. No 5. When you have questions! on staff thanks to donor support!
matter what the question, your Health questions will come up We are working hard every day
dietitian will have both access over the years. Perhaps you to ensure that you are provided
to, and an ethical obligation to have heard something that with the latest, most relevant
ensure that they are providing you want to clarify or need information to help you live your
you with the best care with the guidance on a new symptom you best life! u
ONE PERSON’S Michelle has celiac disease, she
also has asthma. Then she received
JOURNEY WITH a COVID diagnosis. Click here to
read all about her journey from
COVID.
sickness to health and all the ups
and downs that came her way.
Canadian CELIAC | 17Now Available to order online
www.Promiseglutenfree.caDear Dietitian,
1. My sister has just been the label and it also has a ‘may
diagnosed with celiac disease. contain wheat’ statement. How is
Should I get tested too? this possible?
~10-15% of first-degree relatives If you see a gluten-free (GF)
(parents, children and siblings) claim in conjunction with a ‘May
are at risk for celiac disease so Contain Wheat’ statement, the
we recommend all first-degree product is SAFE for people
relatives visit their doctor to get with celiac disease but not for
screened for celiac. This should people with a wheat allergy. The
be done even if asymptomatic, as statement is to alert individuals
many people with celiac disease with a wheat allergy to the
DEPOSIT PHOTO
have minimal to no symptoms. presence of low levels of wheat
Celiac disease can develop at in a gluten-free food. However,
any age; therefore, it is suggested manufacturers must ensure
that first-degree relatives get that the product contains no
tested regularly (every ~1-3 years intentionally added gluten and
or earlier if symptoms arise). less than 20 parts per million gluten. Types of distilled alcohol:
Regular testing is key to getting (ppm) to meet the GF criteria. rum, rye whiskey (yes, rye!), gin,
an early diagnosis and an early tequila, vodka.
diagnosis lowers the chance for For more information on labelling
developing other autoimmune laws and regulations, check out Wine is naturally gluten free and
diseases, such as type 1 diabetes our food labelling document: safe for people with celiac disease.
and thyroid disease, and many https://www.celiac.ca/living-
other conditions, including gluten-free/food-labelling/ Pre-mixed beverages made with
anemia, osteoporosis, infertility, vodka or gin are safe while other
short stature, intestinal cancers 3. With the warm weather malt-based alcoholic beverages
and neurological conditions. approaching, I am wondering are not. Some beverages may
about alcohol… What alcohol also have added flavors. It’s
If you receive a positive can I drink that is GF? important to be cautious and
diagnosis, consider the CCA Alcohol is a common question read the label carefully as the
as a reliable, evidence-based among the gluten-free gluten-free version can look very
resource for you and your family. community, especially as summer similar to the gluten-containing
Sign up for our newsletters, approaches. Not all alcohol is version. Typically, it will state it on
updates and latest news on celiac gluten free, so here are some tips the front of the label. As always,
disease to help empower your life to ensure your drink(s) are safe. when in doubt, go without!
and stay as healthy as possible. Distilled alcohols are safe for
www.celiac.ca people with celiac disease. When A Bit About Beer: Gluten-free
distilled, the gluten protein from beer is made from gluten-free
2. I have purchased a product the gluten-containing grains grains such as millet, sorghum,
that has a gluten-free claim. cannot be passed through and buckwheat, amaranth, rice or
When I got home, I looked at the final product does not contain Continued on next page
Canadian CELIAC | 19DEPOSIT PHOTO
quinoa. When made from a
gluten-free grain, these beers are
permitted to state ‘gluten-free’ on
the label.
Note: Gluten-reduced beers are
NOT the same as gluten-free
beers. It is important when you
are choosing a beer product,
you choose one with a gluten-
free claim to ensure it is safe
for consumption for people with
celiac disease.
For more information on alcohol
and gluten check out this
resource: https://www.celiac.ca/
living-gluten-free/food-labelling/
alcohol-and-labelling-in-canada/
4. I’m having a host of
symptoms and wonder if I
may have celiac disease? How
would I know?
