One man: 2,000 miles Richard Dunwoody's trek across Japan for his nephew - Sarcoma UK
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Connect
info@sarcoma.org.uk
sarcoma.org.uk
The bone & soft tissue cancer charity
Summer 2017
One man: 2,000 miles
Richard Dunwoody’s trek
across Japan for his nephew
6 London
Marathon 2017
Take a bow, Team Sarcoma,
you’re our heroes
10 Ruth Thomas
A sarcoma researcher
who wants to make
a difference 14 The Big Picnic
Join us for Sarcoma UK’s
biggest and busiest
Awareness Week yet
Sarcoma UK’s key facts
Sarcoma UK is the only cancer charity in
the UK focusing on all types of sarcoma.
Our mission is to amplify sarcoma awareness, inspire
involvement, and fund ground-breaking research to
transform the lives of everyone affected by sarcoma.
Sarcoma UK works with patients, carers, supporters, health professionals
and researchers to drive awareness of sarcoma, promote early diagnosis
and improve patient experience.
Sarcoma UK has pledged to invest over £3million into sarcoma research
by 2020 with the aim of finding effective treatment for the disease
within the next 10 years.
Sarcoma UK is the only UK charity providing personal support and F irst, I would like to personally congratulate
each and every person who has ever raised
funds for Sarcoma UK. In this issue, we feature
expert information on sarcoma. We have a national Support Line, call
fundraisers who have achieved incredible
0808 801 0401 or email supportline@sarcoma.org.uk.
things for the charity – check out just some
Sarcoma UK provides education and training for GPs to help them of the incredible feats on pages 4 and 5.
recognise the symptoms of sarcoma. We also celebrate our super-human London
Marathon runners on pages 6 and 7 – our
About sarcoma largest team yet raised more than £135,000!
~ Sarcoma is cancer. It can develop anywhere in the body We caught up with a selection of runners at
~ 10 people are diagnosed with sarcoma every day in the UK the party we threw for them to celebrate their
success. Not forgetting of course, our intrepid
~ Sarcoma is cancer of the bone or soft tissue adventurer Richard Dunwoody, who is trekking
~ A key symptom of sarcoma is a lump that is increasing in size, often quickly across Japan as I type this letter… read more
~ Sarcoma is one of the hardest cancers to diagnose. People visit their on page 8.
GP more times than those with any other form of cancer before being Ever wondered how someone becomes
diagnosed with sarcoma a PhD cancer researcher after starting out as
~ Early diagnosis could increase survival by 20% an accountant? We went up to Sheffield
University to find more about Sarcoma UK-
~ People with sarcoma tend to be younger than most people with cancer. funded researcher, Ruth Thomas. On page 10,
16% of sarcomas are diagnosed in people under 30, compared to only she reveals what motivates her and how she
2% of all other cancers chose to specialise in sarcoma.
We’re also proud to launch Leave a Lasting
The most common sarcoma sub-types are: Legacy: our guide to help answer questions
Soft tissue sarcomas and provide useful information for anyone
~ ;TX^\h^bPaR^\P considering leaving a gift in their will to Sarcoma
UK. A gift in your will can ensure that people
~ 5XQa^Q[PbcXRbPaR^\P
affected by sarcoma carry on receiving the
~ ;X_^bPaR^\P support and information they need. (Read more
~ 6Pbca^X]cTbcX]P[bca^\P[cd\^da68BC on page 5 and on our website.)
~ :P_^bX{bbPaR^\P:B If this issue has inspired you to help raise
~ 0]VX^bPaR^\P awareness and get involved, turn to page
14 where we reveal what we’re planning for
~
Support
Sarcoma UK’s Support Line
Not everyone understands sarcoma. We do. Our Support Line is here for everyone affected by
sarcoma. Meet Helen Stradling, Clinical Nurse Specialist and Support Line Lead…
“I
am a qualified nurse with an interest in cancer. In 2010, I became Sarcoma Advanced
Nurse Practitioner and I have worked with Sarcoma UK for many years. I used to work on
an Orthopaedic Oncology ward, where bone and soft tissue patients were cared for. I hold
qualifications in both Orthopaedic and Oncology nursing and undertook a sarcoma module at the Royal
Orthopaedic Hospital in Birmingham. My knowledge of bone sarcoma nursing grew all the time and
I became the first Oxford Bone and Soft Tissue Clinical Nurse Specialist (CNS) in 2005.