Thank you for the question! Many
MAY IS LEGACY
people experience a wide range
of symptoms before a celiac
diagnosis. Here are the next
GIVING MONTH!
steps we recommend:
• First, take our symptom
checker and share the results
with your doctor to see if you Having an up-to-date Will is important to you.
need to be tested. important to ensure your loved By adding a gift to your Will,
• Second, we encourage you ones are supported and your you’re deciding today to make an
to watch the videos on our wishes become reality. With- impact tomorrow, leaving a better
website. We have a one-hour out a valid Will the laws of your world for generations to come.
webinar or three short two- province or state will decide
minute videos. how your assets are distributed Are you considering creating
• Third, sign up below the and who should care for minor or updating your Will? Let us
videos to receive our hand children or pets. Creating a Will help. CCA now offers access to
out that you can take to gives you the peace of mind of a a FREE online Will kit. There’s
your doctor to start the well-thought out plan. no obligation to include a gift
conversation about getting to Canadian Celiac Association
tested for celiac disease. This important document can also in your Will, but we hope you’ll
https://www.celiac.ca/ be a powerful force for good. choose to do so. Support Cana-
gluten-related-disorders/ When creating a Will you can dian Celiac Association in your
coulditbeceliac u decide to support causes that are Will. | Willfora u
20 | Canadian CELIACA Memoir,
BROKEN BREAD
MY GOAL WAS TO TELL MY STORY. DREAM DEEP AND REACH HIGH IF YOUR GOAL IS TO TELL YOURS ―
BY WRITING, SINGING, DANCING, OR PAINTING IT ― OR WHISPERING IT TO THE WIND.
My name is Colette, and I’m very wellresearched for clarity. I didn’t
thankful for the opportunity to want the memoir to be overly
introduce my memoir: Broken flowery or a woe-is-me tale, and it
Bread – A Gastronomic Journey needed to be honest. The writing
into Healing. I’ve been married is authentic, albeit perhaps a
to my wonderful husband Claude bit quirky, with a light-hearted,
for 42 years and reside in North sometimes funny touch. The book
Bay, Ontario. My writing journey also includes some of my favourite
began in 2010, and the book gluten-free recipes – adapted
was published in 2020. It took from childhood Italian favourites
far longer to complete than and treasured traditional French
anticipated, but, in hindsight, Canadian Christmas foods.
I needed the time to find my For those who enjoy reading
voice and the material to find its a food-themed story, struggle
context. The setting for the story is with anxiety, or are managing an
separated into three distinct parts autoimmune condition, I have faith
– my childhood neighbourhood you’ll enjoy the read. Q: Did the journey of writing this
of Toronto’s Little Italy in the ‘60s, novel help you move through the
where my deep connection to Q: What prompted you to write transition of becoming gluten
food and the early onset of anxiety the novel ‘Broken Bread’? free? How did it change your
developed; the turmoil of arriving perspective?
at mid-life and unexpectedly When I received my celiac
facing microscopic colitis, celiac diagnosis in 2007, it was almost The exercise of writing Part One,
disease, and Type II diabetes; impossible to find reading material which highlights my childhood
and the summation of how I on the topic. The one book I did growing up in Toronto’s Little
managed to handle my unrealistic find was a rosy overview of the Italy, helped identify where my
expectations and find balance – condition, sprinkled with fairy dust, obsession with gluten-laden
finally free to explore the world and it didn’t speak to my new foods was triggered. I needed
on my terms. Years ago, sage reality. I decided to write my own to do this before accepting the
guidance from a renowned writer story – honestly and with light-
made sure my material would be hearted humour. Continued on next page
Canadian CELIAC | 21A gastronomic journey into healing
unchangeable fate of living the would say, “Read my book!
remainder of my life with celiac My struggles are relatable.”
disease.