“I decided that I wanted to become a cancer CNS when one of my very close friends passed
away from cancer when she was 23. I was in my third year of nurse training and seeing what
a difference her CNS care made helped me make my decision.
“I ensure the Support Line always has someone at the end of a phone or email during
opening hours. I cover two of the Support Line days myself, and enjoy talking to
people who call and answering emails that come through daily – you can talk to us
about anything that is worrying you. I understand that any cancer diagnosis is hard,
but particularly a rare form of cancer – you may never have heard of sarcoma before.
That is why we are here, to support you through diagnosis and beyond.
“The Support Line isn’t just here for patients, it is here for everyone affected by
sarcoma – whether a carer, a relative, a health professional or someone worried
about a friend. The Support Line acts as a hub of information, and we can let
you know about anything from treatment and its effects to finding your nearest
Sarcoma Specialist Centre. We also speak to people who may have only just
discovered a lump and are not sure what to do.
“There is no silly question, if you’re worried about something, just call
or email. We know that you may not always feel like you can ask
everything in a hospital appointment. Hundreds of people already
use our Support Line, and I just want to continue growing the
service to support as many people as possible.”
Sarcoma UK
Photo by Heather Shuker
Support Line
0808 801 0401
supportline@sarcoma.org.uk
sarcoma.org.uk Connect ~ Sarcoma UK ~ Summer 20 17 3
Fundraising
Exciting news and
upcoming events
From flowers in our name to the Great North Run, there’s lots going on in the Sarcoma UK
fundraising world and beyond.
Ablaze with Light –
in memory of William Petter
Friends and family of William Petter
celebrated the launch of Ablaze with Light,
an album put together by his family of
the music the renowned choral musician
composed. The Rose Singers, a group of
singers hand-picked by William before
he passed away, put on a spectacular
performance in the equally magnificent
bdaa^d]SX]Vb^UCT\_[T2WdaRW;^]S^] >eTa!$
copies of the special album were sold, raising £2,500 for
Sarcoma UK. The album is now available to purchase with
all proceeds being donated to Sarcoma UK:
sarcoma.org.uk/events/Ablaze
Bath Half Marathon Saracens vs Northampton Saints
Seven amazing Louise Ellison Long-term supporters Lu15 Fundraising (a fundraising
fundraisers took on and Geoffrey group set up in memory of Luis Ghaut) nominated
the Bath Half in McCarthy at the Sarcoma UK as one of Northampton Saints Rugby
March, raising Bath Half 2[dQ{bRWPaXcXTb^UcWT\PcRWeTabdbBPaPRT]b 3Tb_XcT
over £1,700 for a narrow defeat in the closing minutes of the game, it
the sarcoma was a brilliant day with staff and volunteers collecting
community. donations and talking with both sets of fans about
Geoff sarcoma, to raise awareness. Northampton Saints also
Fundraising
Fundraising calendar
Sunday 30 July
Prudential RideLondon-Surrey 100
Five challenges Team Sarcoma is once again peddling the streets of London and taking
Liam Joyce wasn’t content with on the Surrey hills, all in the name of charity. Come out and cheer them
taking on one challenge, he took on along the 100-mile route.
on five! Over the course of three
months, he completed: a 10K, Sunday 10 September
a sprint triathlon, a 200km non-stop Great North Run
cycle, a half marathon, an Olympic For the first time ever, Sarcoma UK will
triathlon, and finishing in style with be at the Great North Run. We’re ecstatic
a half ironman. Phew! to have been able to award places to our
supporters, and will be heading up to cheer
He raised over £3,500, them around the world-famous course.
all in support of Got your own place in the race? Join the
his cousin, Olly. team! You’ll receive all the same support,
Read more on his materials and, of course, your
justgiving page: very own Sarcoma UK running vest.
justgiving.com/
We also need volunteers to help the runners
fundraising/
as they brave the challenge. Join us at the
Liam-Joyce5
Sarcoma UK cheering station, or set up
your own cheering point.
Be part Sunday 8 October
of our Royal Parks Half Marathon
We’re back at the greenest half marathon
future in London, the Royal Parks Half. As our runners
prepare to take on this challenge, we’re looking for help to ensure they
with a gift in your will have the best support on the course, so please get in touch!
Our work is made possible by the generosity of
our supporters, and a gift in your will could make 25 March 2018
a huge difference and help us continue supporting London Landmarks Half Marathon
the sarcoma community for years to come. A new, quirky half marathon is
arriving on the scene in spring
We understand that your legacy is a deeply personal 2018. The London Landmarks Half is
decision. If you are thinking about whether to leave the only half marathon to take you
a gift in your will to Sarcoma UK, our new guide through the streets of Westminster.
provides insight into the positive impact your gift The route will take runners past
will have on the sarcoma community and leaving some of the most famous, oldest and weirdest landmarks in London
a lasting legacy. Download the guide on our website and promises to be a spectacular experience for everyone involved.
sarcoma.org.uk/legacy or call 020 7250 8271 for For more details on the upcoming challenges, visit our website or
further information. contact Kat at fundraising@sarcoma.org.uk
sarcoma.org.uk Connect ~ Sarcoma UK ~ Summer 20 17 5
Fundraising
Take a bow, Team Sarcoma
London Marathon runners
It was cheers all round on Sunday 23 April as our 45 runners tackled the 26.2 miles of the London Marathon,
raising an incredible combined total of more than £135,000 to help transform the landscape for everyone
affected by sarcoma.
T
he Sarcoma UK cheering squad was out
in force, at miles 12 and 25, to cheer
on our biggest ever team of runners
who completed the marathon on a beautiful
sunny Sunday. Whether they were a seasoned
runner or jogging newbie, each and every
member of Team Sarcoma ran for a reason,
and smashed their fundraising goal as they
covered those infamous 26.2 miles. Of course,
we also threw them a party to celebrate their
grit and determination, where we caught up
with a selection of them to find out how they
felt post-marathon…
And a big thank you also goes out to the
volunteers who got up in the early hours on
a Sunday morning to cheer our runners on and
ensure that they were well looked after post-
race. You made the day all the more special.
Think you’ve got
what it takes?
Team Sarcoma 2017 raised over £135,000.
This transformative amount will bring
about more research, more support and
more information for everyone affected
by sarcoma.
You, too, can bring about enormous
change by joining Team Sarcoma for the
2018 Virgin Money London Marathon.
Every pound raised will help our sarcoma
researchers as they pave the way for better
treatments. With every step you run, you’ll
be ensuring anyone affected by sarcoma
Photos by Ian Randall and Sam Rockman
can get personal support and expert
information from our Support Line nurses.
Join the team for this incredible challenge
and transform lives.
Applications are now open:
020 7250 8271
sarcoma.org.uk/running
6 Connect ~ Sarcoma UK ~ Summer 20 17 sarcoma.org.uk
Fundraising
Research
Samuel Sunderland, 26
“My dad’s girlfriend Kerry Buckland lost her brother to sarcoma, and
I watched her run the marathon last year – it inspired me to apply.
Running really has changed my life for the better, and I will definitely
keep on training, even now the marathon is over.”
Thanks so much
to our incredible
Sarcoma UK runners:
Guy Allwork
James Arrowsmith
James Baston-Pitt
Mark Barratt
Marc Bozdogan
Gina Browse Laura Osman, 35
Luke Costello
“I ran the marathon for my mum, who was diagnosed four years
Charlie Davison
Linzi Deane ago on Christmas Eve; and I really wanted to help raise money for
Katie Dewland research and support. Mum turned 60 last year, it was a special year,
Matthew Foligno as we didn’t know if she would still be here. It was actually Mum who
Jamie Frampton asked me if I wanted a challenge, and said I should run the marathon
Steven Gabb for Sarcoma UK. Fundraising became a family affair, and we organised
Callum Grummit lots of events and coffee mornings. I am a nurse myself, and I have never treated anyone with
Genny Hart sarcoma, so I know how important raising awareness of this rare form of cancer is.”
Kevin Heskett
Oliver Hunt
Andy Hopwood
Terry Johnson
Sara Kelly
Mark Kingston
Gina Long
Lisa Lumley
Linzi Deane, 26
Jack Matthews
Natalie McClements “I told my story in the last issue of
Steven Miller Connect, and I am so touched that
Iain Murray readers sponsored me. It means a lot,
Amy Nethercott and I want to say thanks to everyone
Laura Osman who read my story. This is my sister-in-
Lyndsey O’Neil law’s baby and youngest member of my
Kathryn Palmer cheer squad in her Sarcoma UK babygro!