“At times, I’ve been fortunate
Slowly but surely, over time, as to receive personal attention
Canadian labelling laws were from renowned chefs in
being implemented and grocery some of the finest dining
store shelves were rolling out establishments. But, as
gluten-free products, the positive a matter of survival, I’ve
shift in my perspective is notable. found myself scouring for
something safe to eat from
There were many lengthy siestas dilapidated gas stations,
when writing this memoir, and it where I’m pretty sure I saw
took me a decade to bring the buzzards circling overhead.”
book to publication, but I consider
it a blessing because the narrative In all seriousness, I’d
had time to evolve. Writing can be tell someone that the
a daunting process, but the overall implications for managing a
exercise was very cathartic. diagnosis of celiac disease
But maybe, by being open and will be life-altering and
honest, I could tell the world, or requires proper support –
even just one person, that there avoid advice from unverified
should be no shame for those sources! The Canadian
of us who cart around a Mary Celiac Association, and
Poppins bag that holds a few Shelley Case’s books, for of foods you will forever see
samples of imperfect humanness. example, will provide all the and smell but never again taste
information needed to keep (the book includes some of
Q: What would you say to you safe. Most importantly, be my favourite French-Canadian
someone newly diagnosed? kind to yourself, and take the Christmas and everyday Italian
I’m chuckling at the question. I time required to mourn the loss recipe adaptations).. u
AUTHOR BIO:
COLETTE LEDOUX WAS BORN AND RAISED IN TORONTO, MOVING TO NORTH BAY, ONTARIO, IN THE
EARLY SEVENTIES. ALONG WITH RAISING A FAMILY, SHE HAS BEEN SELF-EMPLOYED IN PARTNERSHIP
WITH HER HUSBAND CLAUDE, INITIALLY OWNING THE RENOWNED IVAN’S RESTAURANT – A NORTH
BAY TRADITION (ESTABLISHED IN 1945) FOR OVER TWO DECADES, AND NOW SOLELY FOCUSED ON
MANAGING THEIR COMMERCIAL REAL ESTATE PORTFOLIO.
22 | Canadian CELIACOnly Oats would like to extend a sincere thank you for all of the support we have received from the Celiac community during this past year. Your ongoing support of ONLY OATS has been kindly appreciated. We would also like to thank the Canadian Celiac Association for promoting Celiac awareness not only in May, but throughout the entire year. To show our heartfelt gratitude, take advantage of our CCA Members 25% off discount for the entire month of May. Enter discount code CCA at checkout in the Only Oats Online Store or use this THIS LINK to auto- apply the discount. Please feel free to contact us at www.myonlyoats.com with all your questions, comments and needs.
A Gluten-Free Certified Program Partner Feature WELCOME TO VALLEY FLAXFLOUR! Welcome to Valley Flaxflour Ltd. where the marriage of taste and nutrition are the perfect match! Howard Selig, along with his wife Wendy Rodda established Valley Flaxflour Ltd. in 1998 as a way to provide milled flax for health care facilities. Situated in beautiful Middleton, Nova Scotia Valley Flaxflour has since grown into a thriving business committed to bringing taste and nutrition to the world of gluten- free foods! Selig earned the Taste of Nova Scotia Product of the Year for his Pancake and Cookie Mix in 2016 and earned the Outstanding Innovator of the Year award in 2017 from the Annapolis Valley Chamber of Commerce. British celebrity chef Jamie Oliver also used Valley Flaxflour’s products in his protein bread recipe that was in his book Superfoods. I was able to chat with Valley Flaxflour and ask some questions to learn more about their products and hear their story! Here is our conversation! How did Valley Flaxflour Ltd. benefits of flax seeds? adding 2 Tbsp of flax to your food come to be? Since 2015 Health Canada every day you will provide over In 1990 Howard Selig, founder has allowed a claim for the 4000mg of omega-3 fats and 4 and Red Seal Cook and Certified cholesterol-lowering benefit of grams of fibre! Food Manager, left professional milled flax, encouraging 5-6 Tbsp cooking to pursue a career as daily to lower cholesterol. Flax Affordability and food security a Registered Dietitian. Selig is a is also a very good source of appear to be very important long-standing member and past fibre. People often find gluten- values of Valley Flaxflour Ltd. president of the Nova Scotia free foods to be lower in fibre Can you tell us more about this? Dietetic Association and member and therefore struggle to meet Your question about affordability of the Canadian Association of their daily fibre requirements. and food security is very Food Service Professionals. In Additionally, when eaten milled, interesting. It makes me think 1998 Valley Flaxflour Ltd. grew flax can help to lower the back over a long career, both as out of the need in long-term care glycemic load of a meal, slow the a chef and later as a Registered facilities for a source of milled flax absorption of sugars and control Dietitian, working with low-income seed. From here, Selig applied blood sugars. Flax is also a source individuals, often with under- both his cooking skills and of omega-3 fatty acids. These are developed life skills. I would professional nutrition knowledge essential fats that we also receive lead healthy eating discussions to develop recipes that would from fatty fish. Health Canada and offering food preparation provide the nutritional benefits his recommends eating 2 servings workshops. This desire to be clients were looking for. of fatty fish weekly. For some this helpful has naturally carried into Can you discuss the health can be a challenge. By simply Continued on next page 24 | Canadian CELIAC
we provide our gluten-free products to support people
with celiac disease requiring food bank services
my career as an entrepreneur. our suppliers and do not allow experience… lucky us! Howard is
At Valley Flaxflour, we provide our nuts, dairy, fish, soy, sulfites, our Research and Development
gluten-free products to support and other priority allergens as well as recipe creator. He
people with celiac disease into the building unless they offers these skills through tips and
requiring food bank services are safely managed to prevent videos, TakethisMakethis, on our
and, most recently, a free food contamination. Our products are YouTube channel. Several dozen
basket program. Our gluten-free also re-tested after processing recipes for ingredients and mixes
certification and new association to ensure that there has been no are posted on our website. These
with the Canadian Celiac contamination within our facility. are regularly shared through our
Association has encouraged us newsletter. Our newsletter
to formalize these relationships. You are located in beautiful Nova is available on our website
We now offer
Martha a credit to several
Henderson Scotia! Where can consumers www.flaxflour.com by signing up.
food
andbanks within our immediate
Patty Massel purchase Valley Flaxflour if they
and surrounding communities for are out of province? You have a new product ‘Valley
consistent, ongoing support. Our ingredients and mixes are Kitchen Bread Mix’! What can
With our focus on the nutritional available throughout Canada and you tell us about this?
value of our ingredients and the United States through our on- Our new Bread Mix requires
mixes, and our commitment to line store at www.flaxflour.com only hot water and love to make
all-Canadian, whole grains and the perfect loaf. After literally
seeds, our products can be more I see your founder is also a red years of development, we struck
expensive than many of the seal chef! Where can we find on a highly nutritious blend of
rice-based gluten-free products. more delicious recipes using ingredients that provide the right
We employ a cost-based pricing your flour? balance of soluble and non-
model which eliminates the Yes, we have our own on-site soluble fibres to make a texturally
natural tendency to charge chef with many years of baking pleasing, delicious, loaf of bread
whatever the market can bear. without the need for added gums
We also offer brown bag service or simple starches. This bread
through our FIL Station, both on- remains fresh for days and is ideal
site and on-line, to help reduce for sandwiches, French toast, or a
packaging waste and price. lovely slice breakfast toast served
with butter and jam.
How do you ensure that your
flour is gluten free? Where can we find you on social
All ingredients are tested for the media?
presence of gluten before they You can find us on Facebook
arrive at our facility. Our facility https://www.facebook.com/
is maintained free of gluten and valleyflaxflour or on instagram
other priority allergens. While valleyflaxflour.
not certified free of the other https://www.flaxflour.com/ u
allergens, we require CoAs from
Canadian CELIAC | 25Make twice
CARLEY TERESA PHOTOGRAPHY
the difference
when you give
a gift today!
Celiac disease is REAL.
By supporting the CCA’s research,
advocacy and education efforts,
you’re making a REAL difference to
those living with this life-changing,
autoimmune disease.
Thanks to a generous matching
gift, your donation will go twice as
far towards creating a better, safer,
and healthier future for people with
Celiac disease and gluten disorders.