Richard Pepper The pain of running was over for me in
Alison Pullen 4 hours 44 mins but the
Nikki Reeves chemo, radiotherapy
Lauren Sanders and operations involved
Asa Scott in treatment for those
Allison Semikin who are diagnosed with
Sam Sunderland sarcoma can last for years
Leanne Spencer – they are the true heroes.”
Jack Smith You can read Linzi’s
Lesley Smith reasons for running in the
Sarah Szopa fX]cTaXbbdT^U2^]]TRc)
Beth Turrell sarcoma.org.uk/connect-
Winan van Houdt winter-201617
Daniel Vitelli
sarcoma.org.uk Connect ~ Sarcoma UK ~ Summer 20 17 7
Fundraising
2,000 miles across Ja
>]!%5TQadPahU^a\Ta2WP\_X^]9^RZThAXRWPaS3d]f^^Sh
Fundraising
Research
apan for Sarcoma UK
expectations
of what my
body’s capable of,
I now get tired walking
upstairs, and I have
a lot less energy but that
is to be expected.
“I have many hopes for the
future. I want to do some work
for charity and, maybe next year,
Some I’d like to get back into rowing
photographs
– perhaps I will see if I am eligible
from Richard’s
Japanese for the Paralympics. I want to finish
adventure my course, too.
“I have been watching my uncle
Richard’s progress as he treks across
Japan. I spoke to him when he was
in Moroyose. We FaceTimed, as his
daughter Millie was staying at our
house – she is 18 months old – while
“Luckily, I was only a couple of weeks therapy. It was in Florida so once that his partner Olivia went out to visit
into term at university, which meant was over we had a bit of a holiday. him and walk with him. In fact,
I could put my course on pause so I thought it would all be over when Millie was born around the time
I could concentrate on getting I got back, but doctors wanted me I was diagnosed, and I adore spending
better. I moved back to my parents’ to do maintenance chemo until time with her.
and they were so supportive. I would January this year. But January came
spend three days in hospital, then and went and they thought I was “My advice to other sarcoma patients
the week after I would be wiped coping well with it so now want to is to stay positive, although I know
out and have to recover. My uni and carry on until July. I think it’s because that is easier said than done. Time
rowing friends were great too, they of the level of fitness I was at before passes quickly, so make the most
would come hang out and keep me I got diagnosed. of the good days when you have
company. I adapted to life as them! And talk to people, share your
a cancer patient – you have to. “Now, it’s manageable, and I am problems, you’re not alone. You
I would watch racing on TV while back at uni. I have three weeks on, know how the saying goes: a problem
I was going through chemo, anything and one off. I always have chemo shared is a problem halved.”
to keep my mind occupied. on Fridays so I am feeling slightly
better by Monday, then I have Download information on
“I had my last round of chemo lectures on Tuesdays, Wednesdays proton beam therapy at:
for that course in the USA in June and Thursdays. It’s not ideal but it sarcoma.org.uk/proton-
9
2016 where I also had proton beam is manageable. I have to alter my beam-therapy-factsheet
sarcoma.org.uk Connect ~ Sarcoma UK ~ Summer 20 17
Research
“I do this because I want
to make a difference
to people’s lives”
From accountant to PhD student,
meet Ruth Thomas, 34, a Sarcoma UK-
funded researcher who really wants
to help the lives of those affected
by sarcoma.
What is your research about?
My project is following up on clinical findings that
suggest a particular subset of cancer patients might
respond well to cancer drugs that are aimed at
limiting the tumour’s blood supply. These drugs have
revolutionised treatment for many patients; however
they can cause side effects and may not be effective
in all patients. The aim of my research is to investigate
whether particular ‘flags’ on a patient’s cells or in their
bloodstream can be tested to identify patients who will
respond to this form of treatment.
How did you get into this area? Any
reason for choosing sarcoma?
My original plan at the start of my undergraduate degree
was to do research into either cystic fibrosis or multiple
sclerosis. However, as a result of a year-long placement
developing a new cancer drug at pharmaceutical
company GlaxoSmithKline, my focus changed and
I became interested in the treatment of cancer
and the idea of personalised medicine. When
I saw this PhD opportunity advertised it was just perfect,
it encompassed everything that I enjoyed
about lab work and was in an area that
I think is so exciting and important. “I use
the analogy of a
Soft tissue sarcoma is
notoriously difficult to treat sandcastle to explain to my
and currently the treatment 10-year-old niece what a cell
options available are
limited. Our laboratory has X]cWTWd\P]Q^ShXb 2T[[bPaT
developed a cell line that the basic building blocks of
Photos by Matt Brown
can be used to investigate
whether cancer therapies all living things. The human
that are already licensed in body is made up of
other cancers may be beneficial
to certain groups of soft tissue trillions of them.”
10
sarcoma patients.
Connect ~ Sarcoma UK ~ Summer 20 17 sarcoma.org.ukResearch
Have you always worked I started my PhD. So far I have
in science? learned how to lay laminate flooring,
No, in a previous life I was an wire in sockets and switches, plus I
accountant! When I left school at now have a dazzling array of power
16, I had no idea what I wanted to tools! I also volunteer at Weston Park
do. I went to sixth form and started Hospital on Friday mornings in the
A-levels, I hated them and after three 2WT\^cWTaP_h3Ph2PbTD]Xc FWT]
months I quit. On visiting the local I can I go back to the east coast to
careers office, they showed me a list visit my family and get run ragged by
of apprenticeships that I could do my nieces and nephews.
and I chose accountancy. I worked
in an accounts practice for the first Your work must be very
five years of my career before being intense, how do you relax
offered a job as a finance manager and switch off your mind?
of a multi-million pound leisure To switch off I go to the gym or
company. I stayed there for five years out for a run, I put my headphones
before I decided that it was not a job in, turn up the volume and have
I wanted to do for the rest of my life. that hour or so to myself. To relax
I upped sticks and moved to Sheffield; I crochet, craft and bake – not very
at the age of 27 I sold my house and rock and roll I know!
“Science
car to study Biomedical Sciences
at Sheffield Hallam University and is everything. It is What’s next?
moved into halls of residence! dad, sister, daughter or That is the question all
all around us in
whoever they love then PhD students dread! In all
What inspires you about I will have succeeded. everything we do and honesty, I have no idea where
science? I do this because I want
we know so little about my research will take me. I aim
Science is everything! It is all around to make a difference to to stay in the cancer research
us in everything we do and we know people’s lives. it. There is so much field, whether it be here in
so little about it. There is so much to Sheffield or further afield.
to learn.”
learn and this excites me! What do you get up to
in your spare time? View the project Ruth has
What motivates you? Primarily, I am a mum to my two been working on under lead
If my research means that just one beautiful cats, Lily (Potter) and researcher Dr Kanthou on our
less person in the world does not go ET[\P3X]Z3d[Th 2daaT]c[h8P\ website, sarcoma.org.uk/research/
through the pain of losing their mum, doing up the house I bought when funded-projects/kanthou
Thanks to your donations, we have awarded £225,000 to
fund five Basic Science research grants
Basic Science aims to find out how something works. It usually happens in a laboratory and involves
carrying out experiments. An example of basic science research is looking at how a cell changes when it’s
exposed to different kinds of external influences or what happens to biological tissue when treated with
a new medicine.
We are delighted to fund our first Sayako Grace Robinson Studentship – an annual award of a PhD
studentship in sarcoma basic science. Dr Paul Huang, Team Leader in the Division of Cancer Biology at
the Institute of Cancer Research, has been awarded £119,960 to fund a PhD student to deliver a project:
“Defining the mechanisms of pazopanib and regorafenib resistance in soft tissue sarcoma”.
This project aims to discover how the body develops resistance to two chemotherapy drugs used in the
treatment of soft tissue sarcoma.
This research could help doctors test patients before chemotherapy to check the patient will respond to
the treatment. It will also increase knowledge of how to overcome drug resistance in sarcoma.
View all of Sarcoma UK’s research grants sarcoma.org.uk/research/funded-projects
Read Sayako’s story sarcoma.org.uk/research/apply-funding/sayako
sarcoma.org.uk Connect ~ Sarcoma UK ~ Summer 20 17 11Information
Immunotherapy treatments and only two of these can
treat sarcoma. These are:
~ Denosumab – used to treat
a type of bone sarcoma called
Immunotherapy is a new and developing treatment that aims to use the osteosarcoma
immune system to fight cancer. Our Head of Information & Support, ~ Olaratumab – used to treat
people with soft tissue sarcoma
2[PXaT:T[[TWTaTg_[PX]b\^aT that cannot be cured with surgery
or radiotherapy
What is the immune The main immunotherapy
system? treatments are: Both these immunotherapies use
It’s a network of cells, tissues,
and organs that protect the body
~ Monoclonal antibodies monoclonal antibodies (man-made
versions of immune system proteins)
These are proteins that are
against illness and infection. Some made in the laboratory. They that have been specifically designed
cells in the immune system can bind with a substance in the and made in laboratories to target
also identify and fight cancer. If the cancer cell and block signals these types of sarcoma.
immune system recognises cancer that tell the cancer to grow.