26 | Canadian CELIACResearch Update
New Series: In Conversation With... Dr. Elena Verdu on Gut Microbiota
CCA has launched a new bi- This month, CCA host Mark John- she got started thanks to the J.
monthly series of conversations son is joined by Dr. Elena Verdu A Campbell Research grant from
with thought-leaders, - Professor, Division of Gastroen- CCA and its donors, click this link!
stakeholders, researchers, and terology at McMaster University.
others to help you learn more To learn more about her advance- Donate to Research Today!
about celiac disease in Canada. ments in gut microbiota, and how
Are you still experiencing celiac inflammation in the intestine and About the Study Sponsor
disease symptoms despite your improve the symptoms of celiac Provention Bio, Inc., a clinical-
best efforts to follow a gluten-free disease in those who continue stage biopharmaceutical company
diet? to experience symptoms despite developing novel therapeutics
following a gluten-free diet. aimed at intercepting and
The PROACTIVE Celiac Study preventing immune-mediated
is a phase 2 clinical trial testing Requirements: diseases.
the safety and effects of the • 18-70 years old
investigational medication • Biopsy-confirmed celiac disease
PRV-015. In combination with a • On a gluten-free diet for at least
gluten-free diet, PRV-015 aims to the last 12 months
reduce symptoms and intestinal • Still experiencing celiac disease
inflammation caused by accidental symptoms
gluten exposure. You will not be
asked to ingest gluten for this Study Site Locations:
study. • United States (excluding Alaska
and Hawaii)
PRV-015 has been previously • Canada
tested in about 250 people in
six completed research studies. Interested?
These studies show that PRV- Visit survey.proactiveceliac.com/r/
015 has been well tolerated, and REFCCA
in celiac patients it may reduce Use referral code: REFCCA
Canada adds patient voice to Agriculture Canada and Afro-food review of Canadian Grains Act.
https://www.celiac.ca/wp-content/uploads/2021/04/CCA-Cdn-Grain-Act-Review-Submission-Final.pdf
Canadian CELIAC | 27Statement on vaccination Professional Advisory Council (PAC) statement on COVID 19 Vaccination A vaccine has recently been approved in Canada for COVID-19 and we anticipate more vaccines will be available in the future. Our celiac community is asking for guidance of vaccination for COVID-19. At the beginning of the Covid-19 pandemic, there was a concern that people with celiac disease might be at increased risk of contracting COVID-19 and had severe outcomes from the infection, given prior studies suggesting increased risks from pneumonia and viral infections. Thus far, we have learned from an international large study1 and celiac registry2 that individuals with celiac disease are not more likely celiac disease should not affect with your health provider to to contract COVID-19 or to have the efficacy of the vaccine and consider your individual health adverse outcomes from COVID-19 should not be associated with situation is recommended. infection compared to the non- any added adverse outcome celiac population. However, we from vaccination. It is important 1 ZhenJ et al, CGH 2020 have seen the devastating effects to clarify that celiac disease is 2 International ISECURE of COVID-19 in the Canadian not considered an allergy, and celiac registry: and worldwide population, and therefore, there is no anticipated https://covidceliac.org/home therefore, mass vaccination is need to take any additional crucial to provide immunity against precaution when proceeding with CCA is pleased to offer a growing this virus. We recommend that vaccination. The CCA like many list of resources and information people with celiac disease receive other celiac societies and research as the COVID-19 pandemic the COVID-19 vaccine approved groups has stated that this vaccine impacts the Canadian gluten-free according to their provincially is likely safe for most patients who community: https://www.celiac.ca/ determined prioritization have celiac disease and have no news-events/covid19/. u schedules. Having a diagnosis of immune compromise. A discussion 28 | Canadian CELIAC
CCA Puzzler
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Canadian CELIAC | 29
12. A classic symptom of celiac diseaseRecipes
BREAKFAST IN BED FOR
MOTHER’S DAY
MAPLE PECAN FRENCH TOAST
supplied by Promise Gluten-Free
20 mins Preparation
Make 2 servings
INGREDIENTS
z 2 free-range eggs
z 4 tablespoons milk
z 4 slices of brioche
z handful of pecans
z maple syrup, to serve
z sunflower oil
DIRECTIONS
1. Crack the eggs into a mixing
bowl.
2. Add the milk and season with
salt and pepper.
3. Gently whisk the eggs and
milk together with a fork, then
put to one side.
4. Place the frying pan on a
medium heat to heat up.