Challenge for researchers?
cells as different from normal cells,
it can kill them. ~ Checkpoint inhibitors There are over 100 different subtypes
Some proteins in the immune
of sarcoma. They all look different
system work as checkpoints or
Unfortunately, this is not always under a microscope and behave
brakes on the immune response.
enough to get rid of cancer. We know differently to treatment. The big
Inhibiting or taking the brakes
this because people with healthy challenge is identifying the right
off these checkpoints gives a
immune systems still get cancer. treatment approach for each subtype
stronger immune response.
Some cancerous cells may look like of sarcoma. This will take time as
This helps the immune system
a normal cell so the immune system researchers try to find ways to predict
identify and attack cancer cells.
S^Tb]^cSTcTRccWT\ 2P]RTaRP] whether certain therapies will be
also suppress the immune system, ~ Cancer vaccines effective in treating specific subtypes
making it less effective in fighting the These can help treat cancer by of sarcoma.
cancer overall. getting the immune system to
identify cancerous cells and The future
What is immunotherapy? destroy them. There is a potential for
A relatively new form of treatment immunotherapy to be an effective
that uses the body’s immune Some of these treatments are in the way of treating sarcoma. Recent
system to treat cancer. Some very early stages of development but research has shown promising
immunotherapies boost the immune they do hold hope for the future. results that could lead to treatment
system to work harder so it can fight options in the near future. Sarcoma
the cancer. Other treatments involve How can this help sarcoma researchers are continuing to test
giving drugs that contain man-made patients? new treatments and find out the best
components of the immune system Immunotherapy is a relatively new way ways to benefit sarcoma patients.
that can identify cancerous cells and to treat cancer. There are currently
attack them. only six active immunotherapy
Sarcoma UK
Support Line
0808 801 0401
supportline@sarcoma.org.uk
Contact us!
If you have any questions about
immunotherapy, contact our
Support Line
~ Our support line is
independent and confidential
~ We believe no question is
Photo by Matt Brown
a silly question
~ We lend a listening ear
~ We can point you in the
right direction
12 Connect ~ Sarcoma UK ~ Summer 20 17 sarcoma.org.ukPersonal story
What’s in my hospital bag?
Worried about what to pack for your hospital trip? We caught up with
social media expert and blogger Sarah Baker, 47, to find out what
things make her stay that little bit more comfortable.
Phone
For all the reasons you love your mobile, you’ll love it ten times more in hospital.
A mirror
There won’t be one by your bed. You’ll have
constant bed head. Ergo, a mirror. Ditto, your hairbrush!
Cereal
Bring in some cereal you love
to get those taste buds going
again. You might not like
what’s on the hospital trolley… Book
That book you’ve been meaning to finish
for ages, now’s your time to finish it, as
you’ll be waiting around lots. I would add
that I found my concentration very poor
immediately after my operation, so some
more frivolous reading matter that you
Something sentimental can scan or just take in the pictures works
I always carried a crystal from well. Ask friends to bring magazines.
a friend and a Japanese friendship
doll from my daughters as
reminders of their love and support.
Toiletries
Notebook and pencil case Things that will make you feel
You’ll lie in bed hoping better and smell good are
to remember to ask your important. Dry shampoo and your
partner/mum/sister to bring fave perfume will help to make
in some more clean socks, you feel human. Hand cream
but if your memory will instantly take the
is like mine you might hospital scent away.
need some help –
so write it all down
in a notebook. Mints
2W^^bTPRWTTah For me, getting out of bed wasn’t an option
colour to brighten for the first five days post-op, the odd mint for
your day. the surprise visitor will have you feeling more
confident when you can’t dash to the bathroom.
You can follow Sarah on Instagram @sarahbakerblogs and her blog sarahbakerblogs.wordpress.com where she talks
about dealing with her diagnosis and treatment of myxoid liposarcoma. Visit sarcoma.org.uk/sarcoma-types/
liposarcoma for more information.
sarcoma.org.uk Connect ~ Sarcoma UK ~ Summer 20 17 13Sarcoma Awareness Week, 3-9 July 2017
Join in
The Big Picnic
Sarcoma Awareness Week, 3-9 July, ties in with international
sarcoma awareness month in July. There are many ways you can
get involved whether you’re a patient, carer, family, friend or
supporter – there is something for everybody!