5. Dip the brioche into the eggy
mixture, turning it over a few
times to make sure it’s well
coated and sucks up the
mixture like a sponge. into the pan. 10. Toast the pecans on a
6. Add ½ a tablespoon of oil to 8. Cook for 2 to 3 minutes on separate dry frying pan,
the frying pan and carefully each side, or until golden and tossing until nicely browned.
swirl the pan around to evenly cooked through, using a fish 11. Serve the French toast stacked
coat the inside. slice to flip it over. high, drizzled with plenty of
7. Lift the soaked bread up and 9. Place the pan back on the heat maple syrup and some nuts
allow the excess mixture to and repeat steps 6 to 9 with sprinkled on each serving.
drip off, then carefully lower it the remaining ingredients.
30 | Canadian CELIACLEMON SOLE GOUJONS
supplied by Promise Gluten-Free
Make 2 servings
INGREDIENTS
z 2 large handfuls Promise Gluten Free Chia Seed
Loaf breadcrumbs
z 1 lb lemon sole fillets, skinned
z 2 oz gluten free flour
z 2 large free-range eggs
z 1 tbsp sweet paprika
z 1 tbsp olive oil
z Ketchup or mayo to serve
OATMEAL CHOCOLATE CHIP COOKIES
supplied by Valley Flaxflour DIRECTIONS
1. Preheat the oven to 430ºF. Lightly oil a baking
INGREDIENTS tray.
z ¼ cup butter, room temperature 2. Cut the fish into finger-width strips. Season the
z ½ cup brown sugar flour and place on a plate.
z 1 large egg 3. Crack the eggs into a shallow dish and lightly beat.
z 1 tsp vanilla 4. Mix the paprika with the breadcrumbs on another
z 1 cup Valley Kitchen all purpose flour plate.
z ½ cup Valley Kitchen oatmeal 5. Coat the fish
z 2 tsp baking powder with first the
z ½ cup chocolate chips flour then
the egg and
DIRECTIONS then the
1. Preheat the oven to 350ºF breadcrumbs.
2. Line 2 small, or 1 large, baking sheets with 6. Place them
parchment paper. on the oiled
3. Using an electric hand or counter mixer, cream tray drizzle
the butter and brown sugar. with olive oil
4. Beat in the egg and vanilla. Add the all purpose and bake for
flour, oatmeal, baking powder and chocolate 10-15 mins
chips. until golden
5. Mix with a heavy spoon. all over.
6. Scoop the dough onto the lined baking sheets 7. Serve with
7. Bake for 10–12 minutes ketchup or
8. Move to rack to cool. mayo. u
Canadian CELIAC | 31Upcoming CCA Events
WEBINAR WEDNESDAYS! DID YOU KNOW?
Topic: My Shared Kitchen – how to safely share Adults between 19-50 years of age,
a kitchen with both celiac and non-celiac family including pregnant or breast-feeding
members! women, require 1,000 mg of total calcium daily, and
When: Wednesday May 5 2021 07:00pm those over 50 require 1,200mg of total calcium daily.
Eastern time (US and Canada) Total calcium includes both food and supplement
Register in advance for this webinar: sources. In a conversation with Osteoporosis
https://us02web.zoom.us/webinar/register/WN_2C- Canada, they recommend getting as much of your
GdwMMVQ3CgT9dU2cjT8w calcium from food sources as possible. Here is
a list of calcium food sources brought to you by
Topic: Gluten Free 101 – learn all you need to Osteoporosis Canada: https://osteoporosis.ca/bone-
know about celiac disease! Aimed at those newly health-osteoporosis/nutrition/calcium-requirements/
diagnosed, but a great refresher for everyone!
When: Wednesday May 12 2021 07:00pm If you are unable to obtain enough calcium through
Eastern time (US and Canada) your diet alone, you may want to use supplements.
Register in advance for this webinar: Remember that when taking supplements, you do
https://us02web.zoom.us/webinar/register/WN_ not want to exceed your total daily requirement.