R
egister to host a picnic school, indoors or at a local club
in your community to raise or community space.
vital funds for sarcoma
research and support. ~ Plan what to serve at your
picnic. You might want to prepare
#TheBigPicnic
Getting involved is easy! Simply pick your own picnic snacks, buy
a venue, invite your family and ready-made goodies or hold
friends, organise some sandwiches, a potluck picnic.
and ask for donations. We’ll send you
your Big Picnic Pack full of tips and Invite your guests
advice, balloons, banners and even ~ Invite your friends, family,
a picnic blanket. colleagues and neighbours.
~ Send round an email invitation.
Here’s some great advice and tips to ~ Spread the word through social
get you started: media, using #TheBigPicnic.
Plan your event Ask for donations
~ Pick a location. There are so Ask your picnic guests to make
many options. You could hold a donation. You might want to
your picnic in a local park, at your suggest a donation of £5 or set your
workplace, in your garden, at your own amount. Don’t forget to have
your donation box handy – this will
be in your picnic pack.
Add some fun!
~ Bake sale Sell your delicious
bakes to your hungry picnic guests
~ Jelly bean jar Hold a classic
Support Line on Tour Our Support Line Nurses are visiting clinics of some ‘Guess how many beans in the
sarcoma specialist centres across the UK, so that patients have the chance jar’ competition
speak to our experts face to face.
to ~ Raffle Sell tickets on the day to
win bakes, or ask local businesses
Sarcoma UK podcas ts Tune in to listen to our sarcoma to donate prizes
podcas t series. Each day during Sarcoma Awareness Week, ~ Face painting corner The kids
we’ll be releasing a podcas t about sarcoma. We’ll be tackling will love it!
issues covering diagnosis, treatment and care. ~ Prosecco picnic Add some
glamour to your event! Who
Details on our website: sarcoma.org.uk/get-involved/SAW could resist a glass of bubbly
for an extra donation?
14 Connect ~ Sarcoma UK ~ Summer 20 17 sarcoma.org.ukContact us
Registered as a charity in England and Wales (1139869)
P]SX]BR^c[P]SB2 ##!% 0R^\_P]h[X\XcTSQh
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artist Magda Archer.
sarcoma.org.uk Connect ~ Sarcoma UK ~ Summer 20 17Until this morning, Hannah had
never heard the word sarcoma.
This morning was when a doctor
told her she has sarcoma.
There are so many questions Hannah didn’t have a
chance to ask. And she is scared. She needs to talk
to somebody who understands sarcoma, now.
Sarcoma UK’s Support Line Nurses are here for
every person affected by sarcoma.
Will you donate £15 a month
to give people like Hannah
somebody to talk to?
I’d like every patient affected by sarcoma to get the support they need.
To register, please fill out both forms. Form A should be returned directly to your bank (or you may be able to do this online),
and Form B to us at: Sarcoma UK, 49-51 East Road, London, N1 6AH. Form B notifies us that you have set up a standing order gift
and allows us, if applicable, to claim Gift Aid from your donations.
To the I wish to set up a regular Standing Order in favour of Sarcoma UK.
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and thereafter a similar payment *monthly/quarterly/annually
Postcode *please delete
until *further notice /the following date as appropriate
Account
name: Payee: Sarcoma UK Sort code: 40-52-40 Account no: 00019763
Sort code: Bank: CAF Bank Ltd Branch: 25 Kings Hill Avenue, West Malling, Kent ME19 4JQ
Account no: Signed Date
Name: I have set up a regular donation to Sarcoma UK by Standing Order
Title First name Surname
Home of £ per *month/quarter/year *please delete as appropriate
address:
I want to Gift Aid this donation and any donations I make in the future or have made in the past
Form B
4 years to Sarcoma UK. I am a UK taxpayer and understand that if I pay less Income Tax and/or Capital
Gains Tax than the amount of Gift Aid claimed on all my donations in that tax year it is my responsibility
to pay any difference. Please notify the charity if you: want to cancel this declaration, change your name
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Code: SUC17/2
or home address, no longer pay sufficient tax on your income and/or capital gains. If you pay income tax at
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Telephone: Gift Aid donations on your Self-Assessment tax return, or ask HM Revenue & Customs to adjust your tax code.
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