D76qphQ0R_yZKaz8yLfTDQ Calcium supplements come in two main forms:
calcium carbonate and calcium citrate. Calcium
Topic: Bone Health- a conversation with the carbonate is 40% elemental calcium, is more
dietitian from Osteoporosis Canada commonly available and requires stomach acid for
When: Wednesday May 19 2021 07:00pm absorption, therefore needs to be taken with meals.
Eastern time (US and Canada) Calcium carbonate can cause GI side-effects such
Register in advance for this webinar: as bloating, constipation and gas. As an alternative,
https://us02web.zoom.us/webinar/register/WN_ Calcium citrate is 21% elemental calcium, does not
OvDk9UbqQK2T3kvZrIcbjw need to be taken with food and does not have
the same negative GI side effects. Calcium citrate
Topic: Could it be Celiac Disease? is easier to digest and more readily absorbed
A conversation with Dr. Rashid by people who take acid-reducing heartburn
When: Wednesday May 26h 2021 07:00pm medications. Calcium citrate is only 21% calcium;
Eastern time (US and Canada) therefore, you may need to take more tablets to
Register in advance for this webinar: meet your daily requirement
https://us02web.zoom.us/webinar/register/WN_yYx-
Hv64aSoibOvZYvDxVkg For more information, please join us for our joint
webinar with Osteoporosis Canada on May 19 at
CCA National Virtual Conference 7:00pm EST where we will be discussing celiac
When: November 13 & 14, 2021 – Save the Date disease and bone health!
To stay updated with all CCA events. Click here: https://www.celiac.ca/news-events/events/
32 | Canadian CELIACTogether we can make a difference
Supporting the Canadian Celiac Association has never been easier! Your gift will work towards all Canadian
with celiac disease get diagnosed and empowered. Pick your way to support the CCA!
Sowing the seeds for celiac!
Sunflowers - $4.00 dollars from every package supports CCA.
Plant during May Celiac Awareness Month and watch us grow!
Tribute Giving
Honour someone who has helped make your journey
with celiac disease better.
Support
our Spring
Sustaining Gifts
Campaign
Join the Monthly Donor Challenge
and double your impact today! All new Help children like
monthly gifts will be matched up to Lily get diagnosed
$10,000! sooner. Your gift will be matched thanks
to a generous anonymous family.
Canadian CELIAC | 33In my opinion
SERIOUSLY?
BY JANET DALZIEL
OPINION
Helpful Links
As we head CCA Labelling document
towards Celiac https://www.celiac.ca/living-gluten-free/food-labelling/
Awareness Gluten Free Dining Guide:
Month, I want https://www.celiac.ca/living-gluten-free/dining-out/
to thank all the Gluten Free Product Finder:
staff, volunteers https://www.celiac.ca/living-gluten-free/gf-product-finder/
and supporters from the CCA who
have helped to get us where we
are today. The two decades since are voluntary and, when present,
my own diagnosis have seen often used inappropriately as a
a lot: Canada’s first dedicated
We must advocate basic “cover everything” precaution
celiac disease clinic, in Hamilton, for ourselves to avoid potential liability, even
Ontario; our right to claim the when the danger is not there. Our
differential cost of GF food as a to get safe food in hospitals and image problem consists of this:
medical expense on income tax; institutions. Doctors and dietitians although it is known that celiac
labelling regulations that protect are not well educated in how to disease is a common autoimmune
us; our hugely successful GFCP diagnose and treat our condition condition, the world doesn’t quite
certification program; a program unless they have made a special take it seriously.
for restaurant safety; research that study of it or are personally
has led to potential new treatments affected. Restaurants are hit or miss When we want someone who is
and even a cure. So, what could I and mostly miss. The gluten content responsible for feeding us to take
possibly have to complain about? of over-the-counter and prescription our needs seriously, we might
meds is often guess work. While claim to have an allergy because
If I put on my little old lady we can rely on our food labels in that seems to make people pay
curmudgeon hat, a frequent Canada to safely list all ingredients attention. They can understand
occurrence, I notice that despite and identify sources of gluten, sudden death.
all this progress, celiac disease still “may contain” statements that
has an image problem. We must should protect us by alerting to the When we need our doctors to
advocate for ourselves constantly possibility of cross contamination pay attention, it helps if we guide
34 | Canadian CELIACYou can also read